25-12-2018 10:07 AM
24-12-2018 07:28 AM
21-12-2018 01:35 PM
thanks for asking holeinone my 3rd session has been fine, a bit spaced out and energy levels low in the after noon but we can all cope with putting feet up once in a while. Next one will be the big T so fingers crossed.
Lou43 like you my husband doesn't understand how the slightest thing will make me burst into tears and gets mad because I can't explain it - I know it's because he feels out of control and frightened.
i am on antihistamine with my streiods so not doing too bad with the sleeping malarkey.
i hope you all manage to have a good Christmas
Love Tbird xxx
21-12-2018 09:27 AM
For those of us coping with hair loss - my sister bought me a silk cap to wear in bed: https://www.amazon.co.uk/LILYSILK-Womens-Sleeing-Bonnet-Mulberry/dp/B012ER5I6M/ref=sr_1_7?ie=UTF8&qi...
It's brilliant! Very comfortable, keeps my head warm (I am cold capping but have still lost lots) and keeps hair from shedding all over pillow, bedding, dressing gown etc. I've taken to wearing it round the house during the day too.
Hope everyone has the best Christmas possible, given our circumstances...
21-12-2018 04:24 AM
20-12-2018 07:00 PM
Hello ladies, hope we are all Christmas ready while we chemo our way through the festive season
Tbird and Kateday, hope you are not feeling too bad after your 3rd round.
Lou43, mine is the same, he actually doesn't want me to be upset and we both burst into tears in the hospital car park after my pre chemo session, I think reality hit us at that point. I feel I have to be upbeat because I know he is actually as scared as I am.
Sals, arrgghh, the dreaded steroid insomnia, hope it passes soon and you are feeling OK after your round three. Hats off to you for doing your own injections though, well done! Yes, can concur with the odd new hugging technique!
Anyone else getting neck cramps at night due to no hair and a cold neck? How do bald men cope? I have my little sleep cap on, I feel like wee Willie Winkie sometimes, hat, nightie and bedsocks
I'm cracking open the non alcoholic beverages tonight, hubby finishes work for Christmas so let the festivities begin, cheers!
Keep well and keep going, November girls
20-12-2018 05:44 AM
19-12-2018 10:28 PM
19-12-2018 02:53 PM
Hi Tbird, I hope you got a call back and you've managed to talk to someone to get some reassurance and empathy with what you're going through. I know what you mean, sometimes even with lots of people offering to support us we need the right person to talk to when we're feeling low who knows what to say. My husband drove me mad yesterday, he doesn't get it when I just burst into tears with no warning. Bless him, he's so good in many ways but us ladies know it takes one small thing to trigger those dark thoughts. Sending hugs and good vibes. xxxx
18-12-2018 03:44 PM
sorry it is your weird tingly sensation with you nerves on your PICC line, rest assured I'm over my panic now ha ha. I know all about nerve pain so you have my sympathy and I hope it's not too bad. Everyone on this site is allowed to say what they want and vent if need be I just got a bit nervous.
I had my 3rd chemo today (my PICC line will be put in for my next chemo) and a couple of women next to be had PICC lines and they are so happy they have them. I'm just nervous cos my signature song is "if there's a wrong way to do it nobody does it like me" but I have my big girl pants on now so I'm going to smash it.
on another note I have booked for reki in January at my local nhs, so looking forward to that.
ive been so low last last few days I have loads of people to talk to but feel I don't want to upset them with my dark thoughts. So I've phoned the breast care nurses to see if they can recommend someone to talk to. Call went to answer phone so I'm not going to hold my breath to see if they call back (they were supposed to come and see me when I had my last stay in hotel nhs but didn't make it).
hope everyone is keeping safe and well
love Tbird xx
18-12-2018 03:35 PM
Hi Lou, although I have gone to a no3 my scalp doesn't feel as sore and so feel much better. The maggies centres are brilliant. They run all types of different classes, yoga, relaxation, counselling etc. They are also extremely peaceful places, you can talk or just sit quietly. As unlike hospital as you can get.
18-12-2018 03:22 PM
Hope you feel better after shaving your head Harkes. Bizarrely I felt so much better and am getting used to my baldy head look now. What are others using to moisturise? I used my Simple moisturiser this morning. It does feel lovely to massage in and doesn't seem to be as sore any more.
I'll get booked into a Look Good, feel better session in the new year at Maggie's. Have heard really good things about these and not been to Maggie's before.
Hope you're feeling ok today juzcooper? Take care over the next few days and hope the side effects aren't too bad for you. xxx
18-12-2018 08:50 AM
17-12-2018 10:28 PM
Sorry to hear you have been feeling down tigerlilli, I have been the same these past few days I think it must go in cycles just like the chemo! I have decided to brave the shave and my daughter is going to do it tomorrow, Although I still have quite a bit of hair I have got big bald patches and the skin is getting dry. Daughter says she is going to go for the Annie Lennox look - mid 80's. The reason I have got upset about losing my hair is that for the biggest part of my life - 30 years I always had short hair and just before last christmas decided to grow it, it had just got to the right length for a bob when I got my diagnosis I am going for my 3rd cycle on Friday and just keep thinking half way through. Am booked on look good feel better course at my local maggie's centre in february - looking forward to the free goodies. Wishing everyone the best for christmas xxx
17-12-2018 09:48 PM
Sorry didn't want to worry you and I'm sure it's fine for most people. It was just the weird tingly sensation I didn't like from the PICC line causing the nerves some bother which I got again when it was redressed. I think the nurse implied they'd not used the best dressing either so it felt better once it was changed. Usually PICC lines go in fine, it was just me (as usual) they had more bother with so I suspect that's why it made me feel icky about having the dressing changed. I'll get used to it I'm sure ... x
17-12-2018 03:13 PM
And if any of you are Billy Connolly fans and missed the documentary on him last week, it's well worth a watch if only for those hilarious clips of him dancing naked all over the world even in the Arctic! I've stored these up to have a giggle to myself when things start to get me down again. I mentioned to the nurse the other day that it was taking my mind off the pain of changing the PICC line dressing. Her "Do you want me to talk you through what I'm doing?" Me, "No it's fine thanks, I'll look the other way and think about Billy Connolly dancing naked!"