04-02-2018 09:20 PM
I didn't cold cap but shaved to grade 2 which then nearly all come out I didn't want to shave my head completely as skin was sore so left it and they just remained not sure they have grown 🙃🙃 but I've also got a very fine fuzzy layer over most of my head it feels like baby hair so I'm presuming it's regrowth but it is grey so maybe that's the colour my hair will be
04-02-2018 07:27 PM
04-02-2018 01:43 PM
Lesley, I hope that you're feeling okay about tomorrow and that the cleaning blitzed the roid rage. I so admire your adaptation to such a frustrating situation, but I wouldn't want to be the unit if they mess up again, especially not as you are now soooooo close to the finishing line.
JC1262, you poor thing. That sounds like a strange and unsettling experience. I would definitely mention it. I have had shivery moments, but they have usually been in the middle of the night when a) it is bloomin cold and b) I have just emerged from the heat spot under the covers, so I am not sure that counts! Worth checking out with the team I reckon. Are you doing okay today?
Anadan, I hope the shopping list is coming together. I have been making my own list as I anticipate surgery. It is a funny kind of shopping isn't it? Not exactly the stuff to make us feel pampered and special, so I reckon we maybe should start a second list that is nothing to do with mastectomies, but is everything to do with feeling better in the wider sense. Who's in?
So Paclitaxel. Hmm. The good news is that Friday I felt fine and dandy and was so relieved not to feel sick, fuzzy and tired as I did on EC. However, I knew they'd sent me home with co-codamol and had been warned about musculo-skeletal pain. On Saturday morning, I ached, but it was manageable. However, by yesterday afternoon, it was a bit grim. I desperately didn't want to take heavy duty analgesia if I could help it and not in the daytime, but by 6 p.m. I caved and took the medicine which helped a lot. When it began to wear off, I tried a magnesium bath, hot water bottles and trying every position I could physically manage to try to avoid taking another dose, but nothing made a difference, so before I went to sleep I took two more co-codamol and slept until 7. Pain rotten again this morning, but maybe, just maybe it is easing a bit now. Not sure. I am determined to resist the co-codamol until bedtime if I can. I hate being doped up and also dread the constipation that codeine causes, so think if I can manage, I should. I am hoping these acute pain days will be shortlived, but I am in the land of the unknown now.
Does anyone read The Observer? Interesting piece by Joanna Moorhead about her decision not to have a mastectomy (taken the morning of the operation) and why that was right for her. Maybe not one to read if you're feeling a bit glum, but it is interesting. I know my 'decision' to have a Mx is not really a choice, so perhaps that is easier in some ways, but it is an article that reinforces how different and individual everyone's responses, circumstances and options are.
Have a happy day. xx
04-02-2018 12:08 PM
04-02-2018 11:21 AM
Oh JC - that doesn't sound a good experience ..... are you going to check it out with the unit tomorrow?? I think you should.
I will have a look at the youtube - good spot!
I didn't ask about delaying the last one ... When it was from Thurs to Fri, they said it wouldnt affect the next one. But I will be checking with them tomorrow, you can be sure!
hope you continue to feel ok and that feeling doesnt come back xx
04-02-2018 11:13 AM
Lesley, won't this have a knock on effect - so your last one will be 3 weeks tomorrow?
I had a strange experience last night.. I was just sitting watching the voice when suddenly I felt as if my temperature dropped, my forehead was warm but my face felt cold, apparently my colour wasn't too good either. My hands felt ok but my arms were cold, it was an effort to keep my head up at times. Once in bed I was fine & I'm ok today. I didn't take my temperature as no one could find my thermometer, which is kept in my bedroom with all my chemo bits, so there will be a big hunt for it today. Has anyone else experienced this?
On a positive note, I went on the Becca (breast cancer care) app yesterday and one of the 5 daily notes was about faking eyebrows, lashes, false eyelashes etc. It's from a cancer blogger called Carly, her blog is called Eyelineher, she has tutorials on YouTube . I watched some of her videos and she is lovely, very easy to follow with clear instructions as she's making up her eyes. I think she's worth checking out as, like us, she doesn't have eyebrows/lashes but you wouldn't know it to look at her. Her tips on applying fake eyelashes were very good.
