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June 2019 chemo starters

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Re: June 2019 chemo starters

Hi @EnglishRose2019

 

My oncologist has put me on an accelerated program that has only recently been shown to be effective for the type of cancer I have.

 

I should be on 4 cycles of EC fortnightly and 12 cycles of paclitaxel weekly. I ended up in hospital after the first dose so that delayed the second dose by a week.

 

I am expecting my fourth dose of EC to be on 6th August and then I'm not sure whether they will wait 2 weeks to start the paclitaxel. Assuming I start the weekly cycles when I expect then it will be Bonfire Night before I finish.

 

Day 2 has been good just flipping hot, my worst day seems to be day 5 but the oncologist thinks that's a reaction to the pegfilgrastim rather than the chemo because it is like the glands in my neck blow up.

Member

Re: June 2019 chemo starters

It has been hot!!! So youโ€™re a day after me Lisamcl. I find day 2 not so bad. Tomorrow wonโ€™t be so great. I put on a cooling face mask and cold eye pack and felt great for an hour this afternoon. Highly recommend it ๐Ÿฅถ. Also shaving my head to a no.3 was a brilliant decision. 

I find it so interesting and intriguing why they have changed you to a 2 week cycle... are you having 12 weeks for taxol afterwards? That will take me through to beginning of December and tbh Iโ€™m not looking forward to those dark months. 

I hope you donโ€™t mind me prying and I know they target everyoneโ€™s treatment to their needs. Now off to watch โค๏ธ๐Ÿ๐Ÿ˜ฌ

Member

Re: June 2019 chemo starters

Hi everyone

 

Had my third EC dose today on a two week cycle for the first time - had a "normal" three week cycle between dose one and two - not looking forward to what that might mean from a SE perspective but we will see.

 

How is everyone holding up in this delightful heat? My excuse for moaning is I'm English and it's a national pastime to moan about the weather - however much as I never wanted to go through this I'm beginning to think doing it in winter would be better Smiley LOL

 

Anyway onwards and upwards

 

 

 

 

 

Member

Re: June 2019 chemo starters


There is definitely an unfair edge to the weight gain, I remember thinking when I was first diagnosed trust me to get the type of cancer where weight gain is common! Donโ€™t worry about it I would say, plenty of time when chemo is done to sort that out xx
@Alvilajo wrote:

3rd ec tomoz hoping for a nicer dose!!

hope your all ok. Oh and I need to start diet again Iโ€™ve been comfort eating and put a stone on since diagnosed. Itโ€™s so not fair ๐Ÿ™„xxx


 

Member

Re: June 2019 chemo starters


Itโ€™s a weird one tbh, I found it much harder than fec personally but I know quite a few others who sailed through no issues at all so wait and see I guess ๐Ÿ˜Š I did lose my eyebrows though so knowing how to draw them on properly is a bonus! Xx
@Zed51 wrote:

Yes Ruby I am. Docetaxel. Everyone pulls a face at that one. Havenโ€™t read up on it yet til finished my FEC because just managing each bit at a time but have an uneasy feeling about the 3 lots of D!!! Zx


 

Member

Re: June 2019 chemo starters

So glad youโ€™re enjoying your time Zed. I had such a great week and brought crashing back to earth with my 3rd EC yesterday. I hope yours goes ok tomorrow  alvilajo.

Loving the turban ๐Ÿ‘ณ๐Ÿปโ€โ™€๏ธ Zed.   Iโ€™ve still got a lot of grade 3 hair (though shedding profusely atm) so baring it but need to cover up in the sunโ˜€๏ธโ˜€๏ธโ˜€๏ธ. So headscarf today. Far too hot for a wig...

tske care everyone ๐ŸŒŸโ˜€๏ธ๐Ÿ๐Ÿ’•

 

Member

Re: June 2019 chemo starters

3rd ec tomoz hoping for a nicer dose!!

hope your all ok. Oh and I need to start diet again Iโ€™ve been comfort eating and put a stone on since diagnosed. Itโ€™s so not fair ๐Ÿ™„xxx

Member

Re: June 2019 chemo starters

Yes Ruby I am. Docetaxel. Everyone pulls a face at that one. Havenโ€™t read up on it yet til finished my FEC because just managing each bit at a time but have an uneasy feeling about the 3 lots of D!!! Zx

Member

Re: June 2019 chemo starters


Love the turban! Look good, feel better is fab. The bit about eyebrows is really good if at some point yours might go (are you having a taxol after fec?) enjoy your almost normality before Thursday!
@Zed51 wrote:

Hi all. My third FEC on Thursday so Iโ€™m trying cram in nice things again before grottiness sets in. Went Splendour on Saturday our local festival, met up with some friends Iโ€™ve known since I was 5 yesterday who are visiting on holiday, going Look Good Feel Better makeup session this pm. Being rubbish at applying makeup at the best of times it might teach me something after all these years of getting it wrong! My hair is cut to number 3 & seems to have stopped shedding but the sides completely gone so have been wearing hats etc when out. Also for sun reasons. Bought a turban type thing. Not confident in my scarf tying. Out for lunch tomorrow so shall wear that then! (Without the label hanging out the back though!)

