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November 18 chemo starters

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Re: November 18 chemo starters

Hi Lou, thank you so much for the welcome! Yes, oddly I'm really looking forward to Christmas here (despite the chemo), today I treated myself and hubby to a big Quality Street advent calendar! Also in overdrive now I feel up to things, although I have had a few dizzy spells when I've been rushing around. 

 

I did find that although I haven't felt sick, I have been ravenous at times, and my stomach feels like it is rumbling from lack of food. I'm belching a lot too, not a great thing.

 

I have my wig, picked it up this week, an exact colour match to my hair and a slightly shorter style, really happy with it. I didn't have too much choice as the wig lady asked me what I wanted and brought a small selection in, THE one was in that first batch of wigs, thankfully. 

 

Will be thinking about you next week, as we gear up for round 2.

Member

Re: November 18 chemo starters

Welcome Holeinone! I too, like you didn't post for a little while but found the posts from everyone so helpful and comforting especially in week 1 after chemo when my chemo brain kicked in and I felt too spaced to type much that made sense.

I'm just a day after you for my EC so my next is 7th Dec. Will be thinking of you on the 6th. I'm having my PICC line fitted that day.
My hair hasn't budged yet but have decided to cut it short next week anyway and get the wig (so hard to choose, had no idea there would be so much choice of style, colour etc.)
I'm hoping like you that the anti-sickness drug mix works well next time too. Trying to get some Christmas shopping done and going into cleaning overdrive before end of next week. The kids are already pestering about getting a tree. Will be something nice to look forward to after chemo 2.

 

Member

Re: November 18 chemo starters

Hello lovely ladies, this is my first post but I feel as if I know you all as I've been lurking for absolute ages, gleaning info and comfort from your posts, so thank you for that. 

 

I've already had a WLE and started chemo (3 FEC and then 3T) on 15th November. Had a week of absolutely horrific (to me) night sweats and feeling spaced out, unable to sleep etc, which I can see appears to be a pattern. I'm very thankful the anti sickness goody bag I was given worked like a charm and although in week two post chemo I've had a couple of watery mouth moments, I've not actually been sick. I can concur with the taste changes, my usual cup of tea was vile and I had to resort to tropical cordial and chicory coffee instead.

 

Not looking forward to doing it all again on 6th December, especially as I expect I will be bald by then. Tried the cold cap but it was too tight and the cold on my forehead brought on a migraine so it was whipped off pretty sharpish! 

 

 

 

Member

Re: November 18 chemo starters

Good morning ladies
I hope your all bearing up well
Finally starting to feel human again after number two , of too genetics today aswell
Have the old injectaches today my new name for them
Had a melt down at end of last week and did call the nurse in Monday and it really helped she booked me to see oncologist before next cycle to talk about arm pain from the veins having a little protest x
Member

Re: November 18 chemo starters

Hi Clarabella, I am like you having 3 EC and 3 Doxatel although my second EC has been deferred to Friday because I had an abcess. I cold capped on my first session but won't be doing it on my second because I didn't like it and my hair is shedding like mad, OH says he doesn't know who is worse me or the cat! Went for my wig yesterday just in case because I already have a couple of bald spots but they can be covered by the rest of my hair.Will have to see how it goes. Hope all those who have done round 2 will start to feel better sooner. Went to my stepsons and daughter-in-laws on Sunday for a roast dinner, had a really good time doing something normal. The two grandsons who are 9 and 5 helped to cheer me up.

Member

Re: November 18 chemo starters

Hi Sals

Feeling better this evening, the second session went much the same as the first, seem to tolerate the chemo and nausea ok but it's when I start the injections 2 days later that's when I start to feel really rough !! 😟

 

 

Member

Re: November 18 chemo starters

Hi Traceybev,
I’m Her 2+ too so we are on exactly the same i’m Er+ too so will have HT after the chemo and herceptin injections. How are you feeling 5 days on from your second session?
Take care
😘
Member

Re: November 18 chemo starters

Hi Clarabella

I too have a similar treatment plan to you, 3 EC + 3 Docetaxel although I also have herceptin from cycle 4 as HER2+. I'm 5 days post cycle 2 and also using the cold cap, it seems everyone's experience of it appears to be  different ! ....I've lost quite a lot of hair on my head but strangely not from anywhere else😮....Have decided to have it cut short tomorrow and see how it goes before starting cycle 3 in a couple of weeks.

take care everyone x

 

Member

Re: November 18 chemo starters

Hi Clarabella,
Just thought I would drop in as I cold capped too, I had the same itching and burning after my first cycle and thought it hasn’t worked I am going to lose it but the sensations disappeared after about a week and so far the hair has stayed, just got back from cycle 2 so we’ll see how it holds up this time, i’ve Actually got to shave my legs soon I left them thinking it would go but not yet! So if you can maybe worth persevering with the cc. I’ve just hit the sofa and can feel the nausea beginning 🤢. Keep going troops we can do this together 😘
Member

