14-01-2018 09:36 AM
14-01-2018 08:55 AM
14-01-2018 08:33 AM
Some might say you were mad but I the first eve I was thinking how well l felt compared to fec as I had also managed to eat a proper meal we're as previously I hadn't wanted to eat
If it just involves sitting and watching I would think you would be ok as long as you don't have a reaction which I was told is rare on first dose of it's going to happen it normally on 2 or 3 😱
Anyway sounds like a great job I'm not at work at the moment as gp doesn't want me in the office with all the winter germs
Hope everyone has a good sunday😘😘😘😘🤗🤗🤗🤗
14-01-2018 07:43 AM
Daily injections? Yuck. I get one, 24 hours post chemo. You only qualify for them if your white blood cell count drops below 1 after your first chemo, but my onc somehow gets the supplier to donate a shot for the first chemo. Which, considering my WBC was hovering around 1.5 before I even started treatment, was a relief.
Another q for those who've already had their first T. I've just been asked to work on the night of my first T. I'm a music critic, so work means going to a concert then writing 350 words the next day, which is a pretty nice kind of work, so I'd love to do it. Am I mad to think I'd be able to work after a morning at the cocktail bar, or should I risk it? Sounds like it takes a while for the SEs to kick in.
Waving from Oz
13-01-2018 06:05 PM
13-01-2018 01:00 PM
My injection are filgrastim too but are purple
Taste furry mouth and injection pain are the worst as of T also fatigue but get that with fibo anyway😱😜🤗😘
Hope you all have a good weekend
13-01-2018 11:50 AM
hi Bythesea, fingers crossed a furry mouth is the worst of it - tastes are changing, can't bear any of my green teas and so switched to coffee..... just been out to sainsburys to pick up decaf coffee and returned with books, pineapple, banana and brocolli and no coffee..... trip to the village shop now! Chemo brain!!
yes you can pick up clarityn over the counter - if you speak to the pharmacist the clarityn are about £10 a packet but they can give you the unbranded version (loratadine) for about £3 for the same amount
My injections are filgrastim - nivestim, little green buggers!
love to all 💕
13-01-2018 11:13 AM
13-01-2018 09:48 AM
thanks AnnaKarenina - right back at you!!
I too overestimated my abilities pre chemo 4 and wont be packing my diary with as much for 5 & 6 .... but you might have to remind me of that later in the month!
13-01-2018 09:43 AM
Hello everyone, I am like you Harryfiddler pre-chemo. I am so grateful to be feeling 'normal' (or what passes for it) and pack the week or so before my next dose with stuff. I did find I overestimated my abilities before my 4th cycle and ended up tearful and exhausted after a particularly long day at external meetings, running round Central London buying things I could have bought anytime and then giving an evening lecture. Fortunately, I'd left the stage before the tearfulness kicked in! It was a lesson learned and when I was putting things into my diary yesterday, I was much more cautious about not filling every available minute with commitments.
Lesley, long may the travel continue to be smooth rather than vertiginous. I really hope it continues, but if the horrid SEs do arrive, remember we have got you and will be supporting you through the dips. I know how prepared and informed you are for what might come, plus you've got your crew here and the wise women who have gone before us (especially from the October thread) in your amoury. Hang in there my glitterly bodysuit wearing champion. xx
13-01-2018 07:47 AM
yes definitely an uplift in activity pre-chemo, but then I let some things slide this time, and left them for to be picked up by the steroid rush.... which sort of came!
The injections are gsf injections (nivestim??) to promote white cells as you say. For FEC I had a 5 day course starting on day 5, and for T its a 7 day course starting on day 2. But not everyone over here gets them, some get 10 days, it all depends on the Trust and their funding and thinking.
Day 3 of T for me, slept ok last night, it didn't feel like a deep sleep, but woke up feeling ok. No pains or any se yet...... I am getting a little nervous ...... when is the se 🎢 going to kick in???
Hope everyone else is ok and not having too bad a time of it
Weekend 💕 and 🤗 to all
13-01-2018 04:37 AM
Hi from sticky sweaty Australia!
I hope you're all keeping nice and warm, while I do my best to stay cool. I'm doing bloods on Monday then, all being OK, back to the cocktail bar on Tuesday for my first dose of T. *cheery big girl laugh* Does anyone else get that thing where you race around trying to do EVERYTHING in the days before chemo? Also, you've been talking about daily injections. Which ones are those? I've just had one the day after chemo to stimulate my white cells.
Re claratyne, one of the onc nurses pressed a sheet of tabs into my hand as I left my first FEC and said 'take these now'. Made a big difference.
Sleep well, rest up and thank you for keeping me company from the other side of the world!
12-01-2018 05:19 PM
12-01-2018 02:59 PM
oh bless you JC - I love a good egg mayo butty!!
You've got me thinking now!!
sending you hugs and lots of steroid energy over the www!!
take care and listen to your body
12-01-2018 02:42 PM