I too have herceptin this afternoon - in fact my Dad's just text me - he's got the lovely job of escorting me today! - my injection should be 3.30 I wonder how late they're running.....!
Well done on the advanced workout today Treehouse - you're going to be so fit! I've just been for a good 40 minute walk with the dog, tomorrow might not be so far after today's injection!
I think Andi is due her herceptin today too? If so, hope yours goes well too my lovely
Trisha and Daffodil - if you send a personal message to WolfEE on here - I'm sure she'll give you details of how to join the Facebook Group.
I highly recommend it - we can all see each other now and share photos etc on there - it feels a step closer to meeting you all! It's also very private - so no worries about outsiders seeing our conversations!!
Hope you both come and join us soon! xx
Mishy, let us know how your genetic counselling goes. And what the bc nurse says too.
About the hair, I am finding my hair very difficult to deal with right now too. Bed head, curly, no real style! I even got the scissors to some of the back curls myself as I looked like a mallard. There isn't really enough for a hairdresser yet, but maybe soon. At least I have hair, so I shouldn't complain.
Thanks Jay. I saw the surgeon about reconstruction, which I now have time to think about, with my next appointment in 6 months time. I have to consider all the options available.
He agreed that someone should look at the swelling, bringing my breast surgeon appointment early, end of April, for assessment. He thinks it may be a bit of lymphoedema, so we will see.
I hope all is well with you and all the other lovely ladies. Have a great week. Hopefully the weather improves.
Hi Daffodil - glad to hear your week away in Spain was enjoyable. Sorry to hear about the swelling which has appeared - has it just appeared or was it smaller and has got larger? I have an area between armpit and mx, ie where lymphs were removed - it is slightly swollen and tight but always has been but it's not red. I had it when I saw the breast consultant on 29th March, he didn't comment on it at all although he did examine the whole area and did lots of prodding all around. Is the area soft or hard and is it painful to touch?
If you're like me, we're just paranoid about anything slightly different - we're going to be now - before all this I used to get weird things crop up and never thought anything much about them - weird how we've changed!
Anyhow, I would certainly mention it when you have your appointment this week just to ease your worries and concerns.
I have had a great week away in Spain. I also have a concern as I have a red swelling between my armpit and mastectomy area. Not sure if this is normal post radiotherapy. I was seen a few weeks back and oncologist was happy all was fine but the swelling wasn't obvious then. I am being seen this week to discuss reconstruction so may mention it. Anyone else have this?
The reason I am a bit paranoid about the redness is that was how my cancer first presented, a red swollen breast.
Whilst I was away my appointment for first anniversary mammo to mono-boob came through - it's 26th April! Also my next follow up appointment with breast consultant - 18 March 2019 (hooray next year's date is appearing on the letters....!).
Trisha - you're at the same stage of Herceptin as I am - I've got one this Thursday - then just 3 more to go! I don't have the brittle bone infusion but the friend I made during chemo does. I get the hip pain, thigh muscle pain and also a pain in my left heel which gets worse after each injection! Whenever I speak to the onc about side effects - she always blames the chemo (still......)! I have the same problem with my arm movement and the feeling that it's bigger due to node removal - when the consultant checked me over week before last he said all was good and it was just the healing process which can last some time. I also get a burning pain in my ribs when I lie on them for any length of time (mx side) - been told that's the rads effects and that can last for some considerable time too..... still shouldn't grumble, I'm still here!
I don't think our energy levels will ever be the same as they were - I get days where I seem to have endless energy and can use it - other days where I have the energy but can't be bothered to use it and other days where I have absolutely no energy at all - unfortunately there is no set pattern so I can't point the finger at anything which causes it - I just think.... Oh well this must be the new ME!!
Hope your visit to the BCN eases your worries and concerns and let us know what she says.
Keep smiling lovely - we're all doing great! Lots of love xx
Hi Trisha - how strange - I was only thinking about you today. I hope you're doing ok. How are the herceptin injections going with you and how are you doing generally? xx
Hi Ladies, hope you all had a lovely Easter break. Im feeling quite refreshed after a week off work. Treehouse, sorry you have been down but glad you are back up again AND have found a good bra (I thought the fringe was the holy grail? now its a fringe and a bra - next thing it'll be fringe, bra and matching handbag!)
