Hello lovely people, I am home, dressed, compressed and with wig/makeup on which feels much better. Surgery on Monday was much less terrible than I anticipated (then again, my mind has a capacity for nightmare scenarios which would put a dramatist to shame).
I had a disappointment afterwards when the recovery nurse told me that they had taken 4 nodes, but I subsequently learned that was a mistake and it was full clearance. Still, the surgeon apologised for the misunderstanding and explained why it was the right thing to do. Apparently post-chemo, the dye can be blocked from running to a sentinel node either by disease (gulp) or by fibroidosis/scarring from chemotherapy. I am, of course, terrified it is the former, but we won't know until I get my results next Thursday afternoon. I am trying not to worry but it is so hard - I am dreading the potential of bad news and more chemotherapy etc.
For now, I am (mostly flat) on both sides with a bit of swelling. No drains as my surgeon doesn't use them and managing okay in terms of pain. I came home yesterday morning. I am exercising as instructed three times a day to maintain movement and overall, surprised at how I am doing. The sun is a huge bonus. I am about to sit in the garden and read my book which is quite the treat for a Wednesday in April!
Bythesea, I am so sorry about your horrible experience - you so deserve a break.
Lesley, how is your red boob doing?
HF, are you feeling better?
Anadan, how are you doing post-final chemo and pre-surgery?
All on the thread, thank you for your love, friendship and support.
thanks Bythesea - let us know how you get on this afternoon 🤗
They have finally agreed to the dressing prescription for me - as if they had an option!! But will have to wait until tomorrow to pick it up and then wait in pharmacy for them to fill it .... good job I'm not desperate for it.
Lovely sunny, warm morning in Kent - always a good sign when you need your sunnies before 8am 😎
Don't forget the factor 50
I haven't started Tamoxifen yet as GP hasn't received letter from hospital got an appointment on Monday so hopefully will get them then which would give me 2 weeks on them before I start back to work for any extra side effects to show up
Thanks for your reply Lesley, hope you're going OK in the run in.
I have decided to take part in the run in, see how it goes too.
Start tomorrow after signing up and blood test etc today.
I guess it can't hurt, except for if I get heartburn during the run in, which I do get from ibuprofen, so I shall see!
All the best!
My nails are also a before and after look and one has lifted toes look out but rarely get them out anyway
Lesley I would say the SE for rads peaked towards the end but really only last about two weeks but still feel very tired and joints swollen stiff and painful but once said this was hangover from chemo
Hope all surgery girls are doing ok
Been 🌧🌧🌧🌧🌧 here so hoping we get some 🌞🌞🌞 tomorrow
Half way thru rads for me - still arguing with them over who is going to pay for my dressings - don't get me started!
Eyebrows and eyelashes are still conspictuous by their absence but my hair is growing - still got a bald patch at the front though. Had to epilate my legs at the weekend - a few rogue hairs coming thru.
I was going to ask about nails. My finger nails are definitely displaying a 'before and after' look half way up and I noticed yesterday that some of them are lifting half way up as well - I wouldn't be surprised if I lose them 😫 I keep my toe nails super short so I actually think apart from my big toe it has all virtually grown out. Time will tell.
Bythesea - how are you getting on? Have you had your next steps confirmed yet? Home now?? Sending hugs and a wee dram or two!
AK - are you back with us yet - I know you read these and post later - so love and hugs and healing thoughts winging their way to you.
FMB - have you had surgery now?
Otter - when did you find that all your rad SE reached their peak? Was it after you had finished your sessions?
HF - nice to see you have finally sent us some of your warm sunshine - thank you!! Hope you are continuing to heal well.
love and hugs to all
Thought I would ask how you've all got on today with ops, recovery, rads etc ...
I lost one of my big to nails this morning , still that chemo keeps on giving ...
But on a good note along with hair on too I have a few eyebrow hairs slowly showing themselves and on a closer inspection there are a few eyelashes popping out too. I have other bits returning too 🙄
Wishing you all well
AK - holding your hand all of the way today and in the coming days! stay strong!!
