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May 2017 chemo starters

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Re: May 2017 chemo starters

Hi AnnieJ and others, and thank you for your feedback about polybalm and nail remedies.  I will report back to other threads about what worked for you. 

 

It strikes me as amazing how all of our lives must have changed so much since diagnosis, but a year on, and you all seem to have come out of the other side and still the 'right way up'.   It's great that you all still keep in touch, and I admire you for how you have all coped. 

 

I have had had my second infection on FEC now, and the antibiotics are playing me as well now with their own S E's.   I start T and herceptin on 4th October, and am a bit scared.   Anyone been through the same as me ?

 

 I would be interested to know how FEC T plus herceptin for a year and bone protection 6 monthly, (for 3 years so no one will know yet.... ) plus radiotherapy has affected you a year on?  I had no hormone involvement so don't need hormone treatment.  

My daughter gets married on 1st June next year, and when I knew the date, I was so excited to lose weight, and gave myself a year to do it.  Then 4th June this year I had the news I had BC.  Now I have forgotten a bit about the weight loss, and just hope I will have hair!    How things change.  

 

All the the best everyone 

 

Georgie G xx 

Community Champion

Re: May 2017 chemo starters

Hi Georgie G, I used Defiant nail oil all through my treatment (EC-T) plus 25 rads. I also had manicures when I was ok and used dark nail varnish. I kept all my nails, and I think they are much stronger than before. I went online for the oil, to a well known cancer site . I ordered the shampoo system from there as well - Plantur, which has definitely helped with hair. My BC nurse recommended coconut oil for my scalp when my fuzz came through and I used to go to bed in a haze of coconut bliss! I think the treatment has made my hair coarser , and as I am stage4 and on continuing treatment my hair does suffer. Anything is preferable to bald though! X

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Re: May 2017 chemo starters

Oh the uncontrollable hair. I now have 3 hair bands of the ‘Alice ‘ variety ( thanks to a fellow warrior with more style than me)
I use these when I am unable to tame the waves. I have coloured it a couple of times a natural dark brown because the vast amount of gray depresses me. I have been keeping it cut short but after seeing Mai with a lovely bob I have been inspired to persevere and grow it. We will see how long I last. Colour due in 2 weeks the roots are starting to show.
On the whole I love my crazy wavy mop.
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Re: May 2017 chemo starters

😂😂 yeah sounds like mine i haven't dyed mine yet as im not sure what im going to do with it i do have a white.. yes thars right patch at the front which wasn't there before chemo the odd stray grey hair like everyone my age i used to highlight it before but this i really don't know how or what i can do with it it didn't look that bad when it was short short actually looked quite on trend but now its nana short its 😨
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Re: May 2017 chemo starters

Shi / Mishy - hair?! - please don't mention it! haha!!

 

Don't get me wrong, I'm so thankful it returned and lovely and thick too, however, I don't like the texture, colour nor it's own style!

 

I've coloured it - but still it seems to have it's own mind on that - I've had it trimmed and thinned a few times - as for trying to style it - I've given up - I let it do it's own thing - sometimes I'm happier with it than others... nothing I try to do makes an awful lot of difference!

 

My biggest concern at the moment with it is the fact I have my Niece's wedding to attend this Saturday - I've chosen my outfit - shoes and bag and I can paint my nails and perfect my make-up - but I have no control over what my hair will do - I just have to see how it goes on the day.....!  I could become known as the crazy Auntie with the "hair"!!!

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Re: May 2017 chemo starters

Jay you are definitely right about everything including the embracing of the new normal and being thankful that we are living each new day when im having a moan about things i remember that i am lucky in more ways than one
My hair ob the other hand the least i say about that the better 😨 its at that will i persevere abit longer or get it chopped off stage have had it cur but uts wild still growing at different stages so peeing me off a bit but everyone insits it looks ok
Shi how delightful a footballer cica mullet i remember mine with fondness after my cut that went looked fab for a few weeks now i resemble Doris from the bingo 😨👍
Shi Community Champion
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Re: May 2017 chemo starters

1980’s curly mullet 🤪🤪🤪
Shi Community Champion
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Re: May 2017 chemo starters

Hi jay, no not tried cbd water, I do take the 4000mg cbd oil though because I was a tn, I take it because it makes me feel I’m doing something and that’s all any of us can do isn’t it 😁😁hows everyone’s hair coming on? Mai’s Rocking a coco Chanel last time I saw her, I’m currently rocky big footballers circa
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Re: May 2017 chemo starters

Hey ladies,

 

What's this water they are ranting about on my local BBC radio station this morning?

