So I had my second chemo on Thursday and for me Saturday has been the worse both times so far. Just feeling like I've been hit by a bus. Both times I've gone back to bed for the afternoon. Having said that I think I've got off quite lightly compared to some of you so far. This time the headaches have been much less, although I'm wondering if that's because we used gauze on my forehead under the cold cap this time, so I didn't end up with a frozen forehead unlike round 1.
My hair is still hanging on. There's days when i think it's shreding more and days when I think it's not. Hair washing is becoming ever increasingly stressful. Even my ladygarden seems to have stopped coming out at the moment which has left me with an interesting pattern down there!
The nausea was much more managable this time too, following the eat little, often and when you wake up in the middle of the night rule.
For those with ports I asked the nurse about bruising and was told that because our platlets are killed off too we will bruise more easily and then take longer to heal so everytime they access the port we'll bruise.
Hi ladies, thanks Liloc I'm doing better today after chemo 2, that's to say I didn't end up having to go to A&E like I did after last one. Have had more energy and managed to get the tree up and decorated with a bit of help from the kids.
Hair has been shedding like a yeti and now look like a baby bird according to my 11 year old daughter, so am borrowing my brother-in-laws clippers tomorrow. Have got used to the wig but decided it's better without the wig liner. Was sat on the sofa earler and wondered why my hubby was looking at me and laughing. The whole thing had slipped backwards so the fringe was way back. Have tightened it a bit and decided to ditch the liner thingy. I agree the pretied bamboo headscarf I bought is lovely and soft to wear so am using this more around the house, going for chemo.
The PICC line fitting Thursday was a bit of a nightmare. It went in the wrong place (in my neck - eek!) to start with so had to go to Xray so they could see where it was then manipulate into the correct position. My husband hadn't even realised how long I'd been and was happily watching the snooker in the waiting room when I came out eventually.
Saying that the chemo was much easier with it so glad it's in. Just still feels a bit weird but I'll get used to it.
The side effects are pretty yuck this first week on the ateroids and anti-sickness but seems to be keeping the nausea at bay.
Good luck those going for cycle 3. Really hope you've found some more support Emily. We're here if need us. hugs everyone xxxx
Hi everyone, hope you are all doing ok. 1 week post 2nd cycle of EC and have felt much better than post 1st, am convinced it is through not using the cold cap as I have not been away with the fairies. I did work as a receptionist at a private health clinic but haven't worked since 1st chemo because of risk of infection. Anyway, have been having problems with my left arm (surgery side) so decided to go and see my boss who is a physio for more exercises as the ones I was doing weren't enough. He examined me and told me that my problems were nothing to do with my surgery or my chemo but with my neck! The point I am making is don't assume that all your problems are treatment related and get them checked out. On a lighter note it was the OH works christmas do last night so me and the daughter decided to have a girls night in and ordered pizza and nibbles,
and binge watched The Big Bang Theory! I absolutely loved the pizza and the fact that I could taste it, until 4 this morning when I woke with raging indigestion, I took every anti-indigestion medicine in my cupboard and am just now feeling.So that's another thing to stop eating.I will be surviving on toast and soup at this rate!
im having my 3rd one on the 18th too so I will be thinking of you and all the others going through this nightmare. Side effects are horrible aren't they, the way I'm looking at it is all my side effects seem to be the norm so treatment must be working and it's not going to be forever.
My oncologist has stopped one of my drugs from FEC and reduced the other 2 to 80% side effects are not so severe, but now I'm worried about the long term outcome - will the chemo still be as effective, after my 3rd session I will be having 3 sessions with the targeted chemo, I will be having a mastectomy after that. I've asked my oncologist and she didn't really answer just said "we have to reduce it for you to survive the treatment" 😱.
Im going to stop worrying and think positive, they wouldn't be continuing with treatment if they didn't think it would work (my surgeon said it cost £40.000 just for the drugs).
