Hi treehouse 😁😁😘😘hope your appointment goes well any idea how long you’ll be in for when you have the op? When I went for gene testing because of tn status, the lady said it’d be keyhole if the needed them out, have you had this option? I hope so 😘😘sending much 🤪🤪🤪💕💕💕✨✨✨Shi xx
Hi ladies it’s been a while. Just checking in to see how you are all doing. ( and seeing if I can log in to the new look bcc) things are plodding along here but I am back in for a scan this weekend to prepare for ovary removal. My surgeon did ask if I would consider being part of a new trial for Brca1 ladies but my blood test showed I am post menopausal so not suitable. If anyone else is Brca1 and planning preventative surgery, it might be worth mentioning it.
keep well ladies.
much love 🌳 🏠
Mishy, glad to hear you are doing well. Humour definitely got us through a very difficult time. I only had a few days where I had zero sense of humour. When I was in hospital I felt too week to see the funny side of anything which just shows humour must require a certain amount of energy and wellbeing. Where would we be without it!? xxx
Thanks Mishy, I love that your joke is woven into my story. Do you remember when I said "paranoia is the new fragrance" and you added the "utterly seductive with delicate hints of over-reacting"? That's on my blog on the moving on thread. How are you doing? Are you having any treatment? xx
Shi, yes, the blog is gathering momentum world-wide but none of my story would be possible without my BCC buddies. I'd forgotten about treehouse's naughty adventure to the hospital Christmas tree last year! Those lovely little stories of mischief we all have that got us through our darkest days. Like me being banned from the toilet in hospital, so I took imodium: no loo, no poo! xxxx
Mishy, I'm still blogging! It's growing! I think I have a bloggerholic disorder. I'm just pleased its supporting people with this sh***y disease. Hope you are doing well. xxx
Shi, I haven't even thought about Christmas yet and last year after chemo and surgery I was mega organised on Amazon because I couldnt get out to shop! Hooray for spontaneous shopping! xxx
Lovely to hear from you Trisha and glad you *and your teeth* are doing well. xxx
Mishy, you and me too on the whoop whoop skipping in and out of those shops this year! People just dont realise how lucky they are to be well enough to go out Christmas shopping. Hope you are doing well. xxx
Hi Jay, well done! x
For anyone interested, just wanted to share this piece of research with you: https://medicalxpress.com/news/2018-01-specific-protein-breast-cancer.html
IGF is found in dairy products and Tamoxifen and Metformin are known to reduce IGF levels (as pointed out in Jane McLellands "How to Starve Cancer" book.
Today is all about wearing PINK and bringing awareness to Breast Cancer. At the same time I've held numerous fundraising events - raising funds for Breast Cancer Care. This charity is here - it's full of advice, support, friendship and hope - long may it continue x
Wolfee - it's the same for me on my thyroxine - I have to take it at least half hour before breakfast and any drink containing caffeine! That's every day....!!! x
WolfEE not the best news ever and I'm so sorry to hear it. How was this diagnosed?
I've still got the on-going high blood pressure 150/90 and I'm on Ramipril - got to double the dose!
The underactive thyroid is due to my immune system attacking the thyroid glad - quite possibly as a result of the Herceptin/Radiotherapy treatments. I will know more when I see the endrocologist in January!! In the meantime, taking my 50mg of throxine a day is making me feel amazing!
I've got the on-going pains of planta fascilitis which again was aggravated by the chemo and has regular flare-ups now where it's so painful I simply can't stand let alone walk! Can't take ibrophren which would help because of the heart meds but can use the gel. However, Dr gave me an exercise sheet yesterday - four quite basic exercises to do twice a day - I'm not the best at getting in a routine but must say after doing them this morning my foot feels a little more comfortable so I must persevere.
In the meantime, I have just one thing to say - active "treatment" for cancer might be out of the way but my goodness I'm rattling just as much with all the subsequent meds.... not counting the healthy supplement pills!!! Oh shake, rattle and roll..... and good wishes to all. lol xx
Sorry Treehouse - I wasn't here after 11 to share in your pains! I do hope you managed to get some sleep and are feeling better this morning. I get where you're coming from - when you're feeling under the weather it's easy to recall all of last year in the spate of an hour - it can be quite depressing! Then suddenly you'll bounce back and think to yourself - my god I survived that.... I can survive this.....! Onwards and upwards - we are survivors - we can face any battle (especially you my lovely!). xx
Hi Georgie, you just focus on getting to that wedding. Planning for it will give your spirits a much needed lift, and hopefully take your mind off the current stuff a bit. Apparently I had a rough time with chemo. My Onco thinks the F bit is old fashioned so I was put on EC-T. Unfortunately I had three infusions, followed a week later by a hospital admission. The last one was a corker as I went into rigor and was in hospital a week. Turned out my body didn't like my Hickman line! My fourth infusion was ok as the Hickman wasn't used. So we are all very different, but with the help of my team I'm through it all. As you will be. Onward and upward. X
Jay, I agree, I feel more energetic than before diagnosis and I think it's because I've taken on a healthier lifestyle and have a better attitude to life. Like everyone else, my hair is now a bit wavy and unpredictable but I've embraced it and am quite happy with what I have. Hair is good! We have all been so good for each other: love, understanding and humour. A problem shared is a problem halved. We sure as hell paddled the lifeboat back to the shore! Xx
Shi, don't worry about the hair, it has to go through all of the phases like the moon before its full! 😂 💗💗 xx
Treehouse, bigs congrats on finishing treatment. Look how far you've come. I remember at one of your lowest points when you was waiting for a blood transfusion and I was virtual singing "When tomorrow comes" for you! Xx
Daffodil, I had my BCN appt today and will be getting a referral to speak to a consultant next. I'm not in a big hurry as I'm enjoying time away from being an inpatient! It's a lot to think about again isn't it? Xx
Good to read the latest posts. Most of us have much to celebrate with slowly returning to normality. I have enjoyed getting back to part time work as well as Pilates and yoga. My next dilemma is my reconstruction. I have my appointment with the surgeon next week. I am still unsure which method to choose and when to go for it as recovery times vary and I am not sure when to put my life back into recuperation mode.
It is hard to believe how far we have all come. Thanks for all the support! x