cancel
Showing results for 
Search instead for 
Did you mean: 

May 2017 chemo starters

Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Have a beautiful 🐣 Easter everyone, lots of ❤️❤️❤️And hugs and ✨✨✨✨shi xx
MJK
Member

Re: May 2017 chemo starters

Good morning Jay. I hope today goes well both the check up and 30 tired children high on chocolate!
Member

Re: May 2017 chemo starters

Good morning ladies! and today the sun is shining (so far) and I'm leaping around full of the joys of spring!  

 

At 4.20 I have my 6 month post-surgery check up with the breast consultant and all I have in my mind right now is Wolfee's quote of the day which is, "Don't waste your time looking back, you're not going that way...." - thanks for putting the positive part back in my step today lovely!

 

Will report back at some point to say how it went.

 

Have a great day everyone - Easter is just around the corner - I've just got to get through today's session at work (which is getting trickier each day as the children are ready for a 2 week holiday, as are the staff!!) and then I've got a full 11 days off.... YIPPPEEE!  

 

Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Yep Wolfee, a chap rocking a zz top beard the other day tipped me off about extra dark Jamaican black castor oil to help hair growth and thicken it up, he said rub it in and then leave for however long you want them wash out. 💕💕✨✨shi xx
Member

Re: May 2017 chemo starters

WolfEE - thanks for sharing your caster oil tips. I believe coconut oil (conditioners) are good for hair growth and strength too.

Caster oil is quite good for a number of health issues - worth goggling it!
Member

Re: May 2017 chemo starters

MJK - hooray for the return!  

 

That's what I believe is true but I just wondered with the measles one as it can be quite serious without any protection but again, the vaccine is a live one!

 

 

MJK
Member

Re: May 2017 chemo starters

Hi everyone. I'm back on here. Sorry I won't be able to catch up with all the thread.
Love the bra Mai7.
There's lots of chicken pox around. Half my son's clasd have been off with it. I think if you've had it before or had a vaccine you should be ok. For most of us our immune system should be recovering pretty well by now.
I hope all goes well today Treehouse.
Member

Re: May 2017 chemo starters

Typos sorry!! Google good reasons to put caster oil in hair 😂
Member

Re: May 2017 chemo starters

Karebare, caster oil is fantastic I put it on my hair still once a week and then I use a cotton bud and dab it on my lashes every 3 days and omg they have thickened quickly and in sure my hair has also.
If you google caster oil (you need to get cold pressed) you’ll see all the goos reasons. It is thick and sticky kind of oil.
I tend to put it on now and my hair is fairly long on Friday night then usel one of my sleep chemo caps and sleep with it in. I then Saturday morning lay in Epsom salt bath for 20 mins and lay my head in the water rinse it out and also the salts soften my hair or it feels like it does. Then when I empty the bath I’ll quickly stand under the shower and wash my hair making sure all the oil is out.
Member

Re: May 2017 chemo starters

Good idea of yours Treehouse - I've opened a thread under the "Ask the Nurse" section - I'll report back once I hear something.

I've been reading this morning and it would appear 6 months after chemo before considering a live vaccine and of course the MMR is live - we're just out of the 6 month period - it makes me a little nervous if I'm honest!
Member

Re: May 2017 chemo starters

Oh interesting question jay. My dad had the live shingles jab last week and the nurse got in a flap when he told her about me.
My guess is that by now we have a recovering immune system .

Are there any nurses on here (BCC) who can advise
Member

Re: May 2017 chemo starters

Ladies, does anyone know anything about how our immunity was/is affected following chemo and other treatments with regards to illnesses like chicken pox and MMR?  

 

The reason I ask, is Measles is on the up - and it's been reported in my area (thankfully not at the school I work in) - but yesterday the school issued guidelines which Public Health England have asked them to distribute.  It makes me feel anxious when I read the literature.  I was innoculated against these illnesses as a child but wonder if chemo, in particular, may have altered my resistance.

 

Any advice most welcome....... 

Member

Re: May 2017 chemo starters

Treehouse - I couldn't believe it!  So frustrating when someone damages your property but don't even bother to put a sorry note on the windscreen to apologise.  I appreciate accidents happen but lack of honesty or sincerity - there's no excuse for it!

 

Yes I'm hoping they do and even more hope the echo scan booked for 3 April will show an improvement in my percentage!   

x

Good luck now for the consultant appointment.  

 

My thighs have been really achey too and muscles in my arms and chest areas.  Well done on your promotion!  I wish I had the momentum to exercise on top of my walking - I really need to as I know it will help everything.  My arm and right hand side of my chest are so tight and uncomfortable - exercise works but I haven't got the energy to do it....!  

