Finally, I feel better 😀 so off for a walk with the dogs
JC, BMX for me after chemo; I have an appointment with a psychologist in two weeks to check I’m menatally fit for this surgery 😱 I’m not sure what to expect from this meeting, what questions they want to ask ...
Oh, ladies, I will still have one chemo left when you’ve finished your rads 😱😱😱😱 so frustrating!!!
How are you feeling on rads? What are the SE?
Lesley, I hope you have a great weekend with your parents xxx
Lesley good luck with your mum & dad being with you - I think the drugs are probably still in our system as I'm still feeling sluggish. I'm planning on doing more walking 👣 - especially as It's sunny here at the moment.
Happy Friday 🤗💕☄
I'm just starting mine as you finish Otter - 20 for me starting on the 3rd April!
I know that I have had a few naughty days this week with food, but the rest of the week I've been super good, but I seem to have put back on almost everything I have lost so far ..... I am very frustrated!
I'm wondering if the drugs could still be in my system??
Mum and Dad arrive over the weekend for a week, so they will be trying to feed me up - despite me telling them at every opportunity I need to watch what I eat!
I know it's a really shallow and superficial thing to worry about - but my BMI isn't good and I feel awful being this heavy!
I think I need a Rocky soundtrack in my head for the next few weeks!
First 🌞🛏 session done was early and seen early but they have changed all !y appointment so from all being at 10 so easy to remember they are all different times 1 in the evening 😢
I will also be on different machines so will just say I'm in the Caribbean 😎😎😎😎☢☢☢☢☢
Bythesea glad you are home rest up and fingers crossed the ******** has finally gone
I did joke with them Carole ..... but they weren't playing ball!
It is quite an odd feeling having someone draw on your boobs! But I'm not going to knock the attention 🤣
Glad everyone is coming out of the chemo fog - AK and Anadan will be there before we know it!
Bythesea - rest up - the anaesthetic will have taken it out of you
Yes first rads for me today just hope they don't keep me waiting around to long as my legs are very stiff and painful at the minute and sitting still for too long doesn't help
Hope your planning goes ok it was my first tattoo always said I would never have one 😉 but they just Lok like a little black dot 1 either side of your chest and 1 in your cleavage so no one can see them
Lovely and wet here again so will be a wet walk to hospital
Hope everyone is doing ok
hope Bythesea got on ok with surgery - if you are out of the fugg - lets us know you are ok
AnnaKarenina - last one for you!! Remember when you didn't think you would ever get to the end??
Anadan - the last two seem like a massive mountain to climb, but you are well on your way to planting a flag at the summit!!
Two days stood around at an exhibition, I have discovered, plays havoc with docetaxel feet. I have lost another complete layer of skin and I think another one will be going shortly. The nerves are still obviously very sensitive and I'm in discomfort this morning .... but there's worse things happen at sea, as my nana used to say!
I'm off for my rads work up today - my first tattoo!
Otter do you start rads today?
Hope everyone else is getting over the side effects and returning to the human race and preparing themselves for whatever is next on this 🎢 journey!
Happy Thursday peeps! 🌞
I've been the same also keep getting swollen ankles and knees which doesn't help with the getting about and legs are painful
Hi Jencat, Lesley
I had a meeting with the genetic oncologist too, and will have the blood test eventually, mostly because I have two daughters. I came out realising how little I knew about my family! I thought that both sides of our family were relatively cancer free -- mostly heart attacks and strokes as cause of death. Subsequent phone calls revealed that one of my aunts died in her 50s from breast cancer (I knew she died but I was 6 or 7 -- never knew why) and that one of my cousins also suffered breast cancer. It put my father's reaction to my diagnosis into perspective.
Hope yours goes well.
Thanks for the heads up about other relatives Lesley, I'm not sure how much more info I'll be able to remember or even know x
Thanks very much Lesley for the info. Glad they do the blood test there, wondered if it might be another hospital visit! I had to fill in a form about parents etc and send it to them before tomorrow's visit, so already had to have a bit of a think about relatives xx
saw the consultant - was there about 30 mins (I think), blood test was done there and then.
He asked about relatives - parents siblings and their children and their children - which was a bit of a challenge - probably worth having a think about them in advance - boys vs girl numbers and any occurence of cancer anywhere
I found it quite casual and informal - was made to feel very at ease and he was generally very helpful about other none generic cancer questions I had.
FMB- had a great catch up with my son - it was soooooo lovely!
Absolutely cream crackered now after a day at the ExCel - back again tomorrow 😫 ....... I'll sleep tonight!
Hi Lesley, I noticed that you're TN and went to Guy's for genetic testing. I've got an apointment there tomorrow, and hope you don't mind me asking, but just wondered how long you were there for and what the meeting involved. Did you have a blood test whilst you were there? Thanks xx
Ladies, so nice to see you happy and smiling xx big hugs from me xxx
AnnaKarenina, I have a good week this weekbefore the next 🍸on Tuesday and I’m trying to catch up with things. I’m 6 down, 2 still left and this ratio 6:2 keeps me going.
Have a good evening xx
Hello everyone, what wonderful photos. I thought of you all, including Bythesea on FaceTime, yesterday and I am delighted there will be a summer opportunity. I would love to join you and say thank you in person for all the friendship, support, humour and listening.
Today was my pre-chemo assessment and I am delighted to say that I am all set for the final and 8th round on Thursday morning despite some borderline bloods. I am right on the edge with my neutropils, but they're happy for me to go ahead as it is the last go and they think I should recover a bit between now and Thursday. Phew. Haemoglobin is also a bit rubbish, so spinach for supper for me. I am wrung out now, but just thrilled to be able to keep to schedule, especially with surgery booked in for 16 April.
