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Posts: 227
Registered: β€Ž01-11-2017

Re: November 2017 Chemo Starters

We'll done harryfiddler πŸ˜ƒ

Good luck with the photo album, but try and rest too 😴😴

Carole πŸ’•πŸ’•
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Posts: 70
Registered: β€Ž07-01-2018

Re: November 2017 Chemo Starters

Hi all!

 

End of a long day here, starting with onc and then my first T. So I'm 2/3 through!!! Wooohooo!

 

I'm such a scaredy cat, I had to do the deep breaths to get a vein to work, and then the steroids made me shake, but once that was done it was totes fine. Now I'm bouncing off the walls (when I should really be going to bed) so I'm going to try and put some of that energy and motivation into making a photo album of our Christmas family reunion (with my brother from the UK, big deal), while drinking water. And more water.

 

Oh, btw, worked out a major nausea trigger: they use heat packs full of wheat and the smell makes me want to throw. I had thought it was the taste of the ice, and spent the last three weeks avoiding ice (which is not good in Australia in summer) but this morning I had an instant reaction -- GET THAT THING AWAY FROM ME. (I admit, the steroids might have made me a little punchy.) Gotta love those nurses. They got me a non-wheat pack and when I was still whinging they fixed me up a tissue dipped in tiger balm to sniff. 

 

Anyway, going to attempt to wind down. Have a good day all, and hope everyone's feeling better. 

 

Harry-speedy-fiddler

xxx

Member
Posts: 227
Registered: β€Ž01-11-2017

Re: November 2017 Chemo Starters

Thank you for the hair advice, I have a no. 3 at the moment which has been growing but now also jumping ship. Will get OH to give me a lower grade and we will see what happens.πŸ€”

Annakarenina I too suffer from migraines, but not too badly, and I too am aware that alcohol can effect them, but I have found that prosecco is fine and also the more expensive the wine the more likely no effect .🍸🍸🍸

Today is a visit from the DN for PICC flush and bloods taken, tomorrow off to see the onc and Thursday first T

Have a good Tuesday and good luck with finding the drink that tastes at least palatable

Carole xx
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Posts: 193
Registered: β€Ž22-10-2017

Re: November 2017 Chemo Starters

Morning everyone, so much to catch up on! 

 

I am going to out myself now as someone who gave up alcohol completely about ten years ago. I was getting terrible migraines and thought my love of G&T/wine may not be helping. I was horrified to discover that I was right! I hope you'll still talk to me now you know?

 

Anyway, I miss the social and relaxing effects of alcohol a lot which has meant two things. First, I am often to be found inhaling from other people's glasses to get that brilliant smell, especially red wine and secondly, I have tried most non-alcoholic substitutes. I hate to report, there is no substitute I have found that really is equivalent in taste or enjoyment. However, I do like Seedlip with tonic water a lot. It is a strong taste though and distinctive, so I am not sure how it would do during chemo. I couldn't manage it at the moment, but then I am day 5 post-EC, so on the steroid crash and nauseous.

 

Remember though: prosecco days will be back my friends - getting nearer and nearer!

 

Shi, I am so happy and relieved you had such a good outcome from your consultation, especially after the horrid reaction and the apprehension of what followed. A plan to complete. What a plan! I am sending all the love, good vibes and high fives for the next dose and ticking off all six sessions in glittery, emoji-strewn Shi style.  

 

Anadan, fabulous news about being all set for the next dose - being derailed is wretched. And your daughter is a genius who made me laugh outloud. 

 

Elorac, I didn't cold cap, but like Otter, I have never lost all my hair. A lovely friend who is also a hairdresser came to the house and took my fine hair v. short i.e. a cm to my head when it began to come out in clumps towards the end of cycle 1. She was certain it would all be gone within a week, but it never went and I think it is even growing a bit. I have a charming gap midway through my left eyebrow and they are both thinning, but I am fair, so have never been used to having brows I didn't have to fake in some way. Eyelashes not doing too bad, but I am moving onto Paclitaxel next and I think that will be when they are challenged. 

 

Lesley, the temperature spike must have been horrible, especially in the middle of the night. Is it all settled this morning? And how was the healer? 