Member

Re: May 2017 chemo starters

Hi Jay
Rubbish news about the car. We had something similar about a year ago. Some idiot dented our bumper and drove off. We didn’t notice in the car park. Only spotted it when we got home. Soooo annoying!!
Hope the pills work their magic on the bp soon. Mine is the opposite and drops too low. I have not been having blood tests for kidneys since I left hospital 🙁🤨. I might mention that next time I go in. So scan andbloods done just got to wait for consultant appointment.

I had very aches thighs after herceptin on Thursday . Starting to ease off today. Could still be exercise related .
Did I mention I got promoted and start in the younger cardiac group twice a week after Easter. I will be fitter than I was before cancer at this rate. I only get 8 weeks in total so must make sure I find a way to keep going after it finishes. 🏃🏻‍♀️🤸🏻‍♂️🧘‍♀️🏊🏻‍♂️🚴‍♀️
Member

Re: May 2017 chemo starters

Treehouse - went to see GP - so much for stopping rampiril - he's actually upped my dosage to 2.5mg a day as my blood pressure is too high!  I had to have bloods taken too as this drug can affect the kidneys and just want to check they're ok now and got to have another blood test in 3/4 weeks to ensure kidneys still the same!   Came out of the hospital after doing blood test to find some idiot had scrapped the bumper of the car and drove off without leaving a note - thank you!!  Anyway, got new dose tabs which I'm starting today!

Member

Re: May 2017 chemo starters

Ergh an internal ultrasound in pelvic area doesn't sound very comfortable at all!

Yes I've picked up through your threads that your GP has been really amazing - it's great when you have a good one. I've not yet met mine!

I have to stay on the ramapril... my heart went down to 54% - they don't really like it going below 60%. After the last scan on 26 Feb it was back up to 59% so no delay in herceptin. I think the idea is to keep me on the ramparil now until end of herceptin. They are having to keep an eye on my blood pressure too. Last week when I went it was a bit high 91/151! I have my next echo heart scan on 3 April - fingers crossed it hasn't gone back down.

Some schools in our area finish on Wed but mine and my boy are both Thurs - however, I do have inset day on 16/4 - so a further day off for me and I've already arranged lunch out with a really good friend, who's had her own fair share of problems this year and we're going to enjoy a celebratory lunch!

We have a few birthdays in the family coming up too, it's nice to have something to celebrate. xx
Member

Re: May 2017 chemo starters

Hi Jay sounds like a lovely day 👍.
Yes internal ultrasound 😝
My GP has been fantastic. Hope your review goes ok. Can you come off ramapril now your heart scan is improved? ( have you had another heart scan or am I making this up?)
My lot all finish on Wednesday. Lots of birthdays in April so a lovely holiday with celebrating x x
Member

Re: May 2017 chemo starters

Hi Treehouse - pleased to hear the scan today went OK - was it ultrasound?  Good luck with the blood tests tomorrow.  Will have fingers crossed for you when it comes to results - when do you expect to get the results and discuss further with consultant?  Don't blame you for wanting it out of the way and moving forward.

 

I've got GP appointment tomorrow (their request - for a meds review(!) - I'm only on the one - rampiril.  Mind you, in a funny kind of way, I'm kind of looking forward to it as I haven't actually seen my GP throughout this whole journey(!) - I went to surgery when I found the lump but my own GP was unavailable and I saw a locum and thankfully throughout treatment I've been fortunate to get by with just seeing onc and consultant.  I wonder what my blood pressure is going to be like....???   

 

Got my six month post surgery appointment with consultant on Thursday at 4.20!  

 

Had a lovely day today - been with hubby and son to our county town today for a little bit of browsing in charity shops and other independent little shops - was a very enjoyable day with lots of walking!  Arrived home and walked the dog and then set to and cooked delicious roast chicken dinner followed by apple strudel - yum! 

 

Hope eveyone else has had a good weekend.  A four day working week this week and then I've got just over 2 weeks off - YIPPPEEE!! x

 

Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Treehouse 😘😘🤞🤞for results and blood test tomorrow lovely lady 😘😘 💕💕✨✨✨shi xx
Member

Re: May 2017 chemo starters

Hi all hope you are making the most of the spring weather. So pelvic scan was not my favourite but I have had worse procedures. Sonography said she couldn’t see anything unusual and my consultant should get the results tomorrow. I also have CA125 blood tests tomorrow. Not looking forward to further surgery. But want it out of the way so I can finally move forward 🤞without any more setbacks.
Member

Re: May 2017 chemo starters

Evening ladies Mai loving the bra pic 👍been a lovely couple of days sunny but spring has arrived so im pleased
Have granddaughter for the evening so having loads of fun and baby cuddles x
My cancerversary is in a few weeks 😨 can't believe jts nearly been a year oh its hard to remember who i was before this but i know who I am now!! Less tolerant of whingers but also grateful to be alive so as im sure all of you feel that way too
Have a lovely weekend ladies 💖
Member

Re: May 2017 chemo starters

Mai - I love the bean bags! and as for the massive bra.... haha! x
Member

Re: May 2017 chemo starters

Hi Mai, yes I feel exactly  the same - just glad to be alive and celebrating waking up each day and embracing what that day brings!  Not always good but then I wouldn't like my days perfect everyday!

