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November 2017 Chemo Starters

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Re: November 2017 Chemo Starters

Hi Otter, just popped over from the Oct thread! I finished chemo a few weeks ago and still got some neuropathy in my toes and finger-not great that I've still got it and it could take months to go, but reassuring that it's normal!

Have you finished rads as I don't see my onc again until then x

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Re: November 2017 Chemo Starters

Yes definitely just have to realise that the weight will take time to go but will be hard

 

My hair is getting a fluffy covering all over mixture of grey and dark so not sure what colour it will be but hoping it grows quickly as its getting very hot wearing the wig not helping with the hot🌢🌢🌢 flushes

 

πŸ€—πŸ€—πŸ€—πŸ€—

 

 

Member

Re: November 2017 Chemo Starters

Sunshine here in Kent - rearranged my pots in the garden .... again!!  

 

Otter - at least our oncologists are giving the same message - frustrating but nothing we can do about it!

 

Your onc is definitely looking after you - I next see mine in June, last week was only for trial consent and then it will be every 12 months, staggered to be opposite the surgeon's 12 month check up .... so I get to see someone every 6 months.

 

Hair is definitely growing, I have a distinct six o'clock shadow appearing all over, apart from the front!  Can't wait for it all to catch up to the same length so I can just let it grow, grow, grow.

 

xx

 

 

Member

Re: November 2017 Chemo Starters

Well done Anadan hope you get home soon so you can rest πŸ›πŸ›

 

Saw my nice oncologist today for review she checked me out and all ok

 

The hot flushes joint pain weight gain and neuropathy are all normal leftover side effects from the chemo 😱😱😱😱 and could take months to settle down 

All she suggested was excercise and a good diet 😝😝😝 so nothing new there as easier said than done

 

I will be on Tamoxifen for 5 years + and the SE can be the same as I'm already getting so a double whammy πŸ™ƒπŸ™ƒπŸ™ƒπŸ™ƒ

 

Will see her again in 3 months then if all ok every 6 months to a year 

 

Dull Dul here 🌧🌧🌧

 

Hope everyone is having a good day

 

 

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Re: November 2017 Chemo Starters

Well done Anadan, enjoy your celebratory meal tonight & then rest πŸŽ‰πŸŽ‰πŸŽ‰πŸŽŠπŸŽ‰πŸŽŠπŸŽ‰πŸŽŠ

Xxx πŸ€—πŸ€—πŸ€—
Member

Re: November 2017 Chemo Starters

Yep I've used the shampoo too for the first time this morning and thanks for the warning Lesley I avoided my eyes πŸ‘€
Guess I'll be checking daily for growth!!

Xxx
Member

Re: November 2017 Chemo Starters

trust me anadan - I need a wig - all white and whispy - I think you've seen a pic of me in a wig! 

I cut my hair again at the weekend and it definitely seems to make it more like real hair rather than the downy stuff.

 

 

Well done for getting to the last T - what an achievement - you should be so proud of yourself.  Lets hope the next three weeks are kind to you as you get over the last one!

 

What's next on your journey?

 

xx

 

 

 

Member

Re: November 2017 Chemo Starters

Hello Ladies,

I’m in the unit, the last dose of docetaxel is dripping in (reduced dose this time, 80% of the previous dose) and I’m feeling excited πŸ˜ƒ 

 

I think my hair has started to grow... it’ all white and fluffy though, was yours the same at the start? Lesley, I’ve seen yours somewhere in the photo, it looks amazing! You don’t need a wig any more πŸ‘

 

Have a good day πŸ’œ

xxxx

Member

Re: November 2017 Chemo Starters

I can confirm that it's a lovely shampoo but hurts like hell if you get it in your eye!! πŸ‘
Definitely out of practice washing my hair! 🀣
Member

Re: November 2017 Chemo Starters

Morning JC - I finish rads on the 30th, this month will whizz by!!
All seem to be going ok

Lush shampoo arrived yesterday so I’ll be giving it a go shortly before I head out for number 6.