7E1ACA56-D3F4-45F9-BBC0-89A95E78ACF2.jpeg

 


 

Member

Re: June 2019 chemo starters

Hi all. My third FEC on Thursday so Iโ€™m trying cram in nice things again before grottiness sets in. Went Splendour on Saturday our local festival, met up with some friends Iโ€™ve known since I was 5 yesterday who are visiting on holiday, going Look Good Feel Better makeup session this pm. Being rubbish at applying makeup at the best of times it might teach me something after all these years of getting it wrong! My hair is cut to number 3 & seems to have stopped shedding but the sides completely gone so have been wearing hats etc when out. Also for sun reasons. Bought a turban type thing. Not confident in my scarf tying. Out for lunch tomorrow so shall wear that then! (Without the label hanging out the back though!)

7E1ACA56-D3F4-45F9-BBC0-89A95E78ACF2.jpeg

 

Member

Re: June 2019 chemo starters

Hi ladies

Yes, glad everyone ok-ish. Itโ€™s really an eye-opener Reading how different everyoneโ€™s treatment is. Iโ€™m so grateful for the fundraising and research which has gone into BC so we can have such individual treatment.

Ive been at a music festival last 2 days and have my bestie arriving from the USA today so out all afternoon! Enjoying my โ€˜normalโ€™ life before my 3rd EC chemo on Monday morning. 

Feeling the benefit of my shaved head. I sport various looks: wig๐Ÿ™๐Ÿผโ€โ™€๏ธ, headscarves๐Ÿ‘ณ๐Ÿปโ€โ™€๏ธ, hats๐Ÿ‘ฉ๐Ÿปโ€๐ŸŒพ, and nothing ๐Ÿ‘ฉ๐Ÿปโ€๐Ÿฆฒ! But so glad I did it as felt I was in control of something at last. 

Enjoy your Sunday and Iโ€™ll be back next week to see how you lovely and amazing ladies are getting on ๐Ÿ’•๐Ÿค—๐Ÿฅฐ

Member

Re: June 2019 chemo starters

Hey ruby glad your ok, I was thinking the same about how quiet it is, perhaps were all feeling ok atm. My next lot is Wednesday. Iโ€™ve had a really good 12 days after a crap 9 xxx

Member

Re: June 2019 chemo starters

Hello ladies! Really quiet on here, how are you all doing?

 

I had second Abraxane (nab paclitaxel) Wednesday, half dose only but went in no reactions and side effects minimal, fatigue and a bit of the trots ๐Ÿ’ฉ nothing horrendous though. Got another weekly one next Wednesday then rest week then onto full dose I guess! The Carboplatin seems to have been much better this time as well so not too bad here! Ruby xx

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Re: June 2019 chemo starters

How was the Paclitaxel yesterday ?? x

Member

Re: June 2019 chemo starters

No wonder the oncology nurse said โ€˜letโ€™s het you through you 4 EC before we talk about the 12 weeks of Paclitaxelโ€™! ๐Ÿคฃ๐Ÿคฃ๐Ÿคฃ

I hope youโ€™re both doing ok with your headaches and scan shows nothing sinister.

 

Iโ€™m in my dream, feeling great, pre-chemo week so enjoyed a beautiful summers day with my nieces who are over from Australia. ๐Ÿ๐Ÿ’– ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜

Member

Re: June 2019 chemo starters


Hiya, scan showed nothing untoward, โ€˜โ€˜twas just a hideous Filgrastim side effect! No headaches this time but have today  swallowed 4 dexemethasone as part of my pre med before todayโ€™s nab Paclitaxel so am expecting tears and roid rage! Good they are doing a scan, will hopefully put your mind at rest. Xx
@mini mad wrote:

Hi Ruby,

 

just been for my review with chemo dr and told them about my constant headaches.  Say its a se from all the different meds but

they're gonna do a head scan, which i'm pleased about,  just to be sure nothing is going on.

seem to recall you had a scan after your nightmare migraine ??  Did it show anything ?? 

