Member
Posts: 1,621
Registered: ‎11-05-2017

Re: May 2017 chemo starters

Hello everyone long time no post. I have finally logged back on. I too used solar oil as Mai said. Fingers not bad but I am finding my toe nails were not so lucky they are finally growing out but they were not good. I did wear sandals a lot so maybe sunshine? I didn’t oil my toes so I would recommend it.
Toes take longer to grow out than fingers.

I have finally finished herceptin and other than heart tablets I’m not on anything else. I had a boob scan today which was all clear. Surgeon appointment in 2 weeks then nothing til onc in April. I do need to chase up my opherectomy but I just can’t get my head there yet as I am enjoying normal for a while first.

Keep plodding ladies lots of love x
Community Champion
Posts: 1,572
Registered: ‎19-04-2017

Re: May 2017 chemo starters

Hi Georgie Gee, most of us on this thread used CND solar oil with varying results. I haven't heard of the one you mention but might be worth a try if it's not too expensive. With the docetaxol you need to wear dark nail varnish until the end of chemo and 3 months after that. Docetaxol leaves the skin, including nailbeds, photosensitive to UV rays so protection is important I think just look after them as best you can but if the docetaxol causes splitting or peeling it's nothing you did or didn't do.. It's just that it seems to get some people more than others. Xx
Member
Posts: 116
Registered: ‎30-06-2018

Re: May 2017 chemo starters

Hi May ladies, 

 

I hope you don't mind me asking a question or 2 about a nail cream I have been advised about by my new consultant for using through T part of chemo.  It is called Polybalm and had been trialled in my area. 

 

Link here: 

 

http://polybalm.com/nails-chemotherapy

 

I have explained more about it on the August thread, but wondered whether or not anyone could say whether or not this may have worked for them.  I could then report back to the August ladies. 

 

Many thanks

 

Georgie 

 

 

Community Champion
Posts: 1,572
Registered: ‎19-04-2017

Re: May 2017 chemo starters

Sarah19, I've also written a blog if you want to have a read: http://lifeafterlola.com Its a space where I can get it all off my chest (pardon the pun) in an artistic fashion and hopefully help others who are newly diagnosed. Xx
Community Champion
Posts: 1,572
Registered: ‎19-04-2017

Re: May 2017 chemo starters

Hi Ladies, lovely to hear from everyone.

Mishy, glad you are doing well and glad you are now menopausal without the scary oestrogen factory! Xx

WolfEE, well done and I don't know why but I though you had only had oophrectomy. I didn't realise it was the full hysterectomy. Hope you are taking it steady. Xxx

Welcome back Sarah and glad you are doing well considering all meds and associated side effects. I'm just on Tamoxifen and find it ok except for joint stiffness if i sit still too long or try and exercise too hard so it's a fine balance. I walk a lot to keep fit now which is working well for me. Send WolfEE a private message if you want to join us in Facebook. Xxx
Member
Posts: 1,854
Registered: ‎29-04-2017

Re: May 2017 chemo starters

Ladies i don't take any hormone drugs as my bc was TN but im interested in the bone strengthening drugs as i too heard that about menopause weakening bones and how the strengtheners can protect against mets too my onc never persued this with me my GP ran my menopause status check and given that my mam has osteoporosis and i had chemo so will probably have a density test then hopefully get the bone things
Wolfee im pleased to hear that you have recovered well from your op hopefully if you are lucky you might dodge the hot fluses as you had enough of them with Chemo!!!
I still get the odd night sweats and random flushes but think thats it for me 👍
Sarah lovely to hear you are doing well yes thats some cocktail but at least your onc is proactive re the bine strengtheners and their benefits to you in terms of preventative measures x
Member
Posts: 17
Registered: ‎16-05-2017

Re: May 2017 chemo starters

Hi Wolfee,
So pleased to hear you are recovering well.
So from what I understand the Zoladex injections push me into the menopause. Because I am now considered menopausal I’ve had to switch from the tamoxifen to the Anastrazole (and I think there is another called letrazole so it’s either or) and the inabdronic acid is to improve bone density as menopause weakens bones but my oncologist also said it has shown some reasearch to benefit overall survival as well?? The Adcal is a calcium tablet to ensure I’m getting enough. I’d be very interested to see what they decide to put you on. I don’t mean to sound ungrateful and Moany as I am so very very grateful to be here and have the chance to take tablets!! But it’s hard when you have gone from no medication what so ever to feeling like there is lots!! Small price to pay for the grand scheme of things I know but will just be happier when all the side effects do one!
You poor thing with your tooth!! That must be so painful! Hope it’s feeling better soon
Member
Posts: 713
Registered: ‎10-05-2017