 

CBD water available from Holland & Barret, Sainsburys, Waitrose and other outlets.

 

Has anyone tried it?

 

x

Member

Re: May 2017 chemo starters

Hello Georgie Gee and welcome to our forum!

I'm sorry, Polybalm is a new one on me! See look how things change in a year! A lot of us used the Udderly Smooth cream (with added urea) - that is a great moisturising cream recommended by my Chemo team - it can be used anywhere on the body.

I also kept my nails covered in very dark nail polish throughout chemo and for at least 2 months after. It was not until this time that my nails started to become problematic - splitting and very weak and I lost my half moons.

My biggest advice is to keep your nails short - it's something I didn't do and I feel now that didn't help.

I was extremely lucky with my toe nails - again I kept them covered in dark nail varnish and I didn't expose them to the daylight - which was very difficult as I went through chemo (like the rest of the ladies on this forum) during a very hot summer!

Another helping factor is Epsom Salts (both for the whole body in a bath and for aching fingers and toes in a small bowl).

I'm pleased to say - my nails are now much stronger - I'm able to keep them a little longer and I now wear pretty coloured nail varnish! It does all return.......

Good luck for your T part of chemo - you can always come back to us very experienced ladies if you need any further advice - I'm sure one of us will have the advice or information to calm your fears and reassure you!

Take care - Jay68
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Re: May 2017 chemo starters

Hi Sarah19.

 

How lovely to see you return and I'm glad everything is moving along smoothly for you and that the medics seem to be looking after you extremely well.

 

I was reading through your post and although I'm not on the same meds as you, I can relate to the list of side effects you are suffering ie aches around the shoulders, lower back, uncomfortable feeling in the rib cage - I also suffer aches in my hips (especially after exercise) - and foot pain in my left foot/heel.  In general ladies, I do believe a lot of these side effects have been caused by our treatments and not our current meds - chemotherapy is after all poison and with that in mind, our bodies (I feel and fear!) will never be the same again - added to that radiotherapy (for those of us who had it) - again brilliant that it's available but again it destroys both good and bad cells - both of these treatments (although amazing) remain active in our systems for far longer than we are informed at the outset.  I'm seeing reports of ladies 3/5 years out of treatment and still suffering these side effects.

 

Adding to these two treatments our own personal meds (ie Herceptin/Tamoxifen/Anastrazole/Ibandronic Acids... etc etc.... these too have side effects but I really do think the majority of our aches and pains have been caused by the original "harsh" treatments - I for one will certainly not complain about that as I know those together with the two targetted therapies I was on alongside chemo, destroyed completely the cancer that was in my breast and lymph nodes - but the price to pay is the aches and pains I now suffer with on a daily basis - of course I'm not complaining because I'm still here - I still wake up each day - embrace the world and thank my lucky stars....  

 

I may have turned 50 this year but indeed I really do feel as though my body turned 70!!  I do exercise but I'm limited and I eat healthy and have cut out alcohol completely together with soya - but I'm alive and I'm a new "normal" - not one I'd dreamed about but I'm happy with the one I've become!!  

 

Each and every one of us has been through a massive trauma.  It was in fact a year ago yesterday that I had my single MX and all lymphs removed!  Just be kind to yourself and never forget this motto; look back but don't regret, look forward - we all want to dream about our tomorrow's but live for today - enjoy, smile and be happy!

 

It's lovely to see our forum coming back to life - to see how we're moving on -  this time last year I simply couldn't have been as brave and positive without all you amazing ladies xx  

Shi Community Champion
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Re: May 2017 chemo starters

Hi wolfee, treehouse ❤️❤️❤️Lovely to hear you are doing well 👍👍👍 and jay hope you get answers on 4th and glad you are enjoying the yoga, it’s something I keep meaning to try. Mishy hope you are having good holiday/had good holiday you were going up to Scotland is that right? Mai ❤️❤️❤️As always my Lola lobing 😁😁😁mate. Sarah, sorry I can’t help I was same as mishy a tn. Georgie gee, I did what mai7 did with black polish and kept my finger nails, I lost big toe nails and little toe nails though even with black polish on. 💕💕✨✨✨Shi xx
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Re: May 2017 chemo starters

Hello everyone long time no post. I have finally logged back on. I too used solar oil as Mai said. Fingers not bad but I am finding my toe nails were not so lucky they are finally growing out but they were not good. I did wear sandals a lot so maybe sunshine? I didn’t oil my toes so I would recommend it.
Toes take longer to grow out than fingers.