Re: November 18 chemo starters

Hi Clarabella, your dates and treatment plan are very similar to mine (except I have the pleasure of 4 EC & 4 Taxol 🤬) so we can keep each other company. You do sound like you’ve coped better than me so far though as I’ve only been feeling human the last few days. Making the most of it til next Weds however when it all starts again for round 2. I too have a sort of tingly burny sensation in my scalp, haven’t noticed any more hair loss than my usual yet but judging from Kateday, juzcooper and others, don’t think it’ll be that long. Didn’t cold cap, no way was I going to sit in that chemo chair for any longer than the minimum - and suffer brain freeze to add to all my other traumas. So don’t regret that (ha,ha, refer me back to this post when I’m sobbing over my shorn locks). Got a surprise package in the post today from a friend, a tub of Queasy Drops 🍬(sour raspberry sweets) and a beautiful John Lewis silk pillowcase. So thoughtful of her, it feels so soft, so will be lovely for a tender scalp.
Had my port implant fitted on Friday, quite surreal experience doing the whole operating theatre business with local anaesthetic (discussing the merits of Hyde Park’s Winter Wonderland before I disappeared into La La Land) but prepared me a little for when I have to have surgery I guess (doing chemo first, then surgery, then rads). Thought I was really brave. 😁. Worst part of the day was the taxi ride home from Chelsea when my husband was worried he was going to lose his Uber psssenger rating if I barfed in the BMW.
Hope those who have already done #2 are feeling a little stronger. Hang in there xx
Member

Re: November 18 chemo starters

Hi Ckarabella
And welcome
I would say that is how my head felt before it started coming out, however have faith it maybe ok and only thin very slightly as you have cold capped, I didn’t as I absolutely don’t like being cold x
Member

Re: November 18 chemo starters

Hello All,

 

First time poster.  A bit of background, I was diagnosed with BC in October and had my first chemo (EC) on 15 November (EC).  My plan is 3 * EC and 3*Docetaxel.  

 

I had a port fitted before my chemo as my veins are shockingly hard to find.  It took several goes to find a vein to put the canula in to do bloods for the first time, and that was with someone holding my arm so tight I got pins and needles in my hand.  So the port was a no-brainer for me.  Although I have to say it feels very weird still.  

 

I've been interested to read all you hair stories (espeically the lady garden ones).  I used the cold cap and didn't find it that cold at all, which I find slightly concerning.  To date I've not had anything above my usual hair shred, although I've been freaking out a little everytime I've found a single hair on my brush.  

 

My head has been itchy since the chemo and today it feels a little "burny" in places.  Can't really describe the sensation.  I'm guessing this is the start of the big shred.  

 

Interestingly the hair on my face is still growing (monobrow and moustache) albeit slower.  I was really hoping that one benefit (sunny side up?) of the chemo would be not having to keep attending to the mono!  

 

Other than that I've not had too many side effects this time, was very tired and hungry for the first 3 or 4 days but seem to pick up after that.  Lots of headaches though but nothing the odd paracetamol has helped with.  The racing heart freaked me out though, a quick check with my nurse and its a side effect of the steriods.  Am trying to drink lots of water (have gone off tea completely) and am trying to get out and do some exercise every day.  

 

Next round is booked in for 6 December can't believe how fast it is coming round.  

 

 

 

 

Member

Re: November 18 chemo starters

Hope you're all doing ok today. Emily, hugs to you especially and hope things have picked up for you and you're getting more support. My Macmillan nurse has been brilliant so hope you can similar support through yours. Hang in on there, as I'm finding week 2 so different and fingers crossed you will too. The lethargy has lifted and I feel almost normal, but realise with each chemo cycle it will be tougher. Just need to take one day at a time ... This group is brilliant for support. I didn't feel well enough to post at first but just reading the posts lifts your spirits. Liloc, so glad your oncologist has helped adjust your meds. Mine has also said not to hesitate if the cocktail isn't working then they can adjust. Fortunately mine seemed to work quite well last week to keep the nausea at bay.
I enjoyed trying on the different wigs yesterday but decided as my hair is holding on for now, I'll go shorter next week and make a final decision on the wig then.
My mum makes a mean cheese scone so I have a freezer full, funny how we're all craving similar things. Take care all. xxx

Member

Re: November 18 chemo starters

Hi ladies
Lilac after reading your post , I called the ward and broke down explaining just how rough I have been and the lady was so wonderful has booked me to see oncologist before my next cycle and for the first time I just cried and she allowed me to do that, I have this deep implanted well I’m not sure what, that I can’t let my family or kids see me cry so I just smile and say it’s ok or will get better
This group is honestly amazing you just know that you ladies understand the fears the crap journey were taking and it makes you feel a little stronger knowing your not alone
Tomorrow I meet the genetics team so that will be another hurdle done x
Member

