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November 2017 Chemo Starters

Shi Community Champion
Community Champion

Re: November 2017 Chemo Starters

For the sore mouth see if onc can prescribe difflam mouth wash. I didn’t get sore mouth as been using biotene mouth rinse, but the difflam just gives your mouth an additional punch of keeping germs at bay so if anyone’s starting with mouth thrush, get onc to prescribe this for you. 💕💕✨✨shi xx
Member

Re: November 2017 Chemo Starters

I've found this forum a lifeline, we're on this journey together. The whole chemo thing seems a bit of a roller coaster ride 🎢 and although we may be having different symptoms there seems to be someone who can help or make you laugh 😄

It's good to connect to ladies who are going through the same tough times and understand ☄🤗

Member

Re: November 2017 Chemo Starters

No worries Sue, I'm happy to try and provide any help I can to help ease others SEs through this assault on our bodies. The last thing we want is to hear people suffering if we can offer some tips to help. Our thread has quite a lot of ladies and we're a very chatty sharing bunch so even if I haven't experienced some of the SEs I've read and supported them through theirs! Hope you have a great day! 😊

Member

Re: November 2017 Chemo Starters

ah thank you. It' good to have this forum. Everything is abit scary and new.
Member

Re: November 2017 Chemo Starters

Afternoon everyone - hope you're managing to enjoy the weekend.  Weather doesn't inspire getting out for a walk. It's day 9 for me and from yesterday it seems as if I have come out of a fog 😀 🎉

Lesley and AnnaKarenina, hope you're both doing ok  and have been drinking plenty.

Anadan, our hospital has a MacMillan unit attached for help and advice for wigs, scarves etc,  maybe see if your local MacMillan 's can help you or advise you where to go.

Otter,  I'm glad you're feeling as if you've turned the corner and you have more time for your application.  Hope you have some success with your oncologist as there is enough to put up with.

Welcome TrishJune, I have a teaspoon of manuka honey daily as well as mouthwash (without alcohol) and so far so good 🖒☄🤗

Community Champion

Re: November 2017 Chemo Starters

Morning Ladies

Just wanted to say hi and see how you all are?

Thank you to Meesh and Chaffinch for popping in. It is so helpful to the new Ladies. Sometimes they come up with issues that I didn't encounter myself, so I don't always have the appropriate advice, so thanks.

Best wishes

Sue xx

Member

Re: November 2017 Chemo Starters

Sorry to hear about your pain issues Otter, chemo causes aches and pains if it’s own do you have a regular consultant who deals with your FM who could liaise with your oncologist?
Trishjune, welcome. I have found Biotene Mouthwash, toothpaste and gel very good for my dry mouth. I’ve used the mouthwash regularly throughout the day from day one of first cycle and have only had a couple of ulcers and the tip of my tongue has been sore a few times. It gives great relief. You have to properly swish it around your mouth for about 30 seconds which seems a long time. If I feel an area that stings slightly I concentrate on keeping it there for a few seconds. I seem more prone right at the back of my jaw. So far so good. They are not cheap but seem to work. Biotene is specifically for chemo and medically induced mouth problems. Superdrug sell the mouthwash and I think Boots sell all 3. I have continued to use my electric toothbrush too and clean my teeth 3-4 times a day for the first couple of weeks while my mouth is dry. 2 cycles in and this regime seems to work.
Member

Re: November 2017 Chemo Starters

Hi Otter, sorry to hear your FM is causing issues, hopefully the lady from our thread will be along to help soon. Have you tried bathing with Epsom salts as I know others have recommended that for aches caused by chemo? Sending you 🦄🦄✨✨🦄🌟💫💫🌟⭐️✨🦄 🤗🤗🤗🤗 

Member

Re: November 2017 Chemo Starters

Hi Trishjune, sorry to see you here but the forum is brilliant for support, advice and laughs along the way. I haven't suffered with a sore mouth, but I know some other ladies have and have advised to use a soft kids toothbrush with some diflam mouthwash which they have got from doctors or chemo team. It might be worth calling your emergency number as they maybe able to provide you with something. Others have recommended gargling with salt water or with water mixed with bicarbonate of soda. That may help you until you can get something else sorted.

 

ive just been following my normal cleaning routine of electric toothbrush (but on slow setting), airflosser with corsodyl mouthwash (which some others also recommend for sore mouth) and corsodyl mouth rinse after.

