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May 2017 chemo starters

Shi Community Champion
Community Champion

Re: May 2017 chemo starters

πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚mai, πŸ€£πŸ˜‚πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: May 2017 chemo starters

πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚ Mai that’s hilarious, everybody needs a bosom for a pillow.
I’m a lazy moo today. Legs feel like lead and still have a strange patch after injection. Heart rate is ok but I am still on low dose beta blockers to control it.
Community Champion

Re: May 2017 chemo starters

Ladies, speaking of bean bag boob. Check this out: πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚

 

image.jpeg

Community Champion

Re: May 2017 chemo starters

Jay, happy cancerversary!  How are you feeling about it?  I thought I'd feel upset but no, I just felt glad to be alive!  It didn't have quite the impact I expected.  I think every day is blessing and to be celebrated now. Xx

 

Treehouse, sending hugs.  Hope the Herceptin aches and pains soon wear off.  How is your heart rate doing now you've had the Herceptin?  Xx 

Community Champion

Re: May 2017 chemo starters

Hi Karebear, my hair was growing so slowl I took the plunge and ordered a hair treatment from 

Living with Cancer web site . Conditioner, shampoo and scalp stimulant. It appeared to work !!😍  I ended up with little corkscrew curls, then a gigantic afro! I've had two haircuts now, and love my new short funky hair. I'm not going to have it coloured, which I did for years, as the platinum grey looks ok. I'm using a mild shampoo and conditioner from Boots. I got hold of their cancer consultant and she was very helpful. No parabans etc etc etc. Hope this helps. X

Community Champion

Re: May 2017 chemo starters

Treehouse, thank you for the hugs and indeed it is a strange day - I get a cold shudder when I stop and think - I can (believe it or not) still hear the surgeon's words as he held my hands - but HEY! - one year on and I'm still here - got to be good! Thankfully, with the wonderful team at the NHS who took over my body - I'm alive and I will get back to full fitness again, one day - that bit is down to me to sort out!!

The sun is trying to come out here and no one can lay in bed once that happens! I'm just about to start my Friday housework so the house is tidy and clean for the weekend! Then I'm off to work (hope today is better than yesterday - the children were so out of character yesterday - I guess it's the sun and the thought of the easter bunny arriving sometime soon)!

I hope you manage to enjoy your day Treehouse and the aches quickly diminish xx
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Re: May 2017 chemo starters

Hi Jay. Cancerversary is a strange one. Mine is a couple of weeks time. Just look how far we have come. So glad we found it soon enough. Hugs to you my lovely friend x x
( I might get out of bed soon, the birds are singing)
Community Champion

Re: May 2017 chemo starters

Good morning Treehouse.

It really does make a difference how the nurse administers the injection. Thankfully, yesterday I had the same nurse as I've had the previous 3 times and she's brilliant - I actually don't feel a thing.

It's not good to wake with everything aching - especially at 3am. It could be a mixture of exercise and injection. If I were you I'd give myself plenty of time this morning and then maybe go for just a gentle stroll somewhere nice and flat. I can imagine how you feel, just walking into the hospital environment once in a day reminds you of the on-going situation. Although, I'm scared i've only got 4 more - I'm so going to miss the ward I go to and even more all the staff there... and of course, the friend I've made during chemo - who actually only has 2 more injections to go! In another way, I can't bl**dy wait!!!

A year ago today - was my day of diagnosis................. :-((
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Re: May 2017 chemo starters

Morning all ug
I had rehab followed by herceptin yesterday. Really struggled to sleep.
I
Normally the nurse goes straight into my thigh as deep as possible. Yesterday a different nurse went in sideways quite near to the surfaces. I now have a pale patch of skin about the size of a saucer?!?! Also woke up at 3:00 with all my joints aching, knees hips elbows. Don’t know if I blame the exercises or injection. Not sure if I try to walk it off or just veg today. Hope everyone is ok. 2 hospital visits in one day has put me in a strange mood today. Back to being a patient. Don’t like it.
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Re: May 2017 chemo starters

Hi Karebear. My hair started to grow back during the T part of FECT. I used menthol shampoo every other day. Also massaged my head a few times a day, especially in the evenings when sat watching tv. It does grow back quite fast when it starts, seems like forever. I finished chemo 24 Aug and have had my 1st proper hair cut a few weeks ago.

