14-12-2018 08:13 PM
Hi Tbird, glad I was able to give you some reassurance about the PICC line and able to ease your worries a bit. I wouldn't say I've got a particularly high pain threshold and I found the procedure ok. I think they might have numbed the area first, I'll have to check with my daughter.
It was a bit of pain sometimes having to have it flushed weekly, but on the other hand I found it quite reassuring to be seen regularly at the chemo unit. It's useful to buy a plastic sleeve for the shower as you can't get it wet. I bought mine at Boots for about £5.
If there's anything else I can help with, just ask or you're welcome to message me xx
14-12-2018 07:50 PM
thank you for your reply, it has helped me put my mind at ease. I haven't got a date yet when I will be having the PICC line but it will be before 8th January as that will be the date for my 4th chemo.
its good you were able to have your daughter with you to keep you distracted, I will have to ask if I can have one of my sisters with me.
love TBird xx
14-12-2018 07:23 PM
I too had my last EC yesterday #3 and will be starting T+ Herceptin in the new year although have to change hospitals as my local one doesn't do T, at the moment been told they are at full capacity on the 3rd and will have to defer it a week unless my oncologist says otherwise...waiting to hear from her 😧
Feeling ok today managing the nausea just have a sore arm.
Hope you all have a good weekend xx
14-12-2018 07:01 PM
Hi Tbird, I'm from the Oct '17 thread and just wanted to reassure you about the PICC line. I had one when I had chemo and I was really anxious about having one, but it didn't hurt when it was put in. I was allowed to have my adult daughter with me, which helped to keep me distracted. When it was removed it took no time at all and again I didn't feel anything. When are you having yours fitted? x
14-12-2018 06:39 PM
i will be having my third Fec next week also, although it's now only EC I'm having because of side effects. I will be starting T in January.
My veins are so sore from the chemo so I am having a PICC line put in for the T. I am such a wozz and am terrified of having the PICC put in, any advice ladies, does it hurt.
i am terrified of everything but am pretending to family I'm fine, I suppose a lot of you ladies are the same.
have a lovely weekend Tbird xx
14-12-2018 05:49 PM
14-12-2018 01:23 PM
Hope you’re all doing well.
Im off for FEC round 3 this afternoon 😨 but thankfully this will be the last FEC for me, the halfway point before starting T in the new year.
Tigerlilli, I want to thank you for what you said about thinking of chemo as a friend that’s trying to cure me, I’ll hold on to this thought over the next few days when (or hopefully “if” 🤞) I’m feeling dreadful. Xxx
12-12-2018 08:43 PM
12-12-2018 06:35 PM
Hi Ladies, managed to crawl my way out of chemo fog land!
Tigerlilli, thank you so much for the virtual hug, you helped lift my spirits when I was stuck down there in a pit of dispair. Although I don't wish this on anyone, it really is comforting to know that we are not alone, we can do this as many before us have done. I take on board your positive way of looking at your chemo treatment, it's a good outlook to have. Oh, and you are not alone with windy issues, I've never belched so much in my life, it's not pleasant! xx
Sals, so very sorry you have discovered another SE that results in more meds and stays at casa NHS, hope it is all plain sailing for you from now on.
Have to agree with Po, no way could I work through this, I'm out for the count for a week after each chemo (FEC) but happily this time have not been up all night with sweats after getting the liquid intake up. Hats off to ladies working through this. I'm self employed but we are drawing on savings now as I'm not able to function and really need rest.
Clarabella, try some chewy mints through chemo, I did this by accident for round 2 and have not lost taste buds this time. Also brush tongue gently when you do teeth.
Liloc, yay, cheese on toast is a winner every time! Although I think I will be treating myself to some bags of Thorntons before Christmas as well
Feeling a lot brighter today, hubby only has to do two more filgrastim injections and then we have semi normal time until round three just after Christmas. Managed to do some household bits and bobs today, might be up for bathroom cleaning tomorrow!
Hair, I've not shaved my head so have lots of straggly hair all over the place, still have lower leg hair but nothing on armpits or arms (jeez, sound like a gorilla!) Most of my head hair fell out in the third week of round 1 and the couple of days after round 2.
Rumbly tummy, onco said this was due to steroids so I have less steroids and some tablets to calm tummy, and it has helped this time, no longer trying to eat the contents of the kitchen! I'm drinking three large glasses of squash a day plus some when I wake at night (always waking at night now due to fluid intake!)
Cannot believe the chemo fog, I'm like an old woman, I dither and get confused, and ramble, which I think is what I'm doing now!
Anyone looking after their nails? I don't like nail varnish so I'm just using cuticle oils and creams twice a day and hoping. No changes so far after two rounds, I suppose the nails go on T?
Keep well lovely November ladies, we can do this!
12-12-2018 05:59 PM
12-12-2018 12:53 PM
Ahhhh.... so Monday was rough. Felt like I'd got full blown flu, everything and everywhere ached and was so sensitive to touch. I've never had proper flu and quite frankly if that what it feels like I never want it. It felt a bit like my thighs wouldn't support my weight which was quite scary.
I noticed someone else mention cheese on toast - post my first round that's all I wanted to eat. Just cheddar on toast. I've had friends offering to buy me fancy cheese boards and I'm like nope just mature cheddar.
I'm lucky enough to live in a town where we have a branch of The Haven and I've been to see their nutritionist and she said it was likely down to the body wanting the protein, carb and fat combination. She said go with it if that's what you want but try to eat more dark green vegetables on the better days.
I've got my first counselling session scheduled with them next week so that will be interesting. If anyone else has a Haven in their town I'd recommend looking them up.
This time round my taste buds are only just coming back and it's a bit like when you've a hangover and you want to eat all the naughty food (chocolate cake, sausage sandwiches with brown or red sauce, cheese on toast). Tea is still a no no and milk chocolate really doesn't taste like it used to. Dark chocolate (my favourite) is more palatable than milk.
12-12-2018 11:48 AM
i have just finished my chemo treatment but I have to be honest... there is no way i could have worked throughout it. Apart from the nausea, the sheer exhaustion after chemo is overwhelming. Could be that everyone is different though. Good luck x
12-12-2018 11:21 AM
I went for about 4mm myself for the first cut but feel i look like a concentration camp victim so will probably take it all off this weekend if it doesnt fall out on its own.
12-12-2018 11:18 AM
12-12-2018 09:13 AM
12-12-2018 06:32 AM
12-12-2018 05:37 AM