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May 2017 chemo starters

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Re: May 2017 chemo starters

😂😂😂😂👍👍😂😂
I do wear rather strong glasses 👓 but won’t take offence.
Knocky woods is wonderful!
🌳 🏠
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Re: May 2017 chemo starters

Yes indeed Tatyana - please do pop onto facebook and take a look at what's arranged - you could well be tempted!!  

 

I do like the way Treehouse has become known as "Binoculars" Woman - when my son was small he used to call binoculars - knocky woods!  - all have a connection, in a funny way with the name "Treehouse".....!  

 

If it wasn't for this forum - I'm sure I would have gone crazy (sorry.... crazier!)!!!  Love you all, xx

 

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Re: May 2017 chemo starters

So good to hear from you tatyana. Check in on Facebook if you are able to join us for the meet up x
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Re: May 2017 chemo starters

Hi everyone, just wanted to let you know that although I'm mainly on other bits of the forum now I still love to hear how all you lovely ladies are getting on. All of you have provided such amazing support over this past year, both practical and emotional. I picked up any number of useful tips here, but also massive boosts to my faith in human nature and our collective ability to kick as* and laugh in the face of the Alien.
Thanks and big hugs to you all, Mai for your wisdom, Jay for your sympathy, Mishy for your resilience, and every one of you for love and hugs. And Treehouse for setting a shining example of gritting your teeth and hanging on in there to become our very own Binoculars Woman!
Shi Community Champion
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Re: May 2017 chemo starters

Mishy 😘😘I hope you get you appointment through and get sorted soon my beautiful 👭👭think you need to give it one of your famous 🖕in the mirror at it, that should hopefully give it a warning you are not to be messed with 😘😘💕💕✨✨Shi xx
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Re: May 2017 chemo starters

😂Shi I did wonder 👓😘😘
Thinking of you tomorrow daffodil 🌼 hope they put your mind at rest.

Looks like the sun may return next week. I miss it 🌞
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Re: May 2017 chemo starters

Good luck for tomorrow Daffodil - hope your surgeon will be able to suggest something to help the swelling. I'm sure it's internal scarring.

I've just developed a bit of cording in an area where it was after my op - it goes from armpit towards elbow - I've no idea why it should suddenly appear but I've been exercising it and massaging gently - it certainly helps and I'm hopeful it will go as quick as it came!
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Re: May 2017 chemo starters

Hope app for tomorrow goes well and they resolve your swelling Daffodil im waiting for my appointment for similar problem so hopefully get sorted
Mai yes i agree with everyone about you being the fountain of knowledge but also i will say thank you to all of you May ladies who kept my pecker uo and who gave me much needed advice tios and hope 👍
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Re: May 2017 chemo starters

Daffodil hope everything goes ok for tomorrow and they can get the swelling down for you ❤️❤️💕💕✨✨Shi xx
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Re: May 2017 chemo starters

Treehouse that should be bionic woman not binoculars woman 🤣😂🤣😂🤣😂blooming predictive text 🤪🤪🤪💕💕✨✨Shi xx
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Re: May 2017 chemo starters

Wow a year ago from first chemo already!  Mine will be 11th May!  

 

Mai, how grateful are we to have met someone as wise, brave, positive and encouraging as you.  I can still recall reading your first posts (I wasn't brave enough to come on board at that time!) - your detail helped me enormously in preparing myself for the torture of chemo - your reassurance that everything was going to be ok - you'll never know just how much your inspirational posts meant to me in those early, dark, scary and nervous days - just saying the words "thank you" seems so insignificant but I say them anyway and I times the sentiment behind them by at least a million...... you, my lovely, are priceless.... xxxx

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Re: May 2017 chemo starters

Mai ❤️❤️❤️I second everything treehouse has put, you are a fountain of knowledge, a beautiful lady with mmmmwwwwhhhhh 😁😁😁😁humour a 👭👭👭👭👭when it’s been 😳😳😳🤯🤯🤯😳😳😳and a brilliant chef with the bestest recipes 😋😋😋😋and we’ll still be 💃🏻💃🏻🕺🕺💃🏻💃🏻For many years yet 😘😘treehouse 👍👍👍on phased return you will 🤸‍♀️🤸‍♀️🤸‍♀️It’s ass and I am sure you’ll not take in too much you are 💪💪💪and will stand up for yourself, you are the binoculars woman now don’t forget 😘😘😘💕💕✨✨✨Shi xx
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Re: May 2017 chemo starters

Treehouse, maybe keep a doughnut and a dummy in your pocket in case of emergency when you return to work. A comfort food and a pacifier! 😂😂 xx

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Re: May 2017 chemo starters

Good news about your phased return, Treehouse. We will do this together. My next shift is on 10th May, only 3 hours, but a start. 