 

H

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Re: May 2017 chemo starters

Can’t get pics to load, so second best option is to give you their website address with all their info on it ... www.nicolajane.com
Happy to answer any questions!
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Re: May 2017 chemo starters

So today I went for a bra fitting at the Breast Care Unit with a bra specialist from Nicola Jane. I’ll post some contact information next. I just wanted to say, they made me feel so at ease (Jackie the fitter has had breast cancer 8 years ago so knows how we feel) There was a good range on offer, and although my new boob hasn’t quite dropped enough with gravity, she had me wearing bras that made me look symmetrical πŸ˜€ Can highly recommend them. The quality of the fabrics are very good, on the whole I was very impressed. As a company they are trying to get contacts with a lot more hospitals so that fitters can book slots to see women on certain days in Breast Care units....
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Re: May 2017 chemo starters

Mai - What a difference a year makes, enjoy those daffodils πŸŒΌπŸ’• xx
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Re: May 2017 chemo starters

Treehouse - Blimey I bet that felt rather sudden hearing it’s Sunday, but it’s not quite Surgery just yet so it’ll give you time to get your head round it before the go ahead. Wish you didn’t have to have more, you’ve had your air share bless you xx
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Re: May 2017 chemo starters

Hi Karebear, Well done on getting through the chemo with one more to go, it’s hard going but well worth it in the end. As far as hair regrowth I never used anything, just my usual shampoo and conditioner. I was amazed in fact by how quickly my hair grew back on its own. Within 3 months I had a full head of hair which has come back so much thicker and got some curl! It can feel like forever waiting for it to grow so I’d recommend taking a photo of yourself straight after chemo, then another one 4 weeks later, you’ll be amazed at the change. I did this for 3 months just to see the change. I’m convinced it’s complely stopped now because I have no photo references now, but family say they’ve noticed it getting longer. Wishing you all the very best xx
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Re: May 2017 chemo starters

Hi Karebear lovely to hear from you. Glad you have got through the toughest part. Chemo is tough . Have you had surgery yet?
I am really sorry but I have no words of wisdom regarding hair growth. To be honest I had a few complications to worry about so Hair was not on my radar. It is back thicker, curly and a bit too grey and I am happy with that.
I know some may ladies have tried oils and shampoos so I am sure they will be on soon to share.
Best wishes x x x
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Re: May 2017 chemo starters

Hi.ladies am from the december thread
Am coming to the end of 6 FEC chemo cycles soon and I was wondering any tips on how to encourage hair growth. Xx
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Re: May 2017 chemo starters

Thanks, ladies, for your comments. I was also told I needed to wait a year, so was surprised to receive an appointment with the reconstruction surgeon for April. Maybe that is to discuss my options. 

I will discuss the options with him and then decide. Will keep you updated!

Jay, I am 64. 

Community Champion

Re: May 2017 chemo starters

Mai - A bean bag - really??!! I too can't be considered for recon for a year so we've got lots of time to think about it!

At the moment, I'm quite happy just the way I am! However, a chat with the consultant may make a difference.........! Let's wait and see!

A year ago for you and mines the 23rd - doesn't seem possible in one way but in another when those days seemed endless........... ergh!

I wake every morning feeling delighted! x
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Re: May 2017 chemo starters

WOW Treehouse - that's the way forward, nice and quick. Good luck for Sunday x
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Re: May 2017 chemo starters

My post disappeared!!!
I just had a call from hospital. They have a cancellation for a pelvic ultrasound this SUNDAY. Looks like ovaries sooner rather than later.
Any advice ladies please. Misyangel I think you are the expert here.
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Re: May 2017 chemo starters

Just had a phone call. They have a cancellation appointment for a pelvic ultrasound THIS SUNDAY @2:00.
Any advice ladies? Looks like ovaries will be sooner than expected misyangel I think you are the expert here 😳😨
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Re: May 2017 chemo starters

Hi Mai congratulations on seeing the daffodils again. It must be a strange feeling knowing this time last year the world turned upside down but β€˜being grateful β€˜ is probably the best way to deal with it.