I have finally finished herceptin and other than heart tablets I’m not on anything else. I had a boob scan today which was all clear. Surgeon appointment in 2 weeks then nothing til onc in April. I do need to chase up my opherectomy but I just can’t get my head there yet as I am enjoying normal for a while first.

Keep plodding ladies lots of love x
Community Champion

Re: May 2017 chemo starters

Hi Georgie Gee, most of us on this thread used CND solar oil with varying results. I haven't heard of the one you mention but might be worth a try if it's not too expensive. With the docetaxol you need to wear dark nail varnish until the end of chemo and 3 months after that. Docetaxol leaves the skin, including nailbeds, photosensitive to UV rays so protection is important I think just look after them as best you can but if the docetaxol causes splitting or peeling it's nothing you did or didn't do.. It's just that it seems to get some people more than others. Xx
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Re: May 2017 chemo starters

Hi May ladies, 

 

I hope you don't mind me asking a question or 2 about a nail cream I have been advised about by my new consultant for using through T part of chemo.  It is called Polybalm and had been trialled in my area. 

 

Link here: 

 

http://polybalm.com/nails-chemotherapy

 

I have explained more about it on the August thread, but wondered whether or not anyone could say whether or not this may have worked for them.  I could then report back to the August ladies. 

 

Many thanks

 

Georgie 

 

 

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Re: May 2017 chemo starters

Sarah19, I've also written a blog if you want to have a read: http://lifeafterlola.com Its a space where I can get it all off my chest (pardon the pun) in an artistic fashion and hopefully help others who are newly diagnosed. Xx
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Re: May 2017 chemo starters

Hi Ladies, lovely to hear from everyone.

Mishy, glad you are doing well and glad you are now menopausal without the scary oestrogen factory! Xx

WolfEE, well done and I don't know why but I though you had only had oophrectomy. I didn't realise it was the full hysterectomy. Hope you are taking it steady. Xxx

Welcome back Sarah and glad you are doing well considering all meds and associated side effects. I'm just on Tamoxifen and find it ok except for joint stiffness if i sit still too long or try and exercise too hard so it's a fine balance. I walk a lot to keep fit now which is working well for me. Send WolfEE a private message if you want to join us in Facebook. Xxx
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Re: May 2017 chemo starters

Ladies i don't take any hormone drugs as my bc was TN but im interested in the bone strengthening drugs as i too heard that about menopause weakening bones and how the strengtheners can protect against mets too my onc never persued this with me my GP ran my menopause status check and given that my mam has osteoporosis and i had chemo so will probably have a density test then hopefully get the bone things
Wolfee im pleased to hear that you have recovered well from your op hopefully if you are lucky you might dodge the hot fluses as you had enough of them with Chemo!!!
I still get the odd night sweats and random flushes but think thats it for me 👍
Sarah lovely to hear you are doing well yes thats some cocktail but at least your onc is proactive re the bine strengtheners and their benefits to you in terms of preventative measures x
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Re: May 2017 chemo starters

Hi Wolfee,
So pleased to hear you are recovering well.
So from what I understand the Zoladex injections push me into the menopause. Because I am now considered menopausal I’ve had to switch from the tamoxifen to the Anastrazole (and I think there is another called letrazole so it’s either or) and the inabdronic acid is to improve bone density as menopause weakens bones but my oncologist also said it has shown some reasearch to benefit overall survival as well?? The Adcal is a calcium tablet to ensure I’m getting enough. I’d be very interested to see what they decide to put you on. I don’t mean to sound ungrateful and Moany as I am so very very grateful to be here and have the chance to take tablets!! But it’s hard when you have gone from no medication what so ever to feeling like there is lots!! Small price to pay for the grand scheme of things I know but will just be happier when all the side effects do one!
You poor thing with your tooth!! That must be so painful! Hope it’s feeling better soon
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Re: May 2017 chemo starters

