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Registered: ‎24-03-2017

Re: May 2017 chemo starters

Treehouse - oh I  feel for you I really do, it's so horrid having to wait but personally, I take it as it can't be anything too bad or else you'd be seen urgently.  Not great and I know it's difficult but try and put it to the back of your mind - easily said, I know how I felt very recently but really try not to worry my lovely xx

 

Member
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Re: May 2017 chemo starters

Hmmm just phoned surgeon’s secretary and she said clinic is busy and surgeon will be away for next 2 weeks so will have to wait for an appointment 🙁
Not sure how I feel about this. Back to waiting again ☹️
Member
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Registered: ‎29-04-2017

Re: May 2017 chemo starters

Thanks Mai i appreciate your opinion x hope today Is good for everyone don't work to hard and look forward to the heatwave coming!!
Community Champion
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Re: May 2017 chemo starters

Mishy, I agree with everything Treehouse said. You're in a difficult divided position but your daughter needs to know for her own peace of mind. X

Tree house, hope the outcome of your scans is good. It's hard to not worry about everything now, living in a body you can't trust any more! Try and keep your mind busy and focussed on good things. X
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Re: May 2017 chemo starters

Work is going well only doing an hour a day this week and I am loving the part time thing.
I had an MRI last Tuesday ( it was to check right implant as it feels a bit squishy) and am still waiting for results. I did notice another lump ( about an inch away from original tumour about the size of a pea) while having a feel the night before scan. I phoned my surgeon secretary on Wednesday but have not heard anything back so will chase up tomorrow. Trying not to worry. If it is our old enemy back for a second try it is tiny and I will kick it’s arse again.
I still get shoulder pain in right arm and when I lie on my back I can’t put my hand on the floor but I’m not sure who to tell?!?!
Member
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Re: May 2017 chemo starters

Oh Treehouse how have you got in with your tests and the work stuff my work stuff is happening now feeing really strange like the new kid on the block!!!!
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Re: May 2017 chemo starters

Treehouse 💖 thank you for your honesty i really appreciate it, i know i will have to have the test i owe it to myself as well as my daughter and him hopefully he will understand and respect this in time i really need to hear other peoples take on this as i felt like i was going mad all this conflict stuff going round in my head and yeah you can now have ovaries out as a prevention, they served you well when you needed them and gave you beautiful children but now because of the knowledge of the gene you can now keep yourself safe 💖
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Re: May 2017 chemo starters

Also knowing I am brca 1 means I am having my ovaries removed so has directed my treatment and enabling me to take preventive measures. You may need to know just for you!!!

Sorry I will shut up now x
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Re: May 2017 chemo starters

Hi Mishy oh what a difficult situation. I understand your son is having a strong emotional reaction to this and how it may affect him in the future but I personally would get tested. That will enable you to make choices about your treatment and then give your daughter the chance to get tested if she chooses. Your son doesn’t have to get the test if he doesn’t want to . But if it saves your daughter from this horrible treatment I think it is fair for her to know if she is at increased risk. ( you can give her that choice before )
I am brca 1 and this meant my sister got tested and she is clear but at least had the chance to consider if she wanted preventative surgery.
Your son does not have the right to prevent your daughter from knowing her risk if you are willing to go ahead.
The risk to men although increased is still lower than for women.

Sorry but that would be my two pence worth. Good luck with whatever you decide.
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Re: May 2017 chemo starters

Yeah Mai thanks i think i will ask too as its quite important if we could benefit from this stuff maybe thats why you are having it Jencat?? All i really know about TN and ny own particular cancer is what i mentioned in my earlier post and it was an IDC which i think is quite common site for a tumor anyhow but the word basal like is kind of ringing a bell like i have heard it before!!!!
I have a family quandary ladies had genetic counselling meeting 2 weeks ago my app for testing should i wish to go ahead is 29th the quandary is my son doesn't want me to have it hes a doesn't want to spend his time worrying he could get cancer but my daughter does want to know as a woman and mother herself basically they both know that i may not have it anyway and there is no guarantee if i had either of them would have it anyway but he has point blank said no!!??? Advice on this one from you all would be really helpful or just an opinion 🤔🤔🤔😨😨😨
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Re: May 2017 chemo starters