 

 

Member

Re: May 2017 chemo starters

😂😂😂😂. Whaaaaat?!?!??
Ok looks like there is nothing stopping you.
Community Champion

Re: May 2017 chemo starters

Sorry! 😂😂😂😂

image.jpeg

Member

Re: May 2017 chemo starters

Good luck finding a bra 😂
Community Champion

Re: May 2017 chemo starters

Do you think it would be a bit over-compensatory to have one of these? 😂😂😂😂😂

Shi Community Champion
Community Champion

Re: May 2017 chemo starters

🤣😂🤣😂😂🤣😂🤣😂mai, 🤣😂😂🤣😂🤣😂💕💕✨✨shi xx
Member

Re: May 2017 chemo starters

😂😂😂😂😂 Mai that’s hilarious, everybody needs a bosom for a pillow.
I’m a lazy moo today. Legs feel like lead and still have a strange patch after injection. Heart rate is ok but I am still on low dose beta blockers to control it.
Community Champion

Re: May 2017 chemo starters

Ladies, speaking of bean bag boob. Check this out: 😂😂😂😂😂

 

image.jpeg

Community Champion

Re: May 2017 chemo starters

Jay, happy cancerversary!  How are you feeling about it?  I thought I'd feel upset but no, I just felt glad to be alive!  It didn't have quite the impact I expected.  I think every day is blessing and to be celebrated now. Xx

 

Treehouse, sending hugs.  Hope the Herceptin aches and pains soon wear off.  How is your heart rate doing now you've had the Herceptin?  Xx 

Community Champion

Re: May 2017 chemo starters

Hi Karebear, my hair was growing so slowl I took the plunge and ordered a hair treatment from 

Living with Cancer web site . Conditioner, shampoo and scalp stimulant. It appeared to work !!😍  I ended up with little corkscrew curls, then a gigantic afro! I've had two haircuts now, and love my new short funky hair. I'm not going to have it coloured, which I did for years, as the platinum grey looks ok. I'm using a mild shampoo and conditioner from Boots. I got hold of their cancer consultant and she was very helpful. No parabans etc etc etc. Hope this helps. X

Member

Re: May 2017 chemo starters

Treehouse, thank you for the hugs and indeed it is a strange day - I get a cold shudder when I stop and think - I can (believe it or not) still hear the surgeon's words as he held my hands - but HEY! - one year on and I'm still here - got to be good! Thankfully, with the wonderful team at the NHS who took over my body - I'm alive and I will get back to full fitness again, one day - that bit is down to me to sort out!!

The sun is trying to come out here and no one can lay in bed once that happens! I'm just about to start my Friday housework so the house is tidy and clean for the weekend! Then I'm off to work (hope today is better than yesterday - the children were so out of character yesterday - I guess it's the sun and the thought of the easter bunny arriving sometime soon)!

I hope you manage to enjoy your day Treehouse and the aches quickly diminish xx
Member

Re: May 2017 chemo starters

Hi Jay. Cancerversary is a strange one. Mine is a couple of weeks time. Just look how far we have come. So glad we found it soon enough. Hugs to you my lovely friend x x
( I might get out of bed soon, the birds are singing)
Member

Re: May 2017 chemo starters

Good morning Treehouse.

It really does make a difference how the nurse administers the injection. Thankfully, yesterday I had the same nurse as I've had the previous 3 times and she's brilliant - I actually don't feel a thing.

It's not good to wake with everything aching - especially at 3am. It could be a mixture of exercise and injection. If I were you I'd give myself plenty of time this morning and then maybe go for just a gentle stroll somewhere nice and flat. I can imagine how you feel, just walking into the hospital environment once in a day reminds you of the on-going situation. Although, I'm scared i've only got 4 more - I'm so going to miss the ward I go to and even more all the staff there... and of course, the friend I've made during chemo - who actually only has 2 more injections to go! In another way, I can't bl**dy wait!!!

