Hi Liloc, I have a port - it wasn't great having it put in, but having bloods done today was much easier and faster, with none of the struggle to find a vein.
Thanks for the comments - it's nice to know others are going through the same thing, even if I wish you weren't. Hair now cut down to a centimetre but still coming out.Not as horrifying as having a hairbrush full of hair. I have a selection of hats but I haven't tried the wig yet, it still feels odd.Eyebrows and eyelashes still there but my eyes have been really runny and sore. Bloods and swabs today in readiness for round 2 on Wednesday. Fingers crossed that it isn't too bad.xx
Good luck with round two today Kateday, I’ll be thinking of you xx
My next one is on Friday, I’m dreading it already.
We shaved my hair to a number 3 on Saturday, day 16 after first FEC treatment. My scalp had been so sore, and my hair was starting to fall out more so I just bit the bullet and did it. I definitely cried, and still think I look a bit strange in the mirror!
But I have to admit, it’s nice to not have to faff with the hair dryer, straightener, etc. And it really helped to ease the soreness.
I'm on day 17 after having first of 3 EC noticed hair thinning on day 15 and today really noticed how much was shedding !! I did cold cap so was hoping would be minimal loss but not to be 😟 Have wig ready but just not sure if I'm ready to "brave the shave yet " 😲😲 xx
Hi Kateday & Sals
I'm day 17 today on weekly Paclitaxel and carboplatin every 3 weeks. Have been cold capping but the one you change every 30 mins or so. It's so weird cos as much as you know your hair will more than likely fall out, you still think (or pray) it wont!!! I've chosen a wig ready but was hoping I wouldn't need it 🙈 xxx
Kateday, my head hair is definitely coming loose! How long does everyone find the hair shedding lasts before looks a total mess? I have loads of thin hair, was hoping it might just thin out a bit?!!! 🙈
Hey Juzcooper1971, sorry to hear about your blip. I'm sure you will be fine and the antibiotics are precautionary, I'll keep everything crossed that you'll be back home later today and fighting fit for your next round. I've been okay so far again this week, just finished the first cycle. I find the injections are giving me more grief than the chemo! Got one later, can't wait 😬
How are you doing with hair? I think my head hair maybe starting to shed, but only very slightly, but my foo hair is going for it!!!🙈
Well done so far to everyone, you seem to have grasped the importance of staying hydrated during chemo. I've explained on my blog why this is important and there are other tips which helped me whilst I was going through chemo so feel free to take from it anything which you may find helpful. I gathered this information collectively from my chemo buddies and other monthly threads so as not to lose useful info from others http://lifeafterlola.com Hopefully you won't get as many side effects as me. I was a bit unlucky with a few but it also means I have quite a bit of experience at dealing with them and *did* also survive them! Best wishes. xxx
I'll just keep checking certain areas today.The abcess has made me feel a bit crummy but otherwise not too bad.
I'm day 14 on Taxol and carboplatin every 3 Weeks and have been cold capping. Got home this evening and the lady garden has tidied itself shall we say! Head hair still hanging in there but we'll see what the next few days bring. Think I've read on here that the non head areas seem to go first.
Hope you are recovering well from your abcess?
Hi Liloc, sorry to hear you’ve been unwell 😞
I was quite poorly as well that first night, I was only given anti sickness tablets to start taking the following day, for the next 3 days, and I think the antisickness that they gave me intravenously just before the chemo must have worn off by the evening. I discussed with my oncologist and he is going to prescribe some extra tablets for the next round.
The nausea did wear off for me, I was in bed the whole of day 2 after chemo with sickness and nausea, then day 3 I felt a little better but stayed in bed, still a little queasy but mainly exhausted from the ordeal and feeling sorry for myself 😞, day 4 I was up and about with just a little queasiness if I thought about the wrong foods (it really put me off some things, temporarily!) and the nausea was pretty much gone the day after that.
Try and remember to keep taking small sips of water if you can, my nurses kept stressing to me that it’s important to stay hydrated. And if you can, eat little and often, I found something bland like dry crackers or toast were easiest, then plain clear soups when I was up for it.
All the best, hope you feel better soon x
Don't know whether the cold cap has worked or I have just been extremely lucky but at day 14 I still have all my hair everywhere! However, since the chemo I got a urine infection last week and last night was at A&E with a massive abcess in my armpit! I suppose it is the luck of the draw.
