cancel
Showing results for 
Search instead for 
Did you mean: 

November 2017 Chemo Starters

Member

Re: November 2017 Chemo Starters

Hi bythesea

 

OH should be one your side they should assess all the facts and it should be a planned response to getting you back to work when you are ready

 

I will have to have one soon as was off for a month after surgery then went back on a phased return for a month then as had to go through this lovely journey my GP has signed me off till the end of chemo Then as I will need radiotherapy not sure

 

My advice would give her all the SE you have suffered how it's affecting your energy levels and what if anything you can't do at the minute say like I find it hard to drive any distance so if you have to drive to work that's a no no

 

Hope that helps

Member

Re: November 2017 Chemo Starters

Morning ladies

 

Glad you are all ok😘

 

Yeah my poor postman nearly had a heart ache when I opened door yesterday 😊🤕 more bald patches than hair I must look a 😱😱

Member

Re: November 2017 Chemo Starters

Quick question, my work referred me to occupational health. Nurse is calling me today at 10am. Anyone had any dealings with them? Who's side is she on??? Do they build a case for getting rid if me or are they really just to see how my work can support me????
Member

Re: November 2017 Chemo Starters

Yay!!! Happy 1st December xxx.
Glad everyone one has had a better time 2nd time round. Long May it continue!
Poppywheel watch out for that se!!!!! I blame the steroids. Don't let the shopping get out of hand! Pah who am I kidding, spoil yourselves ladies, buy what you like. We are fabulous!!!! And the postman loves the baldy surprise. Mwah xxxxxxxxxxxxx
Member

Re: November 2017 Chemo Starters

Morning ladies! 

 

Good to hear you're all doing ok after chemo 2. Just remember to keep your fluids up, rest when you need it and take meds when you need them. 

 

Poppywheel, I too have a large balding spot on the top of my head. I find days 2-4 after washing are best as my curly hair stands on end a bit and unless you're standing above me you can't really see the balding patch. Earlier threads suggest wearing a hair band to cover up the balding spots. So you could try that. I just grin and bear it, there's a lady where I work who has really poor hair and I don't think mine is as bad as hers and she's not going through chemo!

 

Member

Re: November 2017 Chemo Starters

morning all

nausea seems to have abated, and no sickness, so a definite improvement on round 1

sorry you are still feeling it Poppywheel1 - which anti-emetics have they given you??

 

AnnaKarenina - sounds as if you are in control too Smiley Happy   I'd love to be going for a walk today, but it looks like one of those awful days when it doesnt get light!!

 

I didnt sleep too well, restless legs and the tingling in my right foot and hand started up again, which wakes me!   They have told me they are only worried about it if it doesnt go away, gets worse or is causing me to fall over, not walk properly, or not be able to do buttons up!!  If its that bad ..... I'll be telling everyone!

 

We are all getting there slowly!!

 

Happy 1st December everyone!

Member

Re: November 2017 Chemo Starters

Great to read everyone's updates. Otter, I am really happy about the job/work. Brilliant news. 

 

Lesley, Wilamena is wonderful - sideways, upside down, whatever! I am hope the nausea is manageable. I felt  fine for the first 3 hours or so and then exhaustion and nausea hit together. I went to bed and crashed out for 7 hours, so sleep trumped sickness. Or maybe it is sleeping sickness? Off to dose up from my bag of tricks and hope that will kick the nausea into shape. I also have a thumping headache like last time, but I am planning a walk this morning with my daughter which will be good therapy. I'm sorry my vein dance let you down and hope the PICC line goes well. I am having a portacath fitted next Thursday for similar reasons, provided my blood count is holding up okay. I am apprehensive but everyone says it is a good idea, not least the poor nurses who have to try to cannulate me. 

 

Poppywheel, Anna Bandana is fab. I also love Surburban Turban. Worth exploring if you haven't already. Thanks for asking about the eye sight and to Shi for answering. I had no idea but it has definitely been something I have noticed. I'll take the glasses SE over the nausea any day!

