I've found this forum a lifeline, we're on this journey together. The whole chemo thing seems a bit of a roller coaster ride 🎢 and although we may be having different symptoms there seems to be someone who can help or make you laugh 😄
It's good to connect to ladies who are going through the same tough times and understand ☄🤗
No worries Sue, I'm happy to try and provide any help I can to help ease others SEs through this assault on our bodies. The last thing we want is to hear people suffering if we can offer some tips to help. Our thread has quite a lot of ladies and we're a very chatty sharing bunch so even if I haven't experienced some of the SEs I've read and supported them through theirs! Hope you have a great day! 😊
Afternoon everyone - hope you're managing to enjoy the weekend. Weather doesn't inspire getting out for a walk. It's day 9 for me and from yesterday it seems as if I have come out of a fog 😀 🎉
Lesley and AnnaKarenina, hope you're both doing ok and have been drinking plenty.
Anadan, our hospital has a MacMillan unit attached for help and advice for wigs, scarves etc, maybe see if your local MacMillan 's can help you or advise you where to go.
Otter, I'm glad you're feeling as if you've turned the corner and you have more time for your application. Hope you have some success with your oncologist as there is enough to put up with.
Welcome TrishJune, I have a teaspoon of manuka honey daily as well as mouthwash (without alcohol) and so far so good 🖒☄🤗
Just wanted to say hi and see how you all are?
Thank you to Meesh and Chaffinch for popping in. It is so helpful to the new Ladies. Sometimes they come up with issues that I didn't encounter myself, so I don't always have the appropriate advice, so thanks.
Hi Otter, sorry to hear your FM is causing issues, hopefully the lady from our thread will be along to help soon. Have you tried bathing with Epsom salts as I know others have recommended that for aches caused by chemo? Sending you 🦄🦄✨✨🦄🌟💫💫🌟⭐️✨🦄 🤗🤗🤗🤗
Hi Trishjune, sorry to see you here but the forum is brilliant for support, advice and laughs along the way. I haven't suffered with a sore mouth, but I know some other ladies have and have advised to use a soft kids toothbrush with some diflam mouthwash which they have got from doctors or chemo team. It might be worth calling your emergency number as they maybe able to provide you with something. Others have recommended gargling with salt water or with water mixed with bicarbonate of soda. That may help you until you can get something else sorted.
ive just been following my normal cleaning routine of electric toothbrush (but on slow setting), airflosser with corsodyl mouthwash (which some others also recommend for sore mouth) and corsodyl mouth rinse after.
Hope that helps and hope you get it sorted soon. ✨💫💫⭐️✨🌟🦄🦄🦄✨⭐️⭐️
I'm new and any tips would be gratefully received. Had my first chemo 10 days ago and doing OKish but if any one has tips for mouth ulcers I's be very grateful.
Thanks I'm starting to finally turn the corner on this 1st cycle 🤗
I think I will have to talk to the oncologist about how they are going to manage the rest as I don't feel just cause the unit doesn't understand FM I have to basically suffer as otherwise it will be hard to put myself through this as the Onotype was borderline and I'm still finding it hard to accept that I really need Chemo
I know giving up isn't really an option but end of February seems a long way off if I'm going to be so unwell and in unbearable pain all the time
Work have at least given me a week extra to complete my job application as not had two brain cells to rub together
Hope all you ladies are having a better start 🤗🙃
Hi November ladies, good to hear you're all coping ok.
Anadan, you may want to think about the wig sooner rather than later (even if you don't end up wearing it). If you can get an appointment whilst you still have hair they have more chance of matching it to your natural hair.
Otter, hope you're doing ok, I do pop on here every few days to check how you're doing! 😊😊😊
Thank you for all the good vibes and supportive thoughts. I am doing okay. A bit nauseous and a little disconnected from my normal state, but I went for a walk this morning and had a long chat with my oldest school friend which were both therapeutic. I am taking it moment, but moment and trying not to worry about what lies ahead. I am thinking of you all and experimenting with the food, comforting rituals and general distraction. You are all such a strong team to be part of - I am beyond grateful. xx
Hi there 😚
Lesley, hope you’re feeling okish today x I felt very nauseaous for the forst two afternoons, then better. Nibbling on almonds seemed to help a bit.
AnnaKarenina, are you ok?
Rabbit, good you have a plan, it makes things rolling on slowly x
I feel a bit tired today (day4) don’t know if it’s because I don’t take the steroids any more or because I didn’t have a good nihgt sleep I woke up at 2 am with a terrible pain in my chest, as if somebody squeezed it really really hard. It lasted a few seconds, and it was only one of, but I phoned the hospital this morning; been told to keep an eye on it, it might be the steroids... hope it doesn’t come back.
off to amazon to buy some epsom salts for my achy bones tomorrow as I have to start the injections.
I haven’t booked my appointment for a wig yet, just can’t get round to it... not sure if I ever wear it... don’t know how I feel about it. Still have my hair, but what when it’s gone and I really need that wig? 😱
Take care xxx
It's good that you have a plan Rabbit, but I agree it does seem like a long haul.
I found it better to break it down into bitesize chunks, you will get breaks inbetween the different aspects I would have thought??
I've planned in treats inbetween things so I have something positive to aim at.
Thinking of you and sending hugs
Looks like I now won't be joining all you brave ladies in November, the oncologist has scheduled my chemo to start on the 1st December as my echocardiogram is on the 30th November. Feel slightly happier now I have the treatment plan in place but the end seems a long way off. 6 sessions of chemo with herceptin, then 12 more injections of herception every three weeks, 2nd op after chemo ends, then radiotherapy then tamoxifen for 5-10 years. One postive is they will come to me at home for the 12 herceptin injections or my workplace if I prefer!! Seems quite daunting. xx
that's really bad Bythesea
I used Joseph wigs - all on the internet and quick delivery
hope you get yourself sorted soon