Hi Mishy / Sarah. Good to hear from you.
I am now 3 weeks post hysterectomy and Oophorectomy and so far so good no menapause symptoms as yet. Pain wise is all manageable. The worse thing was developing massive toothache that was worse than the surgery. Today I had the nerve taken out. I’ll have the tooth removed or root canal in a few weeks when I’m off the blood thinning injections.
So I’m still on tamoxafen but I’m guessing when I see my oncologist in November I’ll be swapped as I’m obviously post menapause because of having my overies removed. So I am interested in your little list of meds Sarah as I’m guessing I’ll be on similar? I’m not that clues up and don’t recognise the names and what they help with??
My GP will put me on an antidepressant if hot flushes get bad. Apart from that I’ve not been put on or changed from anything yet????
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Re: May 2017 chemo starters

Hi everyone. You may not remember me as been a very long time since I was on here. Last time I posted I had just had my big op for mastectomy with immediate reconstruction. It didn’t feel right to post much after that time as we were at very different times in our treatments and I was finding it quite difficult to cope with.
Anyway I Hope everyone is doing well and coping well since surgeries and starting medications etc.
I attended the moving forward course in June which I found to be quite beneficial and it was lovely to meet some ladies in the same position. I started Zoladex injections in April and 2 weeks ago switched from Tamoxifen alone to Anastrazole along with Ibandronic Acid whilst also taking vitamin D and Adcal on a daily basis. Feel like
I’m rattling at the moment!! I’m finding the ibandronic Acid very difficult as having some very uncomfortable side effects - aches around the shoulders, lower back, uncomfortable feeling in the rib cage?? And very windy/gassy with bit of acid reflux - oops. Hoping all will pass and settle down otherwise I’m not sure I could cope with it for 3 years, plus I’m missing being able to get up and have my early morning cuppa!! Lol. Is anyone else on the same delightful concoction of meds? Would be nice to hear others experience on them.
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Re: May 2017 chemo starters

Hi everyone hoping you are all well ita been a while i know you are all on Facebook im not unfortunately so pop ib here to say hello
had bloods ran and results xame back definitely through menopause doesn't need to be checked again!!! My periods stopped after 2nd fec last August never returned but my onx said they could so the blood test confirmed otherwise im am officially no longer of child bearing age so the chemo obviously shut down my ovaries permanently gp says should probably check my bone density just in case
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Re: May 2017 chemo starters

GP confirmed the initial result, a very underactive thyroid.  Would ordinarily prescribe a very low dose of medication but given my previous heart problem (caused by Herceptin) and on-going high blood pressure she's going to liaise with the Endocrinologists and see what they advise.  Will now hear on 4th October when I return to GP for blood pressure monitoring....

 

On the plus side - I went last night for my first ever taste of Yoga and loved it!  Will definately be returning in 2 weeks time... x

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Re: May 2017 chemo starters

So at my final onc appointment she suggested I should be tested for Diabetes and Thyroid following the treatment I've had (chemo, herceptin, rads (to upper clavicle area).  A simple blood test (well fasting for the diabetes one).

 

Visited the GP last week for results - I'm delighted the diabetes is clear, however the thyroid one came back that I've got an underactive thyroid.  Further blood tests to re-check and also the TPO part of the test.  I'll get the results on Wednesday - depending on the results will depend on the medication required to treat....

 

I've subsequently researched and it would appear quite common for thyroid problems following treatment for breast cancer. 

 

I've also been increased to 2.5mg of Ramipril as my blood pressure is still a bit high!

 

Other than this - I'm doing OK - put it this way, there's people far worse off than me.

