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May 2017 chemo starters

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Re: May 2017 chemo starters

Thank you Shi xx hope you are enjoying life too lovely πŸ’– have a lovely weekend everyone the sun has finally got his mojo back so enjoy the sunshine 😁
Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Treehouse 😘😘😘 you are amazing Mrs and a πŸ₯‡πŸ€Όβ€β™€οΈπŸ€Όβ€β™€οΈπŸ€Όβ€β™€οΈ ❀️❀️You. Mishy, have a fantastic holiday beautiful πŸ˜˜πŸ˜˜πŸ’•πŸ’•βœ¨βœ¨shi xx
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Re: May 2017 chemo starters

Thanks i will enjoy my weekend looking forward to walking on the beach and fish and chips from the paper πŸ‘
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Re: May 2017 chemo starters

Sunshine is a much missed friend Treehouse im so glad you feel that way today mines looming too its hard to believe its a year since this started but how far we have come too πŸ’–
Member

Re: May 2017 chemo starters

Hi Mishy glad you are having a break this weekend too. Enjoy.
Today is my cancerversary. I have woken up to sunshine 🌞. Just so glad I am still here. I have so much to be grateful for.
Love you all x x x x
Member

Re: May 2017 chemo starters

Wolfee sorry missed you out 😨
Member

Re: May 2017 chemo starters

Evening ladies Jay enjoy York, treehouse sorry to hear you have been feeling low, but im pleased your surgeon waa happy with you but also offering the scan low days are to be expected i have had a few old wobbly days since finishing treatment but also have good days too x off to Seahouses and Bamburgh on Friday for weekend really looking forward to just getting away from everything rest walks clear my head etc its much needed i think 1st mammo date is looming, is it diagnosis anniversary or surgery?? Mine were both close together either way dreading 1st one 😨
Everyone conments on how well i look its annoying sometimes!!!!!!
Got my endoscopy beginning of May or they said might be called in for a cancellation slot!!!
Anyway i started really positive and finished a proper moany minnie!!
Mai Heather Andi and rest of the May ladies hope you are all enjoying life bet you all can't wait till the weather improves this rain and cold is getting everyone down!!!!
Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Treehouse πŸ‘πŸ‘πŸ‘that all went very well then πŸ‘πŸ‘πŸ‘and brilliant news on being able to have keyhole surgery for ovaries πŸ‘πŸ‘πŸ‘you should treat yourself to a nice bit of posh cake and a coffee at a nice coffee shop now 😘😘😘so very happy all’s gone well for you πŸ’•πŸ’•βœ¨βœ¨shi xx
Member

Re: May 2017 chemo starters

Hi Shi, Jay and heather. My lovely surgeon had a good look and said several times β€˜I’m not concerned β€˜
She has offered an MRI to put my mind at rest. I said yes but want to double check with my heart surgeon as my sternum is wired together. Next appointment is October.

Letter from gynaecologist says my ovaries are unremarkable πŸ‘ and she is happy to do keyhole when I am up to it.
Deep breath .
Enjoy your road trips ladies I think we all deserve a break from all this!!!

😘😘😘😘😘😘😘😘😘
Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Jay, have a lovely time in York 😘😘treehouse 😘😘good that your surgeon fitted you in today, thinking of you ❀️❀️And as far as marshmallows go, you are the strongest, toughest, bravest, loveliest marshmallows I know treehouse, you Hoike your wonderwoman pants up, get those Bruce Lee Kung foo moves warmed up and kick everything’s ass πŸ€Έβ€β™€οΈπŸ€Έβ€β™€οΈπŸ€Έβ€β™€οΈLike you have every step of this journey beautiful girl πŸ˜˜πŸ˜˜πŸ˜˜πŸ’•πŸ’•βœ¨βœ¨shi xx
Community Champion

Re: May 2017 chemo starters

Thanks Treehouse x - Good luck with the surgeon tomorrow - hope everything goes well for you and good luck for next weeks heart scan.

 

I know what you mean - the financial side of things catches up with us all - which is to be honest with you it is a reality, which personally, I don't think we should have to worry about.  But hey it's life and we do have to face it - have you been in touch with them whilst you've been away?  Hopefully, they'll be kind to you and allow you to ease in very gently and on your terms.  I have been and continue to be extremely lucky as my employer is really understanding and sympthatic - unfortunately I appreciate not all are.

 

I love York Heather - so excited to be going - last time we stayed there was my 40th!   and this was my wish for my 50th to get back - which is happening tomorrow - ohhhh really can't wait!