Shorty wig turned up Friday - everyone but me loves it ... but its very practical for leaping on and off my subbed! β˜€οΈβ˜€οΈ

Happy πŸ˜ƒ Tuesday
Happy πŸ˜ƒ healing
Happy πŸ˜ƒ life!!

xx
Member

Re: November 2017 Chemo Starters

Lesley - I think that is my size glass!! Cheers 🍷

Also, it was a fantastic suggestion for you to be a patient advocate. You're brilliant on here 

How are you doing with your ☒☣, when are you finishing?

 

Fmb I hope you're having a fab holiday. I think it was a really great idea for you to go away. I've been on letrozole now for almost 3 weeks and apart from a bit of light headedness/feeling dizzy I've been fine 🀞

 

Carole,  HF & Bythesea  how are you all doing. I hope you're feeling rested and on the road to recovery.

 

Anadan I had achy and shaky legs during docetaxol and took a bit of time for them to feel normal again. Brilliant news that you're nearly done. Good luck πŸ€—πŸ‘

 

Otter, how about you now that you've finished your rads

 

Lush shampoo bar is arriving any time soon - soon we'll all be sporting luscious locks πŸ‘§

 

Wishing you all a good week xxx

 

πŸ€—πŸ˜—πŸ€—πŸ˜—πŸ’–β˜„β˜„πŸ’–

 

 

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Re: November 2017 Chemo Starters

Told OH that I was only having one glass of wine on Friday - walked out of the room and came back to this!!

 

The laws of surface tension ably demonstrated!! 🀣

 

wm%1hRTnSP+%cf+ianWXiA.jpg

 

xx

Member

Re: November 2017 Chemo Starters

Redness under boob turns out to be excessive creams - told to lay off the creams and go bra less as much as possible! I'll expect bruised knees now.... as my boobs bang into them!

Happy Monday all xx
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Re: November 2017 Chemo Starters

Busy weekend for me - rebuilding the green house at OH's and jetwashing the patio at mine!

The weather had better pick up now!

 

Another week of rads for me - started having a little redness under my boob - probably not seen the light of day for a while!  I'll ask them about it tomorrow.

 

Hope you are all ok 

 

xx

Member

Re: November 2017 Chemo Starters

Bythesea what horrid news, we are all here for you and you are such an amazingly strong lady, sending big hugs.
And I hope the infection clears up soon as well πŸ’•πŸ’•πŸ’•

HF hope you are recovering well and resting.

Anadan I suffered with very achy leg muscles after my last docetaxel, and it has taken me over 5 weeks to get back to being able to walk half the distance I use to do, and going up stairs was such hard work too. I'm afraid you have been blitzed with it more than most so just try and take it easy, you're nearly there and then it will get better.

Just spent this morning in the rain watching my son play rugby, almost normal life but now chilling at home.

Enjoy what's left of a very damp Sunday xx
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Re: November 2017 Chemo Starters

Fmb can't believe you've booked a holiday!!! You are so brave! You rebel! I love it and am well jell x
You will look amazing on operating table all bronzed and beautifull 😎
x❀️X❀️X
Member

Re: November 2017 Chemo Starters

Hello Ladies, 

so much has happened in the last few weeks! Well done to surgery and rads girls, everything’s happening so quickly.

Bythesea, rotting news, but we’re here for you πŸ’œπŸ’œ The headspace man said today, it’s good to share your journey, it takes the weight off your shoulders. 

 

I’m waiting for my last docetaxel next Tuesday, I have no energy whatsoever Smiley Sad did you get muscle pain in your legs and arms on docetaxel? My limbs are so weak and shaky, I would never do 15 mins on a bike, Lesley, well done you. 8 sessions of chemo is far too many ...

I’m planning to take the girls out for a meal on Tuesday night to celebrate the end of chemo while I still be feeling ok, before the injections start their tortures for the last time. 

 

Fmb, enjoy the holidays! 

 

Have a good weekend xxx

Shi Community Champion
Community Champion

Re: November 2017 Chemo Starters

Bythesea ❀️❀️😘😘keeping 🀞🀞that the rads zap everything and you don’t have to have more chemo. Did the give you indication of how many more rounds? Lesley post that power ranger suit to by the sea so she kicks it in the πŸ€πŸ€πŸ€during rads. πŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: November 2017 Chemo Starters

Oh Bythesea that's very sucky - big hugs and thoughts from over here. It's such a mind game, isn't it? We cope with all the physical indignities they throw at us but dealing with the feelings is like another full time job. Which is why we're all here for you!

