07-02-2018 02:55 PM
Enjoy your greens Carole ..... I've been munching on brocolli and spinach this week - my HB was 121 🌱
I'm off to Bracknell - not the leafiest bit of Berkshire.... I should really pop in and see my Aunt who is only 12 miles away - but I'm just not up to it .... so I'll be sneaking in and out of the county .... she's got an amazing radar that woman!
07-02-2018 02:50 PM
07-02-2018 01:41 PM
Hello everyone, just back from a cold but gloriously sunny walk with my daughter at Wisley which was really uplifting. Something about seeing new life and tenative buds emerging, even in these temperatures, that was moving and encouraging.
Anadan, so sorry about your poor veins. This may be a load of rubbish, but I have been told that blueberries are excellent for veins and one of the chemo nurses mentioned it to me as a supportive thing to eat for veins when I was debating whether to go the port route or not. If you hate them, forget it, but if you like them, it might be worth a go? Hope you managed to get some sleep eventually despite the evil steroids? Are you on a fortnightly regime now?
Lesley, I so empathise with hating all the darn drugs we get given. I think occasionally that has led me to undertreat symptoms and side effects, but I am always so aware that whatever I take will help, but also lead to more nonsense. I really feel my head hasn't adjusted from my pre-diagnosis state which was you would be lucky to find paracetamol and a plaster in our house. Long may you stay side-effect and symptom-lite. No feeling guilty - it is just brilliant that you are feeling okay, especially after the long haul we've all been through.
Harryfiddler, I hope you are fast asleep now and look forward to our daily update on summer when you wake up. Yay for completing chemo 5 - is it one more to go for you? I think I am an oddity (in so many ways) in having 8 cycles to do. And I'm with you - chemo is rubbish. It is horrid and intrusive and worrying, but we have all got on with doing it anyway and for that reason, I reckon we should be proud of ourselves. We faced the reality and our fears. So there!
Otter, so sorry to hear about the additional stress of work. Not what you need at any time, but especially not now. Is there any update?
Carole and JC1262: how are you both doing?
Sending sunny Wednesday love to everyone. xx
07-02-2018 10:46 AM
07-02-2018 05:28 AM
07-02-2018 01:00 AM
So quiet here today!!
I survived chemo 5 (first T) and must say the steroids are the worst! I didn’t sleep till 3 am last night, this morning I had the horrible hot flushes and my face was burning even before I started the treatment; one more day of steroids tommorow! (I spent all afternoon on Amazon today 😂😂 ) ; not so much nauseaus, that’s good. In the first few minutes of docetaxel dripping in, my vein started stinging, luckily the nurse was still with me and she stopped the drip immediately. She changed the vein, it was ok later, but I must keep an eye on the affected one; I applied an ice pack (the hand is bruised) and I’ve got hydrocortisone in cream; the hand looks much better already, so hopefully the horrid T didn’t get out of hand too much xx
hope everyone else is ok xx
06-02-2018 08:49 AM
so jealous of your beach walking expedition.... especially feeling the sand in your toes - can't wait for that!! But that will be me in 139 days and counting ..... not Sydney - but Portugal - can't wait!
The one thing that has really got me down is all the 'other' medication we have to take - for the side effects of the side effects ..... it just starts a chain reaction.
I'm feeling really well (at the moment) so not taking any anti-sickness, which lead to heartburn, which means I have to take another med... so that's a comfort.
Injections start tonight and hopefully a couple of paracetamols will keep the pain at bay as it did with chemo 4. I hate to read that some of you are in so much pain, when I seem to have dodged that bullet... glad for myself, but awful for you - it makes me feel guilty! After chemo 4 I nearly rang the unit to make sure they had actually given me chemo but then the dodgy feet cut in and I know they had!
Any way - safe and comfortable Tuesday's to you all ....... we are all amazing ladies pushing thru the 💩 of treatment coming out smelling like the Chanel No 5 Goddess we are! 😇
06-02-2018 08:27 AM
Good morning/ evening all,
And that's chemo 5 DONE! Final session Feb 27. Rads are not confirmed -- the surgeon said he thought it would be of "marginal benefit" -- so not sure whether I do April surgery or April rads then surgery. The uncertainty is not helpful but it is exciting that the end of treatment is getting closer.