Member

Re: May 2017 chemo starters

Oh Treehouse,sending a hug, sorry to hear you are having a down moment. Hopefully the BCN gets back to you and helps you.

 

Jay we are off to York on Fri to Sun night, staying with Mum. Have to work Fri and  Mo so driving up after work Fri and coming back late Sunday. 

 

Hope everyone else has enjoyed the Easter weekend.

 

H

Member

Re: May 2017 chemo starters

😘thanks Jay have a wonderful break away ( even if it is starting early) 🀞about heart scan - mine is next wed.
I got a call back , surgeon will squeeze me in tomorrow as she is doing clinic and is on holiday next 2 weeks!!!!!!
Will wait and see what she has to say . ( I don’t think she has seen the new addition to my roadmap of scars, it did ruin the lovely job she had done 😜)

Unfortunately the financial side of things is beginning to catch up on us. Work is starting to become a reality I need to face soon πŸ™.

Community Champion

Re: May 2017 chemo starters

Hi Treehouse - I'm pleased to hear you had a good Easter - I did too, really lovely break.

 

I'm sorry to hear you're having a meltdown - don't worry nor apologise lovely - we all have them - even those who don't have half as many reasons as us have them - perfectly normal.

 

I hope the bcn gets back to you quickly and can help eleviate your fears and concerns.

 

Stop feeling useless - you're far from that and why on earth are you worrying about returning to work?  Come on Treehouse you're strong - you've proved it time and time again - these are small little niggles which in the big scheme are nothing at all.  Pick yourself up, dust off and smile - come on girl you can do it...

 

I've been for echoscan this morning - had to get out of my bed at some unearthly hour of 8am, get washed, dressed and be escorted to hospital - YUK.  Lovely lady today did the scan - she was really chatty and pleasant - a welcome change!  Fingers crossed now that my heart is behaving and next herceptin (which is next Thurs will be able to go ahead as planned).

 

We're off to York tomorrow, leaving at silly o'clock (think hubby mentioned 5am!) .  We're staying 2 nights in York and one night in Lincoln - returning back home via Derby on Saturday.  My Sister is kindly moving into our home whilst we're away so she can look after the dog without disturbing her daily routine!  So I'm busy thinking about packing and at the same time - keeping the house in good order - a tough challenge!

 

I'd best go - want to walk dog, do some ironing and pack the suitcase all before hubby gets home at 5.30!

 

and Treehouse - just remember you're strong you can get past this marshmallow meltdown... xx

 

Member

Re: May 2017 chemo starters

Hi all how you doing?
I have had a lovely weekend with all the family. My mum turned 73 yesterday which had a family celebration πŸŽ‰.
Today however I feel really low. Phoned bcn about boob concerns and now waiting for a call back. Started leaking 😒and can’t stop. I have been fine emotionally for ages. But today I am a total marshmallow.
I feel like a useless mum in the Easter holidays hiding til I pull myself together.
Also worried about going back to work. Can’t firm up a date till I know what’s going on with ovaries.
🀯 having a meltdown today πŸ˜’πŸ™
Community Champion

Re: May 2017 chemo starters

Hi Mishy - the weather is so unseasonal isn't it?  The sun when it shines is quite warm the only problem is it doesn't shine long enough!  

 

A good way to describe it - page 3!

 

Enjoy your weekend to Bamburgh next week, what can be better than a good breakfast followed by fish and chips beside the sea - not a lot in my opinion!

 

Yes the pains following rads are very common and my surgeon confirmed on Thursday - it's definitely the rads which do it and unfortunately it can last quite some time..... no quick fix!

 

Enjoy the rest of the Easter - going to be having a big fat roast beef dinner tomorrow, with my Dad and Sister coming to us too - can't wait - I am looking foward to doing it all as I couldn't manage to do it myself at Christmas as was just out of rads.  