Hope everything went well for you yesterday Liza. It's sounds like you have a great network of friends around you. I have been lucky in that way too although nobody has cooked me food! 😄
Love Lisa xxx
Sals, I've been working on and off - I had two days off for the chemo, but since then have been working from home (3 days) and going in to the office (2 days). Luckily my work have been brilliant and are letting me decide what I am capable of. I've been much more tired than usual, so have only been doing 4ish hours in the office - I'm hoping to build that up a bit over the next 10 days or so until my next chemo. I find that if I don't demand too much of myself it's much better all round! Doing this amount of work has definitely been good for my mental health. But, as with everything, I think it's going to massively vary from person to person, so, if your work are sympathetic, you need to find a system that works for you, whatever that is. Good luck!
Our stats seem quite similar, I’m also ER+, HER2-, grade 2 with node involvement. I had surgery early September. I’m on day 12 of first round of FEC, I’ll have 3 FEC and 3 T in total as well.
From what the other ladies have said, it’s normal to start losing hair down below first, although I don’t seem to have started losing from anywhere yet... I’m kind of on tenterhooks waiting for it to happen!
Glad to hear round 2 hasn’t been too bad for you, fingers crossed for round 2 to be better.
What you need to do is become a skier (spend the kids inheritance) we have every intention of doing that when hubby retires in 2 years
New to this but was diagnosed July. In August I had 2 lots of surgery, grade 2 tumour and lymph node involvement, ER+, HER-. Now I am day 13 after the first round of FEC chemo. All OK, survived the portacath under local (yuk! what a nightmare!), and then the actual chemo. So far I have been tired and a bit achey, but I am dreading round 2 next week in case it is worse. I have 3 rounds of FEC and then 3 rounds of T , so one down , 5 to go. It is strange to see the variation in treatments, but I assume the oncologists know what they are doing.
My hair is still on my head, but elsewhere is experiencing autumn.Very odd. Still it saves shaving. I wondered if it was just me - I have a wig and hats and scarves at the ready, and am almost frightened to brush my hair.
It is the waiting I can't stand, and feeling like my life is on hold whilst also trying to make the most of every day as far as I can.
Also trying to carry on whilst I avoid anyone with any kind of bug! I appreciate what some of you have said about horror if anyone nearby sneezes! I am thinking of going out with a scarf over my face like a cowboy in a dust storm!
Keep going everyone, we can do this. My favourite quote about this so far, I don't know where it came from :
"A woman is like a tea bag. You never know how strong she is until you put her in hot water."
The water is quite warm right now. X
Ready for today?
This week has been a much better week so far, although I have come to the conclusion that the injections are the devil!
Apart from my "toilet episode" on Friday I was totally fine until yesterday when I ached from head to toe. Had a hot salt bath and watched some netflix. Feel ok this morning apart from a bit of a headache, but we'll see how the day goes. Usually start to flag at work around 3ish. I agree that so far its been ok but don't want to jinx it! I'm convinced if we manage ok on this chemo cycle it will be the FEC that gets us later on!
Glad to hear everyone else isn't doing too bad as well so far. Look after yourselves ladies and gents
Love Lisa xxx
Well ladies, I've had a pretty good month, apart from the hiccup the first few days after treatment 1, although that might have been my fault trying to do too much too soon.
I've been feeling pretty good this past couple of weeks and having my bloods done today, I'm keeping my fingers crossed that I'm ok for round 2 on Wednesday. I'm hopeing I get through the next one without any problems, just need to learn to rest a bit more. Had the bloods done at 3pm and was told they would phone me if the count was not high enough, so far, no phone call.
My only hitch has been the dressings used for the picc line, my skin does not like the adhesive on the dressings and I've had a few trips back to the hospital just to try and sort it, I had the same problem with the dressings on the lymph node scar, so I'm not surprised. Today the nurse put a great big brown plaster over the picc line with just a small amount of adhesive around the edges. I can't see if the area around the picc line becomes red or anything, but fingers crossed it behaves.
If it was not for the picc line, cleaning my teeth three or four times a day and wearing my lovely scarf hats, I would not believe there was much wrong with me. The only thing I've noticed is a growing paranoia about people coughing and sneezing when I'm out, I feel like running a mile from them and my hubby told me today, I have a look of terror or fear on my face. But I'm still going into shops, at quiet times and trying to live a normal life, even went to Knole Park and Scotney Castle last week, lovely doing the walks around the estates.
Is it just me, or does anyone else have this constant anxiety about people with coughs and colds.