 

Wishing you all a good, peaceful and restorative Tuesday. x

Member
Posts: 837
Registered: β€Ž10-07-2017

Re: November 2017 Chemo Starters

I went for a buzz 1 just before FEC 2 and then shaved it all off after FEC 2 cos it was going patchy. I haven’t shaved it for about 2 weeks now and it’s holding its own ... not exactly growing but not patchy anymore. Still got lashes and brows .... for the time being!

Heading to Sainsbury’s shortly to scour the shelves for drinks!

Day 6 for me and still feel ok - the soles of my feet are tingling but no other major aches or pains.

My temp spiked last night - ended up taking it every 30 mins for about 4 hrs then dropped back - all good this am. But for a while there I had visions of me heading into casa nhs ☹️

I’ve got a healer coming from Harmony this afternoon - very mixed emotions about it!

hope everyone is ok.

Carole and Anadan are you blood checks today?? 🀞🀞
πŸ€—πŸ€—πŸ’‹
Member
Posts: 366
Registered: β€Ž18-09-2017

Re: November 2017 Chemo Starters

Hot Ribenena is what I've been drinking

 

I had my hair cut to grade 1 then most came out mainly in shower on 2fec but have a spikey coverage mainly of grey hair that's still holding on for dear life and not sure but it might have grown a bitπŸ™ƒπŸ˜˜πŸ˜˜πŸ˜˜πŸ˜˜

 

 

Member
Posts: 366
Registered: β€Ž18-09-2017

Re: November 2017 Chemo Starters

Hot Ribenena is what I've been drinking

 

I had my hair cut to grade 1 then most came out mainly in shower on 2fec but have a spikey coverage mainly of grey hair that's still holding on for dear life and not sure but it might have grown a bitπŸ™ƒπŸ˜˜πŸ˜˜πŸ˜˜πŸ˜˜

Member
Posts: 227
Registered: β€Ž01-11-2017

Re: November 2017 Chemo Starters

Good news anadan, hope all goes well tomorrow

Oh ladies I hope you find something that tastes nice to drink soon. I haven't even started T yet and I'm already off tap water and tea. Heaven help me once the T kicks in.

Also as I gave up cold capping on my last FEC the rest of my hair is now starting to fall out, too be expected. Can you ladies who aren't cold capping let me know if you have lost all your hair or if there are patches still holding on for dear life.

Sleep well πŸ’•πŸ’•

Carole
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Posts: 639
Registered: β€Ž08-10-2017

Re: November 2017 Chemo Starters

Hi ladies just popping over to say hello and catch up to check everyone is ok β™₯οΈπŸ’•
Lesley hope you aren't feeling too tired? I have definitely noticed I am more tired on T at this stage than FEC and noticed great big bags under my eyes the other day. But apart from tiredness hope this week might be ok. Still have lots of hot flushes and my hands seem to have gone red and itchy,
Strangely I have been able to drink coffee on T (couldn't go near it on FEC) but hated water for most of last week. Ended up on sharp juices like pomegranate or cranberry and fever tree tonic water. I also found that I could drink a small amount of water if I alternated sips with a salted nut - the salt seemed to change the taste of the water in my mouth.
I had to change nail varnish last week and noticed that the nail beds looked bruised under the nail as well as being sensitive but the nails themselves were ok for now.
Take care November ladies and hope you have the best possible week β™₯️β™₯οΈπŸ’•πŸ’•
Member
Posts: 837
Registered: β€Ž10-07-2017

Re: November 2017 Chemo Starters

anadan - that's brilliant .... the apple doesnt fall far from the tree as they say!

 

At least you get to see an Onc - my next onc appt is June!

 

JC - Guinness is tasting just fine tonight!!

