20-05-2017 11:47 AM - edited 20-05-2017 11:47 AM
Treehouse, my cancer was triple negative so as its aggressive chemo is always given.
My Mum also had BC 3 years ago. She had ductal in situ in one boob and lobular in situ in other. She had Bi Mx, clear nodes and didn't need chemo or rads. Hers was result of being on HRT for over 25 years according to the Consultant, she requested gene testing but they said due to her age and get it wasn't necessary.
I have found out about a study for gene testing which is still open to women to join. It is run by the Institute of Cancer Research in Surrey. The study is called BOCS looking at breast and ovarian cancers. I have sent the info to my Genetics Counsellor to see if she will send my blood.
20-05-2017 11:03 AM
Hi ladies, must all be at that stage. Woke up in the early hours with a hair ball in my mouth! What's all that about? Checking eye lashes and nose hairs now. I don't know wether to go for the big shave or try to hang on. I said from the beginning I wasn't bothered about losing my hair, so how strange that I now am. Perhaps it's the final insult? So, Raitchr, loving your comment. I'm not going to get bitter about it all, I'm going to get better and this is part of it, unfortunately. Going out to an art gallery today and enjoying feeling really well before session 2 next Friday. Good luck to everyone going in to chemo this week, and recovering. Stay strong. X
20-05-2017 09:19 AM
20-05-2017 09:05 AM
20-05-2017 07:56 AM
20-05-2017 06:43 AM - edited 20-05-2017 07:16 AM
Hi Wandestrong, I too didn't want chemo, I feared it more than surgery. I didn't want to do something that would make me look and feel like death when that is what I am trying to avoid! My BC surgeon said chances of recurrance is 4.8%
I have only had one cycle of FEC and apart for 2 days when I felt rough and totally constipated it has been ok so far. Next time I know to rest a lot more and not be a super hero. I have agreed with my husband that the maximum I will do is get up, get the boys ready for school, wash the uniforms and shower in first week of chemo. Everything else can wait until the SE have worn off.
People say to me that I look well and am so brave. How do they expect me to look? I rested when I was rough, I eat well and have no stress in my life now I am not at work. As for being brave, we have no choice other than to be brave, that's what being diagnosed with cancer does to you. You either have to be bitter or get better.
My next FEC isn't until 1st June as Bank holiday Monday got in the way so looking forward to the next 12 days of feeling awesome before the next poisoning!
Best wishes everyone
20-05-2017 01:15 AM
Wandestrong, it's a good decision. Chemo is tough but not the end of the world, it's just a big commitment in terms of obsessing over your health. My steroids are keeping me awake, hence why I replying so quickly! X
20-05-2017 01:08 AM
19-05-2017 10:23 PM
We recently got Netflix too (is this a chemo stereotype emerging?) and I've created a craft room which I'm really pleased with so I can embroider, draw, make cards, bracelets, read and burn some aromatherapy oils.
19-05-2017 09:00 PM
19-05-2017 08:18 PM
The Docetaxol (aka, Taxol) sounds like you really wish you could have a gin and tonic or two and you can't even do that. Now have to drink camomile tea and light aromatherapy candles for escapism! Wow, we're just out of hand rebels with the herbal tea! We'll get through it, we just have to get in the know with managing side effects!
19-05-2017 08:09 PM
19-05-2017 08:09 PM - edited 19-05-2017 09:13 PM
Mai7, I haven't looked yet. I know it won't be pleasant but in the scheme of things it is possibly at least 1 really bad week, as in aches and pains and can't get out of bed, per 3 weeks for 9 weeks. Two of my T's Wil be in the school summer hols so not great but my husband will be at home so should be ok. I think we are all ready different to how side effects get us and hopefully there will be some meds that we can take to help.
19-05-2017 07:23 PM
19-05-2017 07:05 PM - edited 19-05-2017 07:16 PM
Gillyb, thanks for sharing the nhs predict tool. I just ran my details though it: age 48, ER+/her2- grade 2, 50mm, 4 local nodes and my best survival rates came out as 5yrs 87%, 10yrs 69% if I have adjuvant chemo, hormone therapy and trastuzmab. Now I'm already having neoadjuvant chemo so will this mean more chemo post surgery? Yikes! I just looked up Trastuzmab and it is also known as Herceptin which is used to treat Her2+ so don't know why it's recommending it for my diagnosis?
19-05-2017 05:34 PM