I went with the senna option last night and feel sooooo much better this morning!!
Bythesea, you will need to speak to your surgeon to get the ok to book a trip - if he ok's it and then you have to cancel you will be covered by your insurance. They put it in your notes.
When I finished surgery and was moving on to chemo I spoke to him and we agreed a date in June 18- so I've booked to take my son and girlfriend to the Algarve for a week - big incentive to get sorted!
As JC says, I am sure Centre Parcs will give you a lift, but be strong and straight with people - if you're not up to something let them know..... this is all about you now.... if we can't be selfish now when can we??
Hopefully my se will remain subdued - feel as if I am being a bit of a fraud at the moment. Other than tongue and taste affected and stomach feeling bloaty, I 'm ok
Yeah day 11 for me and apart from a blip on day 8 feel ok apart from think caught twins cold😥
I've hidden the scales as its to depressing 😱😱😱😱
Some might say you were mad but I the first eve I was thinking how well l felt compared to fec as I had also managed to eat a proper meal we're as previously I hadn't wanted to eat
If it just involves sitting and watching I would think you would be ok as long as you don't have a reaction which I was told is rare on first dose of it's going to happen it normally on 2 or 3 😱
Anyway sounds like a great job I'm not at work at the moment as gp doesn't want me in the office with all the winter germs
Hope everyone has a good sunday😘😘😘😘🤗🤗🤗🤗
Daily injections? Yuck. I get one, 24 hours post chemo. You only qualify for them if your white blood cell count drops below 1 after your first chemo, but my onc somehow gets the supplier to donate a shot for the first chemo. Which, considering my WBC was hovering around 1.5 before I even started treatment, was a relief.
Another q for those who've already had their first T. I've just been asked to work on the night of my first T. I'm a music critic, so work means going to a concert then writing 350 words the next day, which is a pretty nice kind of work, so I'd love to do it. Am I mad to think I'd be able to work after a morning at the cocktail bar, or should I risk it? Sounds like it takes a while for the SEs to kick in.
Waving from Oz
My injection are filgrastim too but are purple
Taste furry mouth and injection pain are the worst as of T also fatigue but get that with fibo anyway😱😜🤗😘
Hope you all have a good weekend
hi Bythesea, fingers crossed a furry mouth is the worst of it - tastes are changing, can't bear any of my green teas and so switched to coffee..... just been out to sainsburys to pick up decaf coffee and returned with books, pineapple, banana and brocolli and no coffee..... trip to the village shop now! Chemo brain!!
yes you can pick up clarityn over the counter - if you speak to the pharmacist the clarityn are about £10 a packet but they can give you the unbranded version (loratadine) for about £3 for the same amount
My injections are filgrastim - nivestim, little green buggers!
love to all 💕
thanks AnnaKarenina - right back at you!!
I too overestimated my abilities pre chemo 4 and wont be packing my diary with as much for 5 & 6 .... but you might have to remind me of that later in the month!
Hello everyone, I am like you Harryfiddler pre-chemo. I am so grateful to be feeling 'normal' (or what passes for it) and pack the week or so before my next dose with stuff. I did find I overestimated my abilities before my 4th cycle and ended up tearful and exhausted after a particularly long day at external meetings, running round Central London buying things I could have bought anytime and then giving an evening lecture. Fortunately, I'd left the stage before the tearfulness kicked in! It was a lesson learned and when I was putting things into my diary yesterday, I was much more cautious about not filling every available minute with commitments.
Lesley, long may the travel continue to be smooth rather than vertiginous. I really hope it continues, but if the horrid SEs do arrive, remember we have got you and will be supporting you through the dips. I know how prepared and informed you are for what might come, plus you've got your crew here and the wise women who have gone before us (especially from the October thread) in your amoury. Hang in there my glitterly bodysuit wearing champion. xx
yes definitely an uplift in activity pre-chemo, but then I let some things slide this time, and left them for to be picked up by the steroid rush.... which sort of came!
The injections are gsf injections (nivestim??) to promote white cells as you say. For FEC I had a 5 day course starting on day 5, and for T its a 7 day course starting on day 2. But not everyone over here gets them, some get 10 days, it all depends on the Trust and their funding and thinking.
Day 3 of T for me, slept ok last night, it didn't feel like a deep sleep, but woke up feeling ok. No pains or any se yet...... I am getting a little nervous ...... when is the se 🎢 going to kick in???
Hope everyone else is ok and not having too bad a time of it
Weekend 💕 and 🤗 to all
Hi from sticky sweaty Australia!
I hope you're all keeping nice and warm, while I do my best to stay cool. I'm doing bloods on Monday then, all being OK, back to the cocktail bar on Tuesday for my first dose of T. *cheery big girl laugh* Does anyone else get that thing where you race around trying to do EVERYTHING in the days before chemo? Also, you've been talking about daily injections. Which ones are those? I've just had one the day after chemo to stimulate my white cells.
