just wanted to check in to say, I'm feeling a lot better - really tired, but I've done bugger all day.
No steroids tomorrow so I will be being kind to myself
thanks for your support everyone
fingers crossed for the right strictly result!!
thanks shi, I have your voice in my head at times like this, the last place I want to end up is in hospital over the weekend!!
pee is good, I think it might be a sugar low more than anything, just had some ginger nuts and definitely feeling better.
Thats the problem with sleeping it stops you doing the other stuff.
Thanks Moma-Shi .... temp is ok 37.0 and I generally tick over at 36.8/9 anyway.
Looking at my diary last time I was pretty wacked out with fatigue on the sunday and monday, so perhaps to be expected.
The nausea I am surprised about though ..... I thought if I got this far I would get away with it .... but clearly not.
I will keep monitoring, I dont want to sleep too much, as I might not sleep tonight and also cant drink whilst I'm asleep!!
morning (just) all!!
bit of a weird one for me I think.....
woke up at 6 after a good sleep, got up and made a brew, went back to bed, prompty threw brew back up!!
I managed to get another drink and some toast down and then took all my meds.
Then promptly fell back asleep at around 9 until just now.
Very vivid and scarey dreams
I can feel my nausea building again and dont think I will be having the shower and walk I was intending, more like staying in pjs and drifting from bed to sofa ......... I have hit the fatigue wall ...... well and truly.
feel a bit shaky as well.
Got to skype the parents now - that wont last long - but they'll worry otherwise
Happy Sunday everyone 🤢
A mixture of chemo support and Strictly - I love this thread.
I had never heard of Joe before, but he has maybe become my favourite, although he does wear weird training clothes. I like progress and he seems kind. Those tick my Strictly support buttons! There is no one I really dislike left though, so I am pretty easy about what happens next. In the count my blessings moments, I seriously am grateful that I had to go through diagnosis/chemotherapy when Strictly is on the TV. It is as valuable as my Movicol, steroids, sickness bands and ginger and lemon tea.
Day 3 post-cycle 2 and not so bad. Exhaustion is lifting, slept better (those things may be related) and managed to exercise this morning. Off for a walk along the river this afternoon before collecting daughter from her first holiday job as a Christmas Tree Sales Elf - the laughs from seeing her do that will make the day easier! Then it'll be snuggling down for the results show and if I can hang on, Howards End.
How is everyone else doing today? Fog lifting? So hope wherever you are, you all have a good and healing day. xx
Morning - happy Sunday 😊, not so bright here today & yes I agree vote for Joe. He has such a gorgeous smile 😁💕💃 xx
Yeah Mollie or Gemma definitely vote for Joe 😘😘liked him every since he was in Heartbeat 😘😘😘😘( showing my age again 😊)
Hi Sam, do you have a 24 hr number to call? I'd call them as they can look up your records and maybe explain to you what the problem is and allay your fears. As Sue, said they do check liver and kidney function as I think the chemo can affect these. Hopefully it will be nothing to worry about, I think the liver is one of the organs that can regenerate.
Lesley, glad you're doing much better this round. Enjoy that chocolate!
Glad you november ladies are doing ok. Strictly tonight 💃🕺🏻💃🕺🏻💃🕺🏻💃💃👯♂️👯♂️👯💃🕺🏻💃👯💃🕺🏻👯♂️
glad you are back on track JC!
I can't quite believe it but I've just been to the tip and a quick trip round sainsburys to pick up all the things I am craving! A very odd basket I will have you know!!
All on day 3 ...... I only just managed to get out of my pit for a few hours on chemo 1.
But I am going to hit the sofa now with some box sheets and all the chocolate I have just bought.
Sam - let us know how you get on - thinking of you
hugs to all
Happy Saturday 😊
Phew!! Now feeling back in the land of the living!!! I really struggled days 6-9 with fatigue - my body wasn't my own. If felt as if I had been hit by a steam train. But it's Christmas decoration day here today, so I shall be supervising!!! I think part of the fatigue problem for me was that I had gone off water, I struggled to find a drink I enjoyed and I didn't get out for my daily walks (vicious circle of feeling tired, plus it was cold).
Lesley, you look absolutely fab in your wig. Hope you're doing ok after Thursday 🤗💕
Otter, brilliant news about you job. A huge relief for you 🤗💕 my taste has gone weird too, not fancying my morning cuppa. Last night I had some warm ginger wine - now I sound like my aunt, but I really enjoyed it 😋
Sam, do you have a 24 hour contact number, they may be able to help ease your worries, or tell you who to contact. Take care of yourself 🤗💕
Regarding hollow tummy, I found for the first few days after chemo I nibbled on ritz crackers. Also wearing the travel sickness bands seems to help.