Lol πŸ˜‚ bean bag boobie.
Maybe one of those stress balls then you could give it a squeeze when you need to calm down ( sorry I too am not helping but she started it 😜)
Community Champion

Re: May 2017 chemo starters

Dafodil, I have to wait a year before I can be considered for recon due to the inflammatory factor and high risk for recurrence.  I don't really mind how the recon is done as long as it doesn't increase my risk of recurrence and looks somewhat similar in size.  They can stuff a bean bag in there for all I care!  Sorry, I'm not beng very helpful am I?!  It may be best to let your consultant guide you, that's what I'll do. Xx

Community Champion

Re: May 2017 chemo starters

It's my cancerversary today. Exactly one year since my diagnosis and I have seen the daffodils again!  I'm alive! I am grateful.

 

Xxxxxxx 🌼🌼🌼🌼

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Re: May 2017 chemo starters

Daffodil54 - I am one of the ladies who has had reconstructive surgery and opted to have it done at the same time as my mastectomy.  I was fortunate enough though to not need rads.  Everyone as you know is different in what they feel is best for them and I believe it’s best to follow your gut.  For me, my Nan had cancer years ago and had a mastectomy and didn’t have any recon surgery.  At the age of 12 I accidentally walked in on her at her house and saw her scars.  It really struck me and had such an impact.  I desperately didn’t want her to have to use β€˜falsies’ as she called them daily which served as a reminder to her of everything she’d been through.  Anyway, when I found out I needed a mastectomy those images came flooding back and I personally didn’t want to have to think about putting a β€˜falsie’ in daily and having an odd weight distribution, but also to not look like she did.  I chose the DIEP operation, not for the faint hearted, ask Rosie65 as we both chose this option.  This operation does require a bit of tummy fat so if you have a little to spare this is a 2 for 1 πŸ˜€ This gives the most natural look and feel like a normal breast.  There are less infection problems than implants too.  The β€˜new’ breast will increase in size just like your natural one if you put weight on and equally if you lose weight it’ll lose lose weight along with your natural one.  For me, it was an easy decision to chose this operation because I didn’t want to be back on the operating table in ten years time having an implant removed and replaced, because that’s in effect it’s shelf life.

i hope I haven’t confused issues even more, but I wanted to answer your question.  I believe the more informed we are, the better the choices we make for ourselves xx

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Re: May 2017 chemo starters

Hi ladies. Lovely to have you back daffodil 🌼. I expect the snow was a bit of a shock to the system after a holiday like that. Glad you are doing well.

I was unusual as I had immediate reconstruction after bilateral mastectomy. I have implants and have some concerns with one of them. They are also put under muscle so that affected my arm strength.
I think with everything it helped me mentally but my mum had no reconstruction and she is happy flat. It really is a very personal choice. I wouldn’t push anyone. Have whatever works for you. X x x
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Re: May 2017 chemo starters

Daffodil - I feel exactly the same as you do.  If you don't mind me asking, how old are you?  I too am getting on well with the prosphetic one and when it gets a bit heavy I revert to the knitted knocker and again, no one knows the difference.  I too have very little spare skin following op.

 

How do you feel Heather, MJK and Mai? - I think these are the three other ladies I remember who have not had any reconstruction.

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May 2017 chemo starters

Hi Jay. I am a bit unsure about reconstruction too. I would love to hear how those who've had one feel. I am getting used to my prosthesis and people don't notice that I have one. But how will I feel in the future? 

I would also need an expander as I haven't much skin to spare post op. It may be a set back to my recovery.

Advice, ladies! Please. 

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Re: May 2017 chemo starters

Hi Jay. I am a bit unsure about reconstruction too. I would love to hear how those who've had one feel. I am getting used to my prosthesis and people don't notice that I have one. But how will I feel in the future? 

I would also need an expander as I haven't much skin to spare post op. It may be a set back to my recovery.

Advice, ladies! Please. 

