cancel
Showing results for 
Search instead for 
Did you mean: 

November 2017 Chemo Starters

Member

Re: November 2017 Chemo Starters

Good luck today Anna and Lesley and anyone else on board xxx. Happy Decembers Eve to everyone else. Bon Jovi is getting closer xxxxxxxxx
Member

Re: November 2017 Chemo Starters

Good luck to anyone heading for chemo and other appointments today x
Ruth, I hope that your PICC behaves today, you are due some luck x
JC, hope today is better for you, just take each day as it comes, I had a very low couple of days this cycle then suddenly woke up on day 8 and felt like I could conquer the world and I scrubbed the house within an inch of its life, so don’t despair x
Member

Re: November 2017 Chemo Starters

Hi Carole I do now😁 Have been conscientiously looking at several times a day! Glad to hear your flushes are being done well ♥️♥️
Member

Re: November 2017 Chemo Starters

Thanks for the info Ruth. I have a PICC line and am only one treatment down, so just two line flushes.
Bit scary that the onc nurse is telling you how to look after the line and to pass this on to the district nurse. My first flush was done by the area PICC specialist, and yesterdays by a nurse with a student nurse and she did the pulsing bit and explained that all so hopefully my team are okay.
Do you regularly look at the clear bit yourself so would spot anything early.
Thanks Carole x
Member

Re: November 2017 Chemo Starters

Good luck to today's ladies 😘😘😘
Member

Re: November 2017 Chemo Starters

Good luck to all having chemo 2 today 👍🍀💫☄💕🤗🤗🤗🤗
Member

Re: November 2017 Chemo Starters

Good luck to all todays 🎢🤗🤗🤗🍀🍀🍀😘😘😘
Member

Re: November 2017 Chemo Starters

Morning Lesley good luck to you today too x
Member

Re: November 2017 Chemo Starters

Oh AnnaKarenina you are going to have a long old day!
I’m in at 10, but as if my want I’ll be there mega early!
Finally flurry of activity as I strip the bed and wash anything that stands still long enough.
I’d cut your hair if it was me - take control!!
Take it easy Monday though, you could be a little low???
Hope everyone is wrapped up warm and feeling ok!
Nearly the end of another week .... getting closer to the end with every day!!!
😍❄️❄️☃️☀️💫💕💕💕😍🤗🤗🤗
Member

Re: November 2017 Chemo Starters

Morning Anna good luck today x
Yes cut hair before wig fitting especially if you are having any cutting to your wig as they do fit different with and without hair
The wig shop I used did not to cut mine whilst I had hair because of it xxx
Highlighted
Member

Re: November 2017 Chemo Starters

Up soooooo early (since 4.30) anticipating chemo day and the appointment isn't until 4 p.m. I'll be the one on the unit fast asleep. Wishing everyone a good day - wherever you are on the cycle. It is freezing here and my audio book won't download to my new phone for some reason. I would say the day can only improve but then I remember I am off to The Marsden! I have a meeting in town beforehand which will keep me occupied and I think it a good thing. 

 

In other news, the wig is ready for fitting apparently. I am going on Monday. I still have intermittent tufts of hair, although I am now wearing scarves and hats constantly as I am not fit for public display! I think I should probably crop it short before the fitting? What do you reckon wise women? 

 

 

