Hi AnnieJ and others, and thank you for your feedback about polybalm and nail remedies. I will report back to other threads about what worked for you.
It strikes me as amazing how all of our lives must have changed so much since diagnosis, but a year on, and you all seem to have come out of the other side and still the 'right way up'. It's great that you all still keep in touch, and I admire you for how you have all coped.
I have had had my second infection on FEC now, and the antibiotics are playing me as well now with their own S E's. I start T and herceptin on 4th October, and am a bit scared. Anyone been through the same as me ?
I would be interested to know how FEC T plus herceptin for a year and bone protection 6 monthly, (for 3 years so no one will know yet.... ) plus radiotherapy has affected you a year on? I had no hormone involvement so don't need hormone treatment.
My daughter gets married on 1st June next year, and when I knew the date, I was so excited to lose weight, and gave myself a year to do it. Then 4th June this year I had the news I had BC. Now I have forgotten a bit about the weight loss, and just hope I will have hair! How things change.
All the the best everyone
Georgie G xx
Hi Georgie G, I used Defiant nail oil all through my treatment (EC-T) plus 25 rads. I also had manicures when I was ok and used dark nail varnish. I kept all my nails, and I think they are much stronger than before. I went online for the oil, to a well known cancer site . I ordered the shampoo system from there as well - Plantur, which has definitely helped with hair. My BC nurse recommended coconut oil for my scalp when my fuzz came through and I used to go to bed in a haze of coconut bliss! I think the treatment has made my hair coarser , and as I am stage4 and on continuing treatment my hair does suffer. Anything is preferable to bald though! X
Shi / Mishy - hair?! - please don't mention it! haha!!
Don't get me wrong, I'm so thankful it returned and lovely and thick too, however, I don't like the texture, colour nor it's own style!
I've coloured it - but still it seems to have it's own mind on that - I've had it trimmed and thinned a few times - as for trying to style it - I've given up - I let it do it's own thing - sometimes I'm happier with it than others... nothing I try to do makes an awful lot of difference!
My biggest concern at the moment with it is the fact I have my Niece's wedding to attend this Saturday - I've chosen my outfit - shoes and bag and I can paint my nails and perfect my make-up - but I have no control over what my hair will do - I just have to see how it goes on the day.....! I could become known as the crazy Auntie with the "hair"!!!
What's this water they are ranting about on my local BBC radio station this morning?
CBD water available from Holland & Barret, Sainsburys, Waitrose and other outlets.
Has anyone tried it?
How lovely to see you return and I'm glad everything is moving along smoothly for you and that the medics seem to be looking after you extremely well.
I was reading through your post and although I'm not on the same meds as you, I can relate to the list of side effects you are suffering ie aches around the shoulders, lower back, uncomfortable feeling in the rib cage - I also suffer aches in my hips (especially after exercise) - and foot pain in my left foot/heel. In general ladies, I do believe a lot of these side effects have been caused by our treatments and not our current meds - chemotherapy is after all poison and with that in mind, our bodies (I feel and fear!) will never be the same again - added to that radiotherapy (for those of us who had it) - again brilliant that it's available but again it destroys both good and bad cells - both of these treatments (although amazing) remain active in our systems for far longer than we are informed at the outset. I'm seeing reports of ladies 3/5 years out of treatment and still suffering these side effects.
Adding to these two treatments our own personal meds (ie Herceptin/Tamoxifen/Anastrazole/Ibandronic Acids... etc etc.... these too have side effects but I really do think the majority of our aches and pains have been caused by the original "harsh" treatments - I for one will certainly not complain about that as I know those together with the two targetted therapies I was on alongside chemo, destroyed completely the cancer that was in my breast and lymph nodes - but the price to pay is the aches and pains I now suffer with on a daily basis - of course I'm not complaining because I'm still here - I still wake up each day - embrace the world and thank my lucky stars....
I may have turned 50 this year but indeed I really do feel as though my body turned 70!! I do exercise but I'm limited and I eat healthy and have cut out alcohol completely together with soya - but I'm alive and I'm a new "normal" - not one I'd dreamed about but I'm happy with the one I've become!!
Each and every one of us has been through a massive trauma. It was in fact a year ago yesterday that I had my single MX and all lymphs removed! Just be kind to yourself and never forget this motto; look back but don't regret, look forward - we all want to dream about our tomorrow's but live for today - enjoy, smile and be happy!
It's lovely to see our forum coming back to life - to see how we're moving on - this time last year I simply couldn't have been as brave and positive without all you amazing ladies xx
Hi May ladies,
I hope you don't mind me asking a question or 2 about a nail cream I have been advised about by my new consultant for using through T part of chemo. It is called Polybalm and had been trialled in my area.
I have explained more about it on the August thread, but wondered whether or not anyone could say whether or not this may have worked for them. I could then report back to the August ladies.
GP confirmed the initial result, a very underactive thyroid. Would ordinarily prescribe a very low dose of medication but given my previous heart problem (caused by Herceptin) and on-going high blood pressure she's going to liaise with the Endocrinologists and see what they advise. Will now hear on 4th October when I return to GP for blood pressure monitoring....