I have a confession to make. Chemo is horrible. It doesn't get any better. I put on my big brave girl pants but I still end up all quivery lippy and whimpering over the needles. But, on the bright side, now IT'S OVER!!! And a girlfriend drove me and dog to the dog beach to get some sand between the toes. It really is so nourishing.
In other drug news, steroids are not my friend. I have high blood glucose so they've cut the steroid dose down. I don't know what the implications are -- either for blood glucose levels or steroids reduction. I think the BG means being wiped out, energy wise. Luckily, I haven't planned big parties for the next week!
Great to hear from you all sounding so positive. Lesley -- you're rocking that lobster outfit!
06-02-2018 07:26 AM
05-02-2018 08:10 PM
AnnaKarenina, I’m browsing different online shops, looking for something I think will help me feel and look better. So far, I like the sports bras the best. Do you know whether we can look in the ‚normal people’ 😜 department or it is better to go straight for the post surgery things?
Otter, I also have white baby fluffy head and not sure whether my hair has decided to grow back... It doesn’t grow back anywhere else yet 😜 lucky me 😂
Sandie, I didn’t cold cap, and shaved my hair to a grade 2 and then grade1 and it felt such a relief when I finaly did it ...
lesley, you’re a star! I know what you mean by a wobble without any more appointments; it really scares me that Iwon’t be looked after any more, I won’t even have mammograms 😱
Kudos to your son 👍👍👍
Well, I have painted my nails black, whether it si going to help or not ... it won’t do any harm; I’ve taken my steroids for today and waiting for tomorrow my bloods are a teeny tiny bit too low so they are going to retest tomorrow but the nurse said the neutrophils will pick up overnight on the steroids so I should be going ahead.
Have a lovely evening! Harryfiddler, more such photos please! You live in a beautiful place 💜
05-02-2018 07:38 PM
Don't worry I want 😊😊 I see my GP next week he will probably be signed off until rads finished then I've over 3 weeks leave I have to use from this year's allowance so it could be the end of aApri before I'm back to work hopefully by then the will be a team to go back too 🙃🙃🙃🙃 if not I'm not going back till the is as not need the stress
05-02-2018 07:02 PM
Wow Otter, they are literally giving you 4 weeks off then, whereas I get a month off ..... don't go crazy in those 4 weeks, rads is still going to take it out of us - even if its just the constant going backwards and forwards.
I'm lucky they gave me my local hospital so just the 35 miles a day as opposed ot the 75 it could have been!
And I've gone for first thing - so traffic to contend with as well, but at least I get the whole day back to myself xx
05-02-2018 06:59 PM
Fingers crossed my last cycle is on 15th 😊😊😊
But yes we will probably all feel a bit strange when all the appointments stop as I felt I've lived at the hospital since July 🤗🤗🤗🤗
05-02-2018 06:22 PM
Can't believe your gang will be done next week JC .... me and Carole taking up the rear in this cycle and then AK - we will hold your hand thru your forthinightly sessions!!
Our kids are amazing arent they. My son is doing the London Marathon this year, never run a step in his life.
He is doing it for marie curie, his girlfriends mum was diagnosed this time last year with pancreatic cancer and we lost her 9 weeks laters. The hospice was fantastic so he is doing his bit to pay back - bit ask though - they HAVE to raise £2000 - anything they dont raise they have to pay themselves.
But I plan to be at the after party..... apparently marie curie put one on for the runner and relatives!
05-02-2018 06:18 PM
05-02-2018 06:15 PM
05-02-2018 06:07 PM
hi JC - I'll find out next Monday when I go for my flush about the last chemo, they seem to think the onc will leave it as its a reduced dosage and messing around will bugger up their chair schedules ..... which are tight!
But I'm sort of over the delay now 22nd or 26th Feb - either way by the end of Feb I will be done!!
I just feel for all the surgery girls ..... I feel as if I am rubbing it in that after rads I will be finished..... I don't mean to upset anyone, and I will give you all the bits of goss and advice about surgery that I can.
As long as you all promise to hold my hand when I have a wobble cos I havent got any more appts to look forward to!! How mad is that!!