 

Much love, ladies, from a bruised and bloody but cheerful HF.

 

xx

Member

Re: November 2017 Chemo Starters

Bythesea - you have been so great with 3 ops in a matter of weeks. It must have been tough news to be told u have to have chemo again. But u will kick arse and we will all be here for u xx
I hope the infection clears up soon, take care xx
Member

Re: November 2017 Chemo Starters

Happy friday ladies. It's been lovely catching up on all the posts.
HF - I'm so glad all went well with the surgery. Well done you!!! Rest well and take care xx

Otter - well done u for finishing all of your treatments, you must be so relieved. Blub away, its a great release xx

Carole- I hope ur recovery continues to go well, look after yourself. xx

Anadan - how are you feeling now? Take good care of yourself xx

JC1262 - Looking at ur treatment it looks like we are on similar paths. Have u started the hormones yet? I see my onc on monday and will start then.
I also went to the Ideal Home show...it was a long day but fun to go to xx

Lesley - you posted this a while ago...but I LOVED the wig u wore when we met. It looked so real.
Your memory serves u well, my mastectomy and reconstruction surgery is on April 17th...so not long now.
You will be great as a patient advocate xx

Anna K - i believe we r having surgery the same week. We will be surgery buddies xx

I have also bought the lush shampoo bar, I've been using it a few weeks now and my hair is starting to come through...hooray!!! I'm hoping after it grows a little longer I can ditch the hats if I'm brave enough.
As my surgery was cancelled for last week I've also gone and booked a family holiday to Spain for 5 days...I am so excited, leaving Tuesday back on Sunday and in hospital monday afternoon.

Hope u all have a great weekend.
Take care of yourselves and give yourselves a big hug for all that you have been through and continue to go through xx
Member

Re: November 2017 Chemo Starters

Oh bless you bythesea - at least you will know what to expect!!

 

We will be here to hold your hand all the way!!

 

I will be very careful if approach by any strange men sat in flat back trucks with a grabber arm - only way you could kidnap me at the moment!!

 

have a lovely weekend everyone 

 

xx

Member

Re: November 2017 Chemo Starters

Meh!!!!!!!! Fat girls are harder to kidnap 😜
It's a blessing!x
Well done Harry Fiddler πŸ™„ Loving the sound of your little mounds 😊
My page 3 mound might have infection so started anti biotic today. Fingers crossed!x
Loving that everyone is nearing completion but I found out yesterday I'll prob be getting chemo again after rads. Promise you won't all desert me???
Hope you all have a great weekend xxx
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Re: November 2017 Chemo Starters

Just thought if it's going to take that long to lose the weight I suppose I better buy so e trousers that fit as living in jogging bottoms at the minute but can't wear them when I start back at work πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚

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Re: November 2017 Chemo Starters

That's a bit of a blow Lesley, I suppose when we meet for coffee we'd better skip the cake Smiley Sad x

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Re: November 2017 Chemo Starters

Hi Lesley

 

Thanks for the info So I'm looking at 2 years to shift the 2 stones I've put onπŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜±πŸ˜±πŸ˜±πŸ˜±

 

 

You will make a great advocate but maybe not in your gold hot pants 🌢🌢🌢

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Community Champion

Re: November 2017 Chemo Starters

Great news hf πŸ˜˜πŸ˜˜πŸ˜˜πŸ‘πŸ‘πŸ‘πŸ‘Lesley, that’s brilliant news too you are perfect for that role β€οΈβ€οΈβ€οΈπŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: November 2017 Chemo Starters

πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚ love it !

Seen myself as a rolly polly for quite a few weeks now 😜😜😜

xx
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Re: November 2017 Chemo Starters

You are such a spoil sport Carole!!Image result for roly polys

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Re: November 2017 Chemo Starters

Wow thanks for the info Lesley, a year for a stone! 😱😱

Not quite what I wanted to hear and as I still have docetaxel induced funny muscle legs I haven't even been walking as much, so I'm probably looking at longer.

