Member
Posts: 184
Registered: ‎13-02-2017

Re: May 2017 chemo starters

[ Edited ]

Treehouse, my cancer was triple negative so as its aggressive chemo is always given.

 

My Mum also had BC 3 years ago. She had ductal in situ in one boob and lobular in situ in other. She had Bi Mx, clear nodes and didn't need chemo or rads. Hers was result of being on HRT for over 25 years according to the Consultant, she requested gene testing but they said due to her age and get it wasn't necessary.

 

I have found out about a study for gene testing which is still open to women to join. It is run by the Institute of Cancer Research in Surrey. The study is called BOCS looking at breast and ovarian cancers. I have sent the info to my Genetics Counsellor to see if she will send my blood.

Member
Posts: 313
Registered: ‎21-01-2017

Re: May 2017 chemo starters

Hi ladies, must all be at that stage. Woke up in the early  hours with a hair ball in my mouth! What's all that about? Checking eye lashes and nose hairs now. I don't know wether to go for the big shave or try to hang on. I said from the beginning I wasn't bothered about losing my hair, so how strange that I now am. Perhaps it's the final insult? So, Raitchr, loving your comment. I'm not going to get bitter about it all, I'm going to get better and this is part of it, unfortunately. Going out to an art gallery today and enjoying feeling really well before session 2 next Friday. Good luck to everyone going in to chemo this week, and recovering. Stay strong. X

Member
Posts: 14
Registered: ‎17-03-2017

Re: May 2017 chemo starters

Hi Katie. I think we're at the same stage. My hair has been shedding in the last few days as well. It isn't noticeable yet, but like you I'm seeing v short hair everywhere.
Woke up with a bit of a sore throat yesterday, temp spiked last night to 37.5°C so phoned helpline, very reassuring that there is someone there you give you advise. Make sure you take your temp ladies, it's important to catch any issues early.
Thankfully it's dropped down to my normal temp today, but I have got a cold now. Hope it doesn't use up too many white blood cells - I need them!!
Member
Posts: 48
Registered: ‎11-05-2017

Re: May 2017 chemo starters

Hi raitchr. I love your comment be bitter or get better. We really have no option. My mum had only surgery and radio but that was 30 years ago. I was really surprised when chemo was mentioned and also dreaded it. No one mentioned scores or percentages. I was just told with my type of cancer I was having it. However they have been really positive about my outlook and have in some cases completely reduced tumour. I know my drugs are different to most of you. But I feel really lucky that they are available now and I have ticked enough boxes to be given them. The cost of one of them is ridiculous and it is not free to everyone. I will put up with the pain if it gives me the best chance. On the whole I feel well looked after and positive. Also enjoying 12 of awesome 😊
Member
Posts: 65
Registered: ‎20-02-2017

Re: May 2017 chemo starters

Morning ladies and new ladies, weekend away is just what I needed. Nice family time. Hope your all doing well. After reading your posts I am quite worried bout the T part of my treatment. I'm having it weekly 9 times so hoping the lesser dose will be more manageable! Here's hoping. Hair is now definitely shedding but just as loose hairs rather than clumps at the minute. It is quite sad but also rather annoying to keep finding hairs everywhere xx
Member
Posts: 184
Registered: ‎13-02-2017

Re: May 2017 chemo starters

[ Edited ]

Hi Wandestrong, I too didn't want chemo, I feared it more than surgery. I didn't want to do something that would make me look and feel like death when that is what I am trying to avoid! My BC surgeon said chances of recurrance is 4.8%

 

I have only had one cycle of FEC and apart for 2 days when I felt rough and totally constipated it has been ok so far. Next time I know to rest a lot more and not be a super hero. I have agreed with my husband that the maximum I will do is get up, get the boys ready for school, wash the uniforms and shower in first week of chemo. Everything else can wait until the SE have worn off.

 

People say to me that I look well and am so brave. How do they expect me to look? I rested when I was rough, I eat well and have no stress in my life now I am not at work. As for being brave, we have no choice other than to be brave, that's what being diagnosed with cancer does to you. You either have to be bitter or get better.

 

My next FEC isn't until 1st June as Bank holiday Monday got in the way so looking forward to the next 12 days of feeling awesome before the next poisoning!

 

Best wishes everyone

 

Heather

Member
Posts: 179
Registered: ‎19-04-2017

Re: May 2017 chemo starters

Wandestrong, it's a good decision. Chemo is tough but not the end of the world, it's just a big commitment in terms of obsessing over your health. My steroids are keeping me awake, hence why I replying so quickly! X

Member
Posts: 15
Registered: ‎07-03-2017

Re: May 2017 chemo starters

Thanks all. I was initially quite adamant I wouldn't have Chemo, as I didn't want to 'feel' or 'look' I'll. However all that changed when I had an Oncotype score of over 50 which translates to a 34% chance of recurrence within 10years without Chemo. I was pretty much sold on the need for chemo after this, I want to know I've done all I can to prevent going thing this or worse in the future.
Member
Posts: 179
Registered: ‎19-04-2017

Re: May 2017 chemo starters

We recently got Netflix too (is this a chemo stereotype emerging?) and I've created a craft room which I'm really pleased with so I can embroider, draw, make cards, bracelets, read and burn some aromatherapy oils. 

