06-01-2019 09:44 PM
Hi Sals, I have also had arm pain since my 3rd dose. Not at the cannulea site but mid forearm that went up to the bicep but it is easing after nearly 3 weeks. If it is red and swollen it should be checked cos yes it can be phlebitis or possibly a clot. Mine I think is cording as the vein seems to have shortened. Fortunately my other arm is still usable but it doesn’t bleed well, but will have to try that this time x
06-01-2019 08:12 PM
i had pain in my hand and forearm from the chemo starting in cannula site, I told doctors about it on several occasions I even went to assement unit because the pain was getting that bad. I saw my oncologist Friday who said it was Phlebitis and told me to use ibuleve gel which I have and am now getting some relief from the pain. I am also having a PICC line inserted tomorrow (so nervous) for the rest of my chemo treatments because my vein is that sore. Sals ask your chemo nurse to use your other hand this time then ask your oncologist to refer you for a PICC line.
i am starting T on Tuesday and am so scared of the Unknown SE's again 😰😱
Love Tbird xx
06-01-2019 06:25 PM
04-01-2019 11:02 PM
Tracybev, Glad to hear your treatment went well, fingers crossed that it carries on that way! Xx
Yep I have my PICC line flushed in the Chemo ward every Thursday, and when its treatment week they also take bloods at the same time as the flush. Would have been nice if they’d checked my numbers beforehand, and phoned me to let me know, to save the trip! Not to mention the extra steroids they injected into me! Ah well. Hopefully I’ll sleep a little better tonight? Not feeling tired yet though 🙄
04-01-2019 08:47 PM
Sorry to hear your first T has been put back a week but like you say it's nice to know you will feel 'normal' for another week.
Went very well today feeling ok with no side effects yet but will take each day as it comes 💪.....only had about 15 mins sleep last night 😲 doubling up those bloody steroids meant I was wide awake still don't feel that tired tonight !!
Do you usually have your bloods done on chemo day ? I have mine done beginning of week about an hour before appt with consultant so they are back for him to check its ok to continue that week 's treatment
04-01-2019 06:53 PM
Kateday, I had horrible constipation after rounds 1 and 2. If the senna doesn’t help, my oncologist prescribed Movicol, which worked wonders for me - it softens things up so it’s not too painful to pass (sorry if TMI 😳) Or if it’s awhile before you’re due to see your onc, it might be worth trying your GP, mine have been really helpful with prescribing stuff like this!
Tracybev, did you have your first T today? Hope you’re not feeling too bad xx
04-01-2019 05:03 PM
04-01-2019 04:38 PM
Sorry to hear your treatment has been put back Harkes, it must be so frustrating and very painful having shingles.
to all others starting T this week I'm having my first T Tuesday 8th and am so 💩💩 myself, but at least we will be all in it together and can swap tips on SE etc, and for those who have to wait another week we can share tips with you. I think starting T is like starting FEC for the first time again, it's the fear of the Unknown ahhhhh.
love Tbird xx
04-01-2019 04:24 PM
04-01-2019 08:48 AM
04-01-2019 07:07 AM
I am supposed to be having my first cycle of T next week but has now been postponed because I have got shingles! After spending most of Boxing Day in A & E with a chest infection this just caps a sh***y festive season for me. Hope the T goes better and good luck to all of you.
03-01-2019 11:12 PM
03-01-2019 02:02 PM
Hi pigeon, I'm from the Oct '17 thread. When I had T I was told to take the steroids morning and lunchtime/afternoon to avoid being kept awake at night. Saying that, I wasn't told that at first and I'd thought I'd better space them out as you do normally with tablets and I still seemed to sleep ok, but perhaps I was just lucky! x
03-01-2019 01:28 PM
Tracybev, looks like we both have our first T tomorrow - best of luck, I’ll think of you when I’m there.
Well, I just got back from having my bloods drawn and PICC line flushed.
I popped in to the hospital pharmacy to ask for advice regarding the steroids, they said to try to space them evenly in the day - morning and evening.
Then the nurse who did my flush/bloods said to take them morning and lunchtime/aftermoon, and avoid taking them after 4pm so they don’t keep you awake - she said when I go in tomorrow for treatment in the afternoon I should have had both doses.
So if we include last week’s nurse, that’s three different sets of advice I’ve had! 🤷♀️
Today I’m stuck with lunchtime and evening, because I didn’t take them this morning, but tomorrow and the next day I’ll take them morning and lunchtime.
03-01-2019 12:23 PM
03-01-2019 10:24 AM
I asked the nurse about it when I had my PICC line flushed and she wasn’t really sure, but suggested that the day before I take 4 with lunch and then 4 with evening meal - since it says “24 hours”, and that keeps it somewhat close since my trealmente is at 14:30. I wish my instructions were more clear 🤔
Do your instructions say to take in the evening on the day of chemo as well?
I have my blood test today and first round of Docetaxel tomorrow, and as happy as I was to see the last of the FEC, I think I’m more scared now than I was before my first round of chemo. I’m really dreading it! 😱
Just have to keep reminding myself that we’re halfway through, chemo will be finished before we know it.
02-01-2019 03:26 PM
I had my last EC on NYE (rock n roll) and move on to Docetexal (spelling?) next. I too was given a lovely lot of steriods to take. My instructions say to take 4 with breakfast the day before and 4 in the evening the day before, then 4 the morning of the chemo itself - not sure if this helps you or not.
I have my bloods done on the same day as the chemo so I'm a bit concerned that I'll be as high as a kite and "fail" my blood test then have to start again!
Given that I'm only getting about 4 hours sleep a night with the steriods for the EC I'm not looking forward to the increased dose.
02-01-2019 10:21 AM
02-01-2019 06:12 AM
It seems like the side-effects are less with weekly T, and the research papers show better results for it so Im going to take the weekly option event though its logistically more challenging to get to the clinic weekly. So im keen to here your expereince with it.Im behind you other November starters as Im getting 4AC before the 4 T( or 12 weekly) so I still have 2 doses of AC to go - next one is on Friday