Happy Easter, lovely ladies 🐣🐣🐣🐣
Bythesea, good you can enjoy your stay in hospital 👍😀
Thank you, Lesley xx this is what I’m thinking too ... I must be careful! They can be good throughout the whole walk and then, one sudden unexpected pull because there was a squirrel jumping from a tree 😱
Hello lovely ladies
I’m finally emerging from the darkness. It takes longer every time, but there will only be 1! more !!! time. 😀🤸♀️😀I can’t imagine how weak I am ... ☹️my legs are shaking when I go up or down the stairs. But tonight, I’ e been hungry, first time in two weeks, that’s a good sign I’m just in time, ready for hols and some quality time with the girls.
Bythesea, you’re my heroin, three ops! I’m happy you like the final result. Well done you! 👏👏👏
JC, can I ask a question? after your mx and nodes clearance, how careful are you with your arm? How long did it take to be ‘normal’ re movement and strength in the arm? Does it get swollen when you do too much? I have two big dogs, they pull on lead, I wonder when and if any time again I will be able to walk them without asking for help. Thank you 😘😘
Anna Karenina, are you ready for the next step?
Hi AK - yes I have learnt the hard way that I am not as fit as I thought I was - totally wiped out ... to the point where I would normally have gone to OH yesterday but told him we would stick to our normal weekend plans so will be heading over there shortly.
Rads on Tuesday - so I need to get myself match fit again!
Just wanted to share aswell - I bought these ages ago when the hair went but have only just used them today - very very effective and so easy to use. My own, very heavy brows have finally given up the ghost. But these look great. Promise I'm not on commission!!
Have a lovely Easter everyone xx
Hello everyone from a very rainy London, just dropped by to see how everyone is doing.
Otter and Carole, I hope you're contnuing to take it easy after your surgery? I am just putting together my packing list for my bilateral Mx in a couple of weeks which is making it all seem very real indeed.
Lesley, do take it easy with the 4 am starts (sorry to be a fussy flo) - you have been through a lot and I reckon we all need to be kind to ourselves. Have you got a relaxing weekend planned?
Jencat, lovely to see you here - the October thread was such a source of information and support before I started chemo.
Anandan, JC, Fmb, Harryfiddler et al: thinking of you all and hoping all is well with you.
Happy Easter November gang. xx
My aunt had BC over 30 years ago she is now 84 and she only had surgery and was on Tamoxifen for 5 years so she is helping me to stay positive about the future 😘😘😘😘🤗🤗🤗🤗
Been a horrible 🌧🌧🌧🌧🌧🌧🌧🌧 day here just hope we get some 🌞🌞🌞🌞🌞 soon
I saw Dr <Doctor's name removed, as per Terms & Conditions> at Guys, he was so helpfull and gave me lots of info on BC in general as well as the genetic stuff.
I’m under east Kent - rads at Canterbury.
I’m generally very positive about my outcome. I’ve already taken steps to improve my diet, though like you Jencat, it’s not that bad to start with.
Technically speaking we are almost at the 1 year mark already 😀
I went to Guy's as well Lesley. The doctor I saw ( I think her name is <Doctor's name removed, as per Terms and Conditions>) said results will take 8-10 weeks! I've got 2 daughter's, so I feel anxious for them as well.
What trust are you under? Mine is Medway and I notice Gillingham is listed as participating in the asprin trial (thank you for the link) I don't live there myself, but that's where my hospital is.
I'll have to ask my onc about having Zoldronic Acid for 5 years rather than 3. She said the first 2/3 years recurrance is higher than other bc's, but after 5 years, we're the same as other bc's. I was slightly comforted when I received a copy of the letter my onc sent to my consultant and doctor that she said because I'm TN, I have a slightly higher risk than other bc's. Sounds better than high! Also, on a positive note, as you say by continuing treatment, we're still being monitored.
I hope in a bit more time, I'll be able to move forward and not be paranoid that because I'm TN, there's bound to be a recurrence. My ED works with someone who had TN bc over 5 years ago and is still doing fine. My daughter did say that she eats very healthily, so after radiotherapy, I think I need to review my diet. It's not terrible now, but I think it could be better!
I've also got a friend who is doing well 10+ years after having TN, so that gives me hope too xx
Yes that's what my onc told me about the Zoledronic acid as well - but recurrence is high in the first 5 years ... so if other trusts are doing it for 5 why not ours??
She also mentioned the add asprin trial as well to me - here's the details http://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-looking-at-whether-aspiri...
I had my genetics test back in november and got the results at the beginning of the year - went to guys for mine. I had to chase for the results though!! Fortunately they came back negative, fingers crossed yours do too!! xx
Lesley, I hadn't thought about the connection of Zoldronic Acid and still being under the oncologist, that's a good point! I'm TN too, so I find it a bit reassuring to be having the Zoldronic Acid. I don't know what your onc said about it, but mine said that it helps to strengthen the bones, but also recently in the US it had shown that it also helps to prevent a recurrence of bc. Maybe it's only usually offered for 3 years because it's in the first few years that a recurrence is higher?
What is the asprin trial that you're going on? Did your onc suggest it to you? When I saw the genetics consultant a couple of weeks ago, she said you have to ask about going on trials.