 

Hope that helps and hope you get it sorted soon. ✨💫💫⭐️✨🌟🦄🦄🦄✨⭐️⭐️

Member

Re: November 2017 Chemo Starters

I'm new and any tips would be gratefully received. Had my first chemo 10 days ago and doing OKish but if any one has tips for mouth ulcers I's be very grateful.

Member

Re: November 2017 Chemo Starters

Hi Otter there is a lady on our October thread who is also dealing with pain issues alongside her chemo I will see if she can pop over to this thread and say hello to see if she has any helpful advice ♥️ Ruth
Member

Re: November 2017 Chemo Starters

Hi Meesh

 

Thanks I'm starting to finally turn the corner on this 1st cycle 🤗

 

I think I will have to talk to the oncologist about how they are going to manage the rest as I don't feel just cause the unit doesn't understand FM I have to basically suffer as otherwise it will be hard to put myself through this as the Onotype was borderline and I'm still finding it hard to accept that I really need Chemo

 

I know giving up isn't really an option but end of February seems a long way off if I'm going to be so unwell and in unbearable pain all the time

 

Work have at least given me a week extra to complete my job application as not had two brain cells to rub together

 

Hope all you ladies are having a better start 🤗🙃

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Member

Re: November 2017 Chemo Starters

Hi November ladies, good to hear you're all coping ok. 

 

Anadan, you may want to think about the wig sooner rather than later (even if you don't end up wearing it). If you can get an appointment whilst you still have hair they have more chance of matching it to your natural hair. 

 

Otter, hope you're doing ok, I do pop on here every few days to check how you're doing! 😊😊😊

Member

Re: November 2017 Chemo Starters

Thank you for all the good vibes and supportive thoughts. I am doing okay. A bit nauseous and a little disconnected from my normal state, but I went for a walk this morning and had a long chat with my oldest school friend which were both therapeutic. I am taking it moment, but moment and trying not to worry about what lies ahead. I am thinking of you all and experimenting with the food, comforting rituals and general distraction. You are all such a strong team to be part of - I am beyond grateful. xx

Member

Re: November 2017 Chemo Starters

Hi there 😚

Lesley, hope you’re feeling okish today x I felt very nauseaous for the forst two afternoons, then better. Nibbling on almonds seemed to help a bit. 

AnnaKarenina, are you ok?

Rabbit, good you have a plan, it makes things rolling on slowly x

 

I feel a bit tired today (day4) don’t know if it’s because I don’t take the steroids any more or because I didn’t have a good nihgt sleep Smiley Sad I woke up at 2 am with a terrible pain in my chest, as if somebody squeezed it really really hard. It lasted a few seconds, and it was only one of, but I phoned the hospital this morning; been told to keep an eye on it, it might be the steroids... hope it doesn’t come back.

 

off to amazon to buy some epsom salts for my achy bones tomorrow as I have to start the injections.

 

I haven’t booked my appointment for a wig yet, just can’t get round to it... not sure if I ever wear it... don’t know how I feel about it. Still have my hair, but what when it’s gone and I really need that wig? 😱

 

Take care xxx

Member

Re: November 2017 Chemo Starters

It's good that you have a plan Rabbit, but I agree it does seem like a long haul.

 

I found it better to break it down into bitesize chunks, you will get breaks inbetween the different aspects I would have thought??

I've planned in treats inbetween things so I have something positive to aim at.

 

Thinking of you and sending hugs

 

xx

Member

Re: November 2017 Chemo Starters

Looks like I now won't be joining all you brave ladies in November, the oncologist has scheduled my chemo to start on the 1st December as my echocardiogram is on the 30th November. Feel slightly happier now I have the treatment plan in place but the end seems a long way off. 6 sessions of chemo with herceptin, then 12 more injections of herception every three weeks, 2nd op after chemo ends, then radiotherapy then tamoxifen for 5-10 years.  One postive is they will come to me at home for the 12 herceptin injections or my workplace if I prefer!! Seems quite daunting. xx

Member

Re: November 2017 Chemo Starters

that's really bad Bythesea

I used Joseph wigs - all on the internet and quick delivery

hope you get yourself sorted soon

xx

Member

Re: November 2017 Chemo Starters

That’s ridiculous, no way to run a business. You will have about a month from first chemo until significant hair loss but not 3 months! Hope you find one soon, although I actually feel far more myself wearing colourful scarves.
Member

Re: November 2017 Chemo Starters

Good morning,
Well done Lesley sounds like your on the way back up.
Annakarenina hope you are too xxx
I got a call from wig shop yesterday to say it will be ready in February!!!!!!!!
Back to the drawing board. :0(
Milliemoo hope your ok???

Have a great day xxx