Member
Posts: 7
Registered: ‎04-12-2018

Re: November 18 chemo starters

After 4 days of sheedding hair - since day 14 post first dose of AC, I transitioned from major anxiety and sadness and stress to just being so irritated by it all I shaved it short last night. Feel so relieved. its happened and its over and now i can work on ways to live with it. First day with wig at work and got complements for new highlights! Tonight I think i will tackle those last grey stubbles because they add to the sensitive scalp when i want to sleep. Not all as easy as it sounds though - keep on telling myself that Im bald 

Member
Posts: 25
Registered: ‎21-10-2018

Re: November 18 chemo starters

Afternoon all, day 6 after EC#2 and going through my rough patch queasywise. Was the same last time, I think it’s when I come off the steroids and main anti-sickness pills and am left with the “as and when”. Was given a bigger supply this time so there’s currently quite a bit of as and when (within stated doses, of course). Horrible taste buds at the mo too, everything tastes metallic or weird. The things that worked last time, like lemon and ginger tea or lime cordial in water, still aren’t nice. Have just had a lovely cheese on toast with mature cheddar so maybe I should just go for stronger flavours. Any suggestions? Funny, all this reminds me of being pregnant - nausea, going off alcohol, things tasting funny, cravings for certain foods....but no baby to look forward to ☹️.
Clarabella, thanks for the note about the port. Glad I did the port in the end, took a lot of my pre-stress angst about needles and cannulas away.
Kateday, thinking of you today, hard I know but try and remember it’s 3 down. And you should be hunky dory to celebrate Christmas nicely, so that’s a bonus xx
Member
Posts: 140
Registered: ‎08-09-2018

Re: November 18 chemo starters

Hi ladies
Good to see your holding up better
I’m of for round three tomorrow, ant to top it of it would have been my mums birthday
Well I had to shave my legs yesterday, I’m not sure how normal it is to regrow hair after cycle two , but now I’m hoping it stays
Haven’t lost any head hair this time and only now have a bald ish patch the side I lie , don’t get me wrong it’s thin and not much of it but there is some there
Xx
Member
Posts: 4
Registered: ‎27-11-2018

Re: November 18 chemo starters

Hi All,

 

So I had my second chemo on Thursday and for me Saturday has been the worse both times so far.  Just feeling like I've been hit by a bus.  Both times I've gone back to bed for the afternoon.  Having said that I think I've got off quite lightly compared to some of you so far.  This time the headaches have been much less, although I'm wondering if that's because we used gauze on my forehead under the cold cap this time, so I didn't end up with a frozen forehead unlike round 1.  

 

My hair is still hanging on.  There's days when i think it's shreding more and days when I think it's not.  Hair washing is becoming ever increasingly stressful.  Even my ladygarden seems to have stopped coming out at the moment which has left me with an interesting pattern down there!  

 

The nausea was much more managable this time too, following the eat little, often and when you wake up in the middle of the night rule.  

 

For those with ports I asked the nurse about bruising and was told that because our platlets are killed off too we will bruise more easily and then take longer to heal so everytime they access the port we'll bruise.  

 

 

Member
Posts: 11
Registered: ‎06-11-2018

Re: November 18 chemo starters

Hi ladies, thanks Liloc I'm doing better today after chemo 2, that's to say I didn't end up having to go to A&E like I did after last one. Have had more energy and managed to get the tree up and decorated with a bit of help from the kids.

Hair has been shedding like a yeti and now look like a baby bird according to my 11 year old daughter, so am borrowing my brother-in-laws clippers tomorrow. Have got used to the wig but decided it's better without the wig liner. Was sat on the sofa earler and wondered why my hubby was looking at me and laughing. The whole thing had slipped backwards so the fringe was way back. Have tightened it a bit and decided to ditch the liner thingy. I agree the pretied bamboo headscarf I bought is lovely and soft to wear so am using this more around the house, going for chemo.
The PICC line fitting Thursday was a bit of a nightmare. It went in the wrong place (in my neck - eek!) to start with so had to go to Xray so they could see where it was then manipulate into the correct position. My husband hadn't even realised how long I'd been and was happily watching the snooker in the waiting room when I came out eventually.
Saying that the chemo was much easier with it so glad it's in. Just still feels a bit weird but I'll get used to it.
The side effects are pretty yuck this first week on the ateroids and anti-sickness but seems to be keeping the nausea at bay.
Good luck those going for cycle 3. Really hope you've found some more support Emily. We're here if need us. hugs everyone xxxx