Re claratyne, one of the onc nurses pressed a sheet of tabs into my hand as I left my first FEC and said 'take these now'. Made a big difference.
Sleep well, rest up and thank you for keeping me company from the other side of the world!
oh bless you JC - I love a good egg mayo butty!!
You've got me thinking now!!
sending you hugs and lots of steroid energy over the www!!
take care and listen to your body
you look after yourself Otter - build yourself up.
I'm feeling normal stil, but resisting the temptation to do too much, just going to nip out for a quick walk then more sofa time I think!
The night I forgot to take clarityn the next day the pain was bad so I'm taking as well even if oncologist doesn't agree😜😜
Only 1 left tonight 🎉🎉🎉🎉🎉🎉
Got a bit of a sore mouth tongue and throat but temperature is fine and as both twins have heavy colds so think I've caught it😥😥
It's in the post Bythesea!
Crazy that they didnt like the idea of the clarityn, it is standard practice in the states and as I said my onc is now prescribing it and using it for other patients as well.
I'm a bit of a rebel so I'd take it anyway .... anything to stave off the pains!
rest up now - don't go mad with anything
good to hear you got thru your day AnnaKarenina, those Bridget Jones, big girl pants did the job then!!
I think fear of the unknown is the biggest fear we can have. But you know we are all here for you and for each other. Without this thread, I think my journey thru chemo would have been anything like it has been.
I had quite a good night, dozed until 3am and then slept until 8.30 - so can't complain. And woke up feeling normal .... well normal for me.
Obviously this is the calm before the storm, but I will try and make the most of it before the steroid crash tomorrow!!
Hope JC and Otter are feeling better this morning.
Sending hugs and love as always
Morning everyone, I cannot tell you how cheering it is to return to this thread post-chemo. Giggles and honesty about the nonsense that this treatment can cause. It is brilliant. And Lesley, I glimpsed your outfit photo just before I sat down in the chair yesterday afternoon and went from shaking with nerves to shaking with laughter - thank you!
As with much that I have anticipated along the way, the portacath access was much better than I feared. But boy were those fears visible by the time they had got all the kit out to begin. Fortunately, I had the most patient, understanding, skilled and kind staff looking after me. It took two goes (you can imagine how I responded when they broke it to me that it wasn't flushing and would need to be removed and reinserted) and more nonsense on my part than any grown woman should indulge in, but it went in quickly the second time, with limited sensation and it ultimately made the process easier. It's almost as if everything that everyone told me turned out to be accurate!
I am feeling pretty headachey, spaced-out and nauseous as usual this morning, but knowing a) I survived the port business, b) I have now completed cycle 4 and all my EC treatments, c) that means I am half-way through and d) the latest scan and examination/measurement show an increasingly positive response to treatment so far, make it possible to push through. I may need to return to these four facts when I hit the steroid crash days next week and nauseousness is hanging around.
Have a good day everyone. Do what you need to do to make it as okay as possible. Thinking of you all and especially Anadan who it was great to hear from - keeping everything crossed for no more disruptions and good news about scheduling the next session. xx
Well done, lovely ladies ✨✨✨✨✨ you’re wonderful 😘😘😘 and doing so well 💕💕💕
I’m hanging there, at the back of 🚋🚃🚞 , my last fec next Tue (won’t accept anything different)
thrush, yes, a horrible thing 😫 knocked me down last time 😫 I have Difflam regularly, but fluconazole was given only last week, when onc looked in my mouth 😱 must try your home remedies with apple vinegar 👍 thanks for sharing xx
my eyebrows are going, I look really wierd ... all my hair is gone 👍 everywhere 👍 one good thing 👍 enjoying while I can 😂😂
good night to you all ✨💕
Hope you managed to get back to sleep after call ☎ one thing I don't miss about being at work but starting to get a bit stir crazy😜😜
Already crawled into my pit and woke myself up snoring Shi!! Fortunately just in time for a conference call!!
Only to rest up but dont want to sleep too much in case it impacts on tonight
oh JC I am feeling your pain! Hope you start turning the corner soon xx
Back from the first T - 2/3rds of the way thru now!
All good, no reactions, but I feel wiped out now, so may curl up on the sofa
Thought I was going to throw up as I walked back to the car but managed to quell it - don't know what that is all about.
Will be thinking of AnnaKarenina this afternoon.
We got this ladies!!
what treatments did you have from Haven - I have a healer coming to the house next Tuesday and I'm a bit hesitant about it if I'm honest??
This one is for Shi ....... me getting ready for chemo 4!!
Didn't sleep too badly 2330-0530, no complaints there!
See you after the cocktail!! 🍸🎢💕
I wanted to pop on and tell you what worked for me with having thrush on the tongue after chemo treatments. I took about 16 oz of water with a teaspon of apple cider vinegar, teaspon of honey, lemon juice and grated ginger. It wiped out the thrush in a couple of days.