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May 2017 chemo starters

Member

Re: May 2017 chemo starters

Oh Mishy - I'm delighted that you too have been reassured - it was the same for me, and it's really weird how the feeling of lead immediately comes off your shoulders isn't it?   

 

As Mai has said - isn't it strange that we can cope nowadays with any other diagnosis thrown at us - I think that's because we've all experienced the day the Breast Consultant using the word "cancer" in our diagnosis, we know almost nothing can ever be as soul destroying as that moment.  However, we've battled and we're still here to enjoy today.  At the end of the day, there's no denying, cancer really is a truly horrible disease and it affects not only those who have been diagnosed with it but all the people close to them.

 

I've read about chostondrities, following which, I'm sure a lot of us ladies who have had chemo and rads experience from, however, we all put it down to internal scarring and just carry on.  Was you given any medication or advice for dealing with this discomfort at all.

 

As you rightly say - all of these new diagnosis are a pain but a small price to pay for being able to wake up this morning - smile and be alive xxx

Member

Re: May 2017 chemo starters

Great to read about your good news Mishy, Jay and Daffodil x

Community Champion

Re: May 2017 chemo starters

Sorry I've been a bit quiet but just been really busy.  Our May meet up was fantastic and it was so lovely to meet everyone in person.  Kinda strange that we already have a special bond and then meet afterwards.  💗

 

That's great news Mishy.  Can you believe that we are now grateful to have anything wrong with us as long as it isn't cancer.  What a twisted world we live in! Xx

 

Jay, that's fab news, you must be feeling very relieved and perhaps celebratory. Xx

 

Dafodil, great news for you too. Such a beautiful word "benign". I would just be saying it repeatedly now if I were you! X

 

Treehouse, don't feel that your are putting on any of us if you need a rant, that's why we all came here in the first place! Hope things get better soon with your work and checkups.  Just think how far you have come, so don't let a few rocks get in the way when you've already moved a mountain. Xxx

 

Shi, hope you are doing well lovey and still sparkling. ✨✨✨💗💗xxx

Member

Re: May 2017 chemo starters

Treehouse 💖 yes you are true my friend hope your work meeting went well x
Member

Re: May 2017 chemo starters

Love you Mishy I think we all know that feeling but keep pushing it down. . Please not again ☹️.
Glad it is nothing nasty . I know lymphodema isn’t nice but as you say could be worse x x. Hugs
Member

Re: May 2017 chemo starters

Oh Jay just read your post fantastic news isn't it awful when our minds take us to worry land this seems to be the new normal for us bc ladies my surgeon did say to me that he was more pleased i went rather than sit at home making myself I'll in worry land or with a real problem festering away i have had the worst meltdowns ever since original diagnosis bit ashamed to say i was thinking the worst and was dreading doing all of this again so today i thank God i have lymphodema😨 💖
Member

Re: May 2017 chemo starters

Hi ladies thank you for your best wishes update is i have lymphodema of breast the orange peel pitting is through fluid swelling under the skin surface ito say i was so relieved was an understatement i could have had an ultrasound to reassure me but was happy with surgeons examination he explained that orange peel texture is usually a sign of infection or inflammation especially after extensive treatment for breast cancer, he is referring my to the lymphodema clinic and is satisfied that my mammo which is nearly due will be a sufficient, he also check me for lymph node swelling and has discovered that the pain i am in is also due to Chostondritis which is inflammation of ribs and sternum cartilage another side effect from rads but a small price to pay!!!!

Daffodil glad to hear there also for you was nothing sinister as they say and it can be sorted i just wanted to update you all x
Treehouse im sorry you too are experiencing boob problems i hope the scans will resove everything and you too get positive news, who would have thought i woukd be happy to have some lymphodema I'll take anything over a recrrance and Treehouse i have been suffering a bit wuth anxiety which can cause a whole host of symptoms including palpitations which can be scary i hope this settles soon 💖 love to all of you ladies and thank you for your support always 👍
Member

