Yes I've got something "normal" and that's my blood pressure at last.... well, until next Thursday when I'm due the next Herceptin injection!!
Treehouse - I've definitely come to the conclusion that I was never "normal" - thank goodness! x
Hi Trisha, lovely to hear from you. I thought you had finished your rads? Are you having a second helping? I get stiffness, aches and pains from treatment, Tamoxifen and surgery but feel generally well. You should speak to your GP if you are struggling that much and see if they can run some blood tests. Glad your hair is going well, at least! Xx
Thanks Mai for sharing your blog - it is a wonderful thing to do - I remember in the early days of being diagnosed and then facing chemo - how I plugged into Victoria Derbyshire's blog and found it so helpful and when I went to chemo - I really wasn't scarred as I'd seen what to expect. It's hard to look back on the chemo days - I was reading last year's diary this morning and I almost can't remember until I read that how bad my mouth felt - how I simply couldn't drink water let alone eat!
Hi Trisha - glad to hear you're still very much a part of us still - I really recommend all Herceptin ladies on here to take a little peak at the Targetted Therapies section of the board and in particular Herceptin Side Effects discussion (it's currently the one at the top) - find Yorkie's comments - she's a lady whose now 8+ weeks on from final herceptin injection - her words are truly inspirational and full of hope - well worth a read and may explain some of the reasons why we feel so rubbish at the moment.
So it's onwards and upwards this week - no medical appointments due and just an achey body and a bunged up nose to carry around!! (I've also seen herceptin can be to blame for the nose thing too - I'm still not complaining though - it has far more benefits than negatives!) x
Thanks Mishy and Treehouse, I really enjoyed writing the blog and it's nice to help others who are starting this horrid journey. You have all contributed to the knowledge base which I built up so I think there is a bit of us all in there somehow. I feel like I'm coming out some very deep thoughts now after the inertia of treatment finishing. I can't change the future but I can change my thoughts. Xx
My son popped home this weekend so I've enjoyed spending time with him. Been out for a lovely canal walk this afternoon.
Here's the blog I've created so here it is for anyone who would like to have a read: https://lifeafterlola.blogspot.co.uk/
love to all. Xx
Mishy - I was only thinking this morning, bearing in mind I had my op last Sept - I've not really been given any info on lymphodema - I feel, especially as I've had all lymphs removed under my right arm coupled with rads - I should have been given some instruction on massage on assisting lymph drainage. I'm surprised I haven't been offered a sleeve - maybe that's going to be discussed with me at my 6 month post op appointment with the surgeon at the end of the month - we'll see!
Obviously the lady who made the comment on forums is entitled to her view - however, personally I have found the forum invaluable - I have been extremely fortunate to have the most amazing support of my hubby, family and friends but the ladies from May 2016 kept me sane! We were all going through the same treatments and only us were able to truly know how each other were feeling and offer invaluable advice and support. The reassurance that I wasn't truly going mad was immeasurable. I would recommend anyone going through this whole thing to join a forum like ours. So don't feel wimpy that you too used one - as you say it's not all cancer talk - but the laughs and good times are also extremely important. x
Hi Wolfee - it's definitely Mai who takes CBD oil - I'm sure she said she puts 2/3 drops under her tongue - but I don't recall where she gets it from - hopefully she'll be on here soon to direct you!
Hi Ladies, hope you are all doing well.
WolfEE, sending hugs as you hit your anniversary. My diagnosis was on 20th March so it's looming. The daffodils are starting to bloom and I am very happy to see them again.
Treehouse, take it steady and I hope your recovery continues to go well. Do they comment on whether they expect your heart rate to slow down eventually?
Mishy, sod superwomen who don't need forums. I think they're great. They enable us not feel alone at any time, day or night and we don't have to bore "normal" folk with our BC talk, because people expect the cancer story is over and we can move on, but in reality there are still a lot of issues and anxieties we need to talk about. This is a safe space to do so. I also like to think it's useful for health professionals or researchers to peep at if they want to know what we go through and how we manage it.
CBD oil. Yes I am using daily since I finished radiotherapy. As it is not conclusively medically proven there is no recommended dose so we are our own test. I buy from canabidol.com and their 500mg is about £40 which should last me about 2 months. They deliver next day. I just put 2-3 drops under my tongue twice a day. It's als good for anxiety.
Hi Treehouse, Gosh that sounds like a proper workout!! Do they recommend doing something similar at home or do you just go back there again and do the same again for a few weeks?
Im desperate to lose a bit of ‘excess’ and I’ve lost 5lb with this walking lark! At this rate there won’t be an inch of the city or surrounding area that I won’t have walked 😂 ... must avoid the roads with lovely bakeries though 🤤
Hi all, sorry not been on here for a while. Some of you are on Facebook and some aren't, so sorry for the duplicate post today.
Had 1st annual checkup today My appmt was supposed to be just to see Breast Consultant but I asked if they could do mammo too as it was booked for 2 weeks time. They did the mono mammo (!) which didnt seem to hurt so much this time, maybe my pain threshold is higher. Had to wait to see Consultant, his registrar examined mono boob and then my scar from Mx and also all lymph nodes on chest, neck and under chin and around my neck at the back (had to shrug my shoulders for this one). Not a chatty Consultant, asked me if I had any concerns and then said see you next year. Results from mammo back in 2 weeks via post.
During treatment time was so slow but now over 1 year from diagnosis time seems to be moving much faster.
Love to all
I have finally got my eye test booked for next Monday!! I know I’ll need new lenses, can really notice a difference that chemo has left me with. Hey ho .... maybe upgrade to new frames too 🤓
Hi Treehouse, quite a mix of ages then at cardiac rehab session. How did you feel about the session, have you found it helpful? Did they say anything about your resting heart rate and how it can be reduced or are they happy with it?
WolfEE - Have you made the call? If not, please call them 😘 Don’t have any more sleepless nights worrying, and certainly don’t worry about having to speak to the breast care staff. They get paid to do a job, and answering your call is part of that, and taking care of you is part of that. If you’ve called them already, then apologies for the waffle!! 😁 But if you haven’t .... you’ll have Treehouse and myself nagging you! 😉 x