 

Hope everyone else is doing well x

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Re: May 2017 chemo starters

Good luck today wolffee 💪♀️
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Re: May 2017 chemo starters

Good luck for today WolfEE - you know we'll all be thinking of you lovely.  Let us know when you up and running again.... xxx

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Re: May 2017 chemo starters

WolfEE, tough decisions for you.  Have they mentioned Zoladex injections to deactivate your ovaries?  I guess this would bring with it more side effects but it would give you more time to think about ovary removal.  I wish we didnt have to think about all of this, its so burdensome isnt it? Sending hugs. xxxx

 

Jay, my head is still firmly in the sand on the recon front.  Whilst I dont want more surgery, I do want to try and move forward with my life feeling a bit more balanced.  I dont have an appointment with the surgeon yet but it will be looming on the horizon!  You dont have to rush into a decision, if you need a bit more time to think then you could delay it a bit more.  xxxx

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Re: May 2017 chemo starters

Mai my periods come back regular now roughly every 21 days (until this one?) I had irregular periods since maybe January but then lengthier more normal and regular since May or June. They haven’t mentioned checking my levels but I’m assuming that because of my periods and that I haven’t really had any hot flushes since January I maybe producing eastrogen and stuff even though on tamoxafen?
I am scared of how my life will be after and if I’m able to cope with the side affects and no HRT but I’m also terrified not to so I will do it no backing out.
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Re: May 2017 chemo starters

Thanks Ladies im bloody over the moon it wasn't mets as i know some are not as lucky i have an app with a neuro surgeon on 2nd Oct to discuss surgery so i have a bit of time to get my head round it!! It has put a massive spanner in the works re my plans for looking for a new job i just want to not be a patient 😔 but i will do it don't want to end up with mobility problems which without intervention is the result of this type of thing
Jay back to the GP i bet this feels weird i wonder why some trusts do this but at the same time they will never neglet any concerns you have my trust used to have regular onc apps for 10 years now we see them yearly for 5
If you are comfortable with no recon jay don't have one its a very personal thing for you
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Re: May 2017 chemo starters

Mishy - I repeat what others have already said - thank goodness no spine mets but sad to hear you've more surgery ahead of you.

 

Wolfee - so sorry for the decisions you're having to make.  Whatever you decide and whatever happens you know us May Warriors are right behind you - supporting you all the way my lovely x

 

Mai - interesting.  Do you have an appointment to see surgeon to discuss recon?  I'm not seeing my surgeon until March and then he's going to refer me to a recon specialist depending on my thoughts.  Have you made any decisions yet?  I'm still unsure whether to have any recon.  Most of the time I'm happy as I am - but every now and again I wish I could just put on any bra or bra top and not have to spend time adjusting myself (if you know what I mean) - also I do find the implant heavy and I'm sure that makes me achey at times especially after a long walk!  

 

I'm currently in the big wide world with very little support harness and I'm not quite sure how I feel about it all!  I'm just under the GP now and it feels......strange.....!

 

 

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Re: May 2017 chemo starters

Mishy, glad it's not spine mets but not nice that you have to go through more treatment to fix it.  Glad you don't have to try juggling a job around all of this as well.  Xxx

 

Wolfee, my ovaries are staying in at the moment as they are monitoring my menopausal status for now,  I haven't had a period since June 2017 and if they don't reappear by June 2019 then they consider me post menopausal and therefore ovaries inactive anyway so no point in removing them.  I had  blood tests to check menopausal status and it confirmed menopausal stats,  Have you had all of these checks and discussions with a gynocologist?? Xxx

 

My recontruction leaflet arrived a couple of days ago and I've got to read it before seeing surgeon so I'm fully aware of all options.  On scanning it it's looks like implants only = 2 lots of surgery 3 months apart due to expander but diep flap = 2 lots of surgery in a 5 hour session for tissue transfer.  

 

Hi Shi, I look forward to seeing you later today!  💗 💗😍😘😝

Shi Community Champion
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Re: May 2017 chemo starters

Wolfee hope you’ve been able to discuss your questions with team ❤️❤️💕💕✨✨Shi xx
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Re: May 2017 chemo starters

Wolfee re the ovaries have a good think and maybe arrange an appointment to have a chat to discuss all your concerns its a big thing fir you don't apologise for your rant i was a right okd mess earlier today then i thought howay man mishy you did the worst thing ever already you did bc you can def do this i hope you come to tge right decision for you 💖
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Re: May 2017 chemo starters

Thanks Shi Wolfee not going to lie i cried with relief to hear it wasn't mets and i know the other stuff as painful as it is will be rectified with an op just need to be extra careful in the meantime can't lift anything carry shopping bags and no jumping around or jerky neck movements in the meantime haha you are totally right this would have been the end of the world to me before bc but now its like oh well 😨 and yeah the redundancy was a blessing in disguise wolfee i hope your back is ok too im really taken back by my results wasn't expecting it so I hope yours aee good i literally can't understand how its happened i hope chemo and rads hasnt weekend my bones 😨 im thinking of asking about the bone strengthening stuff some people are getting to prevent mets as my bones are clearly not very strong!!!!
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Re: May 2017 chemo starters

