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May 2017 chemo starters

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Re: May 2017 chemo starters

Daffodil I’ve sent you a private message xx
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Re: May 2017 chemo starters

Hi WolfEE. Please add me to the Facebook group

Thanks.

Do you need more info?

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Re: May 2017 chemo starters

I too have herceptin this afternoon - in fact my Dad's just text me - he's got the lovely job of escorting me today! - my injection should be 3.30 I wonder how late they're running.....!

Well done on the advanced workout today Treehouse - you're going to be so fit! I've just been for a good 40 minute walk with the dog, tomorrow might not be so far after today's injection! 

 

I think Andi is due her herceptin today too?  If so, hope yours goes well too my lovely 

 

xxx

Member

Re: May 2017 chemo starters

Trisha and Daffodil - if you send a personal message to WolfEE on here - I'm sure she'll give you details of how to join the Facebook Group.  

 

I highly recommend it - we can all see each other now and share photos etc on there - it feels a step closer to meeting you all!  It's also very private - so no worries about outsiders seeing our conversations!!

 

Hope you both come and join us soon! xx

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Re: May 2017 chemo starters

What's the FB page? x
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Re: May 2017 chemo starters

Hi daffodil 🌼
Glad you had a lovely holiday. I feel we deserve them more than most now 😜.
Sorry to hear about your sore patch and I hope they put your mind at rest soon.
Wolfee is in charge of FB for the group send her a message on here and she will sort I am sure.

I have herceptin this afternoon ( provided heart scan yesterday was ok) 🤞
Went to the advanced rehab group today ( all men in 50s who had heart attack)
It was definitely a workout I’m knackered.
Will be going twice a week from now on 💪🏻
X x x
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Re: May 2017 chemo starters

Who is the fb admin? I didn't join before but would be keen now.

 

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Re: May 2017 chemo starters

Hi Mishy - yes I'm quite sure after all the research I've been doing and the meeting with my breast consultant confirming - the rads really do unsettle everything and effects can continue for some considerable time - however, if you are paricularly concerned it's best to speak to your bcn - they can always refer you to physio (who deal with lympodema) who will provide exercises and advice.

It's lovely to be able to go out and enjoy meals out - back in the chemo days you can almost never imagine doing all that ever again! As I quite often think, it's the small almost insignificant things in life now that bring me the most joy!

My hair is so curly and thick and although lots of grey the rest is very much darker than it's ever been!

All the other ladies are doing well - we tend to communicate on our fb page nowadays - although I guess everyone pops on here every now and again just to see what's going on!

Take care lovely and keep up informed of your swelling. x
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Re: May 2017 chemo starters

Mishy, let us know how your genetic counselling goes. And what the bc nurse says too. 

About the hair, I am finding my hair very difficult to deal with right now too. Bed head, curly, no real style! I even got the scissors to some of the back curls myself as I looked like a mallard. There isn't really enough for a hairdresser yet, but maybe soon. At least I have hair, so I shouldn't complain. 

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Re: May 2017 chemo starters

Oh got my app for genetic counselling on 8th May the have decided to do it now because of my dad being diagnosed with cancer and TN status just hope i haven't got it as i was hoping the bc journey was kinda over for me if you know what I mean x
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Re: May 2017 chemo starters

Daffodil Jay i have sone mild swelling in lower breast and armpit been getting breast and armpit pain too im thinking i should ring my bc nurse just to see what she thinks? I was told i had some fluid on breast a month back so wondered if it was lympodema starting as i also had axilla rads on top of breast as some of the nodes were left after surgery
Been out for a meal for sons 21st waa lovely hairstyling is a but of a challenge for me atm now waking up with bad bed hair my hair is now very tbick and going curly 🤔. Treehouse mai Heather wolfee Trisha hope you are all well xxx
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Re: May 2017 chemo starters

Hi Daffodil - pleased to hear you've met with the surgeon and are looking ahead at reconstruction. Several ladies on our thread have had recon - it may be worth asking their views on the type you're thinking of having. You'll have to keep us informed of your appointment with the breast surgeon - it's quite common to get a small amount of lymphoedema in the chest area after a MX.

All is good with me - number 15/18 herceptin injection for me tomorrow - my goodness time flies!

I'm enjoying this holiday from work so much - it's really lovely - be even better if the weather was to be sunny and warm but hey no doubt we'll have a fab summer instead!!

