Member
Posts: 19
Registered: ‎06-11-2018

Re: November 18 chemo starters

Hi ladies,
Wishing all of us a happier and healthier new year ahead. Half way through and thought I was coping well until New year's eve hit and all the posts about the coming year on Facebook came out, all a bit too much when you've just had 3rd chemo and feel rubbish after injections. Just as I was getting used to taking each day at a time again, the thought of the whole year rolling out in front of me was a bit too much to think about.

Anyway the dawn of the new year this morning made me feel better to shut the door on the last few months of 2018.
We can do this, we're half way through. Wishing those of you moving on to the next stage lots of love and a smooth ride. I'm probably moving to weekly chemo - don't know if anyone else has been offered this? 9 weekly instead of 3 x3weekly which my oncologist recommends. Apparently I don't have to do the injections which is a big plus for me right now.

 

Member
Posts: 25
Registered: ‎28-11-2018

Re: November 18 chemo starters

Hi November ladies, here's hopefully to a happy and healthy new year to all of us Smiley Happy

 

Like you Liloc, I didn't make it to midnight as was wiped out by my final FEC, which has proved to be a strong one Smiley Surprised

 

Hoping for an easy transition to T and continued best wishes for all of you Heart

 

 

 

 

Member
Posts: 16
Registered: ‎17-11-2018

Re: November 18 chemo starters

Hi all, dropped off the radar for a while there! Been coping with Christmas and all that entails. Hubby has been very good at coping but increasingly grumpy. I do my best but sometimes I just can't. Anyway, Happy New year to everyone. Here's to a better new year... Good health and happiness to you all. Don't worry about starting new regimes, we've all done it before. We are the half way girls and each passing day is closer to the end of treatment. We can do it!!!!!
Member
Posts: 35
Registered: ‎21-10-2018

Re: November 18 chemo starters

Hello November girls. Just want to wish you a very Happy New Year in advance as I won’t make it to midnight this year 💤😴💤, feeling very rough so not going to even try. However know next week is going to be better, finishing chemo will be even better, finishing BC treatment even better still and this time next year should be a vast improvement! So scope for 2019 to be a good year still for all of us. Big hugs xx
Member
Posts: 160
Registered: ‎08-09-2018

Re: November 18 chemo starters

Hi ladies
Just catching up
I think me and my hubby may need that talk about scream etc
He was fab to start with but over Xmas has been grumpy and snappy not like him
I had PICC line fitted yesterday , my arm has texted to something so I said I need to see if I can have antihistamine as my final EC is due tomo , his reply anything for sympathy
Then later I said can we put out new blinds up in kitchen to be told he was tired he hasn’t had a day off over f ing Xmas
Which he did Xmas day and Boxing Day
He has had to work but so have I
Not forgetting that when he is home I have done the cooking and cleaning
Just feeling really quite hurt by his snappiness and grumpy ness and with chemo tomo I think I’m just emotional
Sorry for long post
I’m interested to see how the change over of chemo is for everyone xx
Member
Posts: 28
Registered: ‎21-09-2018

Re: November 18 chemo starters

Hi Holeinone,

 

I have my first T on Friday the 4th, I was also given the big box of steroids to start the day before, 4 pills per dose, double what I was given for FEC. Dreading them as well, as they also make my face round, hot, and flushed, trouble sleeping, etc... but the nurse said it’s to help prevent a reaction while the T is being injected.

 

Bit confused about them, because it says start them 24h before chemo, but my chemo is in the afternoon - so am I supposed to take a dose in the afternoon and then a dose at night?? I’ll never sleep!

Member
Posts: 31
Registered: ‎22-10-2018

Re: November 18 chemo starters

Hi Harkes

im not sure if OH has found this forum and read my posts but all of a sudden he has become attentive caring and has even made me a couple of cups of tea, it just makes things so much more bearable.

 

Holeinone, I start T 8th January so hopefully it will go well.  I do feel a bit nervous like I did before I started FEC but I'm sure it will be all good. 

 

Ladies Happy New Year, this year we kick butt xxx

 

Love Tbird

Member
Posts: 25
Registered: ‎28-11-2018

Re: November 18 chemo starters

Harkes, so pleased you have cleared the air with your OH. Really sorry you found yourself in hospital on Christmas Day, that is pants Smiley Sad

 

I think as a rule we don't do ourselves any favours by trying to carry on as if nothing is wrong sometimes. I've just had my third and last FEC (so it can now FEC off!) and although it knocks me off my feet I've done two loads of washing and all out on the line, washed my wig (first time, hope it dries well!) and washed up. Now I'm paying bills online when all I want to do is sleep.