Re: November 18 chemo starters

Hi Emily, I really feel for you as I felt exactly the same a week ago on Day 5-7 of my first EC. By Day 7 I was so desperate I got a friend to take me into my chemo unit (not going to say literally crawled in on my hands and knees but close enough) and asked what I could do. I was immediately sent in to the oncologist and she couldn’t have been lovelier, she got the pharmacist in and they gave me a Santa Claus bag of meds to get me through it - Domperidone up to 3 times a day and my personal wonderdrug Ondansetron twice a day which has worked wonders. I know everyone is being prescribed different things but the oncologist said her job is to find the best way to get me through this. Please try and get in touch with yours, or just beg to be seen by someone. Everyone in the dept was so lovely I just wanted to cry with relief. That was just last Weds and things have been much better since then. I actually started work today (have been set up to work from home) but I would have been totally incapable just 5 days ago.
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Re: November 18 chemo starters

Hello again ladies

 

It's now day 13 since I had my second cycle of EC and I feel just like my old self again, although I get a bit tired in the afternoon. I do find going for a short walk helps, someone in one of the threads said, she had found it helped with chemo fatigue and having read up a bit more about this, I have to agree, even when I was feeling like rubbish up to day 9, I went for a very short walk with hubby, it also seems to help with the nausia. I'm grateful to say I've only gagged a few times, but the anti sickness tablets have been a blessing.

 

Katday, I know how you feel about giving up and I felt exactly the same and told my husband, I just can't face 9 months of this. My husband said "you've never given up on anything in the 44 years we've been married and I'm not about to let you give up now, I want us to grow old together".

 

Yes we feel like trash, tired, sick, aching and crying all the time and besides that, we have to face the injections in the stomach, just to start our white cells off again, so they can knock us back down. But when we feel better, we can feel more logical about it and realize what the alternative would be. Everyone should try to put up a fight and if that means having to deal with side affects for some months, we've just got to do it.

 

Last week I looked and felt like someone had white washed me, dragged me through a battle field and left me in the hedge. Today I got up early, sorted out the washing and ironing and I've been out shopping. A week on Wednesday I will have EC cycle 3 and feel like death again, but I will hold on to the fact that it will pass, maybe not for eight or ten days, but I will feel better, we just have to hold on and wait.

 

Even though I feel rough, I've taken up doing jigsaws, it really does help as a distraction, the brain consentrates on finding the pieces rather than how I feel, I can actually loose myself just for a short time, I also find it seems to help with the feeling sick all the time.  

Kip
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Re: November 18 chemo starters

Hello November Chemo Ladies... just wanted to pop in from the June chemo thread to say hi and wish you all well.  You all sound like you bearing up and finding comfort from each other.  Its a difficult path to tread and just reading your posts brings it all back to me, the hair loss, wondering what SEs you will be getting.. its so scary and eveyone reacts differently.  I had a masectomy in May then 3 x FEC and 3 X T (finished on 23 Sept) then had ANC and now about to start 15 x Radiotherapy on Thursday.   Its a long haul but you just have to tick off each cycle as they come and you'll soon get through it.  On a hair perspective, I lost mine by day 12 of the first cycle but by the 2nd of the T part it was growing back and now I have a full coverage of white (eek) hair, getting thicker and actually sticking up in the morning.  Keep chatting to each other and ringing nurses and hotlines whenever you need... take care all..

Kip

xx

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Re: November 18 chemo starters

Hi ladies

In bed currently on day 4 after round two. Going to try to get up today, at least to the sofa! I’ve not had a great few days, but was “only” sick twice, although still very nauseous, whereas after round 1 I had spent the whole first night being sick. That said, I think I feel more “under the weather” than I did after round 1.

I have to admit that I’ve had passing thoughts on giving up chemo too. I keep trying to remind myself that it’ll be short term - it’s hard to deal with these months of feeling rubbish, but it’s for the best long term effect of getting rid of all the cancer cells. I’ve had surgery already but definitely want to squash anything that might still floating around in there!

