17-12-2018 03:05 PM
Aw really glad to hear that Tigerlilli! Will look up the sparkly pants, great idea Holeinone. My wig was slipping earlier and now realise the straps inside had loosened - no wonder it felt like it was about to blow off my head Saturday.
Has anyone been to one of the 'Look good, feel better' pampering sessions yet? I might book myself into one in January to give myself a boost, though my lovely niece wants to give me a masterclass in eyebrows. Never before have I been so interested in makeup.
Shire horse legs - ha ha love it! We're all with you on that one Tigerlilli, I'll have to try out my new Ladyshave later. x
17-12-2018 03:00 PM
With you on the shire horse look, I'm quite annoyed that over the years they haven't thought that ladies having to go through hair loss would really appreciate not having to shave those stubborn calf hairs, they should put something in the mix, so thoughtless
Oh, I had wig slippage the other day, I bought a couple of those wig caps from ebay, think they were just over £1 delivered, but as I now have wisps I thought I would be OK without and just the wig. Wrong! Kept tugging at it and adjusting it all afternoon while we were out walking. Really thought at one point it was going to ping off my head and into the nearby river, where I would be left standing balder than Rab C Nesbitt on the bank, screaming!
17-12-2018 02:29 PM
17-12-2018 02:04 PM - edited 17-12-2018 02:52 PM
Oh Tigerlilli, so sorry you are having a wobble. It's understandable, not just with our diagnosis but also all these drugs we have going through us.
I'm still so grateful for your power words earlier in the month and found these sparkly tough pants languishing on another thread (I've only borrowed them, honest!), they get handed out on the forum when ladies are down and need a bit of a lift. Not sure if they pull tummies in but they have deep pockets for us all to hang around in there with you and keep you company.
Feel free to try on in the comfort of your own home and thrust one fist skywards xxx
17-12-2018 09:47 AM
So sorry to hear you're struggling. Keep strong, you're doing great! It's so hard dealing with others and how they want us to feel / look. My husband is very supportive but I feel like I'm trying to manage his and other's expectations constantly. I too am usually positive but can imagine coping for as long as you have and 'keeping up appearances' is exhausting. We all need to be allowed time to let our emotions out. Sending hugs. xx
Sals, I cry at slushy films all the time anyway, and remember soon after diagnosis I took the kids to see the Incredibles 2 and was weeping at that - I must have been the only one! Think I told the kids I'd got something in my eye. Polar Express set me off yesterday evening, that lovely song in the middle of it had me weeping again. x
I don't really like wearing my wig as much and my daughter actually prefers my bald head right now which is clearly not practical in this cold weather. I still can't quite believe it will stay on my head in windy weather either, so Satruday's wild weather was testing.
Take care all, let's try not to too tough on ourselves at this time of year when it's stressful enough anyway. xx
17-12-2018 04:31 AM
16-12-2018 10:43 PM
16-12-2018 09:10 PM
I'm back on an upward curve again after chemo 2. Apart from a really nasty reaction to the 1st and 2nd injections again (awful stomach cramps and bone pain in lower legs and pelvis) I found the other 5 ok but I changed to doing them in the morning from the evening. My oncologist / nurse / pharmacist can't explain why the first ones were so bad but this happened last time and I wonder whether it's just my body's reaction to having them again, who knows ...
I'm pleased with having gone for the PICC line, but it jangled the nerves in my hand a bit and after a week of tingling sensation in my fingers of my right hand this has now eased. The nurse was lovely who redressed and flushed it out Friday and very reassuring to keep my arm moving as normal. So if you do have one fitted and it feels a bit weird the first week, please don't worry it will ease. I got a cover and a waterproof tube thing for washing. Apart from not sleeping as well because I don't want to lie on that side, it should really help with the chemo. It just felt like a bit of an ordeal at first and there were tears.
I have the same issue with leg hair, it's just not going ... even bought a LadyShave with some money I was given for Christmas, which will now be hilarious if it all drops out tomorrow!