Member

Re: November 2017 Chemo Starters

Good evening ladies. I had a bit of an issue with my PICC line yesterday that resulted in a visit to a&e - in retrospect it could have been avoided so I wanted to share my experience with any of you that also have a PICC to help avoid the same happening.
The blood in my PICC clotted yesterday which meant that my district nurse couldn't draw blood or flush with saline. This was at 12.30. She decided to come back in a few hours to try again but by the time she came back it was worse. She said I needed to call my chemo unit to figure out what to do next. By that time I couldn't get into the unit before it shut so they said I had to go to a&e. My first learning was that if something isn't working that is chemo related get in touch with your chemo unit straight away!! My PICC first clotted at 12.30 - I am sure that if I had rung my unit then I could have gone in and got it fixed that afternoon rather than going to a&e where they honestly didn't really know what to do, took 4 hours to sort things out and frightened me quite a bit by saying that they would take the PICC out!!
In the end they managed to get an oncology nurse from the onc ward down to see me and she pretty much fixed the issue straight away. She said that it looked like my PICC wasn't being looked after properly which was why it was clotting and showed me how you should look after your PICC so that I could show my district nurse! 1) you should not be able to see any blood in the PICC line if you do it could clot in the tube and cause a blockage like mine did! It needs to be clear where the saline is sitting in the tube outside the body
2) if it does block you can use quite a bit of force to unblock it so if the nurses and doctors are trying but are afraid to use much pressure (5 different people tried to do mine before the onc nurse came down to a&e), try to get a chemo nurse to look at it as soon as possible as they are not afraid to use a bit of gusto! They can also use blood thinners to clear it if they need to 3) when you flush the PICC you need to do it in pulses not just one single push of the syringe and it is done and 4) you use as much saline as it takes to get a clear line - this could be more than one 10ml syringe

I know that is a lot of detail but I hope it is helpful as I feel that yesterday could have been avoided and would like to help anyone else with a PICC from avoiding it if possible and avoiding the prospect of a blood clot in the body ♥️♥️♥️
Member

Re: November 2017 Chemo Starters

Thank you Meesh & Shi - that’s a good idea 🙂🙂🙂
Member

Re: November 2017 Chemo Starters

 
Member

Re: November 2017 Chemo Starters

Poppywheel, I did a similar thing to Shi I measured out how much water in one of my glasses and worked out how many a day I needed to drink. I also try to split so that I have half in the morning and half in the afternoon. I also try to drink my water by 7pm to allow it to get through my system so I'm not on the loo all night.

Shi Community Champion
Community Champion

Re: November 2017 Chemo Starters

Poppywheel, tip for the fluids, I measured out 2l was 6 of my coffee cups a day, so I aim for the 6cups and any more than that’s a bonus, makes it not such a chore to get the 2l a day in then. Good luck everone with treatments tomorrow, that’s another one ticked off 😘😘😘😘💕💕✨✨shi xx
Member

Re: November 2017 Chemo Starters

Hello Lovely Ladies,

Hope everyone is doing as good as they can be - but look after yourselves & take care.

Lesley, and everyone else joining me on the 🍸 🎢 tomorrow, hope it goes okay & se’s not too bad for us all.

Lesley - I really struggled with drinking last time round, and taking tablets was a mission. I’m hoping to do better this time round!

Take care all.
Member

Re: November 2017 Chemo Starters

glad you are back in the land of the living JC

continue the vegging until you feel better.

I'll let you all know about the green tea and also what has been said about clarityn when I get in the unit tomorrow.

I feel absolutely cream crackered tonight, it's been a long old slog of a day.

 

Time for some good food, gallons of water and crap tv - perfect!

 

xx

 

Member

Re: November 2017 Chemo Starters

Thanks for all your support today, just crashed on the sofa  doing nothing except play a few games on my tablet & have a kip 💤💤💤

Meesh, hopefully you are right and this is a blip today 🤞

Lesley either I missed the chippendales or they're running late, trying to get to see us all

I think when the weather is rubbish, it's hard to drink water, but i think that may be part of my issue, i haven't drank so much  over the last few days.  

Good luck to the Thursday chemo ladies 🍀👍

Hugs to all

🤗🤗🤗🤗🤗💫🌟💕💕💕

Member

Re: November 2017 Chemo Starters

I'd just get the rats from I'm a celebrity!

 

I've got very strong eyebrows - I've never plucked or waxed them so I am hoping that they hang on in there - I think I will be more affected by their demise than my hair.

Head hair is still shedding but all other areas are hanging on in there ........... it's only a matter of time though!