 

xx

Member
Posts: 356
Registered: β€Ž02-10-2017

Re: November 2017 Chemo Starters

very good πŸ˜„πŸ˜„πŸ˜„
Highlighted
Member
Posts: 130
Registered: β€Ž08-10-2017

Re: November 2017 Chemo Starters

Hello lovely ladies 😘 

Just wanted to let you know, I’ve been given the green light for tomorrow’s last πŸ‘ fec Smiley Happy

 

anecdote: my 8yrs old forgot to bring her homework last friday. I asked: β€šWhy?’ , she said: β€š Oh, chemo brain!’ πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚

Member
Posts: 356
Registered: β€Ž02-10-2017

Re: November 2017 Chemo Starters

Shi it sounds as if you have a very understanding oncologist. There are 3 where I go & it's a bit pot luck, 2 are absolutely fine whilst the 3rd ... 😣 and yep I've seen him twice so I have my 🀞for next time!!
Shi Community Champion
Community Champion
Posts: 2,972
Registered: β€Ž11-10-2017

Re: November 2017 Chemo Starters

Otter you’ll be able to say I’m off to visit Barbados 😁😁😁😁 Jc thanks, I am so happy that i’ll Be able to have either fec again or go onto the Abraxane do I can do the whole 6 chemos. I was naughty and googled reactions to t and that’s why after reading them I decided there was no way I was risking the 3rd one, no no no, so gave my onc a big hug again and told him again that I love him, he said I know, he’s a wonderful wonderful man πŸ˜πŸ˜πŸ˜πŸ˜˜πŸ˜˜πŸ’•πŸ’•πŸ’•βœ¨βœ¨βœ¨βœ¨shi xx
Member
Posts: 356
Registered: β€Ž02-10-2017

Re: November 2017 Chemo Starters

Now's there's a thought - prosecco into my port!! Have been given suggestions of ginger beer or water with either lemon, lime or cucumber slices. Have tried flat coke 😣
Lesley I've redone my nails about every 10 days of so and so far so good, touching up chips.
Shi that's great news re your switch. Good luck with that πŸ–’
πŸ€—πŸ˜—πŸ€—πŸ˜—β˜„πŸ’•β˜„πŸ’•β˜„
Member
Posts: 366
Registered: β€Ž18-09-2017

Re: November 2017 Chemo Starters

Just had my letter for all my radiotherapy sessions and the machine I will be on is called LINAC B so I could name mine Barbados πŸ˜ŽπŸ˜ŽπŸ˜ŽπŸ–πŸ–πŸ–

 

Shi Community Champion
Community Champion
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Re: November 2017 Chemo Starters

πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚prosecco into the pic line πŸ€£πŸ˜‚πŸ€£πŸ˜‚you nov girls are rebels what a thought 😁😁😁Lesley I’ve redone my nails just before each t and my nails are pale and look a bit brittle but no dark discolouration or anything. Just to let you all know my onc is either switching me back to fec or swapping me to Abraxane for my last chemo on Thursday, he said I’d had a severe reaction to the 2nd t, so currently one very happy shi 😁😁😁my rads planning went well today, I’m tattooed up and ready for daily Sunbed sessions starting mid feb, I’ve called machine Miami C Zapa. Some of Oct thread have been thinking of names for theirs too. You brilliant Nov ladies are just behind us so you’ll have to start thinking of names for your rads machines too soon πŸ‘πŸ‘πŸ‘πŸ‘πŸ’•πŸ’•πŸ’•βœ¨βœ¨βœ¨shi xx
Member
Posts: 837
Registered: β€Ž10-07-2017

Re: November 2017 Chemo Starters

prosecco straight into the picc isnt an option is it???

 

glad it's not just me, I've tried different squashes - strong, weak.... nothing hits the spot at all.

next stop is tonic water or diet lemonade I think?

 

Can I also ask any T ladies how often they are redoing nail varnish? and what you have found when you take your varnish off??

 

 

xx

Member
Posts: 356
Registered: β€Ž02-10-2017

Re: November 2017 Chemo Starters

I'm really struggling with drink - trying to find something that tastes halfway decent.
Otter - like you am definitely missing the vino 🍷, prosecco πŸ₯‚, decent cocktails 🍹🍸
Am open to suggestions - water tastes blah, have gone off tea & coffee, squash is ok, can't seem to drink fruit juice as it hurts my mouth ...
Member
Posts: 366
Registered: β€Ž18-09-2017

Re: November 2017 Chemo Starters

Hi Lesley

I wish will all the meds I'm on drink isn't a good idea but do miss a nice glass of 🍷

 

Landed on my bum so plenty of padding πŸ™ƒ

 

πŸ€—πŸ€—πŸ€—πŸ˜˜πŸ˜˜πŸ˜˜