On the plus side - I went last night for my first ever taste of Yoga and loved it! Will definately be returning in 2 weeks time... x
So at my final onc appointment she suggested I should be tested for Diabetes and Thyroid following the treatment I've had (chemo, herceptin, rads (to upper clavicle area). A simple blood test (well fasting for the diabetes one).
Visited the GP last week for results - I'm delighted the diabetes is clear, however the thyroid one came back that I've got an underactive thyroid. Further blood tests to re-check and also the TPO part of the test. I'll get the results on Wednesday - depending on the results will depend on the medication required to treat....
I've subsequently researched and it would appear quite common for thyroid problems following treatment for breast cancer.
I've also been increased to 2.5mg of Ramipril as my blood pressure is still a bit high!
Other than this - I'm doing OK - put it this way, there's people far worse off than me.
Hope everyone else is doing well x
Good luck for today WolfEE - you know we'll all be thinking of you lovely. Let us know when you up and running again.... xxx
WolfEE, tough decisions for you. Have they mentioned Zoladex injections to deactivate your ovaries? I guess this would bring with it more side effects but it would give you more time to think about ovary removal. I wish we didnt have to think about all of this, its so burdensome isnt it? Sending hugs. xxxx
Jay, my head is still firmly in the sand on the recon front. Whilst I dont want more surgery, I do want to try and move forward with my life feeling a bit more balanced. I dont have an appointment with the surgeon yet but it will be looming on the horizon! You dont have to rush into a decision, if you need a bit more time to think then you could delay it a bit more. xxxx
Mishy - I repeat what others have already said - thank goodness no spine mets but sad to hear you've more surgery ahead of you.
Wolfee - so sorry for the decisions you're having to make. Whatever you decide and whatever happens you know us May Warriors are right behind you - supporting you all the way my lovely x
Mai - interesting. Do you have an appointment to see surgeon to discuss recon? I'm not seeing my surgeon until March and then he's going to refer me to a recon specialist depending on my thoughts. Have you made any decisions yet? I'm still unsure whether to have any recon. Most of the time I'm happy as I am - but every now and again I wish I could just put on any bra or bra top and not have to spend time adjusting myself (if you know what I mean) - also I do find the implant heavy and I'm sure that makes me achey at times especially after a long walk!
I'm currently in the big wide world with very little support harness and I'm not quite sure how I feel about it all! I'm just under the GP now and it feels......strange.....!
Mishy, glad it's not spine mets but not nice that you have to go through more treatment to fix it. Glad you don't have to try juggling a job around all of this as well. Xxx
Wolfee, my ovaries are staying in at the moment as they are monitoring my menopausal status for now, I haven't had a period since June 2017 and if they don't reappear by June 2019 then they consider me post menopausal and therefore ovaries inactive anyway so no point in removing them. I had blood tests to check menopausal status and it confirmed menopausal stats, Have you had all of these checks and discussions with a gynocologist?? Xxx
My recontruction leaflet arrived a couple of days ago and I've got to read it before seeing surgeon so I'm fully aware of all options. On scanning it it's looks like implants only = 2 lots of surgery 3 months apart due to expander but diep flap = 2 lots of surgery in a 5 hour session for tissue transfer.
Hi Shi, I look forward to seeing you later today! 💗 💗😍😘😝
Just returned from my "FIANL" oncology appointment! She's happy with everything, I'm happy with everything so that's it no more oncology....
The final echo heart scan I had done a week ago has shown my heart to be functioning well and the percentage has gone back up to 60% - so I can now stop taking the Ramipril with immediate effect!
Hooray - no more meds!
I've been recommended to have blood tests for thyroid and diabetes - just precautionary as all the meds I've been on can cause these problems - so to nip any problems in the bud it's best to get them checked.
It sure feels good to know - no more oncology - hopefully forever....! xx
Thanks, ladies. I will go to the BRA group in early September to see how other ladies are coping and then chat to the surgeon again. As I have that scar tissue that needs removing, the plan was for it to be done at reconstruction. I may also wait until about March as I have to go to Leicester Hospital for the DIEP reconstruction and then have to have recovery time so more time off work and dealing with post surgery issues.
Jay, maybe we can do this bit together too before our May get together!
Hope everyone else is enjoying the holidays.
Hi Daffodil - I'm in the same position too - and I really can't decide what to do! One day I think without question I'll go for reconstruction - next day or even that same day - I'll think no way do I want any op's etc and quite possibly the thought of it going wrong!
When my time comes to discuss with the surgeon which is ages away - next March(!) - I'll listen to all he has to say but won't make any rash decisions - it's something that can happen anytime - maybe I'll wait until my 5 year anniversary is up and celebrate with a new boob!!
I'm interested to hear what you decide to do. I know Heather is happy with her decision of staying mono and yet others are happy with the recon they've had - no decision is easy!
Hope all is well and you're enjoying the summer weather! x
Good luck, Jay. Trisha, hope your pains disappear soon.
I am still trying to make a sensible decision about reconstruction before my next appointment with reconstruction surgeon at the end of September.
Any advice from those who have either had, or thinking of, having.
Enjoy the rest of summer. x
So wish me luck as I'm off this afternoon for what could be my final echo scan - finished herceptin on 14th June - been on rampiril since February as the heart was starting to show signs of failure. Won't know until August 14th when I see the oncologist, which again may well be my final meeting with her... Fingers crossed x