Mini mad xx ๐Ÿ’–๐Ÿ’–


 

Member

Re: June 2019 chemo starters

Hi Ruby,

 

just been for my review with chemo dr and told them about my constant headaches.  Say its a se from all the different meds but

they're gonna do a head scan, which i'm pleased about,  just to be sure nothing is going on.

seem to recall you had a scan after your nightmare migraine ??  Did it show anything ?? 

Mini mad xx ๐Ÿ’–๐Ÿ’–

Member

Re: June 2019 chemo starters

Mine start in about 7 weeks I have 4 over 8 weeks x


@mini mad wrote:

Hi Alvilajo

 

yep i'm on my 7th Paclitaxel this coming friday.

side effects come and go then come back again.

my worst are headaches and bone pain.

when do you start yours ??  Mini mad xx


 

Member

Re: June 2019 chemo starters

Hi Mini mad

thanks for the info. Iโ€™m st a similar stage to Alvilajo. 3rd EC this coming Monday. 4th mid Aug and Paclitaxel starts September for 12 weeks. 

Hope youโ€™re doing okay...๐Ÿค—๐Ÿ˜˜

 

Member

Re: June 2019 chemo starters

Hi Alvilajo

 

yep i'm on my 7th Paclitaxel this coming friday.

side effects come and go then come back again.

my worst are headaches and bone pain.

when do you start yours ??  Mini mad xx

Member

Re: June 2019 chemo starters

Hi ya, anyone on placlitaxel as thatโ€™s what Iโ€™m after the last two ec. How are side effects on it ? Xxx vic

Member

Re: June 2019 chemo starters

I think they are ulcers but they are not so painful now 


@Shi wrote:

Alvilajo, I found compeed helped with cold sores, check with unit you can use though just to be on safe side. Ruby Thursday โค๏ธ Nothing wrong with having a grump on Hun ๐Ÿ˜๐Ÿ’•๐Ÿ’•โœจโœจShi xx


 

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Re: June 2019 chemo starters

Wow chicken ๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘absolutely fantastic big thank you to you and your team โค๏ธโค๏ธโค๏ธAmazing ๐Ÿ‘๐Ÿ’•๐Ÿ’•โœจโœจShi xx

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Re: June 2019 chemo starters

Chicken81 that is amazing well done!! 

I might need some running tips. Was managing parkrun every week before this. Might try 5k your way cancer support group to get me back into it. Nowhere near your achievement- you should be so proud! Zx

Member

Re: June 2019 chemo starters

Wow!!

That's amazing. Well done you guys xxx

Member

Re: June 2019 chemo starters


Thatโ€™s fantastic, well done you :-) what an achievement xx
@Chicken81 wrote:

IMG_20190714_184652_987.jpg

Ran the race for life yesterday with my team. 

Online raised ยฃ2200 but still got cash to collect in this week.

Was really good to do something like this. 

Made a good day of it and we all went for food n drinks too. 

 


 

Member

Re: June 2019 chemo starters

IMG_20190714_184652_987.jpg

Ran the race for life yesterday with my team. 

Online raised ยฃ2200 but still got cash to collect in this week.

Was really good to do something like this. 

Made a good day of it and we all went for food n drinks too. 

 

Shi Community Champion
Community Champion

Re: June 2019 chemo starters

Alvilajo, I found compeed helped with cold sores, check with unit you can use though just to be on safe side. Ruby Thursday โค๏ธ Nothing wrong with having a grump on Hun ๐Ÿ˜๐Ÿ’•๐Ÿ’•โœจโœจShi xx

Member

Re: June 2019 chemo starters

Sorry to read you're feeling down today Ruby,  it seems to hit all of us at some time.

lansoprazole didnt do anything for my heartburn so the dr in my chemo unit prescribed Omeprazole, loads better thank goodness.

how is everybody's appetite ?   Im more or less eating as normal,  had a little nausea but no actual sickness.  Guess we're all feeling different se...   mini mad xx ๐Ÿ’–๐Ÿ’–

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Re: June 2019 chemo starters

Hello ladies, I have spent most of today weepy or grumpy and generally really down. Suffering with heartburn despite the lansoprozole, feet sore and no motivation to do anything, sick to death of all the sport today. I am blaming the steroids but I might just be a grumpy ๐Ÿ„๐Ÿ˜Š 

Ruby xx

Member

Re: June 2019 chemo starters

Hi minimad

I was going to increase them but I felt better so didn't, I had 8 low days and I'm convinced it's the treatment and steroids etc, my chemos on the wednesday and my injections finish on the following Thursday and thats the period I felt crap. Hope that helps. 