Take care, brave warriors. We are survivors. 

8th May will be my cancerversary.

I am seeing surgeon on Monday so he can check out my swelling between breast and armpit. Most likely a bit of lymphoedema.

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Re: May 2017 chemo starters

😂😂😂😂😂😂
Thanks for that Mai
I used to play pocket bingo with someone I worked with. They thought they would win when they bought out a donut 🍩. I trumped it with a plastic snake 🐍 and a dummy ( had the coat on from a weekend away with the kids 😜😂 everything ends up in mummy’s pocket)
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Re: May 2017 chemo starters

Talking of "in your pocket" reminds me of when I went to see these guys live in London a few years ago, who were awesome!  

https://youtu.be/OznKG2_k-NA

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Re: May 2017 chemo starters

Mishy, your cancerversary must feel quite bittersweet between the battle you have survived and the loss of your lovely Dad who is now in your pocket telling you to keep going.  Sending positive vibes your way. 💗 Xxx

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Re: May 2017 chemo starters

Treehouse, I hope your phased return goes smoothly.  It is good to get back some normality in your life but make sure you set the pace and learn to say no.  You have been through far too much to allow anyone to push you. If you are tempted to allow others to stress you out just remember your buddy Mai7 is in your pocket saying "not allowed"  😂😜 xx

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Re: May 2017 chemo starters

Hi 👋 I’m ok went into work yesterday and have organised to start my phases return on 21st May. I am a little nervous but mostly looking forward to it. It’s the final part of my recovery and a huge step for me to mentally put this behind me. I am determined not to be as stressed as I was before. That may take some working out.
Glad to hear you are all doing ok. Congratulations on the cancerversary Mishy x x x
Sorry there continue to be scared and naughty lumps and bumps but we are now super aware and our teams are ( mostly) getting appointments quickly 👍.

I have been reading posts but got kicked off so took a while to log back on . I’m always here I promise. I’m an addict.

Love the quote Mai 😂😂
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Re: May 2017 chemo starters

Hey Treehouse how you doing lovely 💖
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Re: May 2017 chemo starters

Mai my brave friend what a day to remember. Look how far we have come. You have definitely been our fountain of knowledge and chief researcher. Your list of Chemo necessities was very helpful back then. Go celebrate, drink 🍸 and eat everything that was either forbidden or just tasted bad. Break all those rules and shake your sassy hair.
One year post poison that kept us alive.

Cheers 🥂
See you all soon 😀👏🤗
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Re: May 2017 chemo starters

Wow Mai a year how far you have come... Yes this forum 💖💖💖💖💖 has a special place in my heart got me through the toughest time in my life x
Heres to life love and laughter x
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Re: May 2017 chemo starters

It's a year today since my first chemo and how grateful I am to have been able to go through it with you lovely ladies here. Thank you. 💗  This forum is priceless. 💗🌸✨

image.jpeg

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Re: May 2017 chemo starters

Katie11 - are you still on here??  We haven't heard from you in a while and hope all is good.  I have sent you a pm and look forward to hearing from you! J x

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Re: May 2017 chemo starters

Thanks ladies I survived the ordeal!  A bonus for having just one now meant it was done really quick and the other one didn't keep getting in the way!  Also, when I had the one last year before final diagnosis - my hair was long and kept getting in the way too!

 

The lady operating the mammo machine was lovely too - really chatty so that helped relax the situation.  

 

Now just got to wait for the results.....

 

Tomorrow - hair cut - so looking forward to a bit of pampering!  

 

Got a busy weekend too - so lots to keep my mind busy...

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Re: May 2017 chemo starters

Thanks ladies we have All had a journey haven't we been a good day today spent day with my Grandaughter 💖 jay hope you are feeling OK after mammo the first one has always got to be our hardest x
Hows everyone else doing 👋 hoping you are all good and loving life 💖
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Re: May 2017 chemo starters

Thinking of you today, Mishy. What a journey you have travelled. Thank goodness we have support.

