Time to share some GOOD news ladies - I went for my routine appointment with oncologist yesterday morning, I was in a "mess" - I'd suffered terribly from a panic/anxiety attack in the night previous and my head was seriously not in a great place. However, bad quickly turned to good - my red blood count is back to pre-chemo days and all is looking well, the great news is my recent echo scan shows my heart is back to 65% which is fantastic as it means my final two herceptin injections can go ahead with no delays - my final one being 14 June. The even better news.... my mono-mammogram result is all clear... HOORAY! I had a concern over a small lymph node in my neck and the oncologist reassured me all is ok, it's really not unusual for lymphs to enlarge for all kinds of different reasons - the very fact it goes down shows there's nothing to be worrying about - the fact too that it is an extremely long way from the breast is also a positive - but she was pleased I mentioned it and I was so glad I did as I left feeling totally reassured me. My next appointment with her is 3 months time, where she is planning to be in a position to sign me off from the oncology department and handing me back in the care of the breast consultant for yearly check-up and mammogram - again, HOORAY!
I'm now preoccupied organising a big family/friend party for July to celebrate!!! xxx
Thinking of you Mishy.
I had my follow up appointment with the BS. He confirmed that my swelling was not sinister but should be removed. As not sinister, he can do it, or the reconstruction surgeon can do it when and if I have a reconstruction in 9 months or so. So all good. Will just wait to hear what they decide.
We all worry about lumps and bumps now so it is a relief when we get reassurance.
Saturday was fabulous and it was wonderful to meet the May Starter Wonder Women.
Ah Shi sorry you couldn't make this meet up - maybe next time - your name came up in conversation a few times today - hope your ears weren't burning...! x
Ok, Mishy, you're being ridiculous! Come on....life can't be that sh**€! But...you are quite right to have it checked. Fingers crossed, and toes, for you! X
Such a relief Daffodil - I think the scar tissue (which no one really warns you about before having the treatment) causes us quite a lot of anxiety! Great news on the clear mammogram too. Onwards and upwards! xx
Good news. Ultrasound done on swelling near mastectomy site. Apparently likely scar tissue so nothing to worry about. Also mammogram of remaining breast clear.
Ahh ladies talking of babies - I've met my great niece today for the first time and she's sooo gorgeous! Just 3 months old and a bundle of sheer joy! My nephew and his wife organised a family meal (20 of us) at a local Harvester to welcome her to the family and we all had a really fab time - and the weather, WOW what a bonus!
This time last year was the same Nephew's wedding day - just before I started treatment! - can't believe where that year has gone in one way!!
Two more weddings this year - Niece in September and another Nephew in October - so exciting!
Mishy, how did the nudging go? At the secondary BC support group meeting at Maggies we were told there was a five week waiting list!! The numbers of people being diagnosed is increasing exponentially and so waiting lists are up hugely. Also, if you are waiting for a CT scan one of the scanners is being refurbished so a wait there,too! 😡
Poor you, Mishy. I agree. There's enough to worry about without checking on medical procedures. Had my first mammo two weeks ago at RVI. Experience not great as it was same room and same radiologist! Unbelievable ! Bit of a melt down, but she was wonderful . Apparently it is quite normal to feel emotional the first time. Also that same week had my first CT scan after three cycles of Palbociclib. Two weeks of hell waiting for results at clinic. I was convinced it had spread further as I have a few aches and pains now, plus a little dry cough I can't seem to get rid of. Great news though. My lung mets have shrunk, and there is no sign of further spread. Painted Newcastle red that night!! 🍷🎉🍾🙃. Hope you get appointment sorted. X
Appointment with GP today at 5.15 - to check the rampiril is doing it's job and to ensure it's not affecting my kidneys whilst repairing my heart!!!
Herceptin again tomorrow, then just 2 more to go.........! x
Mai and Daffodil - there are two very interesting threads on here regarding reconstruction. I highly recommend you having a read. First one is under "Moving forward after treatment" "Recovery after treatment" "A flat way of life" and the second one is under "Going through treatment" "Surgery" "to reconstruct or not".
I'm still very much undecided. Like you Mai I'm keen to let sleeping dogs lie and in another way I'd love not to have to think about prosthetic etc when I get dressed in the morning!
Aww, thanks ladies for the lovely words. I am deeply moved. Likewise, you have all been amazing and whilst I shared all knowledge researched you double checked and sense checked it too and just knowing there was someone else out there feeling as crappy and isolated as me was a great comfort. I'm sure we will be friends for life now. I think our shared compassion and sense of humour has been a great distraction from some pretty harsh realities we've faced! xx
I had my lymphodema check up last week and all good, only a 2% difference so Im considered low risk for lymphodema.
Binocular woman!!! thats funny Shi. x
Daffodil, I still have my head in the sand on the recon at present but would be interested to hear what you have to say after your appointment. I feel a bit nervous about the prospect of the tissue in that area being disturbed again - let sleeping dogs lie and all that...... but want to feel balanced and symmetrical again! :-? xx
Thanks for all the wishes for today. So, I need an ultrasound scan, but surgeon didn't seem too worried. Have to see him again in two weeks time, so more waiting, first to get a scan and then for the results.
I will also attend a BRA meeting on 8th May to meet other ladies who have had or are waiting to have breast reconstruction surgery. It is an opportunity to discuss options and outcomes. Still about 9 months till I am due to have mine, but surgeon wants me to the research so I can make an informed decision.
Take care ladies.
Thanks for sharing this Treehouse.
Of course, you'll have no need to use them - you're off on holiday and you're going to have a wonderful family time xx