10-12-2018 12:51 PM
After 4 days of sheedding hair - since day 14 post first dose of AC, I transitioned from major anxiety and sadness and stress to just being so irritated by it all I shaved it short last night. Feel so relieved. its happened and its over and now i can work on ways to live with it. First day with wig at work and got complements for new highlights! Tonight I think i will tackle those last grey stubbles because they add to the sensitive scalp when i want to sleep. Not all as easy as it sounds though - keep on telling myself that Im bald
10-12-2018 12:45 PM
09-12-2018 11:01 PM
09-12-2018 10:11 PM
So I had my second chemo on Thursday and for me Saturday has been the worse both times so far. Just feeling like I've been hit by a bus. Both times I've gone back to bed for the afternoon. Having said that I think I've got off quite lightly compared to some of you so far. This time the headaches have been much less, although I'm wondering if that's because we used gauze on my forehead under the cold cap this time, so I didn't end up with a frozen forehead unlike round 1.
My hair is still hanging on. There's days when i think it's shreding more and days when I think it's not. Hair washing is becoming ever increasingly stressful. Even my ladygarden seems to have stopped coming out at the moment which has left me with an interesting pattern down there!
The nausea was much more managable this time too, following the eat little, often and when you wake up in the middle of the night rule.
For those with ports I asked the nurse about bruising and was told that because our platlets are killed off too we will bruise more easily and then take longer to heal so everytime they access the port we'll bruise.
08-12-2018 09:36 PM
Hi ladies, thanks Liloc I'm doing better today after chemo 2, that's to say I didn't end up having to go to A&E like I did after last one. Have had more energy and managed to get the tree up and decorated with a bit of help from the kids.
Hair has been shedding like a yeti and now look like a baby bird according to my 11 year old daughter, so am borrowing my brother-in-laws clippers tomorrow. Have got used to the wig but decided it's better without the wig liner. Was sat on the sofa earler and wondered why my hubby was looking at me and laughing. The whole thing had slipped backwards so the fringe was way back. Have tightened it a bit and decided to ditch the liner thingy. I agree the pretied bamboo headscarf I bought is lovely and soft to wear so am using this more around the house, going for chemo.
The PICC line fitting Thursday was a bit of a nightmare. It went in the wrong place (in my neck - eek!) to start with so had to go to Xray so they could see where it was then manipulate into the correct position. My husband hadn't even realised how long I'd been and was happily watching the snooker in the waiting room when I came out eventually.
Saying that the chemo was much easier with it so glad it's in. Just still feels a bit weird but I'll get used to it.
The side effects are pretty yuck this first week on the ateroids and anti-sickness but seems to be keeping the nausea at bay.
Good luck those going for cycle 3. Really hope you've found some more support Emily. We're here if need us. hugs everyone xxxx
08-12-2018 08:53 AM
Hi everyone, hope you are all doing ok. 1 week post 2nd cycle of EC and have felt much better than post 1st, am convinced it is through not using the cold cap as I have not been away with the fairies. I did work as a receptionist at a private health clinic but haven't worked since 1st chemo because of risk of infection. Anyway, have been having problems with my left arm (surgery side) so decided to go and see my boss who is a physio for more exercises as the ones I was doing weren't enough. He examined me and told me that my problems were nothing to do with my surgery or my chemo but with my neck! The point I am making is don't assume that all your problems are treatment related and get them checked out. On a lighter note it was the OH works christmas do last night so me and the daughter decided to have a girls night in and ordered pizza and nibbles,
and binge watched The Big Bang Theory! I absolutely loved the pizza and the fact that I could taste it, until 4 this morning when I woke with raging indigestion, I took every anti-indigestion medicine in my cupboard and am just now feeling.So that's another thing to stop eating.I will be surviving on toast and soup at this rate!
07-12-2018 07:21 PM
07-12-2018 07:11 PM
07-12-2018 12:14 PM
07-12-2018 09:57 AM
im having my 3rd one on the 18th too so I will be thinking of you and all the others going through this nightmare. Side effects are horrible aren't they, the way I'm looking at it is all my side effects seem to be the norm so treatment must be working and it's not going to be forever.
My oncologist has stopped one of my drugs from FEC and reduced the other 2 to 80% side effects are not so severe, but now I'm worried about the long term outcome - will the chemo still be as effective, after my 3rd session I will be having 3 sessions with the targeted chemo, I will be having a mastectomy after that. I've asked my oncologist and she didn't really answer just said "we have to reduce it for you to survive the treatment" 😱.
Im going to stop worrying and think positive, they wouldn't be continuing with treatment if they didn't think it would work (my surgeon said it cost £40.000 just for the drugs).
My sister has put up my Christmas decs for me, my house looks so cosy and warm, it looks so wet and gloomy outside so feet up and Netflix for me. Have a lovely weekend everyone
love Tbird xx
07-12-2018 05:26 AM
05-12-2018 08:23 PM
05-12-2018 06:30 PM
04-12-2018 04:38 PM
I had my port fitted on 14 November and I still have bruising around it. Like you it appears to come and go. I've also noticed that the site over the line around my collar bone doesn't appear to be healing as well as I would normally.
04-12-2018 03:53 PM
Thank you all so much for responding about the vein thing, it makes sense now as they have used the same spot in my hand 3 times in the last 3 weeks, once for 1st chemo, second for iv antibiotics and third for my 2nd chemo no wonder it hurts. I haven't had my mastectomy yet, mine is chemo first so I will insist they use a different hand (if I dare ha ha).
Im still in denial that I have breast cancer and wake up wondering why I feel rough and why is this happening to me. I can't look in the mirror at my bald head and just want to wake up from this whole nightmare. I'm sorry to rant like this but I can't to my family, they look to me to be strong and I'm fed up of been strong.
on a plus side I have fantastic sisters who live nearby (one two doors away) the other just up the road, they look after me so well that I feel bad about bemoaning what's happening to me, this horrible cancer thing has shattered my sisters and they are been so brave. I also have a grown up son and daughter who are struggling to cope, I try to protect them as much as I can and won't let them see me on a bad day.
Sorry there I go again ranting. I am lucky because I will beat this and providing I can survive the treatment ha ha, my prognosis is good ( I have 2 lumps one her+ other invasive ductal carcinoma) sorry don't know abbreviations.
tHank you all for listening and I hope others are well and coping with treatment.
love Tbird x
04-12-2018 12:35 PM
Hi everyone, hope you are all feeling relatively well today and managing to keep up with the festivities!
Hi Liloc, yes I have an 18 year old daughter and I'm 48 this month so realistically I'm not planning on having any more children and more than likely on my way to the menopause, so I guess this process just speeds things along a little!
Hi Milo & Holeinone, welcome to the thread. You'll get lots of support and tips from these wonderful ladies, hang on in there
Hi Sals, OMG I am so with you on the wine front. I too can only manage a glass now, but at least the lack of alcohol outways the excessive food intake!!
Hi TBird, I have my chemo through a cannula weekly, and try to alternate hands. They put little heated bean bags or heated blankets on your hands at my hospital to warm up your veins first. I found that after my second week my hand was still hurting as I'd used the same hand twice. I think the pain can sometimes happen because of the speed the drugs go through. You can ask them to turn the machine down a bit apparently.
My next session is Friday and will be the end of cycle 2 of 4 so will be half way trough my trial chemo, then off for three rounds of FEC. Yay!!!
Take care everyone and stay well