So celery stick and mineral water for me at lunch today or maybe not πŸ˜‚πŸ˜‚

You'll be fab as a patient advocate and working with a support group, well done you, but don't over do it. And don't go to the first meeting in gold hot pants, break then in gently πŸ˜„πŸ˜„
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Re: November 2017 Chemo Starters

So good to hear you in such good spirits HF - we wont blame that on the drugs.  But as Carole says, take anything on offer!!

 

Lush bar ordered!!

 

First week of rads complete! 4 down 16 to go!

 

I also saw the onc and signed up for the add aspirin trial - get my first batch of drugs next friday. 

 

Ok ladies, weight and water retention!!  Not great news I am afraid.

Basically onc said that vitamin and supplements were a waste of time, if we were deficit it would show up in the blood work and we would be prescribed something for free - rather than paying a fortune for over the counter solutions.

Water retention and weight are, unsurprisingly, related.  And its all down to cardiovascular activity.

She asked me what my exercise regime was, I told her 30 mins brisk walk and 15 mins on a static bike every day.  She said this was good and to continue with this and build it up as I got stronger.  She recommended 1600-1800 calories a day and to avoid the empty calories of alcohol.  But not to deprive myself of the odd mad moment or day.  I told her I was looking at 1200 calories a day and she said if I can manage on that to continue.

She reckoned that after chemo and rads it will take a year to shift a stone!!   Yes you did read that right!!  Where you might expect to lose 2lbs a week, she said we should expect to lose 2lbs a month.  And it's all down to our hearts.

Its the T that wreaks the havoc with the cardiovascular output.  That would explain me nearly flagging a taxi down as I walked from St Pancras to Euston the other morning.  This needs to be rebuilt and it takes time.  But when the water does goes, it will go quickly and should give the weight loss a nudge!!

I am seeing her again at the beginning of June, if I am still blobby bloaty she will consider a mild diruetic but she stated she is reluctant to interfere, the body needs to rebalance itself naturally after all the chemical onslaught - which makes sense.

I asked her if there is anything I can be doing to help the fluid on its way and got a very definitive NO!

 

She has also asked me to be a patient advocate for the area - which I said I would do.  She also asked if I would be interested in working with a husband of a BC patient who wanted to set up a support group for partners - something that I think is massively overlooked.   Looks like I am going to be busy!!

 

Sorry for the long post - but hopefully it's useful ....... wouldn't it have been good if we had had this information in advance - I know I would have approached things differently!!

 

Happy Friday everyone 

 

xx

 

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Re: November 2017 Chemo Starters

Great to hear that all is well harryfiddler sending big hugs πŸ€—πŸ€—πŸ€—

Do as the nurses say and take those drugs you are already an amazingly brave lady

Hope the hospital meal was yummy, have a good sleep and rest up. πŸ’•πŸ’•πŸ’•πŸ’•

Carole x
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Re: November 2017 Chemo Starters

Good morning all!

 

Harryfiddler signing in, alive and well, if a little bumped and bruised. Surgery went well -- amazingly small cuts -- and I had my first peek at the finished products this morning. Very peculiar to see two little mounds. Not frightening at all, but there is so much to get used to! Getting used to carrying the shopping around -- volunteers make cute little bags to carry the drains. Rotten couple of nights -- my sinuses flared up again because of the aircon (thanks chemo SEs) -- so ended up with raging headaches. Had a good old sob but am feeling SO much better now. The nurses are absolutely lovely and the breast care nurse has been in encouraging me to TAKE THE DRUGS. (Why do I have this masochistic urge to be brave?).

 

Wow, the end of treatment is beginning to seem possible! Congrats Otter, well done AK, thanks for making me laugh Lesley, and everyone. I am now going to order me a lovely hospital meal and a big sleep.

 

Thinking of you all,

 

Harryfiddler

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Re: November 2017 Chemo Starters

Evening ladies

Good to hear how everyone is progressing whether it's surgery or rads. A big well done to Otter πŸŽ‰πŸŽ‰πŸŽ‰ and a blub does do you good. I have been quite tearful since surgery. I think it's the realisation that I'm nearly there and that the last few months or so have been total **bleep** but I and that means we have nearly made it.

