Member
Posts: 160
Registered: ‎08-09-2018

Re: November 18 chemo starters

Good afternoon ladies
Mo hope your all managing to keep well
Just wanted to wish you all a merry Christmas 🎄 xx
Member
Posts: 35
Registered: ‎21-10-2018

Re: November 18 chemo starters

Happy Christmas November Girls, wishing you and all your families a very merry Christmas Day. Hope those of you that have had sessions recently are well enough to enjoy today and hope no one is working too hard- this is definitely the year to sit on your hands and let others take over the kitchen! Plenty of years to come when this is all behind us when we can get back to turkey basting 😜. Have a lovely day Love Liza xxx
🎉💝🥂🎄🎁🎅🏻❤️💫🥰
Member
Posts: 3
Registered: ‎06-09-2018

Re: November 18 chemo starters

Hi ladies I’ve just seen this thread - I started my chemotherapy on November 6th so am now halfway through! Had my third few days ago week before Xmas day. I was told by the nurse that I would know I was having Chemo by now and she was certainly right. I have been ok other than a couple of temp spikes and trips to hospital, all was ok! I can’t work as am a deputy manager Care Home so too open to infections. I’ve kept my hair so far by using the cold cap - if you can get through the first ten minutes you’ve cracked it🤪 Reading through the comments I resonated with lady who wanted her mum who had passed away. Same here - after 40 years without her. When I reach rock bottom I just cry for my mum. Not often as I’m strong most of the time. Does anyone else feel ‘dirty’ because of the Chemo? Last night I just felt itchy, smelly, mouth like a budgies cage, have thrush. Not a happy bunny☹️ But only 3 to go yay. All the very best wishes of the season to everyone, it can only get better. Lots of love 💜
Member
Posts: 31
Registered: ‎22-10-2018

Re: November 18 chemo starters

Hi Ladies

 

thanks for asking holeinone my 3rd session has been fine, a bit spaced out and energy levels low in the after noon but we can all cope with putting feet up once in a while.  Next one will be the big T so fingers crossed.

 

Lou43 like you my husband doesn't understand how the slightest thing will make me burst into tears and gets mad because I can't explain it - I know it's because he feels out of control and frightened.

 

i am on antihistamine with my streiods so not doing too bad with the sleeping malarkey.

 

i hope you all manage to have a good Christmas 

 

Love Tbird xxx

Member
Posts: 8
Registered: ‎27-09-2018

Re: November 18 chemo starters

Hi all,

For those of us coping with hair loss - my sister bought me a silk cap to wear in bed: https://www.amazon.co.uk/LILYSILK-Womens-Sleeing-Bonnet-Mulberry/dp/B012ER5I6M/ref=sr_1_7?ie=UTF8&qi...

It's brilliant! Very comfortable, keeps my head warm (I am cold capping but have still lost lots) and keeps hair from shedding all over pillow, bedding, dressing gown etc. I've taken to wearing it round the house during the day too.

Hope everyone has the best Christmas possible, given our circumstances...

Member
Posts: 160
Registered: ‎08-09-2018

Re: November 18 chemo starters

Hi other than an issue sleeping maybe due to hot flushes which result in my head feeling like I have got out the shower and forgot to dry it , my reduced dose has deffiantly made a difference

I have one more EC to go then change over NYE marks the half way point then I move to T and can count down yippee
How are all you feeling I’m join the T chemo isn’t so hard xx
Member
Posts: 25
Registered: ‎28-11-2018

Re: November 18 chemo starters

Hello ladies, hope we are all Christmas ready while we chemo our way through the festive season Heart

 

Tbird and Kateday, hope you are not feeling too bad after your 3rd round.

 

Lou43, mine is the same, he actually doesn't want me to be upset and we both burst into tears in the hospital car park after my pre chemo session, I think reality hit us at that point. I feel I have to be upbeat because I know he is actually as scared as I am.