Wishing you all a lovely day xxx
04-02-2018 10:35 AM
04-02-2018 09:32 AM
OMG!!!!!! Lesley, that's absolutely terrible!!!!!! How are you doing, how have you been over the weekend. As Otter said, is that more steroids? Hopefully they'll get it right for Monday - I did double check when I had mine that it was a reduced amount (20%).
It sounds as if you're going to have the cleanest house, hopefully playing loud music and having a boogie whilst you're doing it, just think of the pounds you can burn off 😉💃💃💃
Seriously though, 🤞 for tomorrow - we'll all be with you xxx
04-02-2018 09:16 AM
Happy Sunday ☀️
Anadan, I had a single mx last summer and wore loose t shirts as the tube came out from under my top and then went into a bag, they supplied. It had long straps and was roomy inside, it was quite discreet. I think the only thing I couldn't wear were dresses. I did ask my surgeon about an mx on my other side as a precaution but he explained that if it were to come back, it may not necessarily be in my breast and they don't do precautionary mx's. Btw, i found some pretty and reasonable post surgery bras from George (Asda online). Oh yes and i bought a V shaped pillow, a dressing gown with deep pockets but to be honest I found loose comfy clothes in layers easier. I think I had mine in for about a week max. Good luck to you as you go forward 👍
03-02-2018 11:57 AM
03-02-2018 10:05 AM
I crashed at about 8pm last night - emotionally drained more than anything I think to be honest. You don't always realise how keyed up you get for these blinking sessions..... then when they don't happen.
But need to move on.
I'm going to get out in the garden and try and burn off some of these steroids before they start again tomorrow .... the bathroom will be receiving a full deep clean along with the oven!!
Perhaps I should be thanking the nhs for a cleaner house!!
Hope everyone is coping with the SE ok ..... how bad is it that I wish I was suffering too 😂
Anyway only another 48hrs and I'll be done!
Better to cock up Chemo 5 than the last one!!
03-02-2018 09:58 AM
Lesley, I am so sorry. I just saw what happened. What a mess up. I really hope you can have a weekend that isn't dominated by steroids and stress. It is wretchedly frustrating. You may need a dose of LaBlast to burn off the rage . . .Let me know if you need me to send the link again.
Anadan, thanks for asking the questions re: surgery. As you know I am on the 8 cycles, then surgery treadmill too, so I really appreciated being able to hope on the thread and see the discussion. I know just what you mean about awaking the surgery demons too. Now it is getting closer, there are a whole new set of questions and worries lurking, but we have come this far. We can do it, along with Harryfiddler and others on the November chemo starters who will be moving into the new phase. At least we are doing it together. We'll be comparing button up pyjamas and dressing gown pockets before we know it!
Bythesea, I LOVE the idea of the shrinky dance. I may add it to my LaBlast routine. Sounds perfect. xx
03-02-2018 01:13 AM
Rage on your behalf! And I haven't even started the steroids yet!
Good luck on Monday. Your delay puts me right behind you, Tuesday am, Monday night your time.
02-02-2018 10:33 PM
Oh no! Lesley! How much more steroids do they want you to take... I really feel your anger 😤😤😤 I hope you have a good night sleep xxxxxx
thank you for all your advice re surgery and the drains xxxx I will surely ask more questions when I’m done with T, jumping ahead a bit at the moment but that’s because I saw a surgeon last week. The conversation woke up all surgery demons 😱
02-02-2018 06:21 PM
Don't worry Shi - I will be checking everything.
Another complaint to lodge unfortunately. But they can't mess around with people's lives. It impacts on so many other things!
02-02-2018 06:19 PM
02-02-2018 05:33 PM
I'm not surprised you are annoyed I would be fuming 😬😬😬😬
I presume you also have to take more steroids over weekend 🙃🙃🙃🙃🙃
Fingers crossed they get it right on Monday 👌👌👌👌👌
02-02-2018 05:14 PM
Back from the unit ...... but no treatment!!
They 'forgot' to make up my chemo!! But the unit didn't realise they didn't have it until after they had given me the first flush, the anti-sickness meds and then the second flush.
Back again 8am Monday!
So unnecessary medication - 3 days of steroids and anti-sickness. I was the 4th person today it had happened to.
To say I am slightly annoyed is an understatement!