AK I was worried about being bald during surgery, but the anesthetist was lovely. When I asked if I had to take my turban off he just smiled and said no it will keep you warm. And as far as I know I kept it on all the time and came out of surgery wearing it and a protective hat too. Didn't phase anyone and made me feel comfortable too.

On the hair front mine is growing but need to get another lush bar as some how I have just one night away in hospital and it seems to get totally dissolved in its little protective soap box in the shower! 😱 Boys !!!

HF and Bythesea I hope you are both doing okay and recovering well too.

I'm off out to lunch tomorrow with a couple of friends so diet still not going to plan. But Lesley any water retention advice you get please share as I am sure some of it is water too πŸ˜‚

Sweet dreams everyone and happy Friday for tomorrow.

Xx

Member

Re: November 2017 Chemo Starters

AK. Yes do get the solid shampoo bar from Lush it's just called New and I've been using for a week and the bit at the front that wasn't doing anything is starting to move. You only use it like a bar of soap lathers well and has a nice smell should last for months 

 

Reflexology was really relaxing today so have booked a few more sessions as you get 6 free with Macmillan made me nearly go to sleep

 

Lesley hope Rads is going ok 😊😊😎😎 let me know what once says about water retention as I've still got puffy ankles and knees

 

Hope all you surgery girls are resting

 

πŸ˜˜πŸ˜˜πŸ˜˜πŸ˜˜πŸ€—πŸ€—πŸ€—πŸ€—

 

 

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Re: November 2017 Chemo Starters

Annakarenina get the new bar from lush, it’s like a big red dot, we’ve all had excellent regrowth on bonce using that after mishy18 discovered it and was sporting a pixie within 8 weeks 😘😘😘harryfiddler, hope your ops been a success darling 😘😘😘please let us know you are ok when you can β€οΈβ€οΈπŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: November 2017 Chemo Starters

I don't know what you are implying Miss AK!! πŸ˜‡

 

I'm seeing the onc straight after my sunbed session in the morning - consenting for the asprin trial, but I will be taking the opportunity to ask about weight loss (or not!!) and water retention - arms and legs are still really bad.

 

how is Anadan doing?  Must be getting close to her last one now??

 

 

love to you all

 

xx

Member

Re: November 2017 Chemo Starters

Hello everyone,

 

I've just had a brilliant time catching up on the thread after a busy few days at work and in pre-surgery assessment appointments. From hair growth to missing nipples and from finishing treatment to top tips for those of us still in the midst of the pesky process, it is fab what you've covered.

 

I have serious har envy: very little sign of any growth on my bonce, but I suppose I did have 8 goes on the chemo carousel and finished later than those of you boasting some new follicle action. It will be a wig for me for a while alas. Daft really but I hate the idea of being bald during surgery and recovery, but as my daughter said, they're not likely to be fazed in a specialist cancer hospital especially when they are the team who gave me the stuff that caused it to vanish in the first place!

 

Pre-surgical assessment was quite the ordeal as it really brought home the realities of a bilateral Mx and node clearance, but I am also keen to get on with it. I found out last night my creatinine is a bit raised which I hope won't derail anything. I spoke to my BCN as I was in a typical AK tizz about it after the call and she was reassuring. I am drinking loads of water in the hope it will come down by the time my bloods are taken again on Monday. I'll be the woman in the loo all day and night . . . again . . .

 

Hoping everyone is finding their next steps okay, especially those recovering from surgery, those about to undergo surgery, those breaking radiotherapy machines (I'm looking at you Miss Lesley) and those moving on to new stages of treatment like Otter. xx

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Re: November 2017 Chemo Starters

Well done on finishing Otter πŸŽ‰πŸŽ‰πŸŽ‰

Try and not worry about seeing oncologist,  enjoy this week knowing you've finished your chemo & radiotherapy.  Don't worry about blubbing, it's a good release and if you can't do it now when can you? We've all had our blubbing days 

Stay strong, you are an amazing lady who's been on a 🎒 of a journey

 

πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—β˜„β˜„β˜„β˜„β˜„

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Re: November 2017 Chemo Starters

Thank you all I know we have all supported each other through this horrible journey but I know that I wouldn't have got through this without you all πŸ€—πŸ€—πŸ€—πŸ€—πŸ˜˜πŸ˜˜πŸ˜˜πŸ˜˜

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Community Champion

Re: November 2017 Chemo Starters

Otter πŸ˜˜πŸ˜˜πŸ˜˜πŸ˜˜πŸ‘­πŸ‘­πŸ‘­β€οΈβ€οΈβ€οΈIt’s the relief of finishing and thinking how far you’ve come and achieved 😘😘😘and for me it was thanking God for all the amazing ladies on these threads who were and are with you every step in every way ❀️❀️❀️Well done πŸŽ‰πŸŽ‰πŸŽ‰πŸŽ‰πŸŽ‰πŸ’•πŸ’•πŸ’•βœ¨βœ¨βœ¨shi xx
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Re: November 2017 Chemo Starters

A good blub never did anyone any harm, and normally does you the world of good - we are here with the tissues!!

 

I don't think any of us really realise what we have been thru and will continue to go thru as we kick BC's arse!  When you are 'in it' you just deal with it on a day to day basis..... but it's a bloody big deal!! 

 

Sending hugs and loves and fresh mascara ..... or stick on lashes!!  

πŸ€—πŸ’•

 

xx

Member

Re: November 2017 Chemo Starters

Thanks just had a blub πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚ don't really know why

 

 

Member

Re: November 2017 Chemo Starters

Congrats Otter!!  πŸΎπŸŽ‰πŸ₯‚πŸ™ŒπŸΌπŸ‘πŸΌπŸΎ

 

I know what you mean about the end.  Seeing the onc next week will be more of a closure, although you will be taking meds.

When I walk out on the 30th, I don't see anyone until July.... no meds or anything - big void!  It will be fine!! 

 

You should be so proud of yourself for getting here with such a good spirit and soul xx

Highlighted
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Re: November 2017 Chemo Starters

Thank you πŸ€—πŸ€—πŸ€—πŸ€—πŸ˜˜πŸ˜˜πŸ˜˜πŸ˜˜

 

Last rads done πŸŽ‰πŸŽ‰πŸŽ‰πŸŽ‰πŸŽ†πŸŽ†πŸŽ†πŸŽ†πŸ˜ŽπŸ˜ŽπŸ˜ŽπŸ˜Ž

 

Not sure how I feel really don't think it has hit home yet maybe it's because until I see the oncologist on Tuesday I don't know what hormone treatment I will be on and for how long and still have lingering SE from chemo

 

πŸ€—πŸ€—πŸ€—πŸ€—

Member

Re: November 2017 Chemo Starters

Otter can't believe your about to cross the finish line πŸŽΊπŸŽ‰πŸŽ‰πŸŽ‰πŸŽΊπŸŽΊπŸŽΊ Root too toot!
Was having a look back, you were the first one of us to post on the forum and you'll be the first to finish active trearment. I can't imagine what that must feel like! Well done xxx πŸ‘ are there celebrations planned for tonight????
Hope all goes smoothly today and you can dance outta that sunbed. Congratulations and much love ❀️ ❀️❀️
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Re: November 2017 Chemo Starters

We’re even now!! xx
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Re: November 2017 Chemo Starters

Ha just like me with your wicker basket xxx
😜😜😜😜😜😜😜😜😜😜😜😜😜😜
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Re: November 2017 Chemo Starters

I’m a Wally Bythesea!!
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Re: November 2017 Chemo Starters

Harry fiddler 😘😘😘lots of β€οΈβ€οΈβ€οΈπŸ‘­πŸ‘­πŸ‘­we are all with you girl 😘😘😘Lesley well done in first 😎😎πŸ₯“πŸ₯“πŸ₯“by the sea, get the emoji tattoo rather than nipple πŸ€ͺπŸ€ͺπŸ€ͺI dare you πŸ˜œπŸ˜œπŸ˜œπŸ˜œπŸ’•πŸ’•βœ¨βœ¨βœ¨shi xx