Apart from the swelling, is everything else OK? I do still get a very stiff arm and discomfort in the ribs where rads were done - exercising daily helps no end - but it's still there!
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Re: May 2017 chemo starters

Thanks Jay. I saw the surgeon about reconstruction, which I now have time to think about, with my next appointment in 6 months time. I have to consider all the options available.

He agreed that someone should look at the swelling, bringing my breast surgeon appointment early, end of April, for assessment. He thinks it may be a bit of lymphoedema, so we will see.

I hope all is well with you and all the other lovely ladies. Have a great week. Hopefully the weather improves.

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Re: May 2017 chemo starters

Hi Daffodil - glad to hear your week away in Spain was enjoyable.  Sorry to hear about the swelling which has appeared - has it just appeared or was it smaller and has got larger?  I have an area between armpit and mx, ie where lymphs were removed - it is slightly swollen and tight but always has been but it's not red. I had it when I saw the breast consultant on 29th March, he didn't comment on it at all although he did examine the whole area and did lots of prodding all around.  Is the area soft or hard and is it painful to touch?

 

If you're like me, we're just paranoid about anything slightly different - we're going to be now - before all this I used to get weird things crop up and never thought anything much about them - weird how we've changed!

 

Anyhow, I would certainly mention it when you have your appointment this week just to ease your worries and concerns.

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Re: May 2017 chemo starters

I have had a great week away in Spain. I also have a concern as I have a red swelling between my armpit and mastectomy area. Not sure if this is normal post radiotherapy. I was seen a few weeks back and oncologist was happy all was fine but the swelling wasn't obvious then. I am being seen this week to discuss reconstruction so may mention it. Anyone else have this?

The reason I am a bit paranoid about the redness is that was how my cancer first presented, a red swollen breast.

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Re: May 2017 chemo starters

Whilst I was away my appointment for first anniversary mammo to mono-boob came through - it's 26th April!  Also my next follow up appointment with breast consultant - 18 March 2019 (hooray next year's date is appearing on the letters....!).

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Re: May 2017 chemo starters

Trisha - you're at the same stage of Herceptin as I am - I've got one this Thursday - then just 3 more to go!  I don't have the brittle bone infusion but the friend I made during chemo does.  I get the hip pain, thigh muscle pain and also a pain in my left heel which gets worse after each injection!  Whenever I speak to the onc about side effects - she always blames the chemo (still......)!  I have the same problem with my arm movement and the feeling that it's bigger due to node removal - when the consultant checked me over week before last he said all was good and it was just the healing process which can last some time.  I also get a burning pain in my ribs when I lie on them for any length of time (mx side) - been told that's the rads effects and that can last for some considerable time too.....  still shouldn't grumble, I'm still here!

 

I don't think our energy levels will ever be the same as they were - I get days where I seem to have endless energy and can use it - other days where I have the energy but can't be bothered to use it and other days where I have absolutely no energy at all - unfortunately there is no set pattern so I can't point the finger at anything which causes it - I just think.... Oh well this must be the new ME!!  

 

Hope your visit to the BCN eases your worries and concerns and let us know what she says.

 

Keep smiling lovely - we're all doing great!   Lots of love xx

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Re: May 2017 chemo starters

How lovely you have been thinking of me x
Have 3 Herceptin to go and 2 infusions of stuff to help prevent brittle bones. Can't have the 1st one till seen Dentist. Then it's 2 infusions a year I think for 5 years. Am struggling with terrible hip pain and don't know if that's the Anastrazole or just all the Chemo radiotherapy etc. Seeing B care nurse next week. The area they removed lymph nodes is suddenly restricting my arm movement and my breast has became lumpy and swollen. (It was all good at check up, so bit worried) Also my arm feels bigger but I burnt my arm badly on a hot water bottle and it's very deep sore and painful.
Avoiding calling work.... energy levels still poor.
Love to all x
Member

Re: May 2017 chemo starters

Treehouse, well done on finding a more comfy bra - there's nothing worse than an uncomfortable one at all.