Wolfee 😘😘if you are having 2nd thoughts about op, speak to your team to say you are unsure and would it be possible to delay? It’s a massive decision you are make by and one you have to be a million % happy to make. There is the someone like me option in here that you’ll could try, might help you. Sending you big ❤️❤️❤️💕💕✨✨✨shi xx
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Re: May 2017 chemo starters

Mishy18 god what a mess the spine stuff sounds but I suppose something that would have once sounded awful and to most people sounds ok 2 is now because as long as it isn’t the C back it’s good news 👍 but what a **bleep** 2 deal with after everything else. You can do this and yeah sounds like the redundancy was a blessing.

I’m off to see the oncologist later today 4pm as part of my assessments on the add aspirin trial. It was after my last appointment 3 months ago that I was sent for the bone scan on my back. I’ve not had any results as such but a phone call saying it wasn’t mets so that’s good I’ll ask for any update on why my back is so painful.

I’m getting cold feet about my overies and hysterectomy in two weeks time. I know I have to do it I’m scared not 2 but I’m so worried about the consequences of doing this before 40. Apparently your bones, heart and memory can really suffer especially because no hrt allowed. Also I’m worried I’ll become even more short tempered and moody and end up with no friends (or job) I think also being single I’m wondering with all that lot gone and both breasts will I ever have the confidence 2 meet anyone or do I even want 2?? Oh and it being so final noW that I won’t ever have children. Not that I probably would have because again I’d have been to worried to come off the tamoxifen for a pregnancy anyway and in 10 years I’ll be 48 to old for children anyway. That’s all assuming that the chemo hasn’t ruined that anyway.
Gosh that all sounds doom and gloom but in actual fact I’ve been feeling quite well recently it’s just all of a sudden I’m not sure if I’m doing the right thing with these overies or not?????
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Re: May 2017 chemo starters

Mishy 👍👍👍😘😘😘fantastic news it’s not mets really 😁😁😁for you darling, I know it’s not all brilliant news but at least it’s not mets which is a massive relief ❤️❤️❤️😘😘💕💕✨✨shi xx
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Re: May 2017 chemo starters

Hi ladies got my results in not spine mets thank Goodness but back to being a patient have got two mild spinal cord compressions and significant scarring of the sheath surrounding it not what i wanted to hear now a neuro patient looking like spinal fusion surgery is on the cards as doc say i have myelopathy symptoms which will progressively get worse it can worse case scenario cause permanent paralysis if left but is also dibiltating not what i want at 47 hence why I was red flag.. the symptoms are the same as mets in c spine 😨 i thanked the gp for his swift action on this i have been told i can't work whilst this is going on and if and when i have surgery i will be unable for at least 6 months afterwards i know this from my previous surgery in 2005 so maybe my redundancy happened for a reason to keep me safe so to speak im fed up i have made such a great mental recovery as well as physical from bc not relishing becoming a patient again 😨 sorry for offloading ladies 💖
Shi Community Champion
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Re: May 2017 chemo starters

Jay 👍👍👍🎉🎉🎉wonderful news thanks for sharing 😘😘😘really happy for you 💪💪💪💪may warrior. Mishy 🤞🤞🤞🤞👭👭👭for your results ❤️❤️❤️ And sorry to hear you are now redundant, you could have a go at something you’ve always fancied trying now and what about takes bag up on any of those free training courses to help you get back into work the government are always banging on about, make good use of all the free stuff you can get your hands on and are entitled to darling 💕💕💕✨✨✨shi xx
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Re: May 2017 chemo starters

Well done Jay how great to hesr no more onclogy for you!! I have to see mine once a year now as surveillance so to speak but not in a meds capacity
Im currently now officially jobless made redundant on the 1st August had to go and empty my cupboard hand my badge fob passwords etc in got some redundancy which was ok not great but not bad either will tide me over till i can figure iut what the hell im doing next!!! Physically things are good apart from chronic pain i seem to have in spine had mri results back tomorrow not cancer related fingers crossed it can be managed with painkillers!!
Hope everyone is well and enjoying life as we should any suggestions for a new direction on the job front?!!! 👍
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Re: May 2017 chemo starters

Hey ladies,

 

Just returned from my "FIANL" oncology appointment!  She's happy with everything, I'm happy with everything so that's it no more oncology....  