Member

Re: May 2017 chemo starters

Hi everyone good to see you are all well weather is rubbish no gardening this Easter weekend 😝
The boob thing is very true my baps have been out more times than a page 3!!!
Got a weekend in Bamburgh next week so hopefully this weather will be over by then can't wait for some sea air and some lovely walks the b&b overlooking the sea front is lovely they do a cracking breakfast also will have some fish and chips 😊 my healthy eating has gone a bit off these last 2 weeks must get back on track ice been so good since diagnosis
Still having pain in boob and under arm since rads and also having the rib pain apparently quite common after rads i was told at follow up
Have a lovely Easter everyone πŸ£πŸ’–
Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Jay, brilliant news πŸ‘πŸ‘πŸ‘πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ•ΊπŸ•ΊπŸ’ƒπŸ»πŸ’ƒπŸ»I know what you mean about boobies out πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£don’t I mai πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ’•πŸ’•βœ¨βœ¨βœ¨shi xx
Community Champion

Re: May 2017 chemo starters

Ahh that'll be what he was checking Mai - I just couldn't help but laugh and he did too!  He was talking at the same time about how Easter was celebrated more in other countries than it is in England - very surreal!  

 

I must admit ladies, I'm also regaining my privacy as I felt quite embarrased to be laying back topless with a consultant bent over me and a nurse watching from the sideline! - how things change, as this time last year I just used to pop them out all the time (it seemed) for all and sundry to see!  I almost felt that if I went to the dentist I'd pop them out - just because that was all I seemed to do whenever I went to see anyone in the "health line"......!  

 

A bit like when you give birth! 

 

x

Community Champion

Re: May 2017 chemo starters

That's fantastic news Jay.  You must be feeling relieved and growing a little in body confidence.  The torso tapping is to make sure the lungs are clear as they resonate different if they have fluid ( I know this from asking my consultant why they were tapping!).  If it was abdominal tapping, I have no idea what that was for!  I feel the same as you about recon. I'm in my comfort zone but open minded too. πŸ’— Xxx 

Member

Re: May 2017 chemo starters

Hi all
Fantastic news for you Jay that is so reassuring πŸ‘πŸ˜˜
Have a great Easter weekend. Let us know if anyone sees ❄️
Community Champion

Re: May 2017 chemo starters

Good Morning Ladies - one word sums up how I'm feeling and that word is simply " Hooray!" Had a very successful meeting with the consultant late yesterday afternoon - appointment was 4.20 - got in to see him around 5! But hey it was worth it to be told after a full examination that all is good and he's very happy with his handiwork(!) - he gave me a thorough checking over of op site and under both arms as well as the mono boob and neck and even tapped my trunk - anyone know what that's for?! - anyway conclusively he doesn't want to see me for a year! He's going to book me a mammogram for the mono boob sometime end April beginning of May and hopefully the result will be with my onc when I see her mid May! He's also going to refer me to specialist team at another hospital for discussion on reconstruction - but that can't be performed until 12 months after rads - so at earliest they would consider surgery is end of the year beginning of next - at the moment, however, I'm happy to stay as I am - in my "comfort zone"...... but I do also remain open minded! Needless to say, I came out of the hospital skipping!!!
 
Happy Easter to everyone.  xxx
Member

Re: May 2017 chemo starters

Thanks, Shi. Happy, healthy Easter to everyone. 

Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Have a beautiful 🐣 Easter everyone, lots of ❀️❀️❀️And hugs and ✨✨✨✨shi xx
MJK
Member

Re: May 2017 chemo starters

Good morning Jay. I hope today goes well both the check up and 30 tired children high on chocolate!
Community Champion

Re: May 2017 chemo starters

Good morning ladies! and today the sun is shining (so far) and I'm leaping around full of the joys of spring!  

 

At 4.20 I have my 6 month post-surgery check up with the breast consultant and all I have in my mind right now is Wolfee's quote of the day which is, "Don't waste your time looking back, you're not going that way...." - thanks for putting the positive part back in my step today lovely!

 

Will report back at some point to say how it went.

 

Have a great day everyone - Easter is just around the corner - I've just got to get through today's session at work (which is getting trickier each day as the children are ready for a 2 week holiday, as are the staff!!) and then I've got a full 11 days off.... YIPPPEEE!  

 

Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Yep Wolfee, a chap rocking a zz top beard the other day tipped me off about extra dark Jamaican black castor oil to help hair growth and thicken it up, he said rub it in and then leave for however long you want them wash out. πŸ’•πŸ’•βœ¨βœ¨shi xx
Community Champion

Re: May 2017 chemo starters

WolfEE - thanks for sharing your caster oil tips. I believe coconut oil (conditioners) are good for hair growth and strength too.

Caster oil is quite good for a number of health issues - worth goggling it!
Community Champion

Re: May 2017 chemo starters

MJK - hooray for the return!  

 

That's what I believe is true but I just wondered with the measles one as it can be quite serious without any protection but again, the vaccine is a live one!