Find it quite hard that the genetics test takes so long before they give the results xx
As we said JC - every trust seems to do things diferrently!!
I know of other people who are on it and they are all 6 monthly but for 3 years - Dr Google confirms that it is recommended for 3 to 5 years!!
But who knows what they will be saying when we hit our 3 year mark.
The thing I like about it is that you are under the oncologist all the time you are on the zoledronic acid - they can't discharge you ....... and it's a lot easier to get back in to see the onc if you have any worries than the surgeon!! Especially for me as a TN with a high recurrence rate and high rate of spread! Gives me a little more confidence going forward that there is someone in my corner!
I start next week ☢️ I started an April Rad thread as well - not a lot of activity on there tba!
I am seeing the onc next Friday as she wants to consent me for the add asprin trial - I have a list of questions for her and 5 yrs of zoledronic acid will be on there!
I didn't notice any change in SE when it was given with the chemo but who knows what it will be like on it's own!
Hi Lesley and JC, I'm having Zoldronic Acid for 3 years. I've had 3 lots already alongside chemo, every other one. I'll be having it again in April and then 6 monthly. Don't think the SE's were any worse on the one's where I also had Zoldronic Acid. I didn't know you could have it for as long as 5 years, wonder how they decide how much to give us?
I'm from the Oct thread, but think I'll be joining some of you for radiotherapy as I'm not starting that until the middle of April xx
Bythesea - you should be so proud of yourself - three lots of surgery in a relatively short space of time! you are an inspiration!
But as Carole says, rest up and don't do too much, listen to what the professionals say and then try and comply!! I'm a fine one to talk though!
Carole, glad to hear you are improving every day
I've had a very busy couple of days - and to be honest, probably done too much too soon. I know I need to invest in some new overnight luggage - pull along bags and breast/node surgery/treatment don't mix!! And I think I may have to abandon my beloved 'throw everything in it' handbag that my son bought me
As the sun is shining here, I think I might potter in my garden today, before I head off to potter in OH's garden for the weekend!!
Anadan - how are you doing on your injections?
hope everyone is ok!!
love to all
Morning - and It's a beautiful one here ☀️
Yes, welcome to our animal club - 🐷
I remember waking up in the night and almost filling a pan 😄 but no I'm not having any radiotherapy as I had my mx with 8 nodes including auxiliary removed last July, followed by chemo. I'm now on letrozole, with zoledronic acid, for minimum of 5 years.
I've now got to decide whether to have reduction or mx on my right breast, but no rush.
Bythesea & Carole , enjoy your rest and the good weather and your pert little boobs
Happy Maundy Thursday 🐣🐰
Good luck today Bythesea - sending positive surgery vibes your way
Carole - stay on the sofa and rest up - get Netflix running!
JC - did they give you the green light to go away? Glad everything else was good. What's the rationale for the regular MRIs? As I head towards the final stage of treatment I am thinking more and more of surveillance and it would be good to know what 'regimes' are being adopted in other areas!
Lesley I know what you mean I was slot happier after first I did get a bit nausea but was due to stiff neck I still had some anti sickness left from chemo so took one which worked fingers crossed you will be ok
Carole I hope you like your new boob 😊😊 and you are resting
Oh no, I am so late to the board today that I have to say 'good luck' and 'well done' in one handy message to Carole! I am in awe of your cheer and spirit. I also love, love, love the paper knickers hint. Huge healing thoughts coming your way.
Lesley, your Monday boogie was just the ticket. I have done a full day at work and it was pretty darn good to be back in the world (I was working, but often at home and in a flexible way during chemotherapy). Only a few weeks of working properly until surgery, but it was good for me to do it and I think is a good way to mitigate pre-surgery anxiety.
Sending love and Spring-like waves to the team: JC, HarryFidder, Otter, FM and Anadan plus all who visit the Board less often. xx
I know I am being a woose! But it's the 'fear' of the unknown really, I 'll be fine after the first one.
I'm also worried that because the T didn't bite me on the bum that the rads will. I've read about instances of ladies getting nausea and upset stomachs from the first one and lasting all the way thru - and there's nothing they can give you - it's not like the chemo nausea apparently!
Fingers crossed it all ok - I'm sure it will be ......... what could possibly go wrong!!
But I will lie there and think of the brave ladies going thru surgery and have a word with myself!! 😍
Yes I use the udderly cream as well normally in morning and at night .but the gel is nice and cooling straight after session to cool it all down
SE so far haven't been too bad way better than chemo 😊 mainly it's the tiredness of going everyday and as I have joint pain must the position you are put in
In relation to what to expect the worst bit is them getting you into the correct position as you have to be exactly as you were in the planning meeting so the Canberra a bit of pulling around as you have to let them move you 🙃🙃 I've only had a student once so far and it took her an age but as its a teaching hospital I don't mind as they have to learn she was just moving me out of position as some times it only a very small movement
The actual treatment doesn't take very long you just have to stay very still while the machine moves round you so a bit odd really like being in a scifi movie 😱😱
Hope this helps but you got through chemo so this is a walk in the park in comparison
Glad it's going ok for you Otter - I will be using my udderley cream - reverting to it's original use..
Really don't know what to effect SE wise and getting a little apprehensive