 

The final echo heart scan I had done a week ago has shown my heart to be functioning well and the percentage has gone back up to 60% - so I can now stop taking the Ramipril with immediate effect!  

 

Hooray - no more meds!

 

I've been recommended to have blood tests for thyroid and diabetes - just precautionary as all the meds I've been on can cause these problems - so to nip any problems in the bud it's best to get them checked.

 

It sure feels good to know - no more oncology - hopefully forever....! xx

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Re: May 2017 chemo starters

Thanks, ladies. I will go to the BRA group in early September to see how other ladies are coping and then chat to the surgeon again. As I have that scar tissue that needs removing, the plan was for it to be done at reconstruction. I may also wait until about March as I have to go to Leicester Hospital for the DIEP reconstruction and then have to have recovery time so more time off work and dealing with post surgery issues. 

Jay, maybe we can do this bit together too before our May get together! 

Hope everyone else is enjoying the holidays.

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Re: May 2017 chemo starters

Hi Daffodil - I'm in the same position too - and I really can't decide what to do!  One day I think without question I'll go for reconstruction - next day or even that same day - I'll think no way do I want any op's etc and quite possibly the thought of it going wrong!  

 

When my time comes to discuss with the surgeon which is ages away - next March(!) - I'll listen to all he has to say but won't make any rash decisions - it's something that can happen anytime - maybe I'll wait until my 5 year anniversary is up and celebrate with a new boob!!  

 

I'm interested to hear what you decide to do.  I know Heather is happy with her decision of staying mono and yet others are happy with the recon they've had - no decision is easy!

 

Hope all is well and you're enjoying the summer weather! x

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Re: May 2017 chemo starters

Thanks Mai and good luck Jay and all you wonderfully brave ladies xx
Community Champion

Re: May 2017 chemo starters

Daffodil, im going to be facing the same soon also. I'll be guided by the surgeon, I think! At the moment I'm thinking of having a reduction on my good side to make it easier so the skin doesn't have to stretch so much on the other side of which I shall not speak! Xx
Community Champion

Re: May 2017 chemo starters

Trisha, I too get aches and pains in knees, thighs, lower back and hips. If I keep moving regular it helps but sitting for prolonged periods makes it worse. Hope you enjoy Amsterdam. I love it, such a pretty place. Xxx
Community Champion

Re: May 2017 chemo starters

Jay, hope all goes well for you and your heart holds out ok. It's all very worrisome. Look after yourself and don't push too hard on exercise. Sending hugs. Xxxx
Member

Re: May 2017 chemo starters

Good luck, Jay. Trisha, hope your pains disappear soon.

I am still trying to make a sensible decision about reconstruction before my next appointment with reconstruction surgeon at the end of September.

Any advice from those who have either had, or thinking of, having.

Enjoy the rest of summer. x

Member

Re: May 2017 chemo starters

Hi ladies. Sorry just been getting too much to be reading posts on here and Facebook. Please.dont anyone take offence. Am ok. Look really well apparently.
Don't always feel that I do but my pains although still they are better than a few months back. Stopping Anastrazole made no difference but I think since Herceptin am in less pain in the legs. It's my hips and back now but MRI scan for my back and CT habe shown Arthitis in my spine. Physio die to start and am hoping to swim soon. In the meantime August will be a busy month with friends and family visits. Hope the weather holds ;-) and off to The Netherlands end of the month see my brother whom havent seem for 3 1/2 years. Had lovely time visiting my Step Dad in South of France too 3 weeks ago. Just need more of my family to live in warmer climates! Do have a cousin in Aussie land but that's a dream. Love to all. Trisha xx
Member

Re: May 2017 chemo starters

So wish me luck as I'm off this afternoon for what could be my final echo scan - finished herceptin on 14th June - been on rampiril since February as the heart was starting to show signs of failure.  Won't know until August 14th when I see the oncologist, which again may well be my final meeting with her...  Fingers crossed x