My sister has put up my Christmas decs for me, my house looks so cosy and warm, it looks so wet and gloomy outside so feet up and Netflix for me. Have a lovely weekend everyone
love Tbird xx
Getting # 2 EC next Friday. Trying to get all Christmas shopping done before then! Hair shedding starting today.
I had my port fitted on 14 November and I still have bruising around it. Like you it appears to come and go. I've also noticed that the site over the line around my collar bone doesn't appear to be healing as well as I would normally.
Thank you all so much for responding about the vein thing, it makes sense now as they have used the same spot in my hand 3 times in the last 3 weeks, once for 1st chemo, second for iv antibiotics and third for my 2nd chemo no wonder it hurts. I haven't had my mastectomy yet, mine is chemo first so I will insist they use a different hand (if I dare ha ha).
Im still in denial that I have breast cancer and wake up wondering why I feel rough and why is this happening to me. I can't look in the mirror at my bald head and just want to wake up from this whole nightmare. I'm sorry to rant like this but I can't to my family, they look to me to be strong and I'm fed up of been strong.
on a plus side I have fantastic sisters who live nearby (one two doors away) the other just up the road, they look after me so well that I feel bad about bemoaning what's happening to me, this horrible cancer thing has shattered my sisters and they are been so brave. I also have a grown up son and daughter who are struggling to cope, I try to protect them as much as I can and won't let them see me on a bad day.
Sorry there I go again ranting. I am lucky because I will beat this and providing I can survive the treatment ha ha, my prognosis is good ( I have 2 lumps one her+ other invasive ductal carcinoma) sorry don't know abbreviations.
tHank you all for listening and I hope others are well and coping with treatment.
love Tbird x
Hi everyone, hope you are all feeling relatively well today and managing to keep up with the festivities!
Hi Liloc, yes I have an 18 year old daughter and I'm 48 this month so realistically I'm not planning on having any more children and more than likely on my way to the menopause, so I guess this process just speeds things along a little!
Hi Milo & Holeinone, welcome to the thread. You'll get lots of support and tips from these wonderful ladies, hang on in there
Hi Sals, OMG I am so with you on the wine front. I too can only manage a glass now, but at least the lack of alcohol outways the excessive food intake!!
Hi TBird, I have my chemo through a cannula weekly, and try to alternate hands. They put little heated bean bags or heated blankets on your hands at my hospital to warm up your veins first. I found that after my second week my hand was still hurting as I'd used the same hand twice. I think the pain can sometimes happen because of the speed the drugs go through. You can ask them to turn the machine down a bit apparently.
My next session is Friday and will be the end of cycle 2 of 4 so will be half way trough my trial chemo, then off for three rounds of FEC. Yay!!!
Take care everyone and stay well
I had a port put in on 15 November - is it normal to still have bruising over the port and over the suture line - it seems almost as if the bruising comes and goes?
Hi I had my first of 4 rounds of AC ( then 12 x PAC) on 22 November and am waiting for the hair loss to start- yet another uncontrollable wait !
the nurse did use a heat pad, but I had been in hotel nhs twice after my first chemo and had to have iv antibiotics in the same hand.
I will ring nurse tomorrow if it doesn't start getting better, fingers crossed
Hi all, keep going we can do this!
Kateday, keep holding off that cold, you can do it. I keep getting a mini sore throat, it might be the weakened immune system? Good to know about the head hair growing back already, thank you. I'm scrubbing my legs like razy in the shower trying to get the leg hairs to fall out, haven't shaved in ages especially!
Pigeon, yes my taste buds went very strange for the first week, actually could not stomach a cup of tea and other things tasted odd so stuck to bland and squash for a while. Thank you for the hair info as well, interesting to read it concurs with Kateday.
Tbird, I have no experience of chemo through the hand. Hopefully someone else in the same position may be able to offer better advice. If not, maybe phone your chemo unit if it is causing discomfort?
Think I've lost about half my head hair since 14 days after first FEC, although as yet you can't tell, the bathroom bin knows the truth though!