Best wishes to all of you, and just remember that we are all going through this together xx

Anitmth, you’ve got me craving cheese scones now 😂 Last round for me I was craving anything with cooked tomatoes and/or mince 🤷‍♀️

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Re: November 18 chemo starters

hello ladies,

It makes me feel better this morning to know I am not the only one doing this. Day 5 after round two of chemo here, and feeling worse than round one, but still going.Sore everywhere, boob, armpit, back and neck, hips, upset tummy, the list goes on.Drinking lots and eating weird stuff ( currently have a thing for cheese scones with butter - why?!).Hair pretty sparse and I am getting used to going out in a hat.I can't quite do the wig yet, and it has a really long fringe so I just look like The Adams Family Thing- it needs a trim! Anyway, keep sharing, keep going, and we will all get through it .Big hugs to all of you, especially those of you without friends or family nearby to help. xx

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Re: November 18 chemo starters

Hi ladies
Hope your all feeling a little better today
I have been well again completely knocked of my feet by round two and like others actually spoke about just giving it up
Not because I don’t want to have better statistics but because how hard EC seems to hit me
I am also tripple negative but I have had surgery so mine is now classed as a mop up so to say
I actually broke down at my husband yesterday and told him I just couldn’t do it, I said I want to see oncologist and discuss if there is anything they/we can do ,
Ladies as for the hair well so lost near on all mine , however I now have coverage over my whole head and it’s nearly white it’s so blonde ( eminim) is what I look like
Stay strong ladies
Also meet the genetics team on Wednesday so hopefully finally get that out of the way
Member

Re: November 18 chemo starters

Hello All

I'm from the August thread - I've been reading that a few of you have concerns over the EC regime so I thought I'd share my experience with you.

I've just finished my sixth and final EC treatment and I'm now on day 5 of that final cycle. I found I haven't suffered to badly at all and certainly nothing like what I was expecting. I have generally been nauseous for 4-5 days each cycle (but never actually sick) the meds have kept it at bay. I've had a bit of fatigue - usually for a few days after the nausea has cleared but nothing much beyond needing a bit of an afternoon nap. The worst bit for me has been a truly skanky mouth - especially on the 4th and 5th cycles - just a very stale taste that's hard to shift. I've found that a few chunks of fresh pineapple help with this and the knowledge that it will fade kept me sane. I generally have also experienced taste buds changes - I mean fresh fruit tasting salty???? What is that all about??

All in all my SEs have generally been on the way out 7-10 days after my treatment and I've been able to have my normal life from day 10 to my next one. It did seem as though the intensity and duration of side effects increased with every round but to give you hope I've hardly had any nausea on this final round and as I lay typing this in bed at the start of day 5 I'd swear the stale mouth isn't as bad as yesterday.

It is worth bearing in mind that everyone reacts differently - don't let the stories you'll read on here about hospital stays scare you - yes they do happen but the are not the norm and whilst most of us will have a bit of a rough time it is short-lived. I've gotten through it knowing it's not permanent and it will go. My best piece of advice is to listen to your body and do what it wants - eat what it wants you to eat and rest when it's tells you(it's telling you for a reason). Ive told myself that the 3bags of salt & vinegar chipsticks are ok as a one off and the afternoons on the sofa are perfectly fine too.

I've also found puzzle books - wordsearch / arrow words have helped with the chemo brain too.

And lastly but by no means least - my hair started to come back after the 4th cycle - something I didn't expect at all. It has shed a little bit on 5th and 6th cycles just after the treatment - but a fine covering of bum fluff is definitely evident all over my head.

Stay strong ladies - it's not the nicest thing we are ever going to do but it is doable and you will get though it.

Sending you all hugs xxx

Member

Re: November 18 chemo starters

Hi Pinklily

Giving up the chemo isn't an option, you and all of us on here have got this in the bag. Yes, it's harder for some than others and we've all got different support networks, but don't forget you. Do this for you. Sorry if that sounds harsh, but we all need to fight this together 👭

My BCN is nice enough, she rings with results which is handy but always at a time she can't talk properly as she'll be in clinic! She does ring me back though if I leave a message. To be honest I get better info on here!I

Thanks for the tip 're the green veg. I'll give that ago

Take care and keep fighting

Lisa xxx

Member

Re: November 18 chemo starters

Hi Emily

You definitely need to pull on the support resources available to you, you are not alone, and use this forum to chat, moan, whatever! If you find you are struggling mentally, please also speak to your GP, do not suffer I silence 💗

Why do you think you have the BRCA2 gene, have you been tested? I'm triple negative, grade 3 with a bit of family history so was tested 5 weeks ago and get the results on Wednesday. 

I personally can't comment on the EC treatment as have that still to come (I'm doing a trial) but there are plenty on here who can. From what I've read people seem to feel a bit more "normal" after the first week so hopefully you will start to feel better soon.

Please, please, please talk to someone an get some help.

