I need some advice ladies ....
I've not seen my son since Christmas - the plan was for me to go to him in South London on Sunday and we would go out for lunch.
He has come down with a cold - his description - snotty nose and sore throat.
Last chemo is Monday ...... do I risk it and go see him.... or stay away.
This is a real head/heart one ..... my head is saying why risk it for the sake of a couple of weeks, I could make myself properly poorly. But my heart wants to see him and his girlfriend???
I'd also recommend the Sopranos ...... great series and highly addictive - saw me thru my hysterectomy!!
That makes sense - at least you get it over and done in one hit ... so to speak .... we don't want anyone hitting you!
Dont forget your chargers and get the wifi code!
OMG Bythesea you need a small TV production team to turn up and help you!!
I had the DN come out to check my drain, I didn't/don't sleep in hospital so wanted to get home to my own bed. They removed it as well when the time came. You might be ready to come home, so I wouldn't discount the DN option??
I think mum was only in for 3 days when she had her single mx - and she was pushing 80!
Hang in there AnnaKarenina! It's that dreadful bit in the marathon where you can't imagine how you'll get there. But you will. I'm beginning to accept that I'm not going to bounce back before next week, so I'm going to go into chemo #6 feeling grotty. I am Not Impressed. I don't even have the energy to do a pre-chemo wardance. But it's a marathon, so we just have to keep putting one foot after another, and every step is closer to the finish.
Interested to hear that you're not planning on reconstruction at the moment. I have decided that I would like either to *not* reconstruct or to **have had** a TRAM flap reconstruction but I don't want to actually go through the operation. Can anyone arrange this for me please?
Waving from the South
Okay, much-cheered by the news that our lovely supportive and wise Shi has become a community champion in these parts. Brilliant. xx
Morning everyone, great to see and hear about the line getting closer and some of us even managing to cross it!
I have had a grumpy few days and for the first time really doubted my capacity to get to my own finishing line. The rational part of me knows two cycles remaining is not many and 15 March is within touching distance, but the irrational grump is fed up and worn down by it all. I think the cumulative impact of 8 cycles is beginning to tell on body and soul, but I am too close to get self-indulgent now: big girl pants, gold jumpsuits and whatever magical thinking I need will be invoked to get me in that chair twice more and keep me going until 15 March.
Harryfiddler: that sounds like quite the session. I am pretty certain about my decision not to have reconstruction, but I am looking forward to hearing what the surgeon has to say when I go to see him on 6 March.
Bythesea, how did the pre-op checks go? All set? Remember the hand holding from those of us far from the sea but thinking of women close to it!
Otter, Lesley and Carole, hope you are feeling better today? I have never been so aware of my body as I have been since starting chemo - all these changing sensations and symptoms are exhausting in themselves. Wish you all a healing day.
Finally Lesley, that final chemo check has arrived! Go be assessed and let us know that you're on for Monday. xx
I'd like to say I was bloated Carole .... but no ... just fat!! 🤣
I think there is a surprise booked for me at some point but I'm not supposed to know about it!!
Enjoy your celebration Bythesea - you deserve it!!
Should have been in the chair for 6 tomorrow - but just the pre-chemo check ... final one on Monday - I am so on final countdown!!
I'll hold you to a met up if I make it to Scotland - and if you are down this way let us know!!!
Ended up at the GP this morning - all a bit embarrasing - but started bleeding ..... not a lot of fun seeing as I have had a hysterectomy..... Dr Google signposted chemo induced atrophy which the GP thought it was as well, but turned out to be a slight prolapse ..... so I will need a small procedure at some point.
Anything else going to break on my little body??? Relieved it's all fixable and not a permanent reminder of chemo!
Thanks as you say a productive pain so bearable 🤗🤗
Im due to finish rads on 6th April then back to oncologist on 10 the to see what happens next
Pins and neddnee in feet are slot worst this time round so hoping they will improve
Looks like it's going to be a cold but sunny day here again
Hope you all have a good day
Good to hear you are on form Otter!! loving the lasagna .... I'm on my way!
You'll be virtually finished your rads by the time I start them on the 2nd April - four weeks for me - three weeks for the whole breast and 1 week of targetted zapping! My longest appt is 20 mins - the last one thank goodness.
At least you know that the pain from the injections is because your body is making lots of lovely new cells! I try to think of it as good pain .... a bit like child birth .... one step nearer the finishing line!
I had my 'healing' session .... still not sure about it all.... But I can't say I dont feel relaxed after it so I will continue with it.
JC how you doing? From memory these aren't your good days?
Just to let you know that for our lunch out I have booked the Crusting Pipe in Covent Garden for 1pm https://www.davy.co.uk/wine-bar/crusting-pipe/
its downstairs in Covent Garden - near where the singers usually go - booked in my name.
I've not eaten there before, just had drinks, but a friend of mine has eaten there on numerous ocassions and recommended it . The menu looks as if there should be something for everyone.