More chemo for me on Thursday
Ive had both sessions of chemo through a cannula in the back of my hand - 6 days post 2nd chemo my hand is still very sore. Any suggestions 😍
Thank you Tbird x
Day 11 of round 2 for me, I seem to have little white/blonde hairs growing on my head too!? They’re so fine, I almost can’t even see them unless I catch them in the light. Very odd. I hope they don’t fall out, if only because I’m tired of finding little hairs everywhere! As for my other hair, my armpit hair is gone, lady garden is sparse, but quite a bit of my my leg hair is still happily growing 😩😂
Is anyone else having any weird tastebud changes on FEC? All of a sudden yesterday afternoon everything started tasing sour... at first I thought my lime cordial had gone off, but then realised it’s everything that tastes off/sour. I thought the taste change was more of a taxotere thing?! 🤷♀️
Glad to see everyone is still plodding through.
Milo, hello I'm new too, joined just a couple of days ago. My chemo started the day before yours so our treatment cycles are pretty close.
Sals, hope you hold off that cold! I'm hoping to handle the appetite if the oncologist has tweaked my anti sickness meds for next time, it's the steroids in one that are the cause of it.
Have had really bad headaches these past few days, I'm waking with them. Trying to up the fluid intake this week and see if it makes the first week of chemo easier. Not looking forward to no sleep and sweaty nights for a week!
Hair loss, I've stopped brushing my hair and am washing it gently, as long as there's still enough to stick out from under a hat I'll be OK for now. Really hoping to lose leg and armpit hair, like Liloc I'm searching for good points in this
Keep smiling November ladies
Dear Sals, glad to see I am not the only up at stupid o'clock on a Sunday Had my 2nd chemo on Fri and actually feel better than the 1st time. I think it was because I didn't use the cold cap, the last time I felt as though I was away with the fairies for 5 days. This time I just have the nausea but no sickness, thank the anti-nausea tablets. My 3rd cycle is on the 21st Dec so not doing much on christmas day but going out for a meal on boxing day, with the OH, daughter and Dad.
Hi ladies, we've gone a bit quiet, hope you are all OK.
Sorry to hear about your BRCA diagnosis Lisajayne. All you can do is take it one step at a time but they will sort you out I'm sure.
Lou, I've not seen that book, might have to look it up for company in the dark days, thank you.
Juzcooper, good news on your lump shrinkage, hope that keeps up, good riddance to the lump!
Went to see oncologist the other day and mentioned the healthy appetite, he said it's a steroid in one of the anti sickness pills and he will tone it down for round two, otherwise I might be found on the kitchen floor, emptying the fridge contents down my neck!
Hair falling out by the handful at 14 days post chemo, I haven't cut it and am not going to. Got wig at the ready and will just use a wig cap when it thins so much you can see. Surprised at how much I've lost and it's not noticeable yet.
I'm gearing up for round 2 on Thursday, have almost finished Christmas present shopping and most of the wrapping, just cards to think about. It's nice to have Christmas to get excited about actually, it's taking my mind off things.
I react badly to normal dressings so I have a prescription for anti allergenic ones which I used to take with me, although they were available at the hospital if I forgot. You need to make sure it's in your notes and mention it each time.
Wouldn't it have been easier to have a port fitted or are you too late now?
Had my results back from genetics yesterday and I have the mutated BRCA2 gene! Didn't think for one minute it would come back positive 🙈 So, once all this chemo is out of the way I'll be looking at ovaries and boobies surgery, probably just have the whole lot removed - in for a penny and all that 😬
Braved the shave on Monday. I honestly thought everyone was exaggerating about the quantity of hair loss - they were not!!! Since I stopped the cold cap it shed like an animal, I would never have believed how much if I hadn't experienced it!
I've got a crimbo dinner with my wonderful work family tonight so will be nice to slap on a bit of make-up and wear my new wig that they all clubbed together and brought for me. They have been amazing and I feel truly blessed to have their support. I will raise a glass to you all 💗
I hope you are all doing well and are looking after yourselves.
Glad you're feeling better Kateday, we are all entitled to have a melt down, we just have to keep thinking, this will pass.