Eeeks for tomorrow - hope the hair cut goes OK - do you have a style in mind or are you going to be influenced by your hairdresser? Looking forward to seeing the photos xx
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Re: May 2017 chemo starters

Hi Trisha - how strange - I was only thinking about you today.  I hope you're doing ok.  How are the herceptin injections going with you and how are you doing generally? xx

Member

Re: May 2017 chemo starters

Hi Trish how have you been doing? How many herceptin have you got left? Hope you are ok
X x
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Re: May 2017 chemo starters

Hi ladies. Been offline a while. Still thinking of you all. Trisha x
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Re: May 2017 chemo starters

Hi Mai, Jay and Shi. The bra is not a special mastectomy one just a cheap non wired one from matalan £9. Not my favourite colour but doesn’t ride up and make my implants sore.
So glad everyone has been having breaks away.
Tomorrow is hair cut day!!!
Will post before and after photos on FB.
Community Champion

Re: May 2017 chemo starters

Hi Ladies, hope you all had a lovely Easter break.  Im feeling quite refreshed after a week off work.  Treehouse, sorry you have been down but glad you are back up again AND have found a good bra (I thought the fringe was the holy grail? now its a fringe and a bra - next thing it'll be fringe, bra and matching handbag!)Smiley LOL

 

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Re: May 2017 chemo starters

That's good news Treehouse - I've got the one from the hospital which came with the prosthetic fitting - it's fairly comfortable but I still have days where I don't wear one at all and just enjoy the strange freedom of being lop-sided!!  Although I'm sure it makes me walk strangely!!! haha - at least I can laugh about it!! x

 

Where did you get this comfy one from? x

 

Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Treehouse 👍👍👍that’s brilliant news, hope you’ve got a couple at least, really pleased for you 😘😘mishy, got my ysl glitter mascara this week now my lashes are back 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻Hope you are having a fantastic holiday 😘😘💕💕✨✨shi xx
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Re: May 2017 chemo starters

I may have finally found the holy grail!!!

A comfortable bra 👙

😂🤣😂🤣😂
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Re: May 2017 chemo starters

Thank you Shi xx hope you are enjoying life too lovely 💖 have a lovely weekend everyone the sun has finally got his mojo back so enjoy the sunshine 😁
Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Treehouse 😘😘😘 you are amazing Mrs and a 🥇🤼‍♀️🤼‍♀️🤼‍♀️ ❤️❤️You. Mishy, have a fantastic holiday beautiful 😘😘💕💕✨✨shi xx
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Re: May 2017 chemo starters

Thanks i will enjoy my weekend looking forward to walking on the beach and fish and chips from the paper 👍
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Re: May 2017 chemo starters

Sunshine is a much missed friend Treehouse im so glad you feel that way today mines looming too its hard to believe its a year since this started but how far we have come too 💖
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Re: May 2017 chemo starters

Hi Mishy glad you are having a break this weekend too. Enjoy.
Today is my cancerversary. I have woken up to sunshine 🌞. Just so glad I am still here. I have so much to be grateful for.
Love you all x x x x
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Re: May 2017 chemo starters

Wolfee sorry missed you out 😨
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Re: May 2017 chemo starters

Evening ladies Jay enjoy York, treehouse sorry to hear you have been feeling low, but im pleased your surgeon waa happy with you but also offering the scan low days are to be expected i have had a few old wobbly days since finishing treatment but also have good days too x off to Seahouses and Bamburgh on Friday for weekend really looking forward to just getting away from everything rest walks clear my head etc its much needed i think 1st mammo date is looming, is it diagnosis anniversary or surgery?? Mine were both close together either way dreading 1st one 😨
Everyone conments on how well i look its annoying sometimes!!!!!!
Got my endoscopy beginning of May or they said might be called in for a cancellation slot!!!
Anyway i started really positive and finished a proper moany minnie!!
Mai Heather Andi and rest of the May ladies hope you are all enjoying life bet you all can't wait till the weather improves this rain and cold is getting everyone down!!!!
Shi Community Champion
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Re: May 2017 chemo starters

Treehouse 👍👍👍that all went very well then 👍👍👍and brilliant news on being able to have keyhole surgery for ovaries 👍👍👍you should treat yourself to a nice bit of posh cake and a coffee at a nice coffee shop now 😘😘😘so very happy all’s gone well for you 💕💕✨✨shi xx
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Re: May 2017 chemo starters

Hi Shi, Jay and heather. My lovely surgeon had a good look and said several times ‘I’m not concerned ‘
She has offered an MRI to put my mind at rest. I said yes but want to double check with my heart surgeon as my sternum is wired together. Next appointment is October.