At the moment I've got cold sores on my lips which are so sore, that's normally a run down symptom isn't it ๐Ÿ˜ž xxx


@mini mad wrote:

Hey Alvilajo,

hoping your sunday is going good ๐Ÿ‘

you mentioned in a previous post that you're on Sertraline,  as am i and you were thinking about increasing the dose.   Did you do it ?   Some days my mood is soo low.... but saying that , yesterday i felt like ' me '....  think it was the steroid from my treatment on friday ๐Ÿ˜๐Ÿ˜    Mini mad xx ๐Ÿ’–

 


 

Member

Re: June 2019 chemo starters

Hey Alvilajo,

hoping your sunday is going good ๐Ÿ‘

you mentioned in a previous post that you're on Sertraline,  as am i and you were thinking about increasing the dose.   Did you do it ?   Some days my mood is soo low.... but saying that , yesterday i felt like ' me '....  think it was the steroid from my treatment on friday ๐Ÿ˜๐Ÿ˜    Mini mad xx ๐Ÿ’–

 

Member

Re: June 2019 chemo starters

EnglishRose I think we are experiencing everything at the same time. After a week pontificating about it my husband has just shaved my hair. Pillow was too full of it this morning. Baseball cap look at mo. ๐Ÿ’– xx

Shi Community Champion
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Re: June 2019 chemo starters

Do get your meet up planned, it does give everyone something to look forward to, it did us oct17 Chemo lot, we had a weekend in London and afternoon tea at The Arch it was โค๏ธโค๏ธโค๏ธ Do it via pmโ€™s though or whatโ€™s app to keep it private with the threads being open to the world โค๏ธTrust me it will give you all something nice to focus on ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ’•๐Ÿ’•โœจโœจShi xx

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Re: June 2019 chemo starters

๐Ÿคฃ๐Ÿ‘Š๐Ÿป 

we were literally sitting there for 7 minutes last night!!! Half the audience had left. The other half knew to stay and wait...!

Member

Re: June 2019 chemo starters

Hi EnglishRose2019

 

I'm currently box setting the whole of Marvel and have learnt to get to the end of the credits!

Member

Re: June 2019 chemo starters

Enjoy your birds english rose itโ€™s all sparrows in mine ๐Ÿ’• certainly cooler with no hair ๐Ÿ˜˜

Member

Re: June 2019 chemo starters

Sorry you are all having a hard time of it atmโ˜น๏ธโ˜น๏ธโ˜น๏ธ Iโ€™m in the honeymoon period of early on in the chemo but so good to know you will be there for my dark days too. 

 

Know what you mean about the invites drying up ... Iโ€™ve got long-standing arrangements for next 2 weekends then zilch ๐Ÿ˜ . 

 

And Vic, definitely get meds sorted for depression. You do not want that to dig deep whilst your body is coping with the chemo. 

 

And on another note, Iโ€™m getting my hair shaved off this evening... never liked it anyway ๐Ÿ˜‰

 

Big hugs ladies. Stay safe in the shade. And glad we all keeping positive vibes and finding something each day to make us happy ๐Ÿ™. Right now I can hear a bird twittering in the garden. It might be the goldfinch we found nesting yesterday ๐Ÿค—๐Ÿ˜˜

Member

Re: June 2019 chemo starters

Hey girls sounds like weโ€™re all struggling with mood tiredness etc. I rang the doctors this morning for something for heartburn, was told no more call backs Iโ€™ll  have to wait til Monday, rang oncology they rang surgery and told them off so Iโ€™m waiting for a call back now. Also they are arranging for me to chat with their therapist as Iโ€™m still so low, Iโ€™ve decided to up my sertraline, Iโ€™ve always said I can cope with anything except depression and unfortunately this is the case (horrible chemo) such a shame we donโ€™t all live local, Iโ€™m sitting in the garden having fruit toast and a cuppa waiting for my grandchildren to come round, the paddling pools up and Iโ€™m sure the slide will be put into it. Anyway cheers to a lovely day and hats off to us for being so brave and strong ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜vic xxxx

Member

Re: June 2019 chemo starters

Hey Ruby,

my hospital will call me if bloods were not good so assume im having the treatment.

im retired but still find each day a drag..i am used to seeing friends and. i read a lot but nothing is staying in my head and i like being outside in my garden but no energy n find the sun hot even though im covered up... i love the sun...  we have a border collie called Micky so i manage a short walk with him in the mornings unless im feeling rubbish.