Love to everyone else as well!
My redness had calmed down over the weekend but the radiographer said after the 40sec of treatment it had flared up again. They are reluctant to give me the dressings that help as they cost the NHS £5 each and only last 2 days????
Slightly annoyed at this approach. I've looked and I can buy a pack of 5 for £18. I will see what they say tomorrow but I can see an Amazon shop going in soon!!
Hope rads goes ok tomorrow and boob isn't too red mine is starting to calm down but still have to take bra off by evening as gets uncomfortable
My hair is starting to thicken up and ok for going wig less at home but not sure if I'm confident enough outside I will be going back to work begin of May so will see then if I'm brave enough then as hot flushes mean wig gets uncomfortable
Hope you have all had a good weekend enjoying the sun but safely 😘😘😘🤗🤗🤗
Happy Sunday everyone - bit late to the party .... sorry!
Spent a lovely weekend with OH, working in the sun in the garden - all covered up. Then up to Balham this morning to help son and OH move house ..... and a chance to give him a hug before he does the marathon next weekend.
JC - well done you going with out wig/turban. My hair isn't even enough for that yet - still bald at the front. Sorry to hear about the tooth. Not heard about the zoledronic acid substitute - interesting - if you hear more please pass it on.
AK - good luck for tomorrow - you will ace it - let us know when you can that you are all ok 💕
Bythesea - home yet? feeling better? sending 🤗
Boob still red - but not sore, if the radiographers hadnt made a fuss I wouldn't be bothering with it.
Back at 0830 tomorrow - only 11 more to go - soon be over! Then I get my life back 😍
love to all
Thank you so much everyone. I am packed, but not exactly raring to go! I have had a lovely weekend though and feel as ready as I can be for tomorrow.
Meanwhile, your support and friendship continue to make me a less neurotic, more smiley person - thanks team.
Wishing you all a good Monday and I'll be back boobless but relieved, I hope . . . xx
Good luck for the surgery girls tomorrow 🤗🤗🤗😘😘😘
I've got dentist appointment on Wednesday and know I will probably need some work done on 2 of my teeth that have been giving me gip though chemo and yes unfortunately will have to pay 😱😱😱
Yesterday had lovely lunch out with friends sat outside enjoy the sun and just chatting and caughting up nice to feel normal
Yes I made sure I had my silly sunhat on and plenty of cream factor 50 🤗🤗🤗
Today is a different day 🌧🌧🌧🌧🌧🌧
Big hugs, AK. I'm not gonna lie, the surgery's no fun, but you can do this. I'm the biggest cry baby in the book -- just the thought of the dentist makes me whimper -- and I'm out the other side and can honestly say it wasn't that bad. The care is wonderful, the drugs work, they know how to do this, they are so skilled. And, unlike chemo, it is over quickly and then you get to marvel at how your body recovers.
Love to all,
first day of taking the 8weeks run in tablets today.
A few things persuaded me to enter it, aspirin is based on naturally occuring ingredients, it is also known to have other health benefits - strokes etc and it helps with cognitive function (anedoctal).
It sort of felt like a win/win situation.
It isn't something that is directly going to affect my treatment, in so much as I wouldn't be worse off if I wasn't on it, but as long as I'm not on the placebo, it might help lots of things.
Also it will keep me under the oncologist after my three years of zoledronic acid is finished - it's a 5 year trial!
As I say bit of a win/win situation
hope this helps
Hi Lesley, I'm from the September thread. I'm TNBC, soon to have discussions with oncologist 're this add aspirin clinical trial. I understand you have started this trial recently. What was it that made you undertake the trial if you don't mind me asking? How is it going for you this far?
Afternoon Bythesea - yes I told them, but these are a completely different type - they are silicon and fold with your skin, can be worn in the shower etc, it feels more like padding than a dressing - I've had a peak and there doesn't seem to be any reaction so far 🤞 it stays that way!