Lesley you are definitely inspiring us all to cook from scratch 🤗🤗 l made a gluten free vetgatable lasagna last night and finished my zigsaw so felt like a productive day for a change 🙃🙃
Today I had my planning session for radiotherapy so have been tattooed and start on 15th March for 3 weeks ☢☢☢
Shoulder will probably be painful having to stay in same position for 15 minutes but I suppose it's a necessary evil
Hope everyone is doing ok 😘😘😘😘
Injection are giving a bit extra pain this time but at least it's for the last time 🎉🎉🎉🎉
Morning Bythesea - no probably half a pint ..... I'm pleased with the result!
And I made chocolate muffins with the pulp that was left over, they didn't rise as much as normal, but the centre is more 'brownie' like ..... what's not to love!! And full of fibre!
Glad your pizza's turned out ok - keep it going !!!
I'm definitely going to keep going with making as much as I can and keeping all my food fresh. As my OH says, if it needs a label then someone has messed around with and it will contain all sorts of salts and sugars and additives.
Have they said how long you will be in hospital for?
My son and girlfriend were up your way this last weekend - spent their anniversary in Edinburgh - they loved it, beautiful city and great people! i really must get round to a visit. I'm ashamed to say I have never been to Scotland!
Happy Tuesday all...... another day closer the end!!
Wow HF, it does seem as if you have had information overload!!
But at least now you can sit back and hopefully digest everything that was thrown at you.
I think FMB is having the same sort of surgery that they are offering you.
Good luck with whatever decision you make.
I have my healer coming around again today - hopefully it will be another relaxing session!
Porridge with my tigernut milk later ..... I'll let you know!!
Lots of encouraging news coming from your side of the world! Well done lesley, AK. My 5/6 docetaxel had a sting in its tail, and I haven't bounced back nearly as much as I did from the others, which is frustrating. But keeping my eyes on the prize -- steroids and bloods on Monday, final chemo on Tuesday.
I have just come home from a three hour seminar on reconstruction options and my head is spinning. A frankly terrifying slide show from a lovely (female) surgeon -- looking at all sorts of possible results, good, bad and ugly -- and then six wonderful ladies stripping off and telling their story. The surgeon's photos were mostly quite soon after surgery, so a bit confronting, but the live show was much more encouraging! Two years down the track their scars were pretty much invisible and all of them were happy with their boobs.
I'm not sure I was ready for quite this much information, but they're very keen on the all-in-one mastectomy and recon operation here, which means decisions for me, soon. Yikes. I'm going to have a nap to let it all sink in...
Well done AnnaKarenina, kneading bread is very therapeutic! Glad everyone liked it.
And one day of feeling pooh isn't too bad. As you say, much better than the (F)EC side of things. And good you have a measure of it, given that you are now every 2 weeks - at least you can plan. And those around you know what to expect as well.
You get sucked into the Olympics all you want .... you have a great excuse!!
Ooh Lesley, final flush! I love it. I am much less fond of the news that your poor skin is wrecked but hope that when they remove the PICC line SOON, all will heal well. Super impressed by the creation of milk from tiger nuts. Amazing. Inspired by you, I made some (very simple) wholemeal bread yesterday which went down a storm in these parts. I was in Paclitaxel pain land and there was something quite therapeutic about creating something good whilst beating up a piece of dough.
How is everyone else today? Elorac, Otter, Bythesea, Anadan, Harryfiddler and the gang?
I think I can say with some confidence that I now know the Paclitaxel cycle: sense of security on day 1 with not many problems, sense of apprehension with creeping pain and changed sensation on day 2, sense of self-pity on day 3 as I grapple with horrid pain, weird sensations in feet/hands and shedding skin, sense of cautious hope on day 4 as it all begins to settle down a bit. I am day 4 now, but yesterday was miserable.
Still, it remains lots better than EC SEs, especially as there is no nausea and the bleurgh seems to last less time than the bleurgh of post-EC cycles.
Must now go and do some work. Must. not. get. sucked. into. vortext. of. watching. Winter. Olympics. Must. not. xx
hope everyone is ok - just been for my final flush!! Yeahhhhhhhhhhhhh!!
The skin on my arm is a right mess - I've developed an allergy to ALL the different types of dressings they use ..... but only a week to go and then it wont be an issue!
I've made my first batch of tiger nut milk ...... and it's ok! I didn't put in the sugar that they included in the recipe and I think its still sweet enough.
You have to soak the nuts, with an optional cinnamon stick, over night. Then just whizz them up with water and strain. You're left with a load of pulp which you can use to make cakes with or dry out for a nut like sprinkle topping.
The tiger nuts are not actually nuts but tubers - so good for anyone with a nut allergy.
Happy Monday everyone and goodluck for anyone having their 🍸 this week 🎢
How are you bell ringing ladies doing? Hope you are all keeping well and SEs are at a minimum
I've had a lovely weekend .... and it's not over yet!
Enjoy the sunshine if you have it.
love and hugs to all
Thank you Lesley
I'm definitely going to have a go at the bread once I've finished chemo-apart from it being healthier, I reckon all the kneading will be theraputic! My girls might not be so enthusastic though, I'm not usually great at cooking! xx
Well done now relax 🤗🤗🤗🤗🤗
My job was117 so plenty of protein and spinach for me too
Hope you all have a sunny 🌞🌞🌞 Saturday