Member
Posts: 602
Registered: ‎13-02-2017

Re: May 2017 chemo starters

[ Edited ]

Hi Wandestrong, I too didn't want chemo, I feared it more than surgery. I didn't want to do something that would make me look and feel like death when that is what I am trying to avoid! My BC surgeon said chances of recurrance is 4.8%

 

I have only had one cycle of FEC and apart for 2 days when I felt rough and totally constipated it has been ok so far. Next time I know to rest a lot more and not be a super hero. I have agreed with my husband that the maximum I will do is get up, get the boys ready for school, wash the uniforms and shower in first week of chemo. Everything else can wait until the SE have worn off.

 

People say to me that I look well and am so brave. How do they expect me to look? I rested when I was rough, I eat well and have no stress in my life now I am not at work. As for being brave, we have no choice other than to be brave, that's what being diagnosed with cancer does to you. You either have to be bitter or get better.

 

My next FEC isn't until 1st June as Bank holiday Monday got in the way so looking forward to the next 12 days of feeling awesome before the next poisoning!

 

Best wishes everyone

 

Heather

Member
Posts: 1,122
Registered: ‎19-04-2017

Re: May 2017 chemo starters

Wandestrong, it's a good decision. Chemo is tough but not the end of the world, it's just a big commitment in terms of obsessing over your health. My steroids are keeping me awake, hence why I replying so quickly! X

Member
Posts: 40
Registered: ‎07-03-2017

Re: May 2017 chemo starters

Thanks all. I was initially quite adamant I wouldn't have Chemo, as I didn't want to 'feel' or 'look' I'll. However all that changed when I had an Oncotype score of over 50 which translates to a 34% chance of recurrence within 10years without Chemo. I was pretty much sold on the need for chemo after this, I want to know I've done all I can to prevent going thing this or worse in the future.
Member
Posts: 1,122
Registered: ‎19-04-2017

Re: May 2017 chemo starters

We recently got Netflix too (is this a chemo stereotype emerging?) and I've created a craft room which I'm really pleased with so I can embroider, draw, make cards, bracelets, read and burn some aromatherapy oils. 

Member
Posts: 602
Registered: ‎13-02-2017

Re: May 2017 chemo starters

I have a Chrome cast on my bedroom tv so I can watch loads of catch up tv without having to lift more than my tablet and press connect, best invention ever for me!

Member
Posts: 1,426
Registered: ‎11-05-2017

Re: May 2017 chemo starters

I got a pretty new duvet cover and Netflix in the bedroom. That got me through day 4-8. I told my husband i felt like roadkill. Then my gorgeous sister-in-law came to stay and spoilt me rotten (did my toenails) and kept me laughing. By day 10 I started to feel human 😊 I got 7 more to go!
Community Champion
Posts: 896
Registered: ‎21-01-2017

Re: May 2017 chemo starters

Thanks Treehouse, I think we all needed that reassurance. Must say I had a bit of a wobble when my Onco described it as tough! I will watch out for your posts. X

Member
Posts: 1,426
Registered: ‎11-05-2017

Re: May 2017 chemo starters

Camomile tea and spoon of Manuka honey 🍯. That's my new Friday night. 🍸
Member
Posts: 1,122
Registered: ‎19-04-2017

Re: May 2017 chemo starters

The Docetaxol (aka, Taxol) sounds like you really wish you could have a gin and tonic or two and you can't even do that. Now have to drink camomile tea and light aromatherapy candles for escapism! Wow, we're just out of hand rebels with the herbal tea! We'll get through it, we just have to get in the know with managing side effects!

Member
Posts: 1,426
Registered: ‎11-05-2017

Re: May 2017 chemo starters

Ladies I have done one docetaxel ( you call it T) I joined this thread on day 8 and I was really struggling. This does not mean you will be the same as I have it along with 3 others drugs. I will discuss all side effects with onc next Friday and let you know of any painkillers or other tips. No one warned me it would be tough but then I don't know any different. I have had 7 days of injections. Right now I feel fine. Try not to worry.
Member
Posts: 602
Registered: ‎13-02-2017

Re: May 2017 chemo starters

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Mai7, I haven't looked yet. I know it won't be pleasant but in the scheme of things it is possibly at least 1 really bad week, as in aches and pains and can't get out of bed, per 3 weeks for 9 weeks. Two of my T's Wil be in the school summer hols so not great but my husband will be at home so should be ok. I think we are all ready different to how side effects get us and hopefully there will be some meds that we can take to help. 

