05-05-2018 01:04 PM
04-05-2018 09:32 AM
04-05-2018 01:09 AM
Mishy, how did the nudging go? At the secondary BC support group meeting at Maggies we were told there was a five week waiting list!! The numbers of people being diagnosed is increasing exponentially and so waiting lists are up hugely. Also, if you are waiting for a CT scan one of the scanners is being refurbished so a wait there,too! 😡
03-05-2018 08:10 AM
03-05-2018 07:31 AM
03-05-2018 07:22 AM
03-05-2018 05:11 AM
Poor you, Mishy. I agree. There's enough to worry about without checking on medical procedures. Had my first mammo two weeks ago at RVI. Experience not great as it was same room and same radiologist! Unbelievable ! Bit of a melt down, but she was wonderful . Apparently it is quite normal to feel emotional the first time. Also that same week had my first CT scan after three cycles of Palbociclib. Two weeks of hell waiting for results at clinic. I was convinced it had spread further as I have a few aches and pains now, plus a little dry cough I can't seem to get rid of. Great news though. My lung mets have shrunk, and there is no sign of further spread. Painted Newcastle red that night!! 🍷🎉🍾🙃. Hope you get appointment sorted. X
02-05-2018 06:33 PM
02-05-2018 05:47 PM
02-05-2018 02:22 PM
Appointment with GP today at 5.15 - to check the rampiril is doing it's job and to ensure it's not affecting my kidneys whilst repairing my heart!!!
Herceptin again tomorrow, then just 2 more to go.........! x
30-04-2018 09:23 PM
Mai and Daffodil - there are two very interesting threads on here regarding reconstruction. I highly recommend you having a read. First one is under "Moving forward after treatment" "Recovery after treatment" "A flat way of life" and the second one is under "Going through treatment" "Surgery" "to reconstruct or not".
I'm still very much undecided. Like you Mai I'm keen to let sleeping dogs lie and in another way I'd love not to have to think about prosthetic etc when I get dressed in the morning!
30-04-2018 06:27 PM
Aww, thanks ladies for the lovely words. I am deeply moved. Likewise, you have all been amazing and whilst I shared all knowledge researched you double checked and sense checked it too and just knowing there was someone else out there feeling as crappy and isolated as me was a great comfort. I'm sure we will be friends for life now. I think our shared compassion and sense of humour has been a great distraction from some pretty harsh realities we've faced! xx
I had my lymphodema check up last week and all good, only a 2% difference so Im considered low risk for lymphodema.
Binocular woman!!! thats funny Shi. x
Daffodil, I still have my head in the sand on the recon at present but would be interested to hear what you have to say after your appointment. I feel a bit nervous about the prospect of the tissue in that area being disturbed again - let sleeping dogs lie and all that...... but want to feel balanced and symmetrical again! :-? xx
30-04-2018 03:16 PM
Thanks for all the wishes for today. So, I need an ultrasound scan, but surgeon didn't seem too worried. Have to see him again in two weeks time, so more waiting, first to get a scan and then for the results.
I will also attend a BRA meeting on 8th May to meet other ladies who have had or are waiting to have breast reconstruction surgery. It is an opportunity to discuss options and outcomes. Still about 9 months till I am due to have mine, but surgeon wants me to the research so I can make an informed decision.
Take care ladies.
30-04-2018 12:39 PM
30-04-2018 09:24 AM
Yes indeed Tatyana - please do pop onto facebook and take a look at what's arranged - you could well be tempted!!
I do like the way Treehouse has become known as "Binoculars" Woman - when my son was small he used to call binoculars - knocky woods! - all have a connection, in a funny way with the name "Treehouse".....!
If it wasn't for this forum - I'm sure I would have gone crazy (sorry.... crazier!)!!! Love you all, xx