What did this Friday bring? A swim in the ocean! Now, I'm a strictly English style swimmer -- breast stroke, head above water, ideally wearing a flowery bathing cap -- but some of my Aussie girlfriends dragged me off to Curl Curl Beach for a very quick dip. The big problem here is that it is *so* sunny that I've got to be really careful about exposing my skin to too much sun. Yes, OK, it's a nice problem to have! Although I have looked enviously at your cool temps on those days when it's 30 degrees and the hot flushes come to play.
Still battling swollen and bleeding sinuses - has anyone else had this delightful SE? However, I think I've dodged the finger tingling bullet, for which I am very grateful, and the aches and pains are all gone. So now it's time for a week of relative normality before LAST ONE.
I also saw a psychologist specialising in breast cancer ladies this week. I don't think we have a 'moving on' program here but I was very impressed with how across it she was -- that big mush of relief and fear and what-happens-next. Felt good to know that there's guidance available through the next bit of the maze.
I'm parcelling up some rays of sunshine and sending them your way,
morning jencat - come and play with us!
I use a food processor to make the dough and then the rest is by hand, but with ciabatta its all about the proving - lots of time involved!
I feel like Maria in the sound of music, I just want to go running thru the hills, singing at the top of my voice - such an inspiring day!
AnnaKarenina, you can't go far wrong with Mr Hollywood http://paulhollywood.com/home/recipes/bread/ he says which is for the novice etc ..... let me know how you go 👩🏻🍳
lost 2lbs this week 😍
Hi Lesley, I wanted to add how nice your bread looked and although I'm not much of a cook, would like to have a try at making some myself once I've finished chemo. (I'm the only one from Oct not finished yet ) Do you use a breadmaking machine or do it all by hand? xx
Oooh, JC and Otter - what a stage to reach! I am doing a happy dance for you both. Just brilliant. Vicarious celebrations and marking of THE END of chemo are a brilliantly inspiring way to battle through the next few days of Paclitaxel-induced nonsense.
Lesley, I have been inspired by your bread making combined with a piece on the radio that claimed that bread is one of the most processed products we tend to buy when it could/should be made with 3-4 simple ingredients. I am nowhere near ciabatta level, but what would you recommend to a novice as a source of easy recipes?
Anadan, how are you doing? I really hope the pain has settled a bit?
Elorac, Bythesea, Harryfiddler and friends: what does this sunny (although not as sunny and certainly not as warm as it is likely to be where HF is at the moment) Friday bring you? Only good things I hope.
Off to try to heated body wrap to see if it can nip the aches and pains in the bud (bone). xx
Looks like a beautiful day out there for JC to get some bell ringing done!!!
Oh and no allergic reaction or unnecessary dramas please!!!
Thought it was strange as we are all near the end of our chemo.
Thanks for the warning Sue and well done Lesley for reporting the post
Had day 1 of steroids, off to bed now ready for my big day tomorrow xx
Thanks all just can't believe I've finally got to this stage fingers crossed SE behave themselves 🙃🙃🙃🙃
Planning a relaxing few days as I've got rads planning meeting on Tuesday and as its the shoulder and side of neck I've permanent damage from a whiplash injury I need to make sure it's fine as from what I understand you have to stay in the same position for 15 minutes which will be different as it will hurt 😢😢😢😢😢
OMG, Otter it’s so exciting!! 😀👏😀👏 well done you! 💕💕💕💕
I finished my injections today, and I hope the pains are gone soon.
Ringing a virtual bell 🔔🔔🔔🛎🛎🛎🛎🎊🎊🎊🎊🎉🎉🎉🎉
Chemo 6 nailed🤗🤗🤗🤗😘😘😘😘
I checked my dose had been at 75% for all 3 T due to fibromyalgia and greater chance of increased neuropathy which why if it was too bad they would have had to stop as couldn't reduce any further.
I've been getting increased night swests on T but was getting through FEC too
Lovely sunny day here so will have a bit of lunch then go for a walk as I've put on 2 stone as well so need to start to eat more healthy and do more exercise and as you say a good time to review my lifestyle
Hope eveyone has a good day
Anadan, yes the pins and needles in feet and hands is a sign, you need to mention at your pre-chemo check ..... they should be asking you anyway.
How are the injections going? how's your pain?
