12-01-2018 01:38 PM
you look after yourself Otter - build yourself up.
I'm feeling normal stil, but resisting the temptation to do too much, just going to nip out for a quick walk then more sofa time I think!
12-01-2018 01:32 PM
The night I forgot to take clarityn the next day the pain was bad so I'm taking as well even if oncologist doesn't agree😜😜
Only 1 left tonight 🎉🎉🎉🎉🎉🎉
Got a bit of a sore mouth tongue and throat but temperature is fine and as both twins have heavy colds so think I've caught it😥😥
12-01-2018 11:47 AM
It's in the post Bythesea!
Crazy that they didnt like the idea of the clarityn, it is standard practice in the states and as I said my onc is now prescribing it and using it for other patients as well.
I'm a bit of a rebel so I'd take it anyway .... anything to stave off the pains!
rest up now - don't go mad with anything
12-01-2018 10:27 AM
12-01-2018 09:41 AM
good to hear you got thru your day AnnaKarenina, those Bridget Jones, big girl pants did the job then!!
I think fear of the unknown is the biggest fear we can have. But you know we are all here for you and for each other. Without this thread, I think my journey thru chemo would have been anything like it has been.
I had quite a good night, dozed until 3am and then slept until 8.30 - so can't complain. And woke up feeling normal .... well normal for me.
Obviously this is the calm before the storm, but I will try and make the most of it before the steroid crash tomorrow!!
Hope JC and Otter are feeling better this morning.
Sending hugs and love as always
12-01-2018 09:02 AM
Morning everyone, I cannot tell you how cheering it is to return to this thread post-chemo. Giggles and honesty about the nonsense that this treatment can cause. It is brilliant. And Lesley, I glimpsed your outfit photo just before I sat down in the chair yesterday afternoon and went from shaking with nerves to shaking with laughter - thank you!
As with much that I have anticipated along the way, the portacath access was much better than I feared. But boy were those fears visible by the time they had got all the kit out to begin. Fortunately, I had the most patient, understanding, skilled and kind staff looking after me. It took two goes (you can imagine how I responded when they broke it to me that it wasn't flushing and would need to be removed and reinserted) and more nonsense on my part than any grown woman should indulge in, but it went in quickly the second time, with limited sensation and it ultimately made the process easier. It's almost as if everything that everyone told me turned out to be accurate!
I am feeling pretty headachey, spaced-out and nauseous as usual this morning, but knowing a) I survived the port business, b) I have now completed cycle 4 and all my EC treatments, c) that means I am half-way through and d) the latest scan and examination/measurement show an increasingly positive response to treatment so far, make it possible to push through. I may need to return to these four facts when I hit the steroid crash days next week and nauseousness is hanging around.
Have a good day everyone. Do what you need to do to make it as okay as possible. Thinking of you all and especially Anadan who it was great to hear from - keeping everything crossed for no more disruptions and good news about scheduling the next session. xx
11-01-2018 10:02 PM
Well done, lovely ladies ✨✨✨✨✨ you’re wonderful 😘😘😘 and doing so well 💕💕💕
I’m hanging there, at the back of 🚋🚃🚞 , my last fec next Tue (won’t accept anything different)
thrush, yes, a horrible thing 😫 knocked me down last time 😫 I have Difflam regularly, but fluconazole was given only last week, when onc looked in my mouth 😱 must try your home remedies with apple vinegar 👍 thanks for sharing xx
my eyebrows are going, I look really wierd ... all my hair is gone 👍 everywhere 👍 one good thing 👍 enjoying while I can 😂😂
good night to you all ✨💕
11-01-2018 06:20 PM
11-01-2018 02:38 PM
Already crawled into my pit and woke myself up snoring Shi!! Fortunately just in time for a conference call!!
Only to rest up but dont want to sleep too much in case it impacts on tonight
11-01-2018 12:47 PM
oh JC I am feeling your pain! Hope you start turning the corner soon xx
Back from the first T - 2/3rds of the way thru now!
All good, no reactions, but I feel wiped out now, so may curl up on the sofa
Thought I was going to throw up as I walked back to the car but managed to quell it - don't know what that is all about.
Will be thinking of AnnaKarenina this afternoon.
We got this ladies!!
11-01-2018 10:48 AM
11-01-2018 10:33 AM
11-01-2018 08:58 AM
11-01-2018 07:55 AM