09-11-2018 08:53 AM
I've also been diagnosed triple negative (2 tumours) plus lymph node involvement so stage 3. I'm doing the same trial as Juzcooper1971 & Lilypad so will be interesting to see how we all get on.
Had the results of my bone scan yesterday which were clear (thank god), I was sooooo scared another sh*t storm was coming my way! I'm off for my second chemo session today so fingers crossed the upcomming week is similar to the last, completely manageable if it is. @Juzcooper1971 - Yesterday (day 7) was the best day ever. Felt totally normal and ate like a pig!
Stay strong everyone and lets keep each other going. #WEGOTTHIS
Much love Lisa xxx
09-11-2018 05:38 AM
09-11-2018 02:22 AM
I am a bit behind some of you guys 7 wks post op mx recon and node clearance done on 18 th sept. Delay due to me agreeing to do trial, then spending a wk doubting my decision ( the doubts made me feel ill, worse in fact that how I felt on initial diagnosis). Spoke to oncologist so no longer on trial and now going ahead with chemo, having PICC line and bloods 16 th 1st round Fec 19th. Bit anxious but need this journey to start moving...... keen to hear how everyone gets on. Fingers crossed our SE’s not too bad.....🤗 hugs to you all.
08-11-2018 11:09 PM
08-11-2018 10:15 PM
08-11-2018 06:14 PM
08-11-2018 06:14 PM
08-11-2018 12:32 PM
08-11-2018 10:48 AM
08-11-2018 10:44 AM
Hi, @juzcooper1971 just read your message I feel sorry for you and my prayers with you and if you or anyone is looking for some information on cancer so please visit CancerBro they have latest and authentic information on cancer.
08-11-2018 10:36 AM
Kateday, I didn’t cold cap either, they’re not available in my hospital (I’m not sure I’d have chosen to do it anyway).
I’m on day 7 (I think? Had treatment 2 nov) and no hair loss yet, Ive been told it starts to go sometime after day 10.
Hope you’re all doing well, and good luck to anyone reading this who starts today. xx
08-11-2018 09:50 AM
Good morning All,
I started chemo yesterday. Biggest problem was the cannula, so hope to have a PICC line in for next time. Just feeling very tired so far today, all the anti sickness medication is working. Will need to keep close eye on blood sugar as diabetic, the stress sent it up quite a bit.
i didn’t expect to be well fed while there, or get a short therapy session while waiting, very nice extra.
08-11-2018 09:23 AM
08-11-2018 08:53 AM
Next chemo is Friday (tomorrow) off for the blood tests this morning to check all good to go.
Yes, just the Placataxil so shouldn't be there as long
The Injections, my sister lives around the corner so has been popping over to do them. She watched a video on YouTube which helped as well as reading the leaflet. She's a dab hand at it now! The needle is so thin, you can barely feel it so you'll be fine. I think after the second one i started to feel a bit achey in my legs, so that would have been day 5, but appart from that I felt fine in myself, it was quite a good day. Yesterday was a good day again until about 4pm then I felt like I had been run over by a bus! My neck, back, everything ached and hurt to touch I had a hot bath and a lie down. This morning I feel pretty much ok again apart from a little headache, but as I'm off to the hospital this morning I'm just going to mention it, but sure these will just be side effects. I've also found that the days I was taking the steriods, i wasn't sleeping. Top Tip - Invest in some Senokot!! 3 Days in and a brought some
Hope youn are doing well yourself?
07-11-2018 09:15 PM
07-11-2018 08:37 PM
giving lots of love to everyone out there, it is great to read your stories. Now day 5 and it is the first day I haven't felt as though I was away with the fairies. I expected the tiredness, but not to feel as though I had drunk 2 bottles of red. I am using the cold cap but I don't know whether to have a wig if I do lose my hair. As regards the injections I am an ex-nurse of 35 years so said I would do them myself, that way I can do them when it is convenient for me in the comfort of my home at the time that is right for me. I think the thought of giving oneself an injection is worse than the reality, after all millions of diabetics do it every day.
We are wonderful!
07-11-2018 07:59 PM
Hi Sals, Well done you! That's good advice, had heard that drinking plenty helps and good to keep track of how much. I'm always telling my kids they should drink more so they can nag me for a change.
I didn't know that about the cold cap so thanks for sharing and that's really positive, I really hope it works for you. Went shopping with a friend today and she made me try on all these crazy hats. x
07-11-2018 03:52 PM
07-11-2018 02:04 PM
Hi there, I start my chemo next Friday 16th - it's good to read all your posts so far. It will be great to be part of such a supportive group. I hope you're all doing ok and coping with the side effects of treatment and good luck to those of you who start treatment this week.
I go for a look round the unit on Monday and am still undecided on the cold cap or not. Hope I can decide then with some more information from the nurses. We'll be needing those woolly hats to see us through the winter. xx
07-11-2018 01:44 PM