That's good news Treehouse - I've got the one from the hospital which came with the prosthetic fitting - it's fairly comfortable but I still have days where I don't wear one at all and just enjoy the strange freedom of being lop-sided!! Although I'm sure it makes me walk strangely!!! haha - at least I can laugh about it!! x
Where did you get this comfy one from? x
Thanks Treehouse x - Good luck with the surgeon tomorrow - hope everything goes well for you and good luck for next weeks heart scan.
I know what you mean - the financial side of things catches up with us all - which is to be honest with you it is a reality, which personally, I don't think we should have to worry about. But hey it's life and we do have to face it - have you been in touch with them whilst you've been away? Hopefully, they'll be kind to you and allow you to ease in very gently and on your terms. I have been and continue to be extremely lucky as my employer is really understanding and sympthatic - unfortunately I appreciate not all are.
I love York Heather - so excited to be going - last time we stayed there was my 40th! and this was my wish for my 50th to get back - which is happening tomorrow - ohhhh really can't wait!
Oh Treehouse,sending a hug, sorry to hear you are having a down moment. Hopefully the BCN gets back to you and helps you.
Jay we are off to York on Fri to Sun night, staying with Mum. Have to work Fri and Mo so driving up after work Fri and coming back late Sunday.
Hope everyone else has enjoyed the Easter weekend.
Hi Treehouse - I'm pleased to hear you had a good Easter - I did too, really lovely break.
I'm sorry to hear you're having a meltdown - don't worry nor apologise lovely - we all have them - even those who don't have half as many reasons as us have them - perfectly normal.
I hope the bcn gets back to you quickly and can help eleviate your fears and concerns.
Stop feeling useless - you're far from that and why on earth are you worrying about returning to work? Come on Treehouse you're strong - you've proved it time and time again - these are small little niggles which in the big scheme are nothing at all. Pick yourself up, dust off and smile - come on girl you can do it...
I've been for echoscan this morning - had to get out of my bed at some unearthly hour of 8am, get washed, dressed and be escorted to hospital - YUK. Lovely lady today did the scan - she was really chatty and pleasant - a welcome change! Fingers crossed now that my heart is behaving and next herceptin (which is next Thurs will be able to go ahead as planned).
We're off to York tomorrow, leaving at silly o'clock (think hubby mentioned 5am!) . We're staying 2 nights in York and one night in Lincoln - returning back home via Derby on Saturday. My Sister is kindly moving into our home whilst we're away so she can look after the dog without disturbing her daily routine! So I'm busy thinking about packing and at the same time - keeping the house in good order - a tough challenge!
I'd best go - want to walk dog, do some ironing and pack the suitcase all before hubby gets home at 5.30!
and Treehouse - just remember you're strong you can get past this marshmallow meltdown... xx
Hi Mishy - the weather is so unseasonal isn't it? The sun when it shines is quite warm the only problem is it doesn't shine long enough!
A good way to describe it - page 3!
Enjoy your weekend to Bamburgh next week, what can be better than a good breakfast followed by fish and chips beside the sea - not a lot in my opinion!
Yes the pains following rads are very common and my surgeon confirmed on Thursday - it's definitely the rads which do it and unfortunately it can last quite some time..... no quick fix!
Enjoy the rest of the Easter - going to be having a big fat roast beef dinner tomorrow, with my Dad and Sister coming to us too - can't wait - I am looking foward to doing it all as I couldn't manage to do it myself at Christmas as was just out of rads.
Ahh that'll be what he was checking Mai - I just couldn't help but laugh and he did too! He was talking at the same time about how Easter was celebrated more in other countries than it is in England - very surreal!
I must admit ladies, I'm also regaining my privacy as I felt quite embarrased to be laying back topless with a consultant bent over me and a nurse watching from the sideline! - how things change, as this time last year I just used to pop them out all the time (it seemed) for all and sundry to see! I almost felt that if I went to the dentist I'd pop them out - just because that was all I seemed to do whenever I went to see anyone in the "health line"......!
A bit like when you give birth!
That's fantastic news Jay. You must be feeling relieved and growing a little in body confidence. The torso tapping is to make sure the lungs are clear as they resonate different if they have fluid ( I know this from asking my consultant why they were tapping!). If it was abdominal tapping, I have no idea what that was for! I feel the same as you about recon. I'm in my comfort zone but open minded too. 💗 Xxx