Letter from gynaecologist says my ovaries are unremarkable 👍 and she is happy to do keyhole when I am up to it.
Deep breath .
Enjoy your road trips ladies I think we all deserve a break from all this!!!

😘😘😘😘😘😘😘😘😘
Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Jay, have a lovely time in York 😘😘treehouse 😘😘good that your surgeon fitted you in today, thinking of you ❤️❤️And as far as marshmallows go, you are the strongest, toughest, bravest, loveliest marshmallows I know treehouse, you Hoike your wonderwoman pants up, get those Bruce Lee Kung foo moves warmed up and kick everything’s ass 🤸‍♀️🤸‍♀️🤸‍♀️Like you have every step of this journey beautiful girl 😘😘😘💕💕✨✨shi xx
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Re: May 2017 chemo starters

Thanks Treehouse x - Good luck with the surgeon tomorrow - hope everything goes well for you and good luck for next weeks heart scan.

 

I know what you mean - the financial side of things catches up with us all - which is to be honest with you it is a reality, which personally, I don't think we should have to worry about.  But hey it's life and we do have to face it - have you been in touch with them whilst you've been away?  Hopefully, they'll be kind to you and allow you to ease in very gently and on your terms.  I have been and continue to be extremely lucky as my employer is really understanding and sympthatic - unfortunately I appreciate not all are.

 

I love York Heather - so excited to be going - last time we stayed there was my 40th!   and this was my wish for my 50th to get back - which is happening tomorrow - ohhhh really can't wait!

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Re: May 2017 chemo starters

Oh Treehouse,sending a hug, sorry to hear you are having a down moment. Hopefully the BCN gets back to you and helps you.

 

Jay we are off to York on Fri to Sun night, staying with Mum. Have to work Fri and  Mo so driving up after work Fri and coming back late Sunday. 

 

Hope everyone else has enjoyed the Easter weekend.

 

H

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Re: May 2017 chemo starters

😘thanks Jay have a wonderful break away ( even if it is starting early) 🤞about heart scan - mine is next wed.
I got a call back , surgeon will squeeze me in tomorrow as she is doing clinic and is on holiday next 2 weeks!!!!!!
Will wait and see what she has to say . ( I don’t think she has seen the new addition to my roadmap of scars, it did ruin the lovely job she had done 😜)

Unfortunately the financial side of things is beginning to catch up on us. Work is starting to become a reality I need to face soon 🙁.

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Re: May 2017 chemo starters

Hi Treehouse - I'm pleased to hear you had a good Easter - I did too, really lovely break.

 

I'm sorry to hear you're having a meltdown - don't worry nor apologise lovely - we all have them - even those who don't have half as many reasons as us have them - perfectly normal.

 

I hope the bcn gets back to you quickly and can help eleviate your fears and concerns.

 

Stop feeling useless - you're far from that and why on earth are you worrying about returning to work?  Come on Treehouse you're strong - you've proved it time and time again - these are small little niggles which in the big scheme are nothing at all.  Pick yourself up, dust off and smile - come on girl you can do it...

 

I've been for echoscan this morning - had to get out of my bed at some unearthly hour of 8am, get washed, dressed and be escorted to hospital - YUK.  Lovely lady today did the scan - she was really chatty and pleasant - a welcome change!  Fingers crossed now that my heart is behaving and next herceptin (which is next Thurs will be able to go ahead as planned).

 

We're off to York tomorrow, leaving at silly o'clock (think hubby mentioned 5am!) .  We're staying 2 nights in York and one night in Lincoln - returning back home via Derby on Saturday.  My Sister is kindly moving into our home whilst we're away so she can look after the dog without disturbing her daily routine!  So I'm busy thinking about packing and at the same time - keeping the house in good order - a tough challenge!

 

I'd best go - want to walk dog, do some ironing and pack the suitcase all before hubby gets home at 5.30!