Re: May 2017 chemo starters

Hi Mishy / Sarah. Good to hear from you.
I am now 3 weeks post hysterectomy and Oophorectomy and so far so good no menapause symptoms as yet. Pain wise is all manageable. The worse thing was developing massive toothache that was worse than the surgery. Today I had the nerve taken out. I’ll have the tooth removed or root canal in a few weeks when I’m off the blood thinning injections.
So I’m still on tamoxafen but I’m guessing when I see my oncologist in November I’ll be swapped as I’m obviously post menapause because of having my overies removed. So I am interested in your little list of meds Sarah as I’m guessing I’ll be on similar? I’m not that clues up and don’t recognise the names and what they help with??
My GP will put me on an antidepressant if hot flushes get bad. Apart from that I’ve not been put on or changed from anything yet????
Member
Posts: 17
Registered: ‎16-05-2017

Re: May 2017 chemo starters

Hi everyone. You may not remember me as been a very long time since I was on here. Last time I posted I had just had my big op for mastectomy with immediate reconstruction. It didn’t feel right to post much after that time as we were at very different times in our treatments and I was finding it quite difficult to cope with.
Anyway I Hope everyone is doing well and coping well since surgeries and starting medications etc.
I attended the moving forward course in June which I found to be quite beneficial and it was lovely to meet some ladies in the same position. I started Zoladex injections in April and 2 weeks ago switched from Tamoxifen alone to Anastrazole along with Ibandronic Acid whilst also taking vitamin D and Adcal on a daily basis. Feel like
I’m rattling at the moment!! I’m finding the ibandronic Acid very difficult as having some very uncomfortable side effects - aches around the shoulders, lower back, uncomfortable feeling in the rib cage?? And very windy/gassy with bit of acid reflux - oops. Hoping all will pass and settle down otherwise I’m not sure I could cope with it for 3 years, plus I’m missing being able to get up and have my early morning cuppa!! Lol. Is anyone else on the same delightful concoction of meds? Would be nice to hear others experience on them.
Member
Posts: 1,854
Registered: ‎29-04-2017

Re: May 2017 chemo starters

Hi everyone hoping you are all well ita been a while i know you are all on Facebook im not unfortunately so pop ib here to say hello
had bloods ran and results xame back definitely through menopause doesn't need to be checked again!!! My periods stopped after 2nd fec last August never returned but my onx said they could so the blood test confirmed otherwise im am officially no longer of child bearing age so the chemo obviously shut down my ovaries permanently gp says should probably check my bone density just in case
Member
Posts: 1,411
Registered: ‎24-03-2017

Re: May 2017 chemo starters

GP confirmed the initial result, a very underactive thyroid.  Would ordinarily prescribe a very low dose of medication but given my previous heart problem (caused by Herceptin) and on-going high blood pressure she's going to liaise with the Endocrinologists and see what they advise.  Will now hear on 4th October when I return to GP for blood pressure monitoring....

 

On the plus side - I went last night for my first ever taste of Yoga and loved it!  Will definately be returning in 2 weeks time... x

Member
Posts: 1,411
Registered: ‎24-03-2017

Re: May 2017 chemo starters

So at my final onc appointment she suggested I should be tested for Diabetes and Thyroid following the treatment I've had (chemo, herceptin, rads (to upper clavicle area).  A simple blood test (well fasting for the diabetes one).

 

Visited the GP last week for results - I'm delighted the diabetes is clear, however the thyroid one came back that I've got an underactive thyroid.  Further blood tests to re-check and also the TPO part of the test.  I'll get the results on Wednesday - depending on the results will depend on the medication required to treat....

 

I've subsequently researched and it would appear quite common for thyroid problems following treatment for breast cancer. 

 

I've also been increased to 2.5mg of Ramipril as my blood pressure is still a bit high!

 

Other than this - I'm doing OK - put it this way, there's people far worse off than me.