Lesley, your ciabatta looks amazing, I bet it tastes even better 🤤🤤🤤
yes, this disease makes you think about your lifestyle, doesn’t it? I’ve always been active (my dogs are very demanding 😜) but now I want to do even more. More hiking 🧗♀️ Maybe canicross ... Bythesea, you have a dream job!! 😍
JC 😂😂😂 yes, that’s exactly what I do every night now. At first I thought it was a tropical fever 😂 but I measured the temp and it was ok, Just the sweats
Ladies, did you get a lower dosage of the T due to tingling fingers and toes? I don’t have the tingling sensation but pins and needles in my feet. Is this the same? A symptom of neuropathy?
I don’t know what my first dosage was because I forgot to take my little booklet with me, but I’m only 52kg and lost weight on chemo
Morning from sunny north London ☀️☀️
My docetaxol was reduced from 180mg to 148mg (I'm just under tall!!)
Otter & AnnaKarenina wishing you both lots of luck & sending you hugs 🤗🤗🤗🤗
I don't think my unit has a bell so I will pressing the virtual bell & doing virtual cartwheels whilst whooping tomorrow.
Just had a Sainsbury delivery with a smashed carton of whipping cream going everywhere so I burst into tears 😭 so the driver has now reimbursed me that box of shopping.
I was advised to start the arm exercises before my op & continue them after. I just did the bcc ones , I think as long as you're doing some sort of exercise in that area it helps. I bought a V pillow from Amazon, which helped.
Anadan, I play the hokey cokey in bed with an arm in then out, leg in then out, covers on then off then I start again. It's great fun!!
Bythesea I think you're the tallest of us all and you definitely need to be exercising your arm area for your job, which sounds amazing.
Lesley, the lady from the moving forward talk said they discuss a lot of myths surrounding food and cancer at their meetings also there should be something on the bcc webpage about the daily mail article. Wine is definitely one of your 5 a day as It's made from grapes 🍇
Off to out shopping away & then visit my mum xx
yes I'm trying to go healthy ...... in fact I have just cleared out my kitchen cupboards.
Obviously I need to lose weight - 2stone over what I should be.
But I want to go fresh, fresh, fresh, so I am switching to a mediterrean diet
Starting with a 4 week diet plan - the mediterrean diet plan by an American dietician originally from the Lebanon and endorsed by a Cardiologist. And then inspired by the Hairy bikers Med adventure - great recipes in that.
Hence making my own bread as well.
The milk thing - I don't like milk and don't drink a lot of it, but again, not sure if we should be drinking another animials milk?? Just my view obviously!
Hopefully it will become a lifestyle rather than a 'diet'. living by the sea I have not excuse to not to eats lots of fish and cut down on the red meat. We have a great fish shop on the beach, literally straight off their own boat, but it's about making the effort to go down and buy whats good and fresh on the day.
But I want to bounce back from all this treatment as healthy as I can be.
My son keeps saying that the chemo is like drain cleaner, it has cleared out all the 💩 in more ways than one! I definitely wont be needing a colonic irrigation anytime soon. So it's my job to keep it clean now.
And wine is technically one of your five a day ............ right???
The photo is the ciabatta ... and I can report it tastes delicious.
Made me chuckle this morning scrolling thru the Daily Mail (font of all knowledge!) that shop bought bread is now classed as a highly processed food and 'can cause cancer'..... I'm starting trends all over the show!
I do worry that anything and everything you do 'can cause cancer' ...... but I am trying to minimise as much as I can anything that I dont know whats in it. As my OH keeps saying, if it needs a label, someone has played around with it!!
You will be sore and stiff after surgery, stiff isnt really the right word, it's all the bits inside that need to learn how to stretch again. little and often worked for me, but those exercises worked for me.... you know when you can feel them doing some good - it's hard to explain. But dont start them too early, ease in gradually.
Lifting and carrying is a problem after too. even carrying a handbag was a issue for me on one particular ocassion, and dragging a pull-a-long bag - just awful! You dont think how much you use your arm until it becomes an issuel. But its the node clearance that produces all this rather than than the breast surgery.
Have they given an pillows?
I was given a heart shaped pillow to prop under arms/chest whereever to help in chairs and sleeping.
I didn't find I needed it, but my mum has a mx 4 years ago and she loved it when she came to stay ..... went home and bought one for herself.
No worries Anadan - I will be sticking around like a bad smell .... I won't dessert you!!
Yes I had a couple of nights when I woke up wet thru on the T - I've not suffered with night sweats before so it was a bit of a shock to start with and I panicked that my temp was sky high and an infection brewing, but no .... just the sweats!
Good luck today, ladies 😘😘😘😘
lesley, thank you for the links again; you must stay with us and guide us all the way through x surgeries are getting closer 😱
I’m sweating horribly at night on T, have you experienced it as well?
have a good day, everybody 😘😘
Good luck Otter - give that bell a good ring!!