Elora, enjoy your good days, I try and have something planned as I like having something to look forward to. Dinner at a french bistro with friends next time, center parcs Woburn for a few days over new year (not that I'll be doing a lot but it will give the family a chance to unwind & I can take in the scenery). Good luck for next week 👍🤗
Bythesea, hope all went well for you with the OH and they were understating and compassionate about your situation 🤗
And to all the other lovely ladies on our thread, AnnaKarenina, Meesh, Sue, Poppywheel, Ruth, Shi , sending you all 🤗.
Enjoy your weekend everyone
My taste is definitely off can't even drink a cup of tea first thing in morning have to have hot ribenena🍑
Otherwise mainly savoury stuff cake and biscuits so I will be the size of a 🏠 as with FM my energy levels are very low
Hi annakarenina, I've not suffered really with fatigue yet 🤞🏻the yoga is keeping it at bay at the moment. Although I have felt a bit more tired the last few days, not sure if that's due to going into work. I've found my taste buds are ok so far. I can't even think about food I eat on chemo day until about now on the cycle (I'm on day 19 and due to have fec 4 on Tuesday). I also couldn't eat anything sweet on after chemo 1 but after chemo 2 had bad cravings for biscuits and cake. This round has been crisps, nuts and savoury stuff. I've tried to limit the sweet stuff thus round and tried to eat a bit more healthily as last cycle I put 4lb on. I think this cycle I've limited it to 1 lb but I'll end up the size of a 🏡 if I carry on like this!
How is everyone this morning? I am amazed and disconcerted by the way exhaustion hit me like a train yesterday afternoon/evening. I was tired post cycle 1 but nothing so dramatic or instant. I am fine this morning after some sleep (still waking early alas) - we'll see what happens later. Can't miss Strictly tonight!
No hollow stomach feeling for me, but definitely get nausea if I don't nibble on something regularly which isn't great when I am less active than usual and struggle with my weight. I am trying to keep on exercising and make the nibbling healthy, but I do seem to crave carbs/salty flavours. Taste buds are weird - stuff I usually love is like cardboard but I can't get enough of pineapple, apricot wheats, salted quinoa crisps, cherry tomatoes and rhubarb. What floats your food boat at the moment? xx
Hi Otter, I had Metoclopramide for chemo 1 but they replaced it for chemo 2, my unit thinks of it as a 'starter' anti-emetic as its quite a gentle option - and they advise you to take it as required - cant be any harm trying it!!
Hi thanks I've got Metoclopramide but haven't really taken much do you think it might help otherwise if I keep eating I be the size of a 🏠
Thanks I'm day 9 and had it a few days wondered if it was as I was no longer taking anti sickness meds
Otter, I think chaffinch mentioned the hollow feeling in her tummy, perhaps she'll be along later to help you out. I usually get a jittery/ shakey feeling in the mornings of days 6-8 onc said that was normal.
Silly question but does anyone get a funny hollow feeling in my stomach not sure if it's just hungry but still get it after I've eaten 🤔
I think it depends organisation to organisation for phased returns.
I've seen where it's not recorded as anything, to being classed as annual leave, and if you dont have the leave then you have to take it unpaid.... which is a bit of a bummer
If you do work shorter hours the rest would go down as sick I think. My employer said if I wasn't well enough to work full time through chemo I could go down to 20 hours (it was called something but can't remember what) and the rest would be sick leave.
Hi Bythesea, I would echo Lesley and otter's comments. I had to the interview for the job I've been doing since January a week after chemo 1. I was immediately suspicious that they didn't want to promote me because of the bc and it's easy to jump to conclusions. But remember that as otter says you can't be discriminated against because of the bc. I got my promotion which I thought funny as now if I go off long term sick they have to pay me more money! I haven't had to see OH but do know as a line manager that it is probably to see how your employer can best help you. Are you working during chemo? If you are it could be that they may support a suggestion that you work shorter hours or that you can work from home some days. In addition to phasing you back to work longer term after treatment.
Also your employer are meant to take any recommendations OH suggest into consideration and don't forget as we have this lovely C we are protected in law
They can't get rid of you if the decision is related to Cancer
sorry meant to say
as Otter says they can be really helpful around phased returns, if they say it has to be done that way, then thats how it happens.
when do you go in to see them?
Bythesea - I've had lots of dealings with Occy Health, from both sides of the table.
As someone referred to them, I found them supportive and kind - they listened to what was going on and made suggestions and came down on my side.
From a line managers view point, I would always say they are on the side of the 'patient', although when challenged they say they are impartial.
This was over a couple of organisations so wasnt just one team.
dont worry - it's not as if you are blagging it - give them the baldy look and they will shut up!!