 

Hope everyone has a good day - stay warm. It is, as my grandmother used to say, schnogles out there. xx

Member

Re: November 2017 Chemo Starters

Good luck Lesley - I’m drinking loads and nibbling (loads 😳) too and fingers crossed so far so good.

I think I have another se though - just bought 3 hats from Anna bandana 😳🙃🙂. I’ve decided that my hair is going to at least thin, and if it stays like this I have a bald patch I would like to hide and I’m feeling the cold weather, so hats will be needed whether cold cap works or not. Well, that’s my logic!!!

Night all ladies, and well done 🙂🙂x
Member

Re: November 2017 Chemo Starters

 
Member

Re: November 2017 Chemo Starters

Good luck Lesley, sweet dreams xxx
Member

Re: November 2017 Chemo Starters

I don’t know if I dare admit the number ..... less than the pairs of shoes or handbags I have, but the same as the number of hats/head attire I have 😉

I don’t want to speak too soon but nausea seems to be under control - drinking loads and nibbling!

Have a good evening everyone
🤗🤗
Member

Re: November 2017 Chemo Starters

Woo hoo!!! Well done ladies!!!
Lesley wig is fabulous, I remember you said you'd went mad buying them but how many W's are there????
Well done on the job Otter xxx. I knew you were fabulous!!!!!!!x.
Roll on the weekend, my Christmas tree is acclimatising in the garage. He's lovely xxx
Shi Community Champion
Community Champion

Re: November 2017 Chemo Starters

Poppywheel, then needing glasses more is a se of the chemo. We had this chat on Oct thread a few days ago. Also the cold cappers on Oct thread have stuck with it, are you fec all the way or swapping to t after 3rd fec? When you go onto t the hair starts to come back on your head but your brows and lashes go (the May ladies have advised us luckily) 😘😘💕💕✨✨shi xx
Member

Re: November 2017 Chemo Starters

I will Meesh, had the ones in the drip as normal and took a tablet before I left the unit, next one at bedtime ... I won’t be skimping on then!!
Member

Re: November 2017 Chemo Starters

Lesley, make sure to take meds if you're beginning to feel sick!

Member

Re: November 2017 Chemo Starters

Thanks poppywheel I’ll have a look.

Mine was the same today as last time, syringe into the cannula whilst the drop was running.

Tingle in my foot has started up again and I can feel the nausea beginning to build, but it’s a few hours later than last time!!
Fingers crossed it’s not too bad!
🤞 xx
Member

Re: November 2017 Chemo Starters

I mainly drink water anyway even prior to chemo and loads of it too so I never have trouble with the 2L either. I try to drink nearer to 3L day prior to chemo, chemo day and day after.

Member

Re: November 2017 Chemo Starters

Thank you it's just such a relief not to have to worry about the future in relation to finance's

 

My GP has signed me off until I've finished chemo but didn't want to tell my LM until I knew about job just in case they used it as an excuse to get rid off me

 

Know I will try an focus on getting through this🎢 with all your help 😊😘

 

Hope todays cocktails have gone ok and you are all resting

 

😀😍🤗

Member

Re: November 2017 Chemo Starters

Hello ladies,

Well done to everyone who has been on the 🍸🎢 today - rest up and drink loads.

Lesley - I’m using a limbo sleeve (got it free through NHS) - very good & effective but try and get one through your NHS as I think they’re quite expensive. I have other issues which means I need something that will withstand lots of water and movement, and it seems to be doing well so far. Hope you got on ok today - one third of the way there yippee.

Think I need to start wearing my glasses, hmmm - vision seems to have got worse.

Nurse who did my cocktail today did it quite differently to last time - he did it with the drip running. They didn’t do that last time and were about half the time. What experience do others have?

I cold capped again too, with a lot of indecision, but my hair is coming out now & I have a bald patch 😥😪😢.

Well, tea is calling me...