 

Hope everyone else is doing well x

Member
Posts: 1,854
Registered: ‎29-04-2017

Re: May 2017 chemo starters

Good luck today wolffee 💪♀️
Member
Posts: 1,411
Registered: ‎24-03-2017

Re: May 2017 chemo starters

Good luck for today WolfEE - you know we'll all be thinking of you lovely.  Let us know when you up and running again.... xxx

Community Champion
Posts: 1,572
Registered: ‎19-04-2017

Re: May 2017 chemo starters

WolfEE, tough decisions for you.  Have they mentioned Zoladex injections to deactivate your ovaries?  I guess this would bring with it more side effects but it would give you more time to think about ovary removal.  I wish we didnt have to think about all of this, its so burdensome isnt it? Sending hugs. xxxx

 

Jay, my head is still firmly in the sand on the recon front.  Whilst I dont want more surgery, I do want to try and move forward with my life feeling a bit more balanced.  I dont have an appointment with the surgeon yet but it will be looming on the horizon!  You dont have to rush into a decision, if you need a bit more time to think then you could delay it a bit more.  xxxx

Member
Posts: 713
Registered: ‎10-05-2017

Re: May 2017 chemo starters

Mai my periods come back regular now roughly every 21 days (until this one?) I had irregular periods since maybe January but then lengthier more normal and regular since May or June. They haven’t mentioned checking my levels but I’m assuming that because of my periods and that I haven’t really had any hot flushes since January I maybe producing eastrogen and stuff even though on tamoxafen?
I am scared of how my life will be after and if I’m able to cope with the side affects and no HRT but I’m also terrified not to so I will do it no backing out.
Member
Posts: 1,854
Registered: ‎29-04-2017

Re: May 2017 chemo starters

Thanks Ladies im bloody over the moon it wasn't mets as i know some are not as lucky i have an app with a neuro surgeon on 2nd Oct to discuss surgery so i have a bit of time to get my head round it!! It has put a massive spanner in the works re my plans for looking for a new job i just want to not be a patient 😔 but i will do it don't want to end up with mobility problems which without intervention is the result of this type of thing
Jay back to the GP i bet this feels weird i wonder why some trusts do this but at the same time they will never neglet any concerns you have my trust used to have regular onc apps for 10 years now we see them yearly for 5
If you are comfortable with no recon jay don't have one its a very personal thing for you
Member
Posts: 1,411
Registered: ‎24-03-2017

Re: May 2017 chemo starters

Mishy - I repeat what others have already said - thank goodness no spine mets but sad to hear you've more surgery ahead of you.

 

Wolfee - so sorry for the decisions you're having to make.  Whatever you decide and whatever happens you know us May Warriors are right behind you - supporting you all the way my lovely x

 

Mai - interesting.  Do you have an appointment to see surgeon to discuss recon?  I'm not seeing my surgeon until March and then he's going to refer me to a recon specialist depending on my thoughts.  Have you made any decisions yet?  I'm still unsure whether to have any recon.  Most of the time I'm happy as I am - but every now and again I wish I could just put on any bra or bra top and not have to spend time adjusting myself (if you know what I mean) - also I do find the implant heavy and I'm sure that makes me achey at times especially after a long walk!  

 

I'm currently in the big wide world with very little support harness and I'm not quite sure how I feel about it all!  I'm just under the GP now and it feels......strange.....!

 

 

Community Champion
Posts: 1,572
Registered: ‎19-04-2017

Re: May 2017 chemo starters

Mishy, glad it's not spine mets but not nice that you have to go through more treatment to fix it.  Glad you don't have to try juggling a job around all of this as well.  Xxx

 

Wolfee, my ovaries are staying in at the moment as they are monitoring my menopausal status for now,  I haven't had a period since June 2017 and if they don't reappear by June 2019 then they consider me post menopausal and therefore ovaries inactive anyway so no point in removing them.  I had  blood tests to check menopausal status and it confirmed menopausal stats,  Have you had all of these checks and discussions with a gynocologist?? Xxx

 

My recontruction leaflet arrived a couple of days ago and I've got to read it before seeing surgeon so I'm fully aware of all options.  On scanning it it's looks like implants only = 2 lots of surgery 3 months apart due to expander but diep flap = 2 lots of surgery in a 5 hour session for tissue transfer.  

 

Hi Shi, I look forward to seeing you later today!  💗 💗😍😘😝

Shi Community Champion
Community Champion
Posts: 3,247
Registered: ‎11-10-2017

Re: May 2017 chemo starters

Wolfee hope you’ve been able to discuss your questions with team ❤️❤️💕💕✨✨Shi xx