 

 

MJK
Member

Re: May 2017 chemo starters

Hi everyone. I'm back on here. Sorry I won't be able to catch up with all the thread.
Love the bra Mai7.
There's lots of chicken pox around. Half my son's clasd have been off with it. I think if you've had it before or had a vaccine you should be ok. For most of us our immune system should be recovering pretty well by now.
I hope all goes well today Treehouse.
Member

Re: May 2017 chemo starters

Typos sorry!! Google good reasons to put caster oil in hair πŸ˜‚
Member

Re: May 2017 chemo starters

Karebare, caster oil is fantastic I put it on my hair still once a week and then I use a cotton bud and dab it on my lashes every 3 days and omg they have thickened quickly and in sure my hair has also.
If you google caster oil (you need to get cold pressed) you’ll see all the goos reasons. It is thick and sticky kind of oil.
I tend to put it on now and my hair is fairly long on Friday night then usel one of my sleep chemo caps and sleep with it in. I then Saturday morning lay in Epsom salt bath for 20 mins and lay my head in the water rinse it out and also the salts soften my hair or it feels like it does. Then when I empty the bath I’ll quickly stand under the shower and wash my hair making sure all the oil is out.
Community Champion

Re: May 2017 chemo starters

Good idea of yours Treehouse - I've opened a thread under the "Ask the Nurse" section - I'll report back once I hear something.

I've been reading this morning and it would appear 6 months after chemo before considering a live vaccine and of course the MMR is live - we're just out of the 6 month period - it makes me a little nervous if I'm honest!
Member

Re: May 2017 chemo starters

Oh interesting question jay. My dad had the live shingles jab last week and the nurse got in a flap when he told her about me.
My guess is that by now we have a recovering immune system .

Are there any nurses on here (BCC) who can advise
Community Champion

Re: May 2017 chemo starters

Ladies, does anyone know anything about how our immunity was/is affected following chemo and other treatments with regards to illnesses like chicken pox and MMR?  

 

The reason I ask, is Measles is on the up - and it's been reported in my area (thankfully not at the school I work in) - but yesterday the school issued guidelines which Public Health England have asked them to distribute.  It makes me feel anxious when I read the literature.  I was innoculated against these illnesses as a child but wonder if chemo, in particular, may have altered my resistance.

 

Any advice most welcome....... 

Community Champion

Re: May 2017 chemo starters

Treehouse - I couldn't believe it!  So frustrating when someone damages your property but don't even bother to put a sorry note on the windscreen to apologise.  I appreciate accidents happen but lack of honesty or sincerity - there's no excuse for it!

 

Yes I'm hoping they do and even more hope the echo scan booked for 3 April will show an improvement in my percentage!   

x

Good luck now for the consultant appointment.  

 

My thighs have been really achey too and muscles in my arms and chest areas.  Well done on your promotion!  I wish I had the momentum to exercise on top of my walking - I really need to as I know it will help everything.  My arm and right hand side of my chest are so tight and uncomfortable - exercise works but I haven't got the energy to do it....!  

Member

Re: May 2017 chemo starters

Hi Jay
Rubbish news about the car. We had something similar about a year ago. Some idiot dented our bumper and drove off. We didn’t notice in the car park. Only spotted it when we got home. Soooo annoying!!
Hope the pills work their magic on the bp soon. Mine is the opposite and drops too low. I have not been having blood tests for kidneys since I left hospital πŸ™πŸ€¨. I might mention that next time I go in. So scan andbloods done just got to wait for consultant appointment.

I had very aches thighs after herceptin on Thursday . Starting to ease off today. Could still be exercise related .
Did I mention I got promoted and start in the younger cardiac group twice a week after Easter. I will be fitter than I was before cancer at this rate. I only get 8 weeks in total so must make sure I find a way to keep going after it finishes. πŸƒπŸ»β€β™€οΈπŸ€ΈπŸ»β€β™‚οΈπŸ§˜β€β™€οΈπŸŠπŸ»β€β™‚οΈπŸš΄β€β™€οΈ
Community Champion

Re: May 2017 chemo starters

Treehouse - went to see GP - so much for stopping rampiril - he's actually upped my dosage to 2.5mg a day as my blood pressure is too high!  I had to have bloods taken too as this drug can affect the kidneys and just want to check they're ok now and got to have another blood test in 3/4 weeks to ensure kidneys still the same!   Came out of the hospital after doing blood test to find some idiot had scrapped the bumper of the car and drove off without leaving a note - thank you!!  Anyway, got new dose tabs which I'm starting today!