Had my picc line flushed again today, when the nurse took the little white strips of the line, my skin had blisters where the adhesive on the strip had been. I had felt some itching this past couple of days, but did'nt realize it was caused by the strips, they had sorted the dressing out so my skin did not react so much, but the nurse said it looks like I may have to wear an ordinary bandage to cover the picc line.
Has anyone else had skin reactions to the dressings?
You're right about being ravenous. Think my family were quite shocked at how hungry I was last week. I did overdo it one day, ate too much for tea then did the injection soon after - big mistake! Made a note not to do them on a full stomach ever again.
I'm hoping I feel well enough to go to my little boy's Christmas concert the week after next. Am determined to go, will just need to avoid all the coughing parents. Seem to be lots of colds and coughs going round now.
I'll probably go for the wig that best matches my hair too, though my mum really liked me in a lighter shade, said it made me look younger!
Have you read 'Tea&Chemo'? It's well worth a read if you haven't. A friend bought it for me and it really helped when I was losing my positivity last week.
Take care. xxx
Hi Lou, thank you so much for the welcome! Yes, oddly I'm really looking forward to Christmas here (despite the chemo), today I treated myself and hubby to a big Quality Street advent calendar! Also in overdrive now I feel up to things, although I have had a few dizzy spells when I've been rushing around.
I did find that although I haven't felt sick, I have been ravenous at times, and my stomach feels like it is rumbling from lack of food. I'm belching a lot too, not a great thing.
I have my wig, picked it up this week, an exact colour match to my hair and a slightly shorter style, really happy with it. I didn't have too much choice as the wig lady asked me what I wanted and brought a small selection in, THE one was in that first batch of wigs, thankfully.
Will be thinking about you next week, as we gear up for round 2.
Welcome Holeinone! I too, like you didn't post for a little while but found the posts from everyone so helpful and comforting especially in week 1 after chemo when my chemo brain kicked in and I felt too spaced to type much that made sense.
I'm just a day after you for my EC so my next is 7th Dec. Will be thinking of you on the 6th. I'm having my PICC line fitted that day.
My hair hasn't budged yet but have decided to cut it short next week anyway and get the wig (so hard to choose, had no idea there would be so much choice of style, colour etc.)
I'm hoping like you that the anti-sickness drug mix works well next time too. Trying to get some Christmas shopping done and going into cleaning overdrive before end of next week. The kids are already pestering about getting a tree. Will be something nice to look forward to after chemo 2.
Hello lovely ladies, this is my first post but I feel as if I know you all as I've been lurking for absolute ages, gleaning info and comfort from your posts, so thank you for that.
I've already had a WLE and started chemo (3 FEC and then 3T) on 15th November. Had a week of absolutely horrific (to me) night sweats and feeling spaced out, unable to sleep etc, which I can see appears to be a pattern. I'm very thankful the anti sickness goody bag I was given worked like a charm and although in week two post chemo I've had a couple of watery mouth moments, I've not actually been sick. I can concur with the taste changes, my usual cup of tea was vile and I had to resort to tropical cordial and chicory coffee instead.
Not looking forward to doing it all again on 6th December, especially as I expect I will be bald by then. Tried the cold cap but it was too tight and the cold on my forehead brought on a migraine so it was whipped off pretty sharpish!
Hi Clarabella, I am like you having 3 EC and 3 Doxatel although my second EC has been deferred to Friday because I had an abcess. I cold capped on my first session but won't be doing it on my second because I didn't like it and my hair is shedding like mad, OH says he doesn't know who is worse me or the cat! Went for my wig yesterday just in case because I already have a couple of bald spots but they can be covered by the rest of my hair.Will have to see how it goes. Hope all those who have done round 2 will start to feel better sooner. Went to my stepsons and daughter-in-laws on Sunday for a roast dinner, had a really good time doing something normal. The two grandsons who are 9 and 5 helped to cheer me up.
Feeling better this evening, the second session went much the same as the first, seem to tolerate the chemo and nausea ok but it's when I start the injections 2 days later that's when I start to feel really rough !! 😟