How is everyone doing? Bythesea, do you have a clearer idea of next steps now? And Anadan, how are you managing? Harryfiddler, we had some sun (now gone) but I suspect you'd laugh if you saw passes for 'sun' in March in SW London. JC, Carole, Otter, FM and Lesley - hope you're well too? xx
Here you go ladies - raising a glass ..... or two 😇 to all the beautiful November heros
We sat down at 1pm and before we knew it it was nearly 5pm .... another met up in the summer I think and hopefully we can get a few more along who have finished treatment
Couldn't have got this far without you all
Lunch booked for 1pm - you've got my number so give me a Facetime when it suits!!
I'm sure we will all be happy to hold your hand .... regardless of the appt 🤣 but could put your consultant off a bit!!
Oh Carole - I am so sorry to hear your sad news - awful time for you and your family - love and hugs to you all
We'll definitely have to have another one
Fab - FMB - I'm looking forward to meeting up in person too!
Otter are you still ok tomorrow?
Carole - how are you feeling? would be lovely to see you if you feel able, but understand if the T is still getting the better of you!! Pesky stuff!
FMB, I'd get them to do the washing up at least .... and they do say it's the thought that counts!
Anadan, so sorry to hear you are having a bad time on the Docetaxel - it is evil stuff.
Lots of great advice from JC, and I would echo the request to reduce the dose for the next two.
I didn't have the fatigue, but had awful problems with the feeling in my feet and the dose was reduced by 25% for the last two - it made a big difference.
We will raise a glass to you and everyone else tomorrow!!
Happy Mother's Day everyone - I'm seeing my mum next week - first time since October, and my son tomorrow..... going out with two other home alone mums later on! Not necessarily the best way to kick off week 2 of my diet! 😫
love to you all
Hi Anadan - I really feel for you as I found the docetaxol really knocked me for 6. I had it on a Friday and was ok until Sunday afternoon and then wham the fatigue would hit me for up to 10 days or so. My tastebuds would go and I didn't have any energy, just felt bleurgh and struggled with food and drink.
I was advised to eat little and often, graze throughout the day. I sometimes drank Lucozade , various squashes (as I went off water and still can't drink it), fizzy water. I found toast hurt my mouth so I had croissants, crumpets , soup , peanut butter, banana, egg mayo, jam, honey on bread. My OH used to tempt with any (shop bought) fish dinners as I went off meat. Oh & chocolate helped 🍫
It was a struggle sometimes but it does pass - I found I didn't have the energy to write on here and would disappear for a week or so. You will get through this - how many do you have left on thus 🎢? I had a 20% reduction on my last 2 cycles as I was so knocked out. Can you ask for a reduction as it does make a difference.
Don't forget we're here for you to help pick you up when you're down. Take care and good luck with everything , rest when you need to, take your time and be kind to yourself, you're nearly there xxx
hi AK - yes all emerged from the chemo doom and back to fighting form. This week has been mad! to be honest.
As for your SNB - which injection are you worrying about - silly question really.
I had a SNB - work up the day before in radiology, I know I had an injection but I didn't feel any pain to speak of. It did sting a bit but nothing extraordinary.
I think there is a far amount of scaremongering on some of the forums - you only ever hear the extreme stories.
We will give you a wave back in City Hall on Monday and I will get some photos - if everyone agrees
Bythesea, I am so sorry to read your update. Everything is intensified in this pesky process and any setback just feels as if the world is against you. There is nothing wrong with feeling the feels: ranting at the injustice of it all, doing your best 'ugly crying', distracting yourself with silliness and expressing the fears. As others have said, although it's wretched and unfair, this is far from unusual and your clinical team will have a panoply of strategies up their scrubs! I think uncertainty and disappointment are the two emotions I have found hardest to manage, so be kind to yourself - there is no right way to respond and whatever happens, your team is right here for you.
I confess to being a bit teary reading about all these brilliant off-spring and how they're thriving even though they've been thrown a curveball with our diagnoses. I was so scared and upset about telling my (young adult) kids and they have been amazing. Immensely resilient, caring and adaptable, even when the chemo monster has been in the house. It gives me huge hope for the future that we all have such talented and compassionate off-spring.
Lesley, how are you doing now? Have you emerged from the final round of side effects? I do hope so. I wish I could join the gang on Monday, but I will be across the river speaking at City Hall, so I'll wave in the general direction of Covent Garden. We want to hear ALL about it and see photos please. Deal?
JC and Carole, I can confirm that Paclitaxel is also a bugger for the fatigue thing. It is definitely cumulative too. Each cycle is taking a bit longer to pass in terms of side-effects, but I keep telling myself 'just once more' and this too will pass. In the meantime, sending you some energy and love.
Harryfiddler, I think you are the week before me in terms of your op. Have you decided which way to go yet? I am now, in true neurotic AK fashion, fretting about the lymph mapping/injection for SNB before the op. Yep, always focusing on the right things! As lots of you know, I am terrible about needles - bordering on phobic and get through chemo with industrial quantities of Emla cream. I have heard such mixed things about the injection and how much it hurts with some comparing it to childbirth . . .I asked my BCN about local and she said it wasn't needed. I think I may be slathering my soon-to-be-gone boob wih Emla like I am icing a cake nonetheless. I am petrified. And don't get me started on cannulas/IVs pre-anaesthetic. Maybe I will just wrap myself in Emla for a week or so beforehand.
FMB, I hope you've been taking lots of baths and are feeling okay about your op (and Carole too). I bet you're both much braver than me!
Wishing everyone on this thread a happy weekend. xx