 

Sals, arrgghh, the dreaded steroid insomnia, hope it passes soon and you are feeling OK after your round three.  Hats off to you for doing your own injections though, well done! Yes, can concur with the odd new hugging technique!

 

Anyone else getting neck cramps at night due to no hair and a cold neck? How do bald men cope? I have my little sleep cap on, I feel like wee Willie Winkie sometimes, hat, nightie and bedsocks Smiley LOL

 

I'm cracking open the non alcoholic beverages tonight, hubby finishes work for Christmas so let the festivities begin, cheers!

 

Keep well and keep going, November girls Heart

 

 

 

Member
Posts: 47
Registered: ‎02-10-2018

Re: November 18 chemo starters

Hi All,
I had #3 onTuesday not been too bad until last night, have barely slept a wink- bloody steroids, trying to think I may as well get up and write some Christmas cards but can’t quite force myself!
@juzcooper, I really wasn’t feeling like this cycle either, too many other things to do and like you the thought of the next few days feeling crap is not welcoming. I change my drug for the next 3 to T with the injections every night, that will go nicely with the blood thinner injection I have to do evrty night - i’m Quite the professional at injecting now! Apparently my chemo nurse told me (when I asked) what the side effects of the next drug were she said less nausea 👍 but feel like you’be been run over by a bus 👎tell it like it is then! So if anyone is in the same boat hopefully we willbefeeling a little more human by Xmas and can celebrate the half way or being well on the way marker 🍾 . For those of you whose next cycle is too close to xmastobefeeling ok my thoughts will be with you.
Sending everyone a special hug 🤗 for xmasnot too tight to squeeze those post surgery boobs though! I go in for the sideways hug now left shoulder back so my mastectomy side doesn’t take the full force 😂😂
Member
Posts: 160
Registered: ‎08-09-2018

Re: November 18 chemo starters

Good evening ladies
I have a feeling tmits Christmas making us all a little emotional
Hope your all keeping well as can be
I had a better third cycle woth rediced dose and now hopefully few good days ahead
Keep strong ladies xz
Member
Posts: 19
Registered: ‎06-11-2018

Re: November 18 chemo starters

Hi Tbird, I hope you got a call back and you've managed to talk to someone to get some reassurance and empathy with what you're going through. I know what you mean, sometimes even with lots of people offering to support us we need the right person to talk to when we're feeling low who knows what to say. My husband drove me mad yesterday, he doesn't get it when I just burst into tears with no warning. Bless him, he's so good in many ways but us ladies know it takes one small thing to trigger those dark thoughts. Sending hugs and good vibes. xxxx

Member
Posts: 31
Registered: ‎22-10-2018

Re: November 18 chemo starters

Hi Lou43

 

sorry it is your weird tingly sensation with you nerves on your PICC line, rest assured I'm over my panic now ha ha.  I know all about nerve pain so you have my sympathy and I hope it's not too bad.  Everyone on this site is allowed to say what they want and vent if need be I just got a bit nervous.  

 

I had my 3rd chemo today (my PICC line will be put in for my next chemo) and a couple of women next to be had PICC lines and they are so happy they have them.  I'm just nervous cos my signature song is "if there's a wrong way to do it nobody does it like me" but I have my big girl pants on now so I'm going to smash it.

 

on another note I have booked for reki in January at my local nhs, so looking forward to that.

 

ive been so low last last few days I have loads of people to talk to but feel I don't want to upset them with my dark thoughts.  So I've phoned the breast care nurses to see if they can recommend someone to talk to.  Call went to answer phone so I'm not going to hold my breath to see if they call back (they were supposed to come and see me when I had my last stay in hotel nhs but didn't make it).

 

hope everyone is keeping safe and well

 

love Tbird xx

Member
Posts: 27
Registered: ‎02-11-2018

Re: November 18 chemo starters

Hi Lou, although I have gone to a no3 my scalp doesn't feel as sore and so feel much better. The maggies centres are brilliant. They run all types of different classes, yoga, relaxation, counselling etc. They are also extremely peaceful places, you can talk or just sit quietly. As unlike hospital as you can get.