Member
Posts: 184
Registered: ‎13-02-2017

Re: May 2017 chemo starters

I have a Chrome cast on my bedroom tv so I can watch loads of catch up tv without having to lift more than my tablet and press connect, best invention ever for me!

Member
Posts: 48
Registered: ‎11-05-2017

Re: May 2017 chemo starters

I got a pretty new duvet cover and Netflix in the bedroom. That got me through day 4-8. I told my husband i felt like roadkill. Then my gorgeous sister-in-law came to stay and spoilt me rotten (did my toenails) and kept me laughing. By day 10 I started to feel human 😊 I got 7 more to go!
Member
Posts: 313
Registered: ‎21-01-2017

Re: May 2017 chemo starters

Thanks Treehouse, I think we all needed that reassurance. Must say I had a bit of a wobble when my Onco described it as tough! I will watch out for your posts. X

Member
Posts: 48
Registered: ‎11-05-2017

Re: May 2017 chemo starters

Camomile tea and spoon of Manuka honey 🍯. That's my new Friday night. 🍸
Member
Posts: 179
Registered: ‎19-04-2017

Re: May 2017 chemo starters

The Docetaxol (aka, Taxol) sounds like you really wish you could have a gin and tonic or two and you can't even do that. Now have to drink camomile tea and light aromatherapy candles for escapism! Wow, we're just out of hand rebels with the herbal tea! We'll get through it, we just have to get in the know with managing side effects!

Member
Posts: 48
Registered: ‎11-05-2017

Re: May 2017 chemo starters

Ladies I have done one docetaxel ( you call it T) I joined this thread on day 8 and I was really struggling. This does not mean you will be the same as I have it along with 3 others drugs. I will discuss all side effects with onc next Friday and let you know of any painkillers or other tips. No one warned me it would be tough but then I don't know any different. I have had 7 days of injections. Right now I feel fine. Try not to worry.
Member
Posts: 184
Registered: ‎13-02-2017

Re: May 2017 chemo starters

[ Edited ]

Mai7, I haven't looked yet. I know it won't be pleasant but in the scheme of things it is possibly at least 1 really bad week, as in aches and pains and can't get out of bed, per 3 weeks for 9 weeks. Two of my T's Wil be in the school summer hols so not great but my husband will be at home so should be ok. I think we are all ready different to how side effects get us and hopefully there will be some meds that we can take to help. 

MJK
Member
Posts: 14
Registered: ‎28-04-2017

Re: May 2017 chemo starters

Hi Wande. Welcome to the last group you wanted to be in as a new mum, it's good that your daughter is doing well. I'm having 3 FEC followed by 3T. I start next week. I also have a 4 year old son who's just been trying on my new wig! Big hugs. X
Highlighted
Member
Posts: 179
Registered: ‎19-04-2017

Re: May 2017 chemo starters

[ Edited ]

Gillyb, thanks for sharing the nhs predict tool. I just ran my details though it: age 48, ER+/her2- grade 2, 50mm, 4 local nodes and my best survival rates came out as 5yrs 87%, 10yrs 69% if I have adjuvant chemo, hormone therapy and trastuzmab. Now I'm already having neoadjuvant chemo so will this mean more chemo post surgery? Yikes! I just looked up Trastuzmab and it is also known as Herceptin which is used to treat Her2+ so don't know why it's recommending it for my diagnosis?

Member
Posts: 179
Registered: ‎19-04-2017

Re: May 2017 chemo starters

Raitchr, have you checked out the thread for Docetaxel in "going through treatment>chemotherapy>Docetaxel" - it doesn't look a fun place to be!

Member
Posts: 14
Registered: ‎17-03-2017

Re: May 2017 chemo starters

Hi gillyb. My oncotype score came back as 27, so I made the decision to have chemo. The predict is quite a simple tool and doesn't look at as many factors, though my score on that put me in the chemo recommended bracket with a higher % than the onco score.
Wandestrong - I'm having 6x FEC as well. I have been ok on the 1st treatment - 2nd one next week. I went for a review yesterday and the nurse said the only side effects guaranteed on FEC are hair loss and fatigue. The fatigue is cumulative, so will build up over time though I'm still ok on day 16. I can feel it when I have to walk up hills but it's not stopping me from working and going about the usual daily routine. You have your hands full with the children, so make sure you ask for help when the fatigue does kick in. Wishing you all the best.