Just had my penultimate rads - and thought I would check out their 'bell' situation as the unit where I had my chemo didn't have one.
Turns out that this unit has a very delicate glass bell ....... I can see I am going to have curb my enthusiasm on Mondy ..... this could all end very badly!
Bythesea I will see if I can find it but will have to watch when OH not around has he hates medical programs
In relation to your tattoo you should get a planning meeting a week or so before your treatment starts which is when they take all the measurements and do the tattoos one in your cleavage area a one on your chest under your arms Remember you have to be in the exact some position for each treatment so make sure you are comfortable
I'm still in a bit of pain and stiffness in my shoulder but that's from an old whiplash injury
Hope everyone sleeps well
That's nice to know that the programme is positive Bythesea, the stories on the Stand Up To Cancer were upsetting to watch x
Found it Bythesea, so will probably watch it tomorrow when I'm on my own. Is it mostly uplifting though as I noticed it mentioned one lady who's bc is incurable, so wondered if I'd find it too upsetting to watch. Interesting that it's the hospital where you're having your treatment x
The gold jumpsuit, tunes, photos and vibes worked well!
Just home from a positive appointment. They removed all the cancer and analysis showed only 5% of the cancer cells had survived chemo. They took 12 nodes of which 6 were affected and they are confident they have got rid of it all with some clear ones to spare! No need for any more chemo (phew) and onwards to radiotherapy. Scars healing well and dressings off which feels strange but good. Huge thanks for all your support and kindness team November. xx
Positive thoughts winging your way AK 🌈 let us know how you get on! 💕
Just back from Rads at one hospital and Zoledronic acid infusion at another ..... and I left my phone at home this am ..... sure sign I am getting over excited!
Happy Thursday all xx
Thanks everyone for the support as I approach today's post-surgery results appointment. I am, predictably, a bundle of nervousness and worry this morning, but that is to be expected I guess. 3 p.m. seems a long way off and also horribly close . . .I will be drawing on Lesley's gold jumpsuit, Shi's tunes, HF's sunshine, Bythesea's beautiful photos and everyone's support to get me through today. Thank you all for being there and for always understanding and listening. xx
Anadan sending you big hugs 🤗🤗🤗🤗
Although I only had a lumpectomy they took over 5 cm so had one large boob and a very small one so very loopsided but I know I was really scared before surgery even at last minute i wasn't sure if not having a Mx was the right choice but I know when I woke up I had a peak then as soon as I could I'm sure it help me come to terms with the new me. I was given a small softer to try and even up my boobs but I've decided not to both and just go with it I've also been offered reduction
to unaffected boob but don't want to go through another operation so people will just have to take me as I am 😌😌
We will all be holding your hand and thinking of you 😘😘😘
Lesley, I'm home safe and sound! I had a little detour in Rochester first as YD wanted me to look in the material shop whilst I was there as she wants to make me a cushion! It was so lovely meeting you and having a good old chat! xx
Anadan - sending huge big bear hugs your way - as AK says, you are in the hardest place at the moment, waiting for it all and not really knowing how you are going to feel and deal with the changes in your body. But think of what you have already come thru, you have fought (literally) your way to here and you can get this nailed as well. And if you weren't emotional and worried about it then probably that would be more alarming. All the emotions you are feeling are normal ..... or as normal as they can be for anyone hanging around with us lot!!
We are all here for you and always will be.
I am in admiration for all you MX ladies, I know pre-surgery I was all very gung-ho about having a mx but if it had come down to it, I really don't know how I would have reacted. You are all an inspiration to me
Don't panic Bythesea, I am sure you will be fine.
But the soreness, redness and any 'reaction' can come out upto 3weeks after the end of rads and can reach a peak 2 weeks after.
I am sure it is all worst case scenario - and probably doesn't happen that often - they are covering themselves.
Do you know how many you are having? Any targeted? etc
Oh Anadan, I am so sorry you're feeling emotional, but know that it is entirely normal and understandable. I have had some real wobbles and also, strangely, some zen moments. The emotions can really catch us unawares, can't they?
I think the anticpation of surgery and what I would feel afterwards was much worse than the experience of the operation and aftermath to date. So, I would say you are in the hardest part of the process - still low and vulnerable after chemo AND anticipating something really anxiety-provoking.