 

Third FEC went without a hitch after me passing out in the chair during no 2, same nurse so I think she was pleased there were no more dramas from me!

 

Anyone about to go on to T chemo? I've been given a huge box of steroids to take pre T. Wondered if this is normal? I'm having bad reactions to the steroids and this is 8 pills to take the day before I have my first T, when I have terrible trouble with just two a day (reduced dosage) think I need to chat with onc at the pre chemo appointment. My face flushes up and burns badly on two pills and I am once again having trouble sleeping, and my heart races away, think T will be trouble Smiley Sad

 

Stay strong ladies Heart

 

 

Member
Posts: 31
Registered: ‎22-10-2018

Re: November 18 chemo starters

Hi Harkes

So happy you had that cry and talk it does help.  We did have that talk after a huge row on the day of my 2nd chemo, I think I shocked him with how I was feeling and my black thoughts, we both cried he said he would try more to think of me and for a few days he did.  

I suppose I don't do my self any favours because I always show my strong side and try to do everything myself.  I sit watching Tv with OH sometimes thinking I would love a cup of tea but haven't got the energy to go into the kitchen, I don't ask him because I know he will do it begrudgingly and I don't want it like that, I want him to offer.  

Like with you Harkes it might be the age group I'm 63 and OH is a very young 73 who still works 3 days a week helps with grandkids etc so perhaps it's a case of old dog new tricks ha ha.

Im going to try the talk again and see how we go.

 

Love Tbird xx

Member
Posts: 27
Registered: ‎02-11-2018

Re: November 18 chemo starters

Dear TBird,

Glad to hear I am not the only one with problems. Did manage to get him to talk to me this afternoon after I burst into tears. Like your OH he finally admitted that he is frightened he is going to lose me and all the other things he does are a distraction. We had a really good cry together and I think that is what we needed as we haven't done that before. He is quite old fashioned and believes he should be strong all the time. He has agreed to stop spray painting in the conservatory and is putting an heater in the shed. So some progress!

Hope you manage the same. I don't know whether it is an age thing, my OH is 63? I have decided to stop telling people I am managing and just say " actually I feel like S**T"

Member
Posts: 35
Registered: ‎21-10-2018

Re: November 18 chemo starters

Hi all, Harkes and Tbird, sorry to hear about your problems with OHs. Think it’s so hard for us to express our feelings and I think it is for most men even more so. I have to say my OH is very supportive, coming to all my appointments and chemo sessions, has always done most of the cooking anyway, nice little acts of kindness like tea and chocolates and today has even gone out with my son to buy him new school shoes in the sales which is a first (school shoes are usually my responsibility and we both usually avoid the sales like the plague!). Still it’s not all roses, our sex life has gone to pot since starting chemo, my fault, either I am feeling too awful or just no libido anyway. Doesn’t help that I go to bed about three hours before him now so am fast asleep by the time he comes up. We should talk about it but neither of us has brought it up yet...
Harkes, think you should try and sit down and chat with your OH though, so it’s not all boiling up inside you. Don’t make it too accusatory but just say you are feeling really vulnerable at the moment and need all the support you can get. Suggest some doable ways he could do that: if he doesn’t cook, maybe he could clear the table and the kitchen afterwards so you can relax. Or he could limit doing his hobbby and spray painting to when you are having a nap?

Hope everyone else had a nice Christmas. I was lucky and at the end of my cycle so had a lovely family day at my sister’s. Had EC No.3 yesterday which was fine, much easier now I’m using the port and only had to prick that once as did bloods and chemo all in one day because of Christmas closures. Third EC out of 4, then 4 T to go (hopefully, unless they extend chemo if there is no lump shrinkage).
Not feeling too bad today, very dozy and not bothering to get dressed as I may soon be back in bed for a siesta. Nausea seems to be under control so far with all the meds 🤞. Oh, got a nifty pill box for Xmas which has been great for my 40-odd supply of pills this session, no fear of wondering if I’ve forgotten to take one or am overdosing 😬
https://www.amazon.co.uk/gp/aw/d/B074MC6HJR/ref=mp_s_a_1_3_s_it?ie=UTF8&qid=1546003338&sr=1-3


Member
Posts: 31
Registered: ‎22-10-2018

Re: November 18 chemo starters

Hi Harkes

Sorry to hear you had a bad Christmas, on reflection we probably all did but painted on our smiles and told everyone what a lovely day we were having but really screaming inside.