Mai - thank you for flagging it up - I'll be checking with my onc when I next see her in August (which should be my final one....!).  x

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Re: May 2017 chemo starters

Morning ladies just had a look at the article Mai The only thing i remember about my TN diagnosis tumor was described aa an ill defined mass grade 3 with high grade surrounding DCIS never offered the zolendric acid infusions didn't get my pathology report!!!
Community Champion
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Re: May 2017 chemo starters

Jay and Jencat, I just read this article and I'm non the wiser about basal! 😂 do we get to know if we are basal or is that a research only marker at present. May have to request histology report? https://bmcmedgenomics.biomedcentral.com/articles/10.1186/s12920-017-0250-9
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Registered: ‎21-06-2017

Re: May 2017 chemo starters

Hi Mai and Jay, I'm from the Oct thread and TN. I was given Zoldronic Acid every other chemo and then as a stand alone infusion in April and will do again in Oct and then six monthly for another couple of years. My oncologist told me that it was orginally given to protect the bones, but in fairly recent studies in the US it was shown to help prevent recurrances of bc. I've been told to make sure that I have regular dental check ups as it can affect the jaw x

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Re: May 2017 chemo starters

Hi Mai - thank you sharing that interesting article.  Forgive me but is basel-like breast cancer the same as triple negative?  The lady I met during chemo - she's HER2+, but she's on this acid infusion twice a year - it's for bones - ie if you have arthitis in your family or your bone scans have shown a sign of it.  I didn't know they were using it like a targetted therapy - very interesting.  It does have side effects associated with it though - ie gum problems - making some dentistry a little complicated. 

 

The beautiful weather is slightly breaking down here with the odd rumble of thunder, ergh!  However, the birds are still chirping!

 

Community Champion
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Registered: ‎19-04-2017

Re: May 2017 chemo starters

Hope everyone enjoyed the beautiful weather over the weekend. Life feels great when the sun is shining and the birds are chirping.

Heres an interesting article to read: http://www.canceractive.com/cancer-active-page-link.aspx?n=4081&Title=Basel-like%20breast%20cancer%2...
Member
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Re: May 2017 chemo starters

I did Shi thanks 💖looking like another lovely weekend we have coming up taking Ella to seaside so watching Royal Wedding on catch up 😊
Shi Community Champion
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Registered: ‎11-10-2017

Re: May 2017 chemo starters

Hi mishy I pmd you last night, did you get it? 💕💕✨✨Shi xx
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Re: May 2017 chemo starters

Hi Jay i was advised if doing anything strenuous a full hoover through or gardening type strenuous to take an ibuprofen before hand!! also to not carry anything heavy on that side apparently a bad cold can worsen it oh and try to sleep on opposite side he explained that it can improve and all of a sudden come back some can have it indefinitely, tbh Jay in used to the aches and pains so im not bothered as you say i wake up every morning and thats good enough for me!!! Im just relieved it was nothing else and happy that the anxiety monster moved on and giving me a break hes been in my ear fkr a couple of weeks and was starting to do my head in😨😨😨😨 😂😂😂😂 take care
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Re: May 2017 chemo starters

Mai - I agree our May meet up was a truly amazing experience.

As you say, we came from a group of ladies who have been dealt one of life's terrible traumas. In those difficult, dire days we built a fantastic relationship on this forum - not really knowing who we were talking to - a bit like an imaginary friend that young children have - and not dissimilar to a guardian angel - always someone there to listen, offer advice and give support.

We then proceeded to our secret facebook page - where we all suddenly became real humans(!) - we got to know a little more about each other - sharing photos, etc.

Finally meeting each other in person was truly surreal - to hug each other - when I've already given and received so many virtual hugs from each of you ladies was truly amazing!

As you say, "we already had that special bond and then we met" - we could make a movie!!

That day in London will live with me forever - to 8 of my best friends, thank you xxxxxxxx