Member
Posts: 1,751
Registered: ‎21-06-2017

Re: November 18 chemo starters

Hi Tbird, glad I was able to give you some reassurance about the PICC line and able to ease your worries a bit. I wouldn't say I've got a particularly high pain threshold and I found the procedure ok. I think they might have numbed the area first, I'll have to check with my daughter.

It was a bit of pain sometimes having to have it flushed weekly, but on the other hand I found it quite reassuring to be seen regularly at the chemo unit. It's useful to buy a plastic sleeve for the shower as you can't get it wet. I bought mine at Boots for about £5.

If there's anything else I can help with, just ask or you're welcome to message me xx

Member
Posts: 31
Registered: ‎22-10-2018

Re: November 18 chemo starters

Hi Jencat

 

thank you for your reply, it has helped me put my mind at ease.  I haven't got a date yet when I will be having the PICC line but it will be before 8th January as that will be the date for my 4th chemo.

 

its good you were able to have your daughter with you to keep you distracted, I will have to ask if I can have one of my sisters with me.

 

love TBird xx

Member
Posts: 16
Registered: ‎01-10-2018

Re: November 18 chemo starters

Hi Pigeon

I too had my last EC yesterday #3 and will be starting T+ Herceptin in the new year although have to change hospitals as my local one doesn't do T, at the moment been told they are at full capacity on the 3rd  and will have to defer it a week unless my oncologist says  otherwise...waiting to hear from her 😧 

Feeling ok today managing the nausea just have a sore  arm.

Hope you all have a good weekend xx

Member
Posts: 1,751
Registered: ‎21-06-2017

Re: November 18 chemo starters

Hi Tbird, I'm from the Oct '17 thread and just wanted to reassure you about the PICC line. I had one when I had chemo and I was really anxious about having one, but it didn't hurt when it was put in. I was allowed to have my adult daughter with me, which helped to keep me distracted. When it was removed it took no time at all and again I didn't feel anything. When are you having yours fitted? x

Member
Posts: 31
Registered: ‎22-10-2018

Re: November 18 chemo starters

Hi all

 

i will be having my third Fec next week also, although it's now only EC I'm having because of side effects.  I will be starting T in January.

 

My veins are so sore from the chemo so I am having a PICC line put in for the T.  I am such a wozz and am terrified of having the PICC put in, any advice ladies, does it hurt.

 

i am terrified of everything but am pretending to family I'm fine, I suppose a lot of you ladies are the same.

 

have a lovely weekend Tbird xx

Member
Posts: 160
Registered: ‎08-09-2018

Re: November 18 chemo starters

Hi pigeon
I just had number three on Monday however I still have one more EC to go
I will be interested to see how the side effects differ when you swap over
I had a reduced dose this time and all though o slept solid for two days and have felt sick and awful taste
I haven’t had the feeling my skin is so sore I can’t bear to be touched and I’m been up and done some cleaning today 😍
Member
Posts: 28
Registered: ‎21-09-2018

Re: November 18 chemo starters

Hi Ladies,

 

Hope you’re all doing well.

 

Im off for FEC round 3 this afternoon 😨 but thankfully this will be the last FEC for me, the halfway point before starting T in the new year.

 

Tigerlilli, I want to thank you for what you said about thinking of chemo as a friend that’s trying to cure me, I’ll hold on to this thought over the next few days when (or hopefully “if” 🤞) I’m feeling dreadful. Xxx

Member
Posts: 16
Registered: ‎17-11-2018

Re: November 18 chemo starters

Attagirl holeinone! You can do it! It's a roller coaster, but that's another day ticked off. I'm just hoping my temp isn't creeping up : /
Trying to will it down below 37! Fingers crossed. Just settling down for another night of Christmas shopping online at 4.00am. Well there's got to be some advantages. xxx
Member
Posts: 25
Registered: ‎28-11-2018

Re: November 18 chemo starters

Hi Ladies, managed to crawl my way out of chemo fog land!

 

Tigerlilli, thank you so much for the virtual hug, you helped lift my spirits when I was stuck down there in a pit of dispair. Although I don't wish this on anyone, it really is comforting to know that we are not alone, we can do this as many before us have done. I take on board your positive way of looking at your chemo treatment, it's a good outlook to have. Oh, and you are not alone with windy issues, I've never belched so much in my life, it's not pleasant! xx 

 

Sals, so very sorry you have discovered another SE that results in more meds and stays at casa NHS, hope it is all plain sailing for you from now on.

 

Have to agree with Po, no way could I work through this, I'm out for the count for a week after each chemo (FEC) but happily this time have not been up all night with sweats after getting the liquid intake up. Hats off to ladies working through this. I'm self employed but we are drawing on savings now as I'm not able to function and really need rest.

 

Clarabella, try some chewy mints through chemo, I did this by accident for round 2 and have not lost taste buds this time. Also brush tongue gently when you do teeth.

 

Liloc, yay, cheese on toast is a winner every time! Although I think I will be treating myself to some bags of Thorntons before Christmas as well Smiley Wink

 

Feeling a lot brighter today, hubby only has to do two more filgrastim injections and then we have semi normal time until round three just after Christmas. Managed to do some household bits and bobs today, might be up for bathroom cleaning tomorrow!

 

Hair, I've not shaved my head so have lots of straggly hair all over the place, still have lower leg hair but nothing on armpits or arms (jeez, sound like a gorilla!) Most of my head hair fell out in the third week of round 1 and the couple of days after round 2.   