I did look down immediately after I got back from recovery and it wasn't too dreadful. On the day before, I was showering and getting dressed and got tearful thinking it was the last time I would see myself 'in tact'. However, since then, I have managed to accept it because I suppose I see it as giving me the best chance. That doesn't take away the emotions but I have found it easier to manage than I feared. When I undress, I do look at my chest in the mirror to try to get used to it and so far, that is bearable. I am aware that I still have dressings covering the wound/scars until tomorrow, so it will be another milestone to see myself 'uncovered'. I think it is likely that sometimes I will find it harder than others, but mostly I am managing much better than I would have expected. I don't bother much with my comfies or knitted knockers so far because I would rather be comfortable and I am not out and about a great deal yet (it is only day 8 post-surgery) but when I have worn them, it has seemed pretty normal once I have my clothes on.
Does that help? I am around to talk more about any aspect of surgery, bilateral Mx, node clearance, recovery or anything that might be helpful. You are not alone and I promise we will always respond to one of the best of our November team! Sending love. xx
Well done Otter with the swimming - you are having a really adventurous week. Your confidence must be thru the roof!
Had my rad review meeting today - could be re-badged as 'how to frighten a patient'. Info on what could happen in the two weeks after rads finish and how sore and painful you will become! Fan bloody tastic!!
In other news had a fab catch up with Jencat - it's so lovely to talk to someone who already knows what you are talking about and gets it!! Thanks again .... hope you got home safe
AK hope you're appointment goes ok tomorrow
The only swelling I have is my knees at the moment which are also painful so prevention me excercise too much so took the plunge today and went swimming 🏊🏊🏊🏊for the first time in years managed 10 lengths of the pool 😌😌😌 now time for a💤💤💤💤 before lunch and maybe a walk if rain keeps off
Boobs a bit itchy after but had a shower and moistureisers after so hopefully chloride want affect it too much
Lesley hope yours isn't too bad you must nearly be finished
Hope you all have a good Wednesday
Hello everyone, I too have terrible nails. I have kept them varnished and treated with oil throughout but had to remove it for the operation last week and they looked awful - yellow, ridged, some random dark mottles. Horrid. One of the first things I did when I got back was treat and varnish again! Daft, but it makes me feel more like me. Keeping them short and tidy to try to avoid lifting - we’ll see.
I am in a predictable AK tizzy about pathology results tomorrow. Thanks Lesley for your sensible words (as always) which I am hanging on to as I approach the appointment. I am expecting that the surgeon may need to wield a drain too as I am pretty swollen, especially on the side of the axillary clearance (swollen seems to be a theme for us all at the moment) which doesn’t thrill me either.
wishing you all a happy a mid-week moment or several. Xx
Thanks to everyone for your support 🤗🤗🤗😘😘😘
The Met the New Team - Cancer awareness meeting at work went well and I turned up wig less 😱😱😱😱😱 I then went up to the office to see were I will be sitting and caught up with some of the old crew and I felt they all accepted the New me 😌😌 so hopefully the 8th want be too scary
My nails look like that too my little finger looks like it may lift and toes are a mess but at less I can hide them
Hope everyone is doing ok and resting when you can I'm going to have a nap as I suddenly feel very tired after my big morning out🙃🙃🙃🙃💤💤💤💤
Wow ladies I have a few days away and loads is happening.
Firstly well done to those who are going wig / hatless my head is not quite ready for that yet. One of my markers is that I have a scar on the crown of my head from where I cut it open when I was 5 years old - this is the first time the scar has been visible and when it is no longer visible I will go wig / hatless - at least then I know I have good coverage.
And well done Lesley to your son and to you too, it sounds like you did your own mini marathon. Congratulations!
Otter I too go back to work on the 8th May having been out of the office since mid November. Feeling apprehensive too even though I have been working from home through out treatment. I also have an hour and 20 min commute each way, which is another thing I am not looking forward too, but it wont be for long as the company I work for is shutting down the facility at the end of June, something I found out just before Christmas but have been expecting for a few years or so, so no biggy.
I too have funny nails, 2 have white ridges, it was 3 orginally but that was my little finger one that jumped ship. The others are yellowy a bit like a heavy smokers snails - nice!
I also still have my fluid boob that isn't painfull but just feels too big - a bit like when you start breast feeding and your boobs swell with milk. I was years ago recomended cabbage leaves for that was wondering if that would work now!
Hope the other surgery ladies are recovering well and haveing no more set backs.
Happy cloudy Monday !