Take care ladies xx
Member

Re: November 2017 Chemo Starters

Meesh I probably have in excess of a dozen large mugs a day, I have it weak and on occasion top it up with hot water if I get distracted and it's gone cold.

 

Getting 2l down isn't a problem!   Smiley Happy 

Member

Re: November 2017 Chemo Starters

Otter, meant to say good news on the job front, well done!

Member

Re: November 2017 Chemo Starters

Lesley, well done on chemo 2 you need to rest up now and get that water in You! Good news on the green tea, I also drink green tea. I haven't stopped during chemo but then I only have 1-2 cups a day and figured that probably wouldn't hurt.

 

Your wig looks fantastic I'm so jealous!!!

Shi Community Champion
Community Champion

Re: November 2017 Chemo Starters

Great news about the job otter, just look after yourself through this though and don’t let work stress you in any way, your well-being is what matters at this moment in time lovely 😘😘😘Lesley, hope you are resting up and getting the fluids in 😘😘💕💕✨✨to all shi xx
Member

Re: November 2017 Chemo Starters

Lovely photo Lesley and good news about the job Otter
Member

Re: November 2017 Chemo Starters

thanks Shi

 

also meant to say, there was a lady in the unit today having her last treatment.

She ended up being admitted for 5 days last week with sepsis because she didnt let anyone know she was unwell.

 

She had been monitoring her temp which was elevated and was cold and shivery and generally feeling unwell.

It was only when her daughter insisted and called the GP that he escalated it and got her to A&E 

 

I asked my nurse about it because a couple of times in chemo 1 my temp was over the 37.5 but dropped within a few hours, I think I run on the warmer side of normal.   She said a consistently raising temp or a high temp that doesnt drop is a red flag, but the biggest red flag is the cold and shivering.

 

I don't mean to alarm anyone, but thought I would share ....... it's better to raise a false alarm than be admitted!

 

But fair play to her, she got her bloods sorted and has left today knowing that she wont be having any more chemo!!

Member

Re: November 2017 Chemo Starters

Lesley love your wig x
Shi Community Champion
Community Champion

Re: November 2017 Chemo Starters

Lesley, brilliant photo you’d never know it’s a wig you look amazing lovely, well done getting through chemo, rest up, drink loads. 💕💕✨✨shi xx
Member

Re: November 2017 Chemo Starters

IMG_7434.JPGIMG_0133.JPG

Sorry not going to spend hours trying to turn that one the right way.   the highlights in are fab, the photo doesnt really do it justice and you can see thru the parting so you can see my bamboo skin coloured skull cap!

 

Well done Otter, glad the job is resolved and you can concentrate on getting thru chemo.

 

All my wigs are named - all with a W name!

 

Thats me done now, time to veg on the sofa I think, its been an emotionally draining morning

 

xx

Member

Re: November 2017 Chemo Starters

Hi ladies

 

I think I will have to give my wig a spin on day soon 😊👩

My hubby has named it Wilma too as he says I look like the one from the Flintstones 🤔🙃 not sure if that's meant to be flattering or not

 

Good news heard I keep my job 2 are going which is going to be hard to manage workload but as everywhere cuts need to be made

 

Xx

Member

Re: November 2017 Chemo Starters

Well done Lesley!!! Wilomena photos required my thinks. Was that the three triplets from the bath??? Wendy, wilma and wilomena????xxx
Member

Re: November 2017 Chemo Starters

Hi Lesley I was given a blue plastic sleeve at the time of fitting. I think that there are other options on the internet but this works well for me. I have the smallest one it's quite tight but works. I was also told that you can try just wrapping it with clingfilm. Hope this helps Carole x
Member

Re: November 2017 Chemo Starters

Hi Lesley, you can get a sleeve on prescription they are called limbo I think. It’s the one I have and it has worked well. Might be worth phoning your GP to see if you can get one x
Member

Re: November 2017 Chemo Starters

thanks Carole

any recommendations for sleeves for the shower??   I am sat here looking thru t'internet and not sure what is good and not???