Sending lots of hugs

Lisa xxx

Member

Re: November 18 chemo starters

Hi Juzcooper1971

Ditto your comments 're the treatment, feeling pretty much ok most days and forgetting we're poorly! I think I'm going to have to bite the bullet tomorrow with the hair, I thought people were exaggerating about how much was everywhere in the house. I blow dryed it yesterday and I looked like I was wearing a mohair jumper 🙈

Amazing news about the shrinkage. I had the exact same thought about the EC 's, didn't think we'd skip that one, sounds horrendous compared to our current regime 😬

I thought I'd be a bit rubbish tonight after the first injection, but ok (apart from still awake, which I think is the steriods?) But ok after the carb & Pac in general. You might find it better this time around. Drink loads of water it seems to help 👍

Take care and keep me posted Lisa xxx

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Re: November 18 chemo starters

Hi All and especially Emily, so sorry to hear you are having such a rough time and don’t have many people around for support, as others have said hopefully soon you will feel a little better and try some of the charity support that’s available. BTW @pinklily my bcc is not very visible either and actually I don’t feel so comfortable calling her if I have a question, to be honest I feel a bit of a nuisance but my consultant and oncologist and the chemo nurses are super nice. I am sorry to hear you have not faired so well on cycle 2 and thanks for sharing as I was pretty ok and going for cycle 2 on Tuesday and expecting the same so it’s good to be prepared that I might not be, I have a foid recommendation, the day before my chemo I make a big batc of leek and potato soup it’s all I fancied last time so that’s my job for tomorrow!
Still got all my hair by the way which is a bit weird day 20 not even my body hair has moved 🤷‍♀️
Take good care of yourselves everyone 😘
ktk
Member

Re: November 18 chemo starters

Emily I am so sorry you are having such a rough time. Do you have the number of your Breast Care nurse? I would ring her as soon as possible. Another source of help would be Macmillan or your local cancer charity centre. You are not alone in how you feel, but you must get some help. Btw, I don’t think you have been given the correct advice from your chemo helpline. I would ring again!! Lots of love and hugs Kxxx
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Re: November 18 chemo starters

Well I'm finally feeling well enough to post on the forum. Today is day 12 after my 2nd c, I never imagined it would hit me so hard, I really did get away with it lightly on the 1st c, had the chemo on the Wed and by the Saturday I felt more like my old self, this time, it felt like I'd been hit by a sledge hammer. To make matters worse my emotions have been a roller coaster ride and ladies, I'm a bit of a control freak regarding my emotions, I only ever cry at Lassie films, so don't watch them. 

 

I wonder if anyone else has allowed irrational emotions to influence thier decision about having further chemo treatment. I won't bore you with all the details, but restrictions of not being able to dance and other things, seem to be taunting me to throw in the towel. Today of course I'm back on the level, thank goodness, and realise how irrational my thoughts were. It did'nt help I just kept crying all the time, every day all day, for no reason.

 

I've only ever had flu once, I was so ill and the chemo made me feel like I had flu, all day every day.  I was only able to eat dry cream crackers and rice biscuets for seven days, started eating soup on day eight and by day 10, I was back to normal.

 

Now my brain has gone into overdrive and I'm going mad blanching veg for the freezer and other mad hatter things, almost trying to make up for lost time.

 

I've got to say, the nurses at the chemo unit are wonderful, so careing and kind, even my community nurse who gives me my injections is a wonder and spares time to help with questions and always gives me a big hug and says how well I'm doing. I've not seen or heard anything from my bcn since just after my op, when she mis diagnosed me as not having an infection in my wound and it was infected. 

 

Does anyone else get support from there bcn?

 

I love reading how a lot of ladies on here are getting support from their families and friends, it gives me a feel good factor for them, but feel sad for those that are on their own, I just want to rap my arms around you.

 

If anyone had said a year ago I would be going through this, I would have thought, no I've got too many things I want to do next year, I won't have time to get cancer. But what it has revealed is the truth about those who said they cared about me and the surprise of those who hardly know me but have stepped forward to offer support, even complete strangers.

 

When I think about giving up chemo, I read about those of you who have young children and how you are working through this and think, if these mums can do it, then so can I.

 

I so admire you all and even though our daughter has turned her back on us, my freind said, what about all the hedgehogs you look after, they need you, you can't give up on them.

 

My doctor told me to eat loads of green veg, it helps raise the white count, when I've finished all this next year, I'm going to look like a cabbage, spring green or kale, but it does work and so far both times, by count has been high, but I do draw the line at brussel sprouts.

 

Has anyone on here, who does sewing, carried on, I want to get my machine out and make some tunics, but the nurse at the unit said she has concerns about injury with needles etc to my hands and can you give any advise?

 

I am so glad I have you all to talk too, on the days when I feel I'm totally alone, I read your posts and feel just a little bit better.