 

and Treehouse - just remember you're strong you can get past this marshmallow meltdown... xx

 

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Re: May 2017 chemo starters

Hi all how you doing?
I have had a lovely weekend with all the family. My mum turned 73 yesterday which had a family celebration 🎉.
Today however I feel really low. Phoned bcn about boob concerns and now waiting for a call back. Started leaking 😢and can’t stop. I have been fine emotionally for ages. But today I am a total marshmallow.
I feel like a useless mum in the Easter holidays hiding til I pull myself together.
Also worried about going back to work. Can’t firm up a date till I know what’s going on with ovaries.
🤯 having a meltdown today 😢🙁
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Re: May 2017 chemo starters

Hi Mishy - the weather is so unseasonal isn't it?  The sun when it shines is quite warm the only problem is it doesn't shine long enough!  

 

A good way to describe it - page 3!

 

Enjoy your weekend to Bamburgh next week, what can be better than a good breakfast followed by fish and chips beside the sea - not a lot in my opinion!

 

Yes the pains following rads are very common and my surgeon confirmed on Thursday - it's definitely the rads which do it and unfortunately it can last quite some time..... no quick fix!

 

Enjoy the rest of the Easter - going to be having a big fat roast beef dinner tomorrow, with my Dad and Sister coming to us too - can't wait - I am looking foward to doing it all as I couldn't manage to do it myself at Christmas as was just out of rads.  

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Re: May 2017 chemo starters

Hi everyone good to see you are all well weather is rubbish no gardening this Easter weekend 😝
The boob thing is very true my baps have been out more times than a page 3!!!
Got a weekend in Bamburgh next week so hopefully this weather will be over by then can't wait for some sea air and some lovely walks the b&b overlooking the sea front is lovely they do a cracking breakfast also will have some fish and chips 😊 my healthy eating has gone a bit off these last 2 weeks must get back on track ice been so good since diagnosis
Still having pain in boob and under arm since rads and also having the rib pain apparently quite common after rads i was told at follow up
Have a lovely Easter everyone 🐣💖
Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Jay, brilliant news 👍👍👍💃🏻💃🏻💃🏻🕺🕺💃🏻💃🏻I know what you mean about boobies out 🤣😂🤣😂🤣😂🤣don’t I mai 😂🤣😂🤣😂🤣💕💕✨✨✨shi xx
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Re: May 2017 chemo starters

Ahh that'll be what he was checking Mai - I just couldn't help but laugh and he did too!  He was talking at the same time about how Easter was celebrated more in other countries than it is in England - very surreal!  

 

I must admit ladies, I'm also regaining my privacy as I felt quite embarrased to be laying back topless with a consultant bent over me and a nurse watching from the sideline! - how things change, as this time last year I just used to pop them out all the time (it seemed) for all and sundry to see!  I almost felt that if I went to the dentist I'd pop them out - just because that was all I seemed to do whenever I went to see anyone in the "health line"......!  

 

A bit like when you give birth! 

 

x

Community Champion

Re: May 2017 chemo starters

That's fantastic news Jay.  You must be feeling relieved and growing a little in body confidence.  The torso tapping is to make sure the lungs are clear as they resonate different if they have fluid ( I know this from asking my consultant why they were tapping!).  If it was abdominal tapping, I have no idea what that was for!  I feel the same as you about recon. I'm in my comfort zone but open minded too. 💗 Xxx 

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Re: May 2017 chemo starters

Hi all
Fantastic news for you Jay that is so reassuring 👍😘
Have a great Easter weekend. Let us know if anyone sees ❄️
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Re: May 2017 chemo starters

Good Morning Ladies - one word sums up how I'm feeling and that word is simply " Hooray!" Had a very successful meeting with the consultant late yesterday afternoon - appointment was 4.20 - got in to see him around 5! But hey it was worth it to be told after a full examination that all is good and he's very happy with his handiwork(!) - he gave me a thorough checking over of op site and under both arms as well as the mono boob and neck and even tapped my trunk - anyone know what that's for?! - anyway conclusively he doesn't want to see me for a year! He's going to book me a mammogram for the mono boob sometime end April beginning of May and hopefully the result will be with my onc when I see her mid May! He's also going to refer me to specialist team at another hospital for discussion on reconstruction - but that can't be performed until 12 months after rads - so at earliest they would consider surgery is end of the year beginning of next - at the moment, however, I'm happy to stay as I am - in my "comfort zone"...... but I do also remain open minded! Needless to say, I came out of the hospital skipping!!!
 
Happy Easter to everyone.  xxx
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Re: May 2017 chemo starters

Thanks, Shi. Happy, healthy Easter to everyone.