Member
Posts: 20
Registered: ‎02-11-2018

Re: November 18 chemo starters

Hi everyone, hope you are all doing ok. 1 week post 2nd cycle of EC and have felt much better than post 1st, am convinced it is through not using the cold cap as I have not been away with the fairies. I did work as a receptionist at a private health clinic but haven't worked since 1st chemo because of risk of infection. Anyway, have been having problems with my left arm (surgery side) so decided to go and see my boss who is a physio for more exercises as the ones I was doing weren't enough. He examined me and told me that my problems were nothing to do with my surgery or my chemo but with my neck! The point I am making is don't assume that all your problems are treatment related and get them checked out. On a lighter note it was the OH works christmas do last night so me and the daughter decided to have a girls night in and ordered pizza and nibbles,

and binge watched The Big Bang Theory! I absolutely loved the pizza and the fact that I could taste it, until 4 this morning when I woke with raging indigestion, I took every anti-indigestion medicine in my cupboard and am just now feeling.So that's another thing to stop eating.I will be surviving on toast and soup at this rate!Smiley Frustrated

Member
Posts: 35
Registered: ‎02-10-2018

Re: November 18 chemo starters

I’m lucky enough I think to have been covered by private medical through my company, so I can see the bills! OMG if nothing else girls we are expensive! I say lucky I think because whilst the accelerated speed of consultation to treatment was great and the luxury of a private hospital nice and my consultants great there is not much in the way of aftercare or community I literally haven’t met anyone else at the hospital/chemo going through treatment or been referred to any support groups centres etc..
My hair is just starting to shed but can you believe I just had to wax my legs etc couldn’t look at them any more it was the most pain free wax ever - just more or less fell off!
I was wondering what might have happened to Emily, I felt so sad for her she seemed so alone, Emily if you are reading let us know how you are 😘
Member
Posts: 25
Registered: ‎21-10-2018

Re: November 18 chemo starters

Seem to have found the right drug cocktail to keep my nausea at bay following round 2 on Weds. Do have to keep eating as soon as I feel a hole in my stomach (this morning at 5am!) but once I fill that, I seem to be ok. Even found the energy to pop into hospital for a headscarf tying session. Don’t know how much of the faffing around ones I’ll do but I bought a couple of lovely soft pre-tied ones for just wearing around the house so husband and son aren’t too scared of freaky mamma (haven’t cut my hair but Day 23 practically bald, just shedding on its own, so look a right state)...
Member
Posts: 140
Registered: ‎08-09-2018

Re: November 18 chemo starters

Hi
My oncologist is going to reduce mine to
The side effects were just awful I couldn’t do anything for nearly ten days well the basic get up get dressed
I will also have a pic line fitted but refused to have chemo put back a week so said I would deal with the vein pain this time , as I’m due Monday for next cycle and want to try and be coming out other side of the side effects by Christmas xx
Highlighted
Member
Posts: 6
Registered: ‎22-10-2018

Re: November 18 chemo starters

Hi Sals

im having my 3rd one on the 18th too so I will be thinking of you and all the others going through this nightmare.  Side effects are horrible aren't they, the way I'm looking at it is all my side effects seem to be the norm so treatment must be working and it's not going to be forever.

 

My oncologist has stopped one of my drugs from FEC and reduced the other 2 to 80% side effects are not so severe, but now I'm worried about the long term outcome - will the chemo still be as effective, after my 3rd session I will be having 3 sessions with the targeted chemo, I will be having a mastectomy after that.  I've asked my oncologist and she didn't really answer just said "we have to reduce it for you to survive the treatment" 😱.

 

Im going to stop worrying and think positive, they wouldn't be continuing with treatment if they didn't think it would work (my surgeon said it cost £40.000 just for the drugs).

 

My sister has put up my Christmas decs for me, my house looks so cosy and warm, it looks so wet and gloomy outside so feet up and Netflix for me.  Have a lovely weekend everyone 

 

love Tbird xx

Member
Posts: 35
Registered: ‎02-10-2018

Re: November 18 chemo starters

Congratulations! T-bird 👍
Saw my oncologist last night and was discussing the chemo side effects and discovered nearly everything I hate is all down to the steroids but without the steroids I would probably feel much worse than I do from the chemo so I guess it’s - suck it up buttercup!
Feeling much better this week and trying to take part in a few Christmas activities-even managed a small wine! #3 on 18th Dec so have week and a half to get Christmas done and dusted. Wishing everyone well with their next round 😘
Member
Posts: 6
Registered: ‎22-10-2018

Re: November 18 chemo starters

Had ultra scan today yippee my nasty has shrunk by 6mm - happy days 👏🏻👏🏻

Member
Posts: 7
Registered: ‎04-12-2018

Re: November 18 chemo starters

Getting # 2 EC next Friday. Trying to get all Christmas shopping done before then! Hair shedding starting today.