Re: May 2017 chemo starters

Good luck for today Mishy x
Member

Re: May 2017 chemo starters

Time to share some GOOD news ladies - I went for my routine appointment with oncologist yesterday morning, I was in a "mess" - I'd suffered terribly from a panic/anxiety attack in the night previous and my head was seriously not in a great place.  However, bad quickly turned to good  - my red blood count is back to pre-chemo days and all is looking well, the great news is my recent echo scan shows my heart is back to 65% which is fantastic as it means my final two herceptin injections can go ahead with no delays - my final one being 14 June. The even better news.... my mono-mammogram result is all clear... HOORAY!   I had a concern over a small lymph node in my neck and the oncologist reassured me all is ok, it's really not unusual for lymphs to enlarge for all kinds of different reasons - the very fact it goes down shows there's nothing to be worrying about - the fact too that it is an extremely long way from the breast is also a positive - but she was pleased I mentioned it and I was so glad I did as I left feeling totally reassured me. My next appointment with her is 3 months time, where she is planning to be in a position to sign me off from the oncology department and handing me back in the care of the breast consultant for yearly check-up and mammogram - again, HOORAY!

 

I'm now preoccupied organising a big family/friend party for July to celebrate!!! xxx

Member

Re: May 2017 chemo starters

Thinking of you Mishy.

I had my follow up appointment with the BS. He confirmed that my swelling was not sinister but should be removed. As not sinister, he can do it, or the reconstruction surgeon can do it when and if I have a reconstruction in 9 months or so.  So all good. Will just wait to hear what they decide.

We all worry about lumps and bumps now so it is a relief when we get reassurance.

Saturday was fabulous and it was wonderful to meet the May Starter Wonder Women.

Member

Re: May 2017 chemo starters

Hope everything goes well tomorrow Mishy x

Member

Re: May 2017 chemo starters

Hi Mishy and Shi sorry had a busy day with MRI in the morning and GP this afternoon. Back to waiting for results. The scan was originally booked to check my implant wasn’t leaking but then last night I found another lump ( near my scars) so hopefully that will show up as nothing nasty. I will phone bcn tomorrow to let them know.
Gp was to discuss returning to work and fit note. Also mentioned my palpitations which he says is due to anxiety which is very common for cancer survivors trying to get back to normal. All in all a very stressful day.

I am going into work tomorrow to discuss in detail ready for Monday.

The Saturday meet up was overwhelming and very lovely. Feeling very connected to you all. ( also now I have met them I don’t want to worry them with my problems. It was much easier when you were just virtual)

Hope tomorrow’s appointment goes ok Mishy sending hugs x x x x
Member

Re: May 2017 chemo starters

Its tomorrow Shi 😨 yes they must have had a good one haha!!! 💃💃💃💃💃💃👍
Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Mishy ❤️❤️Think the May ladies are still recovering from their meet up 💃🏻💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻Hope your appointments gone well 😘😘😘💕💕✨✨✨Shi xx
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Re: May 2017 chemo starters

Hope you ladies all had a lovely time at the meet up sorry I couldn't come and meet you all but too far away!! I bet you had so much fun how lovely 😊
Yes i echo Shi thank you all May ladies for helping us later chemo ladies along with yoyr reassuring words when needed practical tips and for being so 💪 and of course introducing us all the the 💃💃💃💃 for the bloods haha enjoy being post BC everyone 💖
Wolffee im there this Wed putting it out of my mind till then xxx
Member

Re: May 2017 chemo starters

Looks like you all had a smashing day xoxo
Shi Community Champion
Community Champion

Re: May 2017 chemo starters

Jay, I’m glad you all had a great meet up 😘😘😘thank you mai7 and all the May thread and tatyana and mishy18 once again for taking me and the beautiful Oct thread under you wings we ❤️❤️You all and words can never let each of you know how much it’s meant to us all having your kindness and guidance with everything, you are an amazing bunch of ladies 💪💪💪💪💕💕✨✨✨Shi xx
Member

Re: May 2017 chemo starters

Ah Shi sorry you couldn't make this meet up - maybe next time - your name came up in conversation a few times today - hope your ears weren't burning...!  x

MJK
Member

Re: May 2017 chemo starters

Sorry I won't get to meet you Shi. X
Member

Re: May 2017 chemo starters

Will miss you Shi your sparkles ✨ have meant a lot to me this year 😘😘
❤️🧡💛💚