 

 

 

 

 

 

ktk
Member

Re: November 18 chemo starters

Emily I am so sorry you are having such a rough time. Do you have the number of your Breast Care nurse? I would ring her as soon as possible. Another source of help would be Macmillan or your local cancer charity centre. You are not alone in how you feel, but you must get some help. Btw, I don’t think you have been given the correct advice from your chemo helpline. I would ring again!! Lots of love and hugs Kxxx
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Re: November 18 chemo starters

Hi everyone,

 

I'm on day 5 of chemo for grade 3 breast cancer, which has spread to the lymph nodes. Undergoing EC chemo x 4, then further chemo, surgery and radiotherapy. It looks likely I have the mutation in the BRCA 2 gene. I'm 33 and do not have anyone looking after me properly, I have a sister who lives in a different city, and I have friends and a flatmate but can't fully rely on any of them, am feeling very alone and scared. I work full time but can;t get out of bed currenty due to nausea and tiredness and dizziness. Can't think straight and I can't understand what's happening to me. It feels like everyone's been sugar coating the whole future for me, telling me,'the chemo won;t be that bad', or, you should be able to keep your job up etc... right now it's taking all my effort to lift my arms to type this and I have months of this ahead of me. I am stuggling to see how I can get through this. I've called the acute oncology number to tell them I am still feeling sick and tired and they suggested I wait it out a few more days, but I'm sinking into a hole and I don't want to loose my mind....

Member

Re: November 18 chemo starters

Morning!! Day 19 today and feeling good. Well, I braved the shave yesterday 🙈 My husband shaved it to a number 4. I got fed up with it shedding and being all over the house. I did have a cry I wouldn't be human if I didn't. Just find it so unfair that I'm feeling okay with the treatment and sometimes forget I'm poorly but this is now a constant reminder everytime I look in the mirror 😕 Altho, it's a small price to pay and it's not forever. I braved going out in my wig yesterday and was paranoid at first but then realised nobody was actually looking at me and had a lovely afternoon.

Hey Lisa, I saw the oncologist on Friday and I have shrinkage too! Not bad after just one cycle, I'm chuffed to bits and bet you are too. I knew it had as my lump was quite prominent and has also stopped aching. Makes it worth while knowing the treatment is working. I did ask that if after week 12 and an MRI scan and it has gone would I still have to have the 3 EC's. I was hoping she'd say no but no such luck and wishful thinking on my part. The full treatment has to happen especially with being on the trial too. How are you feeling today? I was expecting to feel rubbish next Tues after the Carb and Pac but you'very given me a bit of hope now 😉 I wasn't too bad to be fair after the first lot just the 4 day hangover feeling which was managable.

Take care everyone xxxx
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Re: November 18 chemo starters

Hi Sals, that's really helpful and glad you've felt more normal. Sorry the implant is giving you grief though, hope it eases. I've been for coffee with a friend this morning and bumped into quite a few people I knew so feel better for getting out and about again.
funny I actually am looking forward to going to try the wigs next week now. Am getting fed up with my messy bob as not washing it as much to avoid more hair loss and I like to wash every day normally. I'll see how I feel about going for the short crop next week, but have parents evening next Thursday and might hold off until after that as I'd quite like to go without bumping into parents and shocking them with my new look.
Sorry the cold cap made the chemo feel so miserable. Well done for getting so far with it and I know it must have been hard to decide not to persevere. xxx

 

Member

Re: November 18 chemo starters

Hows everyone doing this fine Saturday? I started c2 yesterday and decided to stop cold capping. Was a hard decision to make as although my hair has come out loads, I have so much of it you would never know! I probably should have persevered with it but the thought of doing another 9 weekly sessions then  3, 3 weekly sessions was just too much for me. It's not the cold, it 's how heavy it was and how miserable and disorientated it made me, the whole chemo session was 100% better without it. I have brought my wig a long GHD styled layered look in toffee peacan, makes me look loads younger so massive bonus 😆  Just need to see how hair loss goes now before braving the shave 🙈 Have crimbo dinner with the work crew on Thursday so might need to be sooner rather than later or I'll be eating chicken liver pate with a portion of hair on the side!😂

Juzcooper1971, oncology appointment was promising, we have some shrinkage so good start. After the carboplatin and paclitaxol yesterday, feel totally fine, no nausea so far which is good. Will be those pesky injections starting tomorrow that bugger me up 😡

Take care everyone Lisa xxx

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Re: November 18 chemo starters

Hi Lou, I am on day 19 post my first cycle, got my next one on Tuesday, this past week I have felt practically normal apart from still some discomfort with my temporary implant, i’m hoping that my next cycle follows the same pattern and then I will know I can plan things for my week 3. For hair loss I used the cold cap and so far so good but I haven’t actually lost any hair not foo or legs so i’m not sure if the cold cap has worked or not, it could all just come later for me, so maybe it’s worth not being too hasty with the crop, just in case you are lucky and get a few extra weeks with hair - I think maybe chemo in winter is better than summer at least we won’t look too odd in our beanies! Hope everyone’s weekend is good 😘
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Re: November 18 chemo starters

That sounds like a lovely treat. I was thinking about having a massage next week too as a friend treated me to a salon voucher. Lunch and popping to Maggies centre sounds perfect, I've heard really good things about the centres not been to my one yet but will definitely get there soon. Take care everyone. xxx

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Re: November 18 chemo starters

