02-12-2018 07:10 AM
02-12-2018 05:17 AM
01-12-2018 10:49 PM
01-12-2018 08:16 PM
01-12-2018 06:56 PM
01-12-2018 03:36 PM
Hi ladies, we've gone a bit quiet, hope you are all OK.
Sorry to hear about your BRCA diagnosis Lisajayne. All you can do is take it one step at a time but they will sort you out I'm sure.
Lou, I've not seen that book, might have to look it up for company in the dark days, thank you.
Juzcooper, good news on your lump shrinkage, hope that keeps up, good riddance to the lump!
Went to see oncologist the other day and mentioned the healthy appetite, he said it's a steroid in one of the anti sickness pills and he will tone it down for round two, otherwise I might be found on the kitchen floor, emptying the fridge contents down my neck!
Hair falling out by the handful at 14 days post chemo, I haven't cut it and am not going to. Got wig at the ready and will just use a wig cap when it thins so much you can see. Surprised at how much I've lost and it's not noticeable yet.
I'm gearing up for round 2 on Thursday, have almost finished Christmas present shopping and most of the wrapping, just cards to think about. It's nice to have Christmas to get excited about actually, it's taking my mind off things.
29-11-2018 05:41 PM
29-11-2018 10:26 AM
29-11-2018 10:23 AM
I react badly to normal dressings so I have a prescription for anti allergenic ones which I used to take with me, although they were available at the hospital if I forgot. You need to make sure it's in your notes and mention it each time.
Wouldn't it have been easier to have a port fitted or are you too late now?
29-11-2018 07:59 AM
Had my results back from genetics yesterday and I have the mutated BRCA2 gene! Didn't think for one minute it would come back positive 🙈 So, once all this chemo is out of the way I'll be looking at ovaries and boobies surgery, probably just have the whole lot removed - in for a penny and all that 😬
Braved the shave on Monday. I honestly thought everyone was exaggerating about the quantity of hair loss - they were not!!! Since I stopped the cold cap it shed like an animal, I would never have believed how much if I hadn't experienced it!
I've got a crimbo dinner with my wonderful work family tonight so will be nice to slap on a bit of make-up and wear my new wig that they all clubbed together and brought for me. They have been amazing and I feel truly blessed to have their support. I will raise a glass to you all 💗
I hope you are all doing well and are looking after yourselves.
29-11-2018 12:00 AM - edited 29-11-2018 12:05 AM
Glad you're feeling better Kateday, we are all entitled to have a melt down, we just have to keep thinking, this will pass.
Had my picc line flushed again today, when the nurse took the little white strips of the line, my skin had blisters where the adhesive on the strip had been. I had felt some itching this past couple of days, but did'nt realize it was caused by the strips, they had sorted the dressing out so my skin did not react so much, but the nurse said it looks like I may have to wear an ordinary bandage to cover the picc line.
Has anyone else had skin reactions to the dressings?
28-11-2018 10:34 PM
You're right about being ravenous. Think my family were quite shocked at how hungry I was last week. I did overdo it one day, ate too much for tea then did the injection soon after - big mistake! Made a note not to do them on a full stomach ever again.
I'm hoping I feel well enough to go to my little boy's Christmas concert the week after next. Am determined to go, will just need to avoid all the coughing parents. Seem to be lots of colds and coughs going round now.
I'll probably go for the wig that best matches my hair too, though my mum really liked me in a lighter shade, said it made me look younger!
Have you read 'Tea&Chemo'? It's well worth a read if you haven't. A friend bought it for me and it really helped when I was losing my positivity last week.
Take care. xxx
28-11-2018 08:45 PM - edited 28-11-2018 08:49 PM
Hi Lou, thank you so much for the welcome! Yes, oddly I'm really looking forward to Christmas here (despite the chemo), today I treated myself and hubby to a big Quality Street advent calendar! Also in overdrive now I feel up to things, although I have had a few dizzy spells when I've been rushing around.
I did find that although I haven't felt sick, I have been ravenous at times, and my stomach feels like it is rumbling from lack of food. I'm belching a lot too, not a great thing.
I have my wig, picked it up this week, an exact colour match to my hair and a slightly shorter style, really happy with it. I didn't have too much choice as the wig lady asked me what I wanted and brought a small selection in, THE one was in that first batch of wigs, thankfully.
Will be thinking about you next week, as we gear up for round 2.
28-11-2018 08:12 PM
Welcome Holeinone! I too, like you didn't post for a little while but found the posts from everyone so helpful and comforting especially in week 1 after chemo when my chemo brain kicked in and I felt too spaced to type much that made sense.
I'm just a day after you for my EC so my next is 7th Dec. Will be thinking of you on the 6th. I'm having my PICC line fitted that day.
My hair hasn't budged yet but have decided to cut it short next week anyway and get the wig (so hard to choose, had no idea there would be so much choice of style, colour etc.)
I'm hoping like you that the anti-sickness drug mix works well next time too. Trying to get some Christmas shopping done and going into cleaning overdrive before end of next week. The kids are already pestering about getting a tree. Will be something nice to look forward to after chemo 2.
28-11-2018 01:56 PM - edited 28-11-2018 02:14 PM
Hello lovely ladies, this is my first post but I feel as if I know you all as I've been lurking for absolute ages, gleaning info and comfort from your posts, so thank you for that.
I've already had a WLE and started chemo (3 FEC and then 3T) on 15th November. Had a week of absolutely horrific (to me) night sweats and feeling spaced out, unable to sleep etc, which I can see appears to be a pattern. I'm very thankful the anti sickness goody bag I was given worked like a charm and although in week two post chemo I've had a couple of watery mouth moments, I've not actually been sick. I can concur with the taste changes, my usual cup of tea was vile and I had to resort to tropical cordial and chicory coffee instead.
Not looking forward to doing it all again on 6th December, especially as I expect I will be bald by then. Tried the cold cap but it was too tight and the cold on my forehead brought on a migraine so it was whipped off pretty sharpish!
28-11-2018 12:53 PM
28-11-2018 07:33 AM
Hi Clarabella, I am like you having 3 EC and 3 Doxatel although my second EC has been deferred to Friday because I had an abcess. I cold capped on my first session but won't be doing it on my second because I didn't like it and my hair is shedding like mad, OH says he doesn't know who is worse me or the cat! Went for my wig yesterday just in case because I already have a couple of bald spots but they can be covered by the rest of my hair.Will have to see how it goes. Hope all those who have done round 2 will start to feel better sooner. Went to my stepsons and daughter-in-laws on Sunday for a roast dinner, had a really good time doing something normal. The two grandsons who are 9 and 5 helped to cheer me up.
27-11-2018 10:27 PM
Feeling better this evening, the second session went much the same as the first, seem to tolerate the chemo and nausea ok but it's when I start the injections 2 days later that's when I start to feel really rough !! 😟
27-11-2018 08:34 PM