 

Rumbly tummy, onco said this was due to steroids so I have less steroids and some tablets to calm tummy, and it has helped this time, no longer trying to eat the contents of the kitchen!  I'm drinking three large glasses of squash a day plus some when I wake at night (always waking at night now due to fluid intake!)

 

Cannot believe the chemo fog, I'm like an old woman, I dither and get confused, and ramble, which I think is what I'm doing now!

 

Anyone looking after their nails? I don't like nail varnish so I'm just using cuticle oils and creams twice a day and hoping. No changes so far after two rounds, I suppose the nails go on T?

 

Keep well lovely November ladies, we can do this!

 

xx

 

 

Member
Posts: 35
Registered: ‎21-10-2018

Re: November 18 chemo starters

Yay for the cheese on toast gang! Just had three scrumptious slices for a 5 o’ clock snack as my stomach wasn’t going to last til OH gets home to cook dinner. Took me longer to make than gobble down but used mature cheddar, added some cut up pieces of cherry tomato (some superfood to be healthy) and salt and pepper before going under the grill and I could actually taste it! Got for it (even better if you get someone to make you a couple of slices while you lie on the sofa).
Member
Posts: 337
Registered: ‎05-05-2018

Re: November 18 chemo starters

Emily Orford Are you ok? x
Member
Posts: 7
Registered: ‎27-11-2018

Re: November 18 chemo starters

Ahhhh.... so Monday was rough.  Felt like I'd got full blown flu, everything and everywhere ached and was so sensitive to touch.  I've never had proper flu and quite frankly if that what it feels like I never want it.  It felt a bit like my thighs wouldn't support my weight which was quite scary.  

 

I noticed someone else mention cheese on toast - post my first round that's all I wanted to eat.  Just cheddar on toast.  I've had friends offering to buy me fancy cheese boards and I'm like nope just mature cheddar.  

 

I'm lucky enough to live in a town where we have a branch of The Haven and I've been to see their nutritionist and she said it was likely down to the body wanting the protein, carb and fat combination.  She said go with it if that's what you want but try to eat more dark green vegetables on the better days.  

 

I've got my first counselling session scheduled with them next week so that will be interesting.  If anyone else has a Haven in their town I'd recommend looking them up.  

 

This time round my taste buds are only just coming back and it's a bit like when you've a hangover and you want to eat all the naughty food (chocolate cake, sausage sandwiches with brown or red sauce, cheese on toast).  Tea is still a no no and milk chocolate really doesn't taste like it used to.  Dark chocolate (my favourite) is more palatable than milk.  

 

Member
Posts: 16
Registered: ‎17-11-2018

Re: November 18 chemo starters

Oh dear!!!!! : )
Po
Member
Posts: 4
Registered: ‎19-09-2018

Re: November 18 chemo starters

Hi there

 

i have just finished my chemo treatment but I have to be honest... there is no way i could have worked throughout it.  Apart from the nausea, the sheer exhaustion after chemo is overwhelming.  Could be that everyone is different though.  Good luck x

Member
Posts: 12
Registered: ‎04-12-2018

Re: November 18 chemo starters

I went for about 4mm myself for the first cut but feel i look  like a concentration camp victim so will probably take it all off this weekend if it doesnt fall out on its own.

Member
Posts: 35
Registered: ‎21-10-2018

Re: November 18 chemo starters

Just joking, let’s just say I haven’t been the best company!
Sals, sorry to hear about the swollen leg, scary! And the injections, that would freak me out even more. I am having lots of pains in my muscles and bones where I feel like the blood isn’t circulating properly but no swelling or redness so I think it’s just part of the general malaise.
Still in bed this morning but my old antenatal girls are coming over for a Christmas coffee (they’ll make their own) this afternoon so have to get my hair on. Hope I don’t fall asleep on them as still struggling to function. Will be nice to have some company though.
My sister tidied up my hair with clippers yesterday but only dared use the No.2 setting. So I’ve gone from looking like a baby chimpanzee to a baby hedgehog. Think I would have preferred the completely bald sexy Sci fi look maybe, is that what the rest of you have done? Down to zero?
Member
Posts: 35
Registered: ‎21-10-2018

Re: November 18 chemo starters

😂😂😂 Tigerlilli, shall we all say it’s just you and nothing to do with chemo at all 😂😂😂???
Member
Posts: 16
Registered: ‎17-11-2018

Re: November 18 chemo starters

Thanks Sals, I will definitely be doing that every day from now on. How's your leg? Anyone having problems with bloating and wind? It's quite revolting. Seems to be a gale blowing most of the time!!!! Really antisocial : /
Member
Posts: 47
Registered: ‎02-10-2018

Re: November 18 chemo starters

Thanks Tigerlilli, I din’t Know if this is just luck but years ago a doctor told me to drink a hotblemon every morning in winter, I started doing this again after my diagnosis and so far fingers crossed no colds and the boys have had colds but amazingly I seem to have resusted. Half a lemon squeezed in hot water can add a teaspoon of honey too which is anti inflammatory and anti bacterial - it might just be this that’s doing the trick 🤷‍♀️ Worth a try
Member
Posts: 16
Registered: ‎17-11-2018

Re: November 18 chemo starters

Wow! How frightening for you! Thank goodness you contacted your nurse when you did... I'm so pleased you are getting sorted now.
How is everyone else coping with every blinking cold on the planet buzzing around? I have practically become a hermit. But my whole family seem to have one bug or another! Any tips? X