Member
Posts: 19
Registered: ‎06-11-2018

Re: November 18 chemo starters

Hope you feel better after shaving your head Harkes. Bizarrely I felt so much better and am getting used to my baldy head look now. What are others using to moisturise? I used my Simple moisturiser this morning. It does feel lovely to massage in and doesn't seem to be as sore any more.

I'll get booked into a Look Good, feel better session in the new year at Maggie's. Have heard really good things about these and not been to Maggie's before.

Hope you're feeling ok today juzcooper? Take care over the next few days and hope the side effects aren't too bad for you. xxx

Member
Posts: 28
Registered: ‎11-10-2018

Re: November 18 chemo starters

Hi Lisa! You are absolutely right I have lost a cycle somewhere, wishful thinking 🙈😂 Hope you're feeling okay after yours on Friday. Not looking forward to the double dose today and feeling like a spoilt child and really don't want to go and feel like stamping my feet. Altho, today isn't the issue it's how I know I'm going to feel for the next 3/4 days that's getting me down. I'm going to have a word with myself and put my big girl pants on and just get on with it, no choice really. I just keep thinking it's another one under my belt 💪 Sorry for the moan and need to get over myself. Seems like it's getting to quite a few of us this time but we're allowed aren't we 😉

Take care everyone xx
Member
Posts: 27
Registered: ‎02-11-2018

Re: November 18 chemo starters

Hi All,

Sorry to hear you have been feeling down tigerlilli, I have been the same these past few days I think it must go in cycles just like the chemo! I have decided to brave the shave and my daughter is going to do it tomorrow, Although I still have quite a bit of hair I have got big bald patches and the skin is getting dry. Daughter says she is going to go for the Annie Lennox look - mid 80's. The reason I have got upset about losing my hair is that for the biggest part of my life - 30 years I always had short hair and just before last christmas decided to grow it, it had just got to the right length for a bob when I got my diagnosisWoman Sad I am going for my 3rd cycle on Friday and just keep thinking half way through. Am booked on look good feel better course at my local maggie's centre in february - looking forward to the free goodies. Wishing everyone the best for christmas xxx

Member
Posts: 19
Registered: ‎06-11-2018

Re: November 18 chemo starters

Sorry didn't want to worry you and I'm sure it's fine for most people. It was just the weird tingly sensation I didn't like from the PICC line causing the nerves some bother which I got again when it was redressed. I think the nurse implied they'd not used the best dressing either so it felt better once it was changed. Usually PICC lines go in fine, it was just me (as usual) they had more bother with so I suspect that's why it made me feel icky about having the dressing changed. I'll get used to it I'm sure ... x

 

Member
Posts: 31
Registered: ‎22-10-2018

Re: November 18 chemo starters

Hi Tigerlill

 

Thanks for that I did get a bit worried when I read Lou's text that it hurt - I must have got the wrong end of the stick.

 

Tbird xx

Member
Posts: 16
Registered: ‎17-11-2018

Re: November 18 chemo starters

Hi Lou, I'm an ex nurse and I used to do it all the time. It doesn't hurt at all. Tigerlilli xxx
Member
Posts: 31
Registered: ‎22-10-2018

Re: November 18 chemo starters

Lou43

 

does having the dressing changed on your PICC line hurt, I'm having one put in soon and didn't realise it couLd hurt afterwards 😱.  

 

Tbird xx

Member
Posts: 19
Registered: ‎06-11-2018

Re: November 18 chemo starters

And if any of you are Billy Connolly fans and missed the documentary on him last week, it's well worth a watch if only for those hilarious clips of him dancing naked all over the world even in the Arctic! I've stored these up to have a giggle to myself when things start to get me down again. I mentioned to the nurse the other day that it was taking my mind off the pain of changing the PICC line dressing. Her "Do you want me to talk you through what I'm doing?" Me, "No it's fine thanks, I'll look the other way and think about Billy Connolly dancing naked!"Smiley LOL