 

My relationship with OH is under strain, all he seems to do is shout at me (I think he thinks that if he shouts loud enough the cancer will go away).  I really feel like telling him to move out until this is all over, the only time he has hugged me since my diagonosis was when my sister shaved my head.  OH has moved into spare room and although I'm surrounding with amazing family I feel so lonely (I'm awake half the night so it made sense for him to sleep in there).

i have tried to talk to him about how I feel, explain little things like making me a cup of tea (no he doesn't ever do this) every now and then would make all the difference but it's like talking to the wall.  I try to understand he's frightened (not that he has told me this) and feels out of control but a little kindness goes a long way.  Hopefully we can ride this out without me murdering him.

 

keep strong you're not on your own love Tbird

Member
Posts: 12
Registered: ‎04-12-2018

Re: November 18 chemo starters

Hi Harkes so sad to hear about your Christmas and about OH. My relationship with OH has actually improved with my diagnosis as for the first time in a long time we are talking about our feelings, our fears etc
Member
Posts: 27
Registered: ‎02-11-2018

Re: November 18 chemo starters

Good morning all,

Well had a s**t christmas, in A&E on Christmas Day - got a chest infection and felt like death warmed up. After a couple of doses of IV antibiotics they let me go home. Have had a bad night, lots of negative thoughts about OH, had a real go at him yesterday. He is like an ostrich, he buries his head in the sand and hopes the problem will go away if he doesn't  talk about it. It is a good job the daughter still lives at home because if it had been left up to him I would weigh about 6 stone by now, all he says is "I can't cook". The problem is because since I retired 5 years ago I have done EVERYTHING in the house and he has not had to think about it, he goes to work - and that is his contribution. He has an hobby - messing with meccano, which seems to involve spray painting a lot of little items, as you can imagine this doesn't help when I am feeling sick. Has anyone else noticed a deterioration in their relationship? Am sat here typing this and the cat is looking at me wanting to go out - at least he is consistent.

Member
Posts: 12
Registered: ‎04-12-2018

Re: November 18 chemo starters

Hi I also lost half a filling after round 2. My dentist went ahead and refilled it - I told him about chemo but he didn’t think it was a problem. I had no strange side effects or bleeding afterwards
Member
Posts: 16
Registered: ‎01-10-2018

Re: November 18 chemo starters

Hi Third

I've had exactly the same happen with my filling, I already had an appt to see my dentist for a check up after I'd started chemo he looked at it and as it's not causing me any pain he's happy to leave it until after I've finished chemo, but it's a good idea to try and speak to your dentist to see what they recommend.

Tracy x

 

ktk
Member
Posts: 558
Registered: ‎02-04-2018

Re: November 18 chemo starters

Hi Tbird. I was advised to visit the dentist before I started chemo. I would ring your dentist and explain your situation to her/him. If you are due to have bisphosphonate later you need to get your treatment sorted before then. Chemo does make your gums bleed, so do visit your dentist and keep brushing your teeth 😁😁
Member
Posts: 31
Registered: ‎22-10-2018

Re: November 18 chemo starters

Hi all

i hope everyone is keeping fine.  Can I ask has anyone had any problems with their teeth during chemo, I have just had half my filing fall out (I think I swallowed it) and was wondering if I can have treatments whilst on chemotherapy.  I can't contact my oncologist because of the holidays and assement unit is not answering.

 

love Tbird xxx

Member
Posts: 25
Registered: ‎28-11-2018

Re: November 18 chemo starters

Hello lovely November ladies, and new member Rowan welcome to the gang,

 

Also sending good Christmas wishes to you all and hoping you are all well enough to enjoy the festivities.

 

Have a great day.

 

xxx 

 

 

Member
Posts: 31
Registered: ‎22-10-2018

Re: November 18 chemo starters

Hi Ladies

 

i hope you are all having a lovely day.  My family have been brilliant and spoiled myself and hubby rotten.

 

Hope everyone has managed to avoid hotel nhs.  Have a lovely day eat nice things and rest (you can do it all next year).

 

love Tbird xx