Member

Re: May 2017 chemo starters

Last day for Holland& Barrett half price offers.
Community Champion

Re: May 2017 chemo starters

Herceptin Ladies - there's a 10 week post Herceptin message from Yorkie on the targetted therapy forum - it's so upbeat and positive, I recommend you all have a read! x

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Re: May 2017 chemo starters

Hi Daffodil - pleased to hear you're feeling good - yes I have a bit of rib discomfort too - I think it's to do with scar tissue from the surgery and rads.  Are your aches like mine and only really affects me when I'm sleeping on that side?  I do still use my heart cushion too, which in all honesty helps!

 

I'm off to see the surgeon next Thursday - that's 6 months from surgery - I'm not sure whether he'll discuss recon - I'm still undecided - what are your thoughts?

 

I'm somewhere to feeling normal, although the herceptin injections (which, as being HER2+, I'm extremely grateful for) are causing problems with my heart (so on meds for that) and as we all know, meds are good but they do come with a list of side effects!!!  Still I've only got 5 more injections to go and the way the weeks fly by they'll soon be done.

 

Have a good day too - at least the weather is warming a little - I feel I need the sunshine to quickly arrive! x

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Re: May 2017 chemo starters

Hi Jay. No meds for me as tn. Surveillance and annual checks I think. Feeling good but also still have a bit of rib discomfort on mx side. Still sleep with my heart cushion! 

 

Reconstruction discussion in July.

 

Happy to be feeling normal! Have a good day. 

Community Champion

Re: May 2017 chemo starters

Hello Daffodil - how are you?  

 

Nice to hear from you again and only feel very slightly jealous(!) that you've seen sunshine for 10 days - what a marvellous tonic that must have been for you, I know I'm craving some sunshine and warm weather right now.

 

Good luck meeting the new onc team today - hope all goes well for you.  Can't remember where you're at - I know you've finished active treatment but are you on any meds?

 

All is pretty good with me albeit a few aches and discomforts in the mx side of the chest and lymph removal area.

 

x

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Re: May 2017 chemo starters

Hello all. I have been away to South Africa to sunshine for 10 days. Pleased everyone is doing well. 

I have my oncology appointment tomorrow to meet my new team since moving. I had previously met the surgeon and nurse, so am unsure what to expect as so far all is going well. 

Have a good day. Looking forward to spring. 

 

Community Champion

Re: May 2017 chemo starters

Treehouse - that is upsetting to read - but unfortunately it's a common thing with facebook - we have a local page where I live and so often people get really aggressive and nasty.  I think people become brave from the comfort of their armchair and behind a screen!!

 

I agree totally - life is far too short for unnecessary unpleastness. x

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Re: May 2017 chemo starters

Thanks for getting back to me Jay x
I just read an article about a local Facebook group which is supposed to be a supporting place for women. Ended up with lots of cyber bullying and unpleasantness.
Made me feel really sad. πŸ™
I know we have our moments and rant from time to time but but we are all allowed our opinions and support each other in dealing with things in our own way. I would feel devastated if I upset any of you.
Why are some people like that? Life is too short.
Community Champion

Re: May 2017 chemo starters

Hi Treehouse - I'm good today - loving a bit of spring sunshine through the window before I start my Friday routine of housework....!  Thankfully, my flushes have subsided - the main time I get them is when I wake in the morning but very short lived.  I do tend to get a few more directly after the herceptin injection - so I don't know if they cause that side effect.

 

I do the arm exercises almost every day - I have to, otherwise I cease up.  I only do them once a day when I first get out of bed. 

 

At the moment I'm going bra and prosthetic free - my rib discomfort has hugely improved so I may wear both just for work today and see how it feels.  I wonder if it's to do with lymph fluid build up?

 

It's so true what the medics say, exercise although not the first thing on your mind to want to do when you're feeling achey and have pain - it really does help (mind and body) to do it.... 

 

Have a great day xx

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Re: May 2017 chemo starters

Thanks Mai πŸ˜‚πŸ˜˜
Hope everyone is ok . We got a gorgeous spring morning here. After the night of 1000 flushes. I wish I knew what sets them off!
Aches feeling lots better after cardio funk 2. I think I need to do the arm exercises every day again. Does anyone still do them?
X x x
Community Champion

Re: May 2017 chemo starters

Treehouse, good thing Orville isn't still on the TV or you would be getting that instead of owl! ....."I'm going to help you mend your broken heart"...,.., πŸ’–

https://youtu.be/TGnuMxFnc1k

Community Champion

Re: May 2017 chemo starters

Honestly Mai - that's no way to speak to a fellow May lady - "apples to you"....! haha lol - I too fell over laughing at that one! Just how strong is that oil.....!?!?!?