My unit doesn't have one - so I'm thinking cartwheels down the corridor????
Get a snap of you ringing the bell if you have one
Morning all - another dreary one in Kent I'm afraid and another day when I am stuck in the house waiting for deliveries and pickups and carpet fitters who said they would be here before 8am ..... still to show!
Bythesea - I know you have surgery soon and I seem to recall you are having a mx?? sorry if I have got that wrong...... are you having any lymph node surgery?
I had a Sentinel node biopsy first, followed by a total node clearance and lumpectomy four weeks later.
They warned me about stiffness in the arm before each procedure, it wasn't too bad first time around, but the second time was much worse and there was a point after 10days that I thought I would never be able to move my arm properly again ........... It's perfectly fine now! But you don't know that at the time.
The Trust gave me exercises to do - they were the BCC ones https://www.breastcancercare.org.uk/sites/default/files/publications/pdf/exercises_after_breast_surg...
but I didn't 'feel' that they were working for me.
I did a bit of research around other trust information etc and came across this set of exercises, which for me worked much better - http://www.ouh.nhs.uk/patient-guide/leaflets/files/101108axillarydissection.pdf
I just wanted to share just in case it can help any of our Nov Surgery girls!
Slept a bit off for 🎢🎢🎢🎢🎢🎢 6 hopefully it will go ok 👌👌
See you all the other side
Hope you all have a good day
That's ok soap box aloud as its important as my friend at work has had permanent damage her chemo was over a year ago and she hasn't been able to work as she can't feel her hands so can't type so may have to go down the I'll health retirement route
Brain just on over drive as didn't get to see oncologist as to many patients so only saw nurse so she was only going on notes which said if increased neuropathy to stop but when I queried this as oncologist last time had said we could look at reduce she just disappeared then come back and said they had agreed to continue as current dose which I took to be full but now I don't know looks like I've probably been on reduced all along so hope it has been doing what it should to blast the little😈😈😈😈
Don't think I will be getting much sleep tonight steroids giving me hot flushes on top of normal hot flushes so will need a bucket soon and a change of pj🙃🙃🙃🔥🔥🔥🔥
Ok thanks my start weight was 65kg now I'm 70kg at 5ft 3 in so it looks like mine was a reduced dose anyway because of my fibromyalgia but know one said anything about it so I think I need to ask tomorrow as I don't want permanent damage but can also understand that if it's already a reduced dose the only option would be to stop
Confused or what
Can I ask what dose everyone is on my book say 120mg and was wondering if this was a reduced dose anyway which is why it would have to be stopped completely if neuropathy was due to chemo just having doubts as to whether I should have agreed to go ahead with no 6 😢
Here you go ladies, not bad for a first attempt - probably a bit darker than they should be, but I'm hoping that will add to the flavour 😂
You have such wise words AnnaKarenina, and you are right. When I've been asked today how I am, I have replied with not great instead of my usual, brilliant thanks (regardless of what's going on!).
None of us need to be SuperGirl 24/7, its ok to have 'moments'
Thankfully my aches have subsided over the day. I'm hoping normality may start creeping in from tomorrow ...... but if it doesn't, that's fine too!!
JC1262, that is amazing. Here's hoping Friday happens and you can celebrate before telling us what it is like the other side of the chemo carousel.
Lesley, I am so sorry you had a rough and emotional night. I think letting it out is the way to go. I was so busy being Pollyanna ("reasons to be glad") and 'strong' at the beginning of this pesky process that I think I didn't really allow myself to feel anything. I have been fortunate that I haven't had too many emotional meltdowns, but I have been caught by a few since I let my defences down a bit and you know what? I think I have done better for being more authentic and open to the rubbishness. I've learned it is not only possible to be resilient and vulnerable, but that the two probably go together. So, feel the feels and know that there is a community here who gets it and is on your side no matter what.
And how is the bread? I am in awe of your culinary skills. And tiger nut milk is an alien concept, but I am longing to hear how it went.
Anadan, how are you feeling now? I hope the next injection is not such a brute and you're able to feel more human soon. Like you, I am a huge Headspace fan. The 'cancer' packages have been invaluable to me. I am not great about doing it every day, but always feel better when I do make the time to do it.
Bythesea: wow, 28th February. How are you doing with the news? As Lesley says, we are all getting ready to hold your hand and, for those of us who will be following in your surgical footsteps, you are now officially our post-chemo surgery-slaying leader!
Hope everyone else is doing well? I am taking my place in the chemo chair tomorrow for cycle 6, so am frantically finishing off 'stuff' in that weird activity phase that I always seem to have before chemo. I never achieve much though . . .