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Re: May 2017 chemo starters

Thinking of you Jay x

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Re: May 2017 chemo starters

You've done so well this year Mishy, your post brought tears to my eyes. Your dad would be proud of you x

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Re: May 2017 chemo starters

Ladies - the day has arrived..... eeekss - the first mammo for mono boob at 3.20pm this afternoon - please keep me in your thoughts.... xx

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Re: May 2017 chemo starters

Mishy - my lovely, you've just made a strong girl cry! 

 

My thoughts are with you today and I know your Dad will be looking down at you and feel proud of what you've achieved throughout this past year.  Losing a parent at any time is tough but whilst going through chemo, etc - what a real tough cookie you are.

 

So a big virtual hug for you my love - feel proud and give a big smile! xx

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Re: May 2017 chemo starters

Hi Annie lovely to hear from you how are you doing? Yes they are a wonderful place really helped me get through treatment when my dad was diagnosed with cancer and passed away whilst i was having treatment, i really don't think I could have got through that week without them, they truly are an amazing organisation such a shame we have to access this kind of help from a charity not the NHS but Maggies is wonderful
today is my cancerversary, i have been awake for a while and reflecting on this last year so much has happened, i never anticipated what was ahead of me, how much inner strength i actually had, i feel happy i am alive today and now treasure my life in a way i never did before, today though is also twinged with a little sadness at my loss if my dear dad, he was there a year today when i came home from the appointment... telling me to be strong he was the voice of reason when i was having a wobble would give me a reality check if i needed it never treated me differently because of the bc and now he is gone.. i will cherish my memories and keep my promise to keep strong and live my life 💖
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Re: May 2017 chemo starters

Mishy, Maggies will see you right. Never had such swift action as when I contact them. On the plus side ( is there one?) I was told that pain will be my constant companion for a while. Meaning years! Oh joy 😱 What we have had done to our poor bodies is so very invasive, and the rads leave so much scarring. My poorly breast does get quite hard and lumpy at times, but my registrar said it was quite normal after he examined me. A hot shower helps me. Hope everything went well with both counselling and examination. 🍀 X

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Re: May 2017 chemo starters

Thank you for the Bra tips ladies...

Its really iinteresting for me reading how you are all doing after the treatment...

I like the phrase The new normal for me!! Think thats one I will have to accept for the future.

Us January 18 girls are all crawling to the end of Chemo now thank goodness. Its such a huge journey we go on together.

Shi I had no idea you had a scare lovely lady...Im so glad its all ok xxx

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Re: May 2017 chemo starters

Yes Mishy - after my operation (full lymph removal and right mx), I had 2 drains - after 10 days or so when they were removed I noticed definite "Lines" going the length of my trunk - these were identified as cording, I also had lines running from my armpit to my elbow - you could see this more clearly and I thought it was ligaments - but again I was told this too was cording. Thankfully with lots of stretching exercises and gentle massage - they disappeared (still ocassionally painful but no longer visible) that was until 3 months after rads when the discomfort returned with a vengance!! Breast surgeon however, settled my mind with the fact that rads cause lots of internal scarring and this takes a very long time to go - and indeed may never totally go. So unfortunately, it's there for a few years - it is helped enormously with exercise (mainly stretches to the areas affected). However, as always - we have to be really careful with regards to lymphodema occurring.

However, I fear it's the "new normal me" and I guess we must make the most of simply being here and enjoy the simple things in life - which I certainly do!

Take care and I hope the medics help alleviate your fears my lovely x
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Re: May 2017 chemo starters

Trisha that sounds nasty i am going to be seen in clinic soon How long has this been going on for you, my boob is alot smaller than other following surgery but still feels a little bit swollen i hope your bra inserts start working for you soon xx
Jay i think you are spot on too re the scarring i have noticed its gradually became a lot more lumpy along scar line x
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Re: May 2017 chemo starters

Tried zip my favourite coat up yesterday. Right breast become so large that I couldnt :-(
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Re: May 2017 chemo starters

Shi over the moon everything is ok what a relief for you, an appointment is being made for me to attend bc clinic for a check up should be within two weeks they explained it could be new scarring or lympodema starting in breast so at least they will be able to check it and if it is lympodema starting it can be treated before it becomes a problem xxx
As always you ladies are the voice of reason and all advice is received very greatfully 😊
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Re: May 2017 chemo starters

Thanks jencat 😘😘 💕💕✨✨Shi xx
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Re: May 2017 chemo starters

Shi, so glad to read that everything is ok. Must have been very scary for you finding another lump xx 