How are you feeling?
Carole - well done - all over!! Get you with your pert strapped up boobies!! Bet you are relieved!!
You'll be fine AK - we will all be holding your hand as you go into theatre and be sitting eating your grapes as you wake up.
Practice your arm exercises so before hand so you know what you are doing next week - and keep them going.
I left rads this morning with a dressing in place. Under my boob is quite inflamed and they were worried about the skin breaking down over the weekend. They will look at it again on Monday. It's not so much the rads affecting it but the whole 'overhang' situation - nice, damp warm environment for the skin to rub.
I haven't felt any discomfort - until they put the dressing on - typical.
9 down, only 11 to go!
Hello Lesley, it is Monday (16th) and I have to be there by 7.30 am ready for the morning list. I have a posh lunch out schedule for tomorrow which is a treat but there is a bit of me that keeps thinking 'the condemned woman ate a hearty meal . . .'!
How is everyone today? xx
Hello everyone, anxious AK here anticipating surgery and catching up on everyone's news and the chat on the thread. I have been grateful for busy working days and some lovely social events in the evenings to keep me occupied and a bit less neurotic! Monday is looming huge in my mind now. I may need Lesley's gold catsuit. I am currently washing with gorgeous antiseptic pre-lotion as instructed, so I will be clean if I borrow it, honestly.
Bythesea, so sorry you're going through the mill with difficult news about next stages and possible chemo again and then hospital admission. It is the worst of news and I am sending love, thoughts and healing vibes across the border to you.
HF, wonderful to hear your progress and to know that you're doing well post-surgery. You, Carole, Bythesea and all of those who have gone before me are my guiding lights at the moment.
Lesley, you are so right about the stingy effects of the Lush soap in eyes. I lathered up as if I still had hair and then ended up with far too much that dripped into my eyelash-free eyes. Ouch, ouch, ouch.
Anadan, you are a complete star. Amazing work - I know what it takes to do 8 cycles and you have done brilliantly. I am proof that even after 8 tough rounds, you do begin to emerge and feel relatively well/normal. After about 2 weeks, I really began to feel better and it was so uplifting to know I was fighting back from the wretchedness of chemo. Take your time and be proud of yourself.
JC, I am rubbish with dentists (do you see a theme emerging here?), so I am wishing you well for your horrid treatment and hope you are doing okay now.
Have a happy Thursday evening everyone. xx
Good to hear you are home and recuperating well HF - long may it continue!
Bythesea - are you all settled in back home? How did your planning meeting go? I was thinking about you at 3am this morning ...... are you going to have to travel over on the ferry every day for your rads??
Saw the gynae man last night - everything looks fine, he isn't sure what the gp was looking at but he couldn't find a prolaspe. He thinks my issues are to do with chemo and should go away on their own, given time. But obviously he wants to do more tests - just to make sure!! So ultrasound scan and colposcopy to be arranged in the next 4 weeks then back to see him to be hopefully signed off!
My mum has been referred in on a supected cancer pathway yesterday - she can't remember if it's gastro or colorectal - fingers crossed she is one of the 90% that it's all just a big scare!
Number 8 of 20 rads completed this morning. I feel as if I am flying thru them!
Happy Thursday to all - nearly the weekend
Just a quick wave from Oz. I got home on Tuesday with one drain, and the surgeon took it out yesterday. The nurses at the hospital told me to beware if he took it out, because he just yanks, but it didn't hurt at all, thank goodness. But the best news is clear margins, everything cleared out as far as they can tell.
Congrats Anadan -- you survived! Boo to bugs, Bythesea. I hope you feel much better soon. And I think we need pictures of your fluffiness, Lesley. I'm also fluffy, but a patchy mixture of grey and dark mouse -- not very glam. I'm taking suggestions for what colour to go next.
I'm losing track of everyone. Is AK having surgery? And Carole too? That's a big speedbump I'm glad to have behind me. Now I've got a few weeks before rads and hormone therapy.