MJK
Member
Posts: 337
Registered: ‎28-04-2017

Re: May 2017 chemo starters

Hi Wande. Welcome to the last group you wanted to be in as a new mum, it's good that your daughter is doing well. I'm having 3 FEC followed by 3T. I start next week. I also have a 4 year old son who's just been trying on my new wig! Big hugs. X
Highlighted
Member
Posts: 1,122
Registered: ‎19-04-2017

Re: May 2017 chemo starters

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Gillyb, thanks for sharing the nhs predict tool. I just ran my details though it: age 48, ER+/her2- grade 2, 50mm, 4 local nodes and my best survival rates came out as 5yrs 87%, 10yrs 69% if I have adjuvant chemo, hormone therapy and trastuzmab. Now I'm already having neoadjuvant chemo so will this mean more chemo post surgery? Yikes! I just looked up Trastuzmab and it is also known as Herceptin which is used to treat Her2+ so don't know why it's recommending it for my diagnosis?

Member
Posts: 1,122
Registered: ‎19-04-2017

Re: May 2017 chemo starters

Raitchr, have you checked out the thread for Docetaxel in "going through treatment>chemotherapy>Docetaxel" - it doesn't look a fun place to be!

Member
Posts: 67
Registered: ‎17-03-2017

Re: May 2017 chemo starters

Hi gillyb. My oncotype score came back as 27, so I made the decision to have chemo. The predict is quite a simple tool and doesn't look at as many factors, though my score on that put me in the chemo recommended bracket with a higher % than the onco score.
Wandestrong - I'm having 6x FEC as well. I have been ok on the 1st treatment - 2nd one next week. I went for a review yesterday and the nurse said the only side effects guaranteed on FEC are hair loss and fatigue. The fatigue is cumulative, so will build up over time though I'm still ok on day 16. I can feel it when I have to walk up hills but it's not stopping me from working and going about the usual daily routine. You have your hands full with the children, so make sure you ask for help when the fatigue does kick in. Wishing you all the best.
Member
Posts: 105
Registered: ‎09-04-2017

Re: May 2017 chemo starters

Raitchr, I am on my first cycle of EC at the moment and I have 5 daily injections to take which indeed have made my bones hurt xx
Member
Posts: 2
Registered: ‎19-05-2017

Re: May 2017 chemo starters

Hi there my heart goes out to you especially as you were pregnant and having an op for Bc!  I have just had a lumpectomy no nodes involved and my onco score has returned at 30! SEEMS THE ONCO IS RECOMMENDING CHEMO and I have been researching this all day.

HAS ANYONE USED THE SITE CALLED PREDICT ...IT GIVES SURVIVAL RATES DEPENDING ON THE DETAILS U PUT IN...IT'S AN NHS SITE.

Member
Posts: 602
Registered: ‎13-02-2017

Re: May 2017 chemo starters

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AnnieA I am 3 x FEC and 3 x T, the T one is the hardest as in it knocks you off your feet for about 5 days from what I can work out on other threads. I am sure there are daily injections for 5 days. It makes your bones hurt. I have read that the taking hay fever tablets with Loratadine helps to ease the pain, along with paracetamol and hot water bottles. I have been following the March and April chemo starters to stay ahead with info.

Member
Posts: 105
Registered: ‎09-04-2017

Re: May 2017 chemo starters

AnnieJ thank you for your reply. I guess it's just playing the waiting game then to see how we react. Glad your doing well so far Smiley Happy
I haven't got a follow up with my consultant through yet but I'll be sure to ask similar questions to you xx
Member
Posts: 1,426
Registered: ‎11-05-2017

Re: May 2017 chemo starters

Well done you! My husband has done the same about pics of Sinead O'Connor etc. Three cheers for those amazing men. 🍻 😊