My husband shaved my head (he thinks he should now be a barber!) I'm now quite pleased with apart from being called 'Egghead' by the kids. I only wear the wig out, or my bamboo headscarf with a bobble hat over it, but then a variety of headscarves around the house.
Hope you're all coping ok? You're all doing amazing, we can do this ladies! xxx
16-12-2018 06:49 PM
Sending hugs your way Tbird, Liloc and Clarabella, think the ranting and crying will continue to come at us in waves as we continue our way through this journey but we are all in this together xxx
I'm about 10 days post 2nd round and very achy in my chemo arm, and in certain places all over, wound site and chest in general. Not sure why and obviously paranoid about what is going on
Taken a bit longer to get my stomach and bowels (apologies if TMI) back on track after round 2, but I really don't want more medication to sort the side effects out, not sure what to do. Keep having massive drop outs in energy this time too, think I really was on adrenaline first time around!
Lower leg hair hanging on, what is that all about, do the decent thing and drop out like the rest of it!!
Keep going ladies x
16-12-2018 05:09 PM
Don't worry Tbird, moan away.
I was very weepy before my second and I think I will as number 3 approaches (new year's eve for me - rock'n'roll). I was talking to my sister about it and she can be like the voice of reason at times. She described it as being a bit like the time she went to Alton Towers and on one of the rides where you get plunged from a great height into a hole - she's scarred of heights. The first time you don't know what to expect so you just go with it, you don't enjoy but you get on with it. When she went on the ride a second time at her friends instance she knew what to expect and she absolutely hated it.
For us, each time a chemo date approaches I think we get reminded of how rubbish we felt after each of the previous ones and not enough time has passed for us to have forgotten. It's understandable that really we rather not feel rubbish thank you very much and to deliberately make ourselves feel rubbish - well who would sign up for that if they didn't have to.
16-12-2018 04:58 PM
16-12-2018 04:41 PM
sorry to be a moaning ninny but the last two days I can't stop crying I don't know what's wrong with me. I will be have my 3rd chemo Tuesday, I had my blood test yesterday and as they were taking my blood I burst into tears for no reason and can't seem to stop 😭😭
16-12-2018 10:48 AM
15-12-2018 08:43 PM
Am having my first proper wobble. Day 9 post chemo 2 and my head hair has decided that today is the day it makes a break for it. I know I should feel lucky that until today I've really not lost any (I've cold capped both times), I just wasn't expecting it to start and for it to come out as much as it has today. What's really confusing is that it has stopped coming out else where which has left me with some interesting topiary in places lower down!
I had my hair cut short for me (from mid back) to a longish pixie before I started the chemo in the hope it would help. Maybe it'll stop shedding maybe not. Maybe I'll need to get the razors out. Might have to get the wig purchased before Christmas.
Ok, rant over. Hope you lovelies are doing ok. Deep breaths.
15-12-2018 06:25 PM
15-12-2018 05:59 PM - edited 15-12-2018 06:00 PM
Don't want to pi@@ on your chips but I think you have lost a cycle amidst the chemo fog??? If I recall your a few days behind me so your half way through and have just finished your 2nd cycle. I did exactly the same in my diary, missed a whole cycle out🙈
I started cycle 3 yesterday so double dose of Tax & Carb and feeling ok. Off to the panto tonight so I've given the hair piece a good old brush! At least it only takes 5 mins to get ready these days 😄
I've noticed a few spots on my scalp. I usually get a few spots weirdly when I have my hair cut so could be something similar for me?
What lotions are people using for their scalps, advice p!ease 👍
Hey lilco, the markers are pretty much the same as the biopsy, they're just dropping something in rather than taking something out. Very quick and not painful. They'll probably do a quick mammogram as well to make sure they're in the correct place.
Hoping all you other others chemo warriors on here are coping well and are well enough to enjoy your Christmas dinner ( those on steroids probably more than those that not! 😉😄)
Take care Lisa xx
15-12-2018 12:18 PM
15-12-2018 12:04 PM
15-12-2018 09:51 AM
15-12-2018 09:05 AM