So good to hear you in such good spirits HF - we wont blame that on the drugs. But as Carole says, take anything on offer!!
Lush bar ordered!!
First week of rads complete! 4 down 16 to go!
I also saw the onc and signed up for the add aspirin trial - get my first batch of drugs next friday.
Ok ladies, weight and water retention!! Not great news I am afraid.
Basically onc said that vitamin and supplements were a waste of time, if we were deficit it would show up in the blood work and we would be prescribed something for free - rather than paying a fortune for over the counter solutions.
Water retention and weight are, unsurprisingly, related. And its all down to cardiovascular activity.
She asked me what my exercise regime was, I told her 30 mins brisk walk and 15 mins on a static bike every day. She said this was good and to continue with this and build it up as I got stronger. She recommended 1600-1800 calories a day and to avoid the empty calories of alcohol. But not to deprive myself of the odd mad moment or day. I told her I was looking at 1200 calories a day and she said if I can manage on that to continue.
She reckoned that after chemo and rads it will take a year to shift a stone!! Yes you did read that right!! Where you might expect to lose 2lbs a week, she said we should expect to lose 2lbs a month. And it's all down to our hearts.
Its the T that wreaks the havoc with the cardiovascular output. That would explain me nearly flagging a taxi down as I walked from St Pancras to Euston the other morning. This needs to be rebuilt and it takes time. But when the water does goes, it will go quickly and should give the weight loss a nudge!!
I am seeing her again at the beginning of June, if I am still blobby bloaty she will consider a mild diruetic but she stated she is reluctant to interfere, the body needs to rebalance itself naturally after all the chemical onslaught - which makes sense.
I asked her if there is anything I can be doing to help the fluid on its way and got a very definitive NO!
She has also asked me to be a patient advocate for the area - which I said I would do. She also asked if I would be interested in working with a husband of a BC patient who wanted to set up a support group for partners - something that I think is massively overlooked. Looks like I am going to be busy!!
Sorry for the long post - but hopefully it's useful ....... wouldn't it have been good if we had had this information in advance - I know I would have approached things differently!!
Happy Friday everyone
Good morning all!
Harryfiddler signing in, alive and well, if a little bumped and bruised. Surgery went well -- amazingly small cuts -- and I had my first peek at the finished products this morning. Very peculiar to see two little mounds. Not frightening at all, but there is so much to get used to! Getting used to carrying the shopping around -- volunteers make cute little bags to carry the drains. Rotten couple of nights -- my sinuses flared up again because of the aircon (thanks chemo SEs) -- so ended up with raging headaches. Had a good old sob but am feeling SO much better now. The nurses are absolutely lovely and the breast care nurse has been in encouraging me to TAKE THE DRUGS. (Why do I have this masochistic urge to be brave?).
Wow, the end of treatment is beginning to seem possible! Congrats Otter, well done AK, thanks for making me laugh Lesley, and everyone. I am now going to order me a lovely hospital meal and a big sleep.
Thinking of you all,
AK. Yes do get the solid shampoo bar from Lush it's just called New and I've been using for a week and the bit at the front that wasn't doing anything is starting to move. You only use it like a bar of soap lathers well and has a nice smell should last for months
Reflexology was really relaxing today so have booked a few more sessions as you get 6 free with Macmillan made me nearly go to sleep
Lesley hope Rads is going ok 😊😊😎😎 let me know what once says about water retention as I've still got puffy ankles and knees
Hope all you surgery girls are resting
I don't know what you are implying Miss AK!! 😇
I'm seeing the onc straight after my sunbed session in the morning - consenting for the asprin trial, but I will be taking the opportunity to ask about weight loss (or not!!) and water retention - arms and legs are still really bad.
how is Anadan doing? Must be getting close to her last one now??
love to you all
I've just had a brilliant time catching up on the thread after a busy few days at work and in pre-surgery assessment appointments. From hair growth to missing nipples and from finishing treatment to top tips for those of us still in the midst of the pesky process, it is fab what you've covered.
I have serious har envy: very little sign of any growth on my bonce, but I suppose I did have 8 goes on the chemo carousel and finished later than those of you boasting some new follicle action. It will be a wig for me for a while alas. Daft really but I hate the idea of being bald during surgery and recovery, but as my daughter said, they're not likely to be fazed in a specialist cancer hospital especially when they are the team who gave me the stuff that caused it to vanish in the first place!
Pre-surgical assessment was quite the ordeal as it really brought home the realities of a bilateral Mx and node clearance, but I am also keen to get on with it. I found out last night my creatinine is a bit raised which I hope won't derail anything. I spoke to my BCN as I was in a typical AK tizz about it after the call and she was reassuring. I am drinking loads of water in the hope it will come down by the time my bloods are taken again on Monday. I'll be the woman in the loo all day and night . . . again . . .
Hoping everyone is finding their next steps okay, especially those recovering from surgery, those about to undergo surgery, those breaking radiotherapy machines (I'm looking at you Miss Lesley) and those moving on to new stages of treatment like Otter. xx
Well done on finishing Otter 🎉🎉🎉
Try and not worry about seeing oncologist, enjoy this week knowing you've finished your chemo & radiotherapy. Don't worry about blubbing, it's a good release and if you can't do it now when can you? We've all had our blubbing days
Stay strong, you are an amazing lady who's been on a 🎢 of a journey
Thank you all I know we have all supported each other through this horrible journey but I know that I wouldn't have got through this without you all 🤗🤗🤗🤗😘😘😘😘
A good blub never did anyone any harm, and normally does you the world of good - we are here with the tissues!!
I don't think any of us really realise what we have been thru and will continue to go thru as we kick BC's arse! When you are 'in it' you just deal with it on a day to day basis..... but it's a bloody big deal!!
Sending hugs and loves and fresh mascara ..... or stick on lashes!!
Congrats Otter!! 🍾🎉🥂🙌🏼👏🏼🍾
I know what you mean about the end. Seeing the onc next week will be more of a closure, although you will be taking meds.
When I walk out on the 30th, I don't see anyone until July.... no meds or anything - big void! It will be fine!!
You should be so proud of yourself for getting here with such a good spirit and soul xx
Thank you 🤗🤗🤗🤗😘😘😘😘
Last rads done 🎉🎉🎉🎉🎆🎆🎆🎆😎😎😎😎
Not sure how I feel really don't think it has hit home yet maybe it's because until I see the oncologist on Tuesday I don't know what hormone treatment I will be on and for how long and still have lingering SE from chemo