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Re: May 2017 chemo starters

Mishy 👭👭👭👭I’ve been for ultrasound and exam today as I found a lump in same breast as you know and all ok, thank God. The consultant said I’d done the right thing and any concerns they would rather see us, so know you are doing right thing lovely and don’t think any of won’t be going 😳😳😳at the slightest thing now, we are human and not robots, please let us know how you get on 😘😘😘💕💕✨✨✨Shi xx
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Re: May 2017 chemo starters

Thanks ladies rang my bc team just waiting to see if they want to have a look x i know about the scar tissue i feel like i probably have a bit but its more the swelling im concerned about x i have been doing quite a lot this last week and wondered if maybe i have done too much!!!! Sometimes i get carried away apologies for the panic stricken post earlier 😨😂😂😂
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Re: May 2017 chemo starters

Trisha - I think it's a cross between lymphodema and scar tissue - we really must make a conscious effort to do lots of stretching exercises - but not to jeopordise our risks of getting lymphodema in other areas - an absolute minefield! x
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Re: May 2017 chemo starters

Mishy - rest assured I'm quite sure it's purely scar tissue. Without the rads - ladies suffer with marks and aches but ladies who also have rads (like us) there is almost certainly going to be lots of scar tissue and the only way to ease the discomfort (I've been told) is exercise - unfortunately, I don't think it will go away any time soon - it's a case of living with it! I've done lots of research on the subject!!!
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Re: May 2017 chemo starters

Mishy. I have the same. BC Nurse said wear sports bra and she gave ma pad witj soft squares that make indents on the breas r meant to massage the boob. Seeing her again in 2 weeks. It's Lymphodema x
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Re: May 2017 chemo starters

So ladies breast and under arm pain has been gradually getting worse last few days, woke up this morning to find lots of pit marks on bottom of breast also a kind of line of swelling coming down from scar i put my very soft cotton sports bra on then took it off before to have another look at breast and the seam has left a indentation right across the full breast yet my ither breast is fine im really freaking out about the pit marks im at at Maggies for counselling this morning and have rang to see if anyone there can have a look they have said yes but they may havr to get me in with a specialist nurse xxx
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Re: May 2017 chemo starters

WolfEE - this is exactly the view I have! I also have the tight feeling across my whole MX side, base of neck and shoulder (on the right hand side too - and I'm right handed!) - again, the breast consultant said the only way is regular exercise. Even with exercise it will probably never get totally better! As Daffodil suggests, I do my stretches throughout the day - I stretch up higher than I need to when I get things out the kitchen cupboards - when I'm waiting for something I'll do a few random bends and stretches - whilst out walking I'll swing my arms around like at gibbon! Honestly, it's the only way forward - I'm sitting here now laughing at the image I have of us in London!!! I do find that if I don't do any stretches for a couple of days - I'm back to square one and can hardly move!
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Re: May 2017 chemo starters

I had some cording a few months ago. Do persevere with exercises, but my bcn said that it is fine to count stretching for items etc as exercise. I often just stretch my arm behind my back and over my head while doing other things. As I go to the gym several times a week and go to yoga and Pilates, I count that as my exercise too as we stretch a lot. It seems to have helped get rid of the cording. Good luck.

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Re: May 2017 chemo starters

Morning, so when I saw the surgeon yesterday she said the right feeling in my arm is cording. Has anyone else had this. Apparently I’ve got 2 do my exercises 3 times a day for life (because of the lymph nodes being taken out) I know this is for my own good but actually it’s not practical and time consuming I don’t think with all the will in the world around work and normal life I can fit in three lots of the brining exercises!!!
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Re: May 2017 chemo starters

RosieH, well done on surviving chemo! Yay!  I had a single mx, no recon yet and I had M&S post surgery bra. It's like a sports bra style with zip front so it's easy to get in and out of after surgery.  It's very supportive but you may feel you need a rest from it after a while, so....  I also purchased some cheaper soft sleep bras from Amazon which were really good.  These were "Junlan" nursing sleep bras and although designed for breast feeding were very comfortable post surgery.  For the first few days after surgery move around as little as possible to reduce fluid build up.  Do you Physio but don't put much effort into it at first as you don't want to irritate the surgery area.  You can build up the stretching gradually and your physiotherapist will keep you on target and let you know when to push a bit more.  If you want to have a look at my blog you may find some useful tips in the surgery thread. Lifeafterlola.blogspot.com

Hope all goes well for you. Xx