A year ago today - was my day of diagnosis................. :-((
Member

Re: May 2017 chemo starters

Morning all ug
I had rehab followed by herceptin yesterday. Really struggled to sleep.
I
Normally the nurse goes straight into my thigh as deep as possible. Yesterday a different nurse went in sideways quite near to the surfaces. I now have a pale patch of skin about the size of a saucer?!?! Also woke up at 3:00 with all my joints aching, knees hips elbows. Don’t know if I blame the exercises or injection. Not sure if I try to walk it off or just veg today. Hope everyone is ok. 2 hospital visits in one day has put me in a strange mood today. Back to being a patient. Don’t like it.
Member

Re: May 2017 chemo starters

Hi Karebear. My hair started to grow back during the T part of FECT. I used menthol shampoo every other day. Also massaged my head a few times a day, especially in the evenings when sat watching tv. It does grow back quite fast when it starts, seems like forever. I finished chemo 24 Aug and have had my 1st proper hair cut a few weeks ago.

 

H

Member

Re: May 2017 chemo starters

Can’t get pics to load, so second best option is to give you their website address with all their info on it ... www.nicolajane.com
Happy to answer any questions!
Member

Re: May 2017 chemo starters

So today I went for a bra fitting at the Breast Care Unit with a bra specialist from Nicola Jane. I’ll post some contact information next. I just wanted to say, they made me feel so at ease (Jackie the fitter has had breast cancer 8 years ago so knows how we feel) There was a good range on offer, and although my new boob hasn’t quite dropped enough with gravity, she had me wearing bras that made me look symmetrical 😀 Can highly recommend them. The quality of the fabrics are very good, on the whole I was very impressed. As a company they are trying to get contacts with a lot more hospitals so that fitters can book slots to see women on certain days in Breast Care units....
Member

Re: May 2017 chemo starters

Mai - What a difference a year makes, enjoy those daffodils 🌼💕 xx
Member

Re: May 2017 chemo starters

Treehouse - Blimey I bet that felt rather sudden hearing it’s Sunday, but it’s not quite Surgery just yet so it’ll give you time to get your head round it before the go ahead. Wish you didn’t have to have more, you’ve had your air share bless you xx
Member

Re: May 2017 chemo starters

Hi Karebear, Well done on getting through the chemo with one more to go, it’s hard going but well worth it in the end. As far as hair regrowth I never used anything, just my usual shampoo and conditioner. I was amazed in fact by how quickly my hair grew back on its own. Within 3 months I had a full head of hair which has come back so much thicker and got some curl! It can feel like forever waiting for it to grow so I’d recommend taking a photo of yourself straight after chemo, then another one 4 weeks later, you’ll be amazed at the change. I did this for 3 months just to see the change. I’m convinced it’s complely stopped now because I have no photo references now, but family say they’ve noticed it getting longer. Wishing you all the very best xx
Member

Re: May 2017 chemo starters

Hi Karebear lovely to hear from you. Glad you have got through the toughest part. Chemo is tough . Have you had surgery yet?
I am really sorry but I have no words of wisdom regarding hair growth. To be honest I had a few complications to worry about so Hair was not on my radar. It is back thicker, curly and a bit too grey and I am happy with that.
I know some may ladies have tried oils and shampoos so I am sure they will be on soon to share.
Best wishes x x x
Member

Re: May 2017 chemo starters

Hi.ladies am from the december thread
Am coming to the end of 6 FEC chemo cycles soon and I was wondering any tips on how to encourage hair growth. Xx
Member

Re: May 2017 chemo starters

Thanks, ladies, for your comments. I was also told I needed to wait a year, so was surprised to receive an appointment with the reconstruction surgeon for April. Maybe that is to discuss my options. 

I will discuss the options with him and then decide. Will keep you updated!

Jay, I am 64. 

Member

Re: May 2017 chemo starters

Mai - A bean bag - really??!! I too can't be considered for recon for a year so we've got lots of time to think about it!

At the moment, I'm quite happy just the way I am! However, a chat with the consultant may make a difference.........! Let's wait and see!

A year ago for you and mines the 23rd - doesn't seem possible in one way but in another when those days seemed endless........... ergh!

I wake every morning feeling delighted! x
Member

Re: May 2017 chemo starters

WOW Treehouse - that's the way forward, nice and quick. Good luck for Sunday x
Member

Re: May 2017 chemo starters

My post disappeared!!!
I just had a call from hospital. They have a cancellation for a pelvic ultrasound this SUNDAY. Looks like ovaries sooner rather than later.
Any advice ladies please. Misyangel I think you are the expert here.
Member

Re: May 2017 chemo starters

Just had a phone call. They have a cancellation appointment for a pelvic ultrasound THIS SUNDAY @2:00.
Any advice ladies? Looks like ovaries will be sooner than expected misyangel I think you are the expert here 😳😨
Member

Re: May 2017 chemo starters

Hi Mai congratulations on seeing the daffodils again. It must be a strange feeling knowing this time last year the world turned upside down but ‘being grateful ‘ is probably the best way to deal with it.

Lol 😂 bean bag boobie.
Maybe one of those stress balls then you could give it a squeeze when you need to calm down ( sorry I too am not helping but she started it 😜)