Member
Posts: 25
Registered: ‎21-10-2018

Re: November 18 chemo starters

Hi all, back from EC round #2. Port worked well and I was much more relaxed. Am beginning to feel effects now though, very woozy but have popped more pills than an entire episode of The Wire. Just wanted to wish everyone due to go in today, tomorrow & Friday the best of luck. Pinklily, hope #3 is not as harsh as your last one. Hugs to Lou43, Holeinone,Clarabella, Milo and anyone else coming up for their second instalment of this surreal drama/sitcom/soap.
Member
Posts: 25
Registered: ‎11-10-2018

Re: November 18 chemo starters

Hiya all!! Had some good news for a change on Tues. Got my results back for BRCA and they have come back as negative thankfully. I'm so relieved for my 25 year old daughter more than anything else and of course not having to worry about any preventative surgery. So back to worrying about the matter in hand and smashing it 😉 Didn't have a great week last week after my double dose (Carboplatin and Paclitaxel) but managable and been fine this week after just the Paclitaxel. As far as I can tell my lump has all but gone as I cant feel anything. It was really prominent and painful before my treatment started 6the Nov so I'm chuffed to bits it seems to be working 😉 Thinking of you all, take care xx
Member
Posts: 7
Registered: ‎04-12-2018

Re: November 18 chemo starters

Thnks that's reassuring! Good luck!

Member
Posts: 4
Registered: ‎27-11-2018

Re: November 18 chemo starters

Hi Gogga, 

 

I had my port fitted on 14 November and I still have bruising around it.  Like you it appears to come and go.  I've also noticed that the site over the line around my collar bone doesn't appear to be healing as well as I would normally. 

 

Member
Posts: 6
Registered: ‎22-10-2018

Re: November 18 chemo starters

Thank you all so much for responding about the vein thing, it makes sense now as they have used the same spot in my hand 3 times in the last 3 weeks, once for 1st chemo, second for iv antibiotics and third for my 2nd chemo no wonder it hurts.  I haven't had my mastectomy yet, mine is chemo first so I will insist they use a different hand (if I dare ha ha).  

 

Im still in denial that I have breast cancer and wake up wondering why I feel rough and why is this happening to me.  I can't look in the mirror at my bald head and just want to wake up from this whole nightmare.  I'm sorry to rant like this but I can't to my family, they look to me to be strong and I'm fed up of been strong.

 

on a plus side I have fantastic sisters who live nearby (one two doors away) the other just up the road, they look after me so well that I feel bad about bemoaning what's happening to me, this horrible cancer thing has shattered my sisters and they are been so brave.  I also have a grown up son and daughter who are struggling to cope, I try to protect them as much as I can and won't let them see me on a bad day.

 

Sorry there I go again ranting.  I am lucky because I will beat this and providing I can survive the treatment ha ha, my prognosis is good ( I have 2 lumps one her+ other invasive ductal carcinoma) sorry don't know abbreviations.

 

tHank you all for listening and I hope others are well and coping with treatment.

 

 

love Tbird x

Member
Posts: 34
Registered: ‎06-10-2018

Re: November 18 chemo starters

Hi everyone, hope you are all feeling relatively well today and managing to keep up with the festivities!

 

Hi Liloc, yes I have an 18 year old daughter and I'm 48 this month so realistically I'm not planning on having any more children and more than likely on my way to the menopause, so I guess this process just speeds things along a little!

 

Hi Milo & Holeinone, welcome to the thread.  You'll get lots of support and tips from these wonderful ladies, hang on in there

 

Hi Sals, OMG I am so with you on the wine front.  I too can only manage a glass now, but at least the lack of alcohol outways the excessive food intake!!

 

Hi TBird, I have my chemo through a cannula weekly, and try to alternate hands.  They put little heated bean bags or heated blankets on your hands at my hospital to warm up your veins first.  I found that after my second week my hand was still hurting as I'd used the same hand twice.  I think the pain can sometimes happen because of the speed the drugs go through.  You can ask them to turn the machine down a bit apparently.

 

My next session is Friday and will be the end of cycle 2 of 4 so will be half way trough my trial chemo, then off for three rounds of FEC. Yay!!!

 

Take care everyone and stay well

 

Lisa xx

 

Member
Posts: 7
Registered: ‎04-12-2018

Re: November 18 chemo starters

I had a port put in on 15 November - is it normal to still have bruising over the port and over the suture line - it seems almost as if the bruising comes and goes?