Community Champion

Re: May 2017 chemo starters

Ergh an internal ultrasound in pelvic area doesn't sound very comfortable at all!

Yes I've picked up through your threads that your GP has been really amazing - it's great when you have a good one. I've not yet met mine!

I have to stay on the ramapril... my heart went down to 54% - they don't really like it going below 60%. After the last scan on 26 Feb it was back up to 59% so no delay in herceptin. I think the idea is to keep me on the ramparil now until end of herceptin. They are having to keep an eye on my blood pressure too. Last week when I went it was a bit high 91/151! I have my next echo heart scan on 3 April - fingers crossed it hasn't gone back down.

Some schools in our area finish on Wed but mine and my boy are both Thurs - however, I do have inset day on 16/4 - so a further day off for me and I've already arranged lunch out with a really good friend, who's had her own fair share of problems this year and we're going to enjoy a celebratory lunch!

We have a few birthdays in the family coming up too, it's nice to have something to celebrate. xx
Member

Re: May 2017 chemo starters

Hi Jay sounds like a lovely day πŸ‘.
Yes internal ultrasound 😝
My GP has been fantastic. Hope your review goes ok. Can you come off ramapril now your heart scan is improved? ( have you had another heart scan or am I making this up?)
My lot all finish on Wednesday. Lots of birthdays in April so a lovely holiday with celebrating x x
Community Champion

Re: May 2017 chemo starters

Hi Treehouse - pleased to hear the scan today went OK - was it ultrasound?  Good luck with the blood tests tomorrow.  Will have fingers crossed for you when it comes to results - when do you expect to get the results and discuss further with consultant?  Don't blame you for wanting it out of the way and moving forward.

 

I've got GP appointment tomorrow (their request - for a meds review(!) - I'm only on the one - rampiril.  Mind you, in a funny kind of way, I'm kind of looking forward to it as I haven't actually seen my GP throughout this whole journey(!) - I went to surgery when I found the lump but my own GP was unavailable and I saw a locum and thankfully throughout treatment I've been fortunate to get by with just seeing onc and consultant.  I wonder what my blood pressure is going to be like....???   

 

Got my six month post surgery appointment with consultant on Thursday at 4.20!  

 

Had a lovely day today - been with hubby and son to our county town today for a little bit of browsing in charity shops and other independent little shops - was a very enjoyable day with lots of walking!  Arrived home and walked the dog and then set to and cooked delicious roast chicken dinner followed by apple strudel - yum! 

 

Hope eveyone else has had a good weekend.  A four day working week this week and then I've got just over 2 weeks off - YIPPPEEE!! x

 

Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Treehouse 😘😘🀞🀞for results and blood test tomorrow lovely lady 😘😘 πŸ’•πŸ’•βœ¨βœ¨βœ¨shi xx
Member

Re: May 2017 chemo starters

Hi all hope you are making the most of the spring weather. So pelvic scan was not my favourite but I have had worse procedures. Sonography said she couldn’t see anything unusual and my consultant should get the results tomorrow. I also have CA125 blood tests tomorrow. Not looking forward to further surgery. But want it out of the way so I can finally move forward 🀞without any more setbacks.
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Re: May 2017 chemo starters

Evening ladies Mai loving the bra pic πŸ‘been a lovely couple of days sunny but spring has arrived so im pleased
Have granddaughter for the evening so having loads of fun and baby cuddles x
My cancerversary is in a few weeks 😨 can't believe jts nearly been a year oh its hard to remember who i was before this but i know who I am now!! Less tolerant of whingers but also grateful to be alive so as im sure all of you feel that way too
Have a lovely weekend ladies πŸ’–
Community Champion

Re: May 2017 chemo starters

Mai - I love the bean bags! and as for the massive bra.... haha! x
Community Champion

Re: May 2017 chemo starters

Hi Mai, yes I feel exactly  the same - just glad to be alive and celebrating waking up each day and embracing what that day brings!  Not always good but then I wouldn't like my days perfect everyday!

 

 

Member

Re: May 2017 chemo starters

πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚. Whaaaaat?!?!??
Ok looks like there is nothing stopping you.
Community Champion

Re: May 2017 chemo starters

Sorry! πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚

image.jpeg

Member

Re: May 2017 chemo starters

Good luck finding a bra πŸ˜‚
Community Champion

Re: May 2017 chemo starters

Do you think it would be a bit over-compensatory to have one of these? πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