Thanks Kate, yes was told day 17 by my nurse so want to get it shorter before then ideally to avoid mass clumps of hair. The salon where I'm going for the wig fitting says they can do it for me so I'll see how I feel Tuesday as to how short I go. My main concern is how my little boy will react to me so we've read the story 'Mummy's Lump' together today and he had a laugh with my daughter's Lego friends taking their hair off to see what they looked like bald and putting different hair styles on them. I think if I make it light hearted for me and him it'll be easier. I have ordered a headscarf too but think like you say the winter hats will be a better option with the weather to come. x

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Re: November 18 chemo starters

Had a lovely treat yesterday. The local hospice offers complementary therapy at my local treatment, so had a neck, shoulder and back massage.It was absolute bliss, feltso relaxed afterwards. Had originally booked for the day before my 2nd cycle but that was cancelled until next week. Although I wore the cold cap my hair is shedding so might see how it goes after the next cycle as to whether I continue with the cold cap. Got my wig voucher and a fitting booked at Christies on Tuesday.My friend is taking me so we are going to make a day of it, going for lunch and might pop in to the Maggies Centre at Christies. Hope all of you who have had your 2nd cycle are not suffering too much.

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Re: November 18 chemo starters

Hi Lou
The hair loss I dreaded , I had mine cut short for me before chemo then about day 17 post first cycle I went to a number three with a few tears ,
Well now I don’t care , well I don’t leave the house without my hat , haven’t worn my wig yet , but I will not panic if friends come round , I found my head was a little sore/ painful at times when it started falling out , but it soon eased of
One odd thing is what I have left has gone nearly white blonde , my husband said it’s loke living with Eminem hair lol
X
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Re: November 18 chemo starters

Hi ladies, hope you're doing ok? I've made it to the 7 day marker since my first chemo this time last week so I'm a bit behind some of you. I'm pleased I've made it through the first week though and doing ok. I had my best day yesterday where I seemed to have lots of energy (fortunate really as my daughter was off school). I had been going stir crazy after feeling exhausted the previous 2 days so even a short walk lifted my spirits.
Unfortunately I had a bit of a wobbly start and on Monday had to go on to the day unit to be checked over (including a chest xray) as I was recording high temperatures so they have put me on a general antibiotic. I agree it's a good idea to have an overnight bag packed as I hadn't done this so when they told me to bring one I had to pull everything together just before we left. Fortunately it wasn't needed!

Temperatures now normal (I'm still wondering if I had a dodgy thermometer so have a new one now!!!) I've not enjoyed the injections much but found a coping strategy doing them before bed, taking paracetomol before and a hot water bottle as I had bad aches after the one on Tues.
So now I've taken the next step of booking my appointment at the local wig shop and will go with my mum next week. It's been in business since the 1960s so have been joking with friends that I may end up with a beehive! I still have my hair in a bob so going to decide next week about cutting it really short. It's really good to hear all your tips and how you've been coping with the hair loss aspect as think this will be really hard.
Take care over the weekend. xxx

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Re: November 18 chemo starters

Hi ladies
How are you all doing
I’m day 5 post cycle two and well just rough as, I thought this one may be kinder to me but nope, today I want to just give up x
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Re: November 18 chemo starters

Hi all, Pinklily sorry you’re having a hard time again. Think the psychological weight of the sessions to come is so hard to handle, just have to tick them off. I’m still feeling mega rough and I’m only on Day 7 of my 1st. Thought I would be feeling a bit better by now but still really nauseous and weak. Yesterday all I could do was curl up in a ball in bed. Today I’ve managed to get up and shower but just drying myself off seemed like a feat! Encouraged by those of you who mention work, really hoping I can think about that soon as I would mean I would be feeling more normal. Just discovered the joy of lime cordial which I haven’t had since I was a child, water tasted like it had come straight from a mine so much nicer.
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Re: November 18 chemo starters

Thanks for all your comments and glad to be home and feeling okay 😘

Hi pinklily. So sorry you've had such a bad time of it and fingers crossed your next cycle is kinder to you xx

Hi Harkes. Glad to be home and my 3rd treatment, end of 1st cycle on this trial, went well yesterday and feel okay today. Mind you, I slept through half of it after the premeds 😂 A bit of a pain having to put your treatment back but it's what's best for you at this moment in time and you'll be back on track in no time 😉 xx

Hi Lisa. Yes, the injections are the devil 😈 Although, after last weekends admission it's shown my white cells are sky high with having them which could have resulted in my high temperature! So they've dropped me down to just 2 instead of 3 this week, so we'll see what effect that has. Got use to injecting myself but don't like the aching legs, hips and back 😕 It's not unbearable is it just god damn annoying. Nothing a couple of paracetamol doesn't cure by just taking the edge off. Not looking forward to next Tues as will you be about Friday I bet 😕 Altho, I didn't have any bad side effects after both drugs it was the 4 day hangover feeling I didn't find very pleasant but again managable, slept through most of it. Good luck for Friday and keep me posted how you're getting on xx