I'm pleased it's not just my ribs then - yes I too had bone scan just before diagnosis so I'm quite sure it can't be anything sinister as it would have been picked up and I've read on bcc forums and other dr google sites it is quite a common effect - wonder what causes it? I'm def going to mention to surgeon in 2 weeks time. x
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Re: May 2017 chemo starters

Celebrate the good times Shi - good for you girl finishing the journey - emotional day! Enjoy each day - wake with a smile add some sparkles and come on here for a rant when you need to - a perfect formula x
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Re: May 2017 chemo starters

Twit twooo Treehouse - love it! a cute baby owl much better than thick wirey pubes! x

 

Shi Community Champion
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Re: May 2017 chemo starters

Treehouse πŸ¦‰you look beautiful 😘😘 andi and tatyana, thank you and the community champion thing is all of us, we are a team and what an amazing team mai7 took me under her wing into, thank you all does not even start to cover how much all your love support compassion laughs and everything means to me and the Oct πŸš‚. The jan girls are on the πŸ’©πŸ’©πŸ’©πŸ’©swapping obsession at the moment so any logging tips if any of you want to help get the toothpaste (to quote mai) flowing for them please pop over πŸ‘πŸ‘I do wobble but then πŸ€ͺπŸ€ͺπŸ€ͺπŸ€ͺshi takes over and I get the jukebox out πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ•ΊπŸ’ƒπŸ»πŸ’ƒπŸ»πŸ•ΊπŸ•ΊπŸ’ƒπŸ»πŸ’ƒπŸ»πŸ•ΊπŸ•Ίand have a mai7 counselling session and then the πŸŒžπŸŒžπŸŒžπŸŒΉπŸŒ·πŸŒΊπŸŒΊπŸ¦„πŸ¦„πŸ¦„πŸ¦„πŸ¦‹πŸ¦‹πŸ¦‹πŸ¦‹world is beautiful and bright πŸ’•πŸ’•βœ¨βœ¨βœ¨βœ¨shi xx
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Re: May 2017 chemo starters

Shi, many congratulations on getting to the end of the zapping! And good luck with your new life. It's great that you are a community champion now, you are so positive and happy, you give everyone such great encouragement and support. Go Shi!!!🌷🌷🌷🌷
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Re: May 2017 chemo starters

Shi, absolutely fabulous news that your done!! πŸ˜˜πŸ‘πŸ»πŸ’ƒπŸ»πŸ’«β­οΈπŸŒŸπŸŒˆπŸ·πŸ₯‚πŸΎπŸ›Ž what a β€˜journey’ hey?! Big hugs xxx

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Re: May 2017 chemo starters

You go girl. Love your positivity. My youngest just came into the kitchen. I had taken my jumper off due to a β€˜power surge’ flush.
β€˜Woah mum look at your fluffy hair, you look like a new born πŸ¦‰ owl’

Better than my sisters comment at Christmas. β€˜ looks likes pubes’
I love my family!!!
Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Hi treehouse 2 more months of daily blood thinning jabs then hope to be done. Because I was tn, going on cbd oil, black cumin seed oil, vit d tabs then once jabs done back on the matcha powder and turmeric too and πŸ™πŸ™πŸ™ but most of all going to be 😁😁😁😁and πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ•ΊπŸ•ΊπŸ•ΊπŸ’ƒπŸ»πŸ’ƒπŸ»πŸ•ΊπŸ•ΊπŸ•Ίand doing my best to always ✨✨✨✨through each day πŸ’•πŸ’•βœ¨βœ¨βœ¨shi xx
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Re: May 2017 chemo starters

Congratulations Shi Ding ding πŸ’ƒ
You got anymore treatment or are you free??? 😘😘😘😘happy for you sparkle βœ¨πŸ’«πŸΈπŸΎ