Member

Re: November 2017 Chemo Starters

Good to hear Lesley that Wilomena is wowing everyone.
A PICC line is standard where I am, I think it makes everything so much easier for them.
Member

Re: November 2017 Chemo Starters

and the onc has prescribed the clarityn for me as well - so thats a real endorsement!

 

Had to get the vascular nurse down to get a cannula in, so I will be leaving here with a PICC line fitting appt as well.

 

but on the positive everyone has commented about Wilomena the wig!!  Sister thought it was my own hair!!

Shi Community Champion
Community Champion

Re: November 2017 Chemo Starters

That’s good news about the green tea Lesley, I’m going to ask my onc again next week now about this as Iove my green tea too. 😘😘hope everyone’s treatments, appointments and se’s are treating you kindly my lovelies 😘😘✨✨💕💕shi xx
Member

Re: November 2017 Chemo Starters

It was the unit manager!!
I’ve brought some on for them too!!
Member

Re: November 2017 Chemo Starters

Clarityn is also good to go!!
Member

Re: November 2017 Chemo Starters

Lesley I read this blog a while ago and thought it was interesting http://blockmd.com/2014/04/30/matcha-tea-and-chemotherapy/
Good to hear a U.K. HCP give green tea their blessing 😁😁
Member

Re: November 2017 Chemo Starters

Update ladies - green tea ..... drink as much of it as you can!!!
Woohooo!!
Member

Re: November 2017 Chemo Starters

Good luck today Anna and Lesley and anyone else on board xxx. Happy Decembers Eve to everyone else. Bon Jovi is getting closer xxxxxxxxx
Member

Re: November 2017 Chemo Starters

Good luck to anyone heading for chemo and other appointments today x
Ruth, I hope that your PICC behaves today, you are due some luck x
JC, hope today is better for you, just take each day as it comes, I had a very low couple of days this cycle then suddenly woke up on day 8 and felt like I could conquer the world and I scrubbed the house within an inch of its life, so don’t despair x
Member

Re: November 2017 Chemo Starters

Hi Carole I do now😁 Have been conscientiously looking at several times a day! Glad to hear your flushes are being done well ♥️♥️
Member

Re: November 2017 Chemo Starters

Thanks for the info Ruth. I have a PICC line and am only one treatment down, so just two line flushes.
Bit scary that the onc nurse is telling you how to look after the line and to pass this on to the district nurse. My first flush was done by the area PICC specialist, and yesterdays by a nurse with a student nurse and she did the pulsing bit and explained that all so hopefully my team are okay.
Do you regularly look at the clear bit yourself so would spot anything early.
Thanks Carole x
Member

Re: November 2017 Chemo Starters

Good luck to today's ladies 😘😘😘
Member

Re: November 2017 Chemo Starters

Good luck to all having chemo 2 today 👍🍀💫☄💕🤗🤗🤗🤗
Member

Re: November 2017 Chemo Starters

Good luck to all todays 🎢🤗🤗🤗🍀🍀🍀😘😘😘
Member

Re: November 2017 Chemo Starters

Morning Lesley good luck to you today too x
Member

Re: November 2017 Chemo Starters

Oh AnnaKarenina you are going to have a long old day!
I’m in at 10, but as if my want I’ll be there mega early!
Finally flurry of activity as I strip the bed and wash anything that stands still long enough.
I’d cut your hair if it was me - take control!!
Take it easy Monday though, you could be a little low???
Hope everyone is wrapped up warm and feeling ok!
Nearly the end of another week .... getting closer to the end with every day!!!
😍❄️❄️☃️☀️💫💕💕💕😍🤗🤗🤗
Member

Re: November 2017 Chemo Starters

Morning Anna good luck today x
Yes cut hair before wig fitting especially if you are having any cutting to your wig as they do fit different with and without hair
The wig shop I used did not to cut mine whilst I had hair because of it xxx