Take care everyone 😍 xx
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Re: November 18 chemo starters

I had cycle 2 last Wednesday and have felt so ill till today. Had the shivers Thursday and Friday, the unit sent me straight to A&E, I've got to say they were brilliant, got through super fast with every examination going, the concern was sepsis, but thank god, every thing came back ok, clearly the drugs had a worse affect than the 1st time.
I started eating today, just very little bits, so it doesn't go through me again. I feel exhausted and I've lost 3lb since last week.
The worst bit has been the emotional roller coaster, I never cry, but that's all I've done since last Wednesday, just couldn't stop, even my community nurse said I looked really ill, believe me, my face has been white until yesterday, I looked in the mirror and it was like a ghost looking back.
This has been so difficult compaired to the 1st cycle, I hope the 3rd one is not as bad.
Can't believe I've got nine months of this.
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Re: November 18 chemo starters

Glad to hear your back home and feeling well juzcooper. Saw my oncologist today and because of my abcess she has deferred my second cycle of EC to next week which has completely buggered up my plans but hey ho that's life! Still got my hair but if I play with it, which I have a tendency to do I get some strands coming out so got my wig voucher today, just in case. Hope all of you who are on your 2nd or 3rd cycle are doing OKHeart

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Re: November 18 chemo starters

Hi Juzcooper1971

Glad to hear youre back home and well. My hair started shedding on Sunday (day 17) and was terrible when I washed it today - I cried in the shower and all the way to work 😢 I think I've still not admitted to myself that I have cancer and everything is hunky dorey! I've been fine again this week apart from the injections. How are you finding them, are you getting side effects? 

I hope your session went ok today. My cycle 2 starts Friday so I'll keep you posted on how that goes.

All you lovely ladies on here I hope you are all well and being looked after by your loved ones 💗

Oh, going back to hair loss, can anyone recommend products to look after your scalp please for when I have to brave the shave 😬

Take care everyone xxx

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Re: November 18 chemo starters

Hi everyone!! Got out of hospital yesterday after having 2 days on intravenous antibiotics for a suspected chest infection but not confirmed as I feel absolutely fine 😕 Saw my oncologist yesterday and get said if he had been on when I went in on Saturday he wouldn't have kept me in after thoroughly checking me over. As I'm on the trial I think the consultant who saw me Saturday panicked and knew my oncologist was due in on the Monday so kept me until he saw me. A bit of a farce but was well looked after and better to be safe than sorry I suppose. Just on my way for my 3rd treatment in as many weeks for Paclitaxel only. Apart from the tiredness and even my little trip to hospital I've felt fine for the last week. Day 14 and noticed my hair shedding after I washed it this morning 😕 I had long hair and had it cut into a short bob a couple of weeks ago so it wouldn't be as traumatic but think it still will be no matter how short your hair is. Got scarves, hats and wig at the ready. I even purchased a clip on fringe to clip onto my hats. Ready for every eventuality. Take care everyone xx
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Re: November 18 chemo starters

Hi anitmth, thanks for your comment about the portacath, booked in to do it Friday and wondering whether to funk out as hard to face more medical procedures when I’m still suffering from 1st chemo session. However breastcare nurse and the one who looked after me during chemo both thought it would be a less stressful option for me, seeing as how worked up I was getting. So I think I will just take the plunge and hopefully have it easier in the long term.
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Re: November 18 chemo starters

Doesn’t feel less hurtful when you don’t brush your hair and have to clean up all the bits that come out
Number two done now I’m officially half way through my EC 😀😀xx
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Re: November 18 chemo starters

Hi Liloc, I have a port - it wasn't great having it put in, but having bloods done today was much easier and faster, with none of the struggle to find a vein.

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Re: November 18 chemo starters

Thanks for the comments - it's nice to know others are going through the same thing, even if I wish you weren't. Hair now cut down to a centimetre but still coming out.Not as horrifying as having a hairbrush full of hair. I have a selection of hats but I haven't tried the wig yet, it still feels odd.Eyebrows and eyelashes still there but my eyes have been really runny and sore. Bloods and swabs today in readiness for round 2 on Wednesday. Fingers crossed that it isn't too bad.xx

 

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Re: November 18 chemo starters

Good luck with round two today Kateday, I’ll be thinking of you xx

 

My next one is on Friday, I’m dreading it already.

 

We shaved my hair to a number 3 on Saturday, day 16 after first FEC treatment. My scalp had been so sore, and my hair was starting to fall out more so I just bit the bullet and did it. I definitely cried, and still think I look a bit strange in the mirror!

 

But I have to admit, it’s nice to not have to faff with the hair dryer, straightener, etc. And it really helped to ease the soreness.