Nothing worse for me than people around you being ' normal '...  this feeling i have today will pass,

stay strong ladies.  Mini mad xx๐Ÿ’–๐Ÿ’–

 

 

 

 

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Re: June 2019 chemo starters


Minimad! You are half way there! Go you!

 

i am ok, full of steroids, acid tablets and anti sickness tabs, got sore feet and tired but otherwise ok thanks.

 

i too am sick of it all and canโ€™t wait to be done, the boredom is the worst bit. I am used to full time work, long hours and a reasonable social life. Invites tend to dry up a bit when people hear the words cancer or chemo. And it is tricky as you never really know how you will feel at any time!

 

Were your bloods all ok?

 

Ruby xx

@mini mad wrote:

Hi Lisamcl.   Hope the second was better for you.  And welcome to our group of lovely ladies xx

hi Ruby,  you still ok after your treatment on wednesday ?? Xx

 

got my 6th of 12 Paclitaxel at 12.00

dont know about anyone else but im feeling really low,  so fed up with feeling unwell and not knowing what se each day will bring ๐Ÿ˜”๐Ÿ˜”๐Ÿ˜”๐Ÿ˜”

wednesday was a good day but yesterday i was dizzy n sicky feeling and had to go give bloods at hospital....  so wish this was all over....โ˜น๏ธโ˜น๏ธ  Mini mad xx ๐Ÿ’–๐Ÿ’–

 


 

Member

Re: June 2019 chemo starters

Hi Lisamcl.   Hope the second was better for you.  And welcome to our group of lovely ladies xx

hi Ruby,  you still ok after your treatment on wednesday ?? Xx

 

got my 6th of 12 Paclitaxel at 12.00

dont know about anyone else but im feeling really low,  so fed up with feeling unwell and not knowing what se each day will bring ๐Ÿ˜”๐Ÿ˜”๐Ÿ˜”๐Ÿ˜”

wednesday was a good day but yesterday i was dizzy n sicky feeling and had to go give bloods at hospital....  so wish this was all over....โ˜น๏ธโ˜น๏ธ  Mini mad xx ๐Ÿ’–๐Ÿ’–

 

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Re: June 2019 chemo starters

Hello Lisa and welcome yo the group. 

 

Nicky thank you for the tip, away to see that tonight with my little boy y and nieces. We always see all the Marvel films. 

 

Update on sore hand and arm, it's now two wks since second EC and it's much better. Almost back to normal, but not 100%

Thinking chemo is the other arm next wk. 

Race of life this Sunday. 44 of us on my team so we're making a day of it and having drinks n food after, looking forward to it.

Apparently this Yr is the first Yr for men and children to be involved, glad they changed that then. 

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Re: June 2019 chemo starters


Welcome lisamcl, hope second dose is kinder, I am also hoping same thing, had my second carboplatin/nab paclitaxel on Wednesday, still riding on the steroids but no Filgrastrim this time so very nervous of neutropenia. 

 

Ruby xx

@lisamcl wrote:

Hi

Iโ€™m new to this forum. Started my chemo three weeks ago after surgery. Original plan was 4 x EC over 8 weeks followed by 12 x P over 12 weeks. Thing is I had 4 nights in hospital with neutropenia after the first cycle so now might get my plan changed. 

Had second dose this Tuesday just gone so waiting to see how that goes before my oncologist will decide. 


 

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Re: June 2019 chemo starters

Ps. Up late as just back from movies watching Spider-Man ๐Ÿ•ท. Itโ€™s good ๐Ÿ˜. If you go stay to the end end of the credits!!!

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Re: June 2019 chemo starters

Hi & welcome๐Ÿค—

Iโ€™ve only been on here myself after my second round of EC I had on 1 July. Everyone has been really lovely and is good to have a place to go where people really do know what youโ€™re going through. Hope youโ€™re ok after the 2nd round? Sounded a bit of s nightmare last time. That mustโ€™ve been scary. Iโ€™m doing 4xEC every 3 weeks then 12 x Taxol, but I didnโ€™t start until 7 weeks after mastectomy, so youโ€™ve had quite a time of it. Really feeling for you. 

Nicky x

 

Member

Re: June 2019 chemo starters

Hi

Iโ€™m new to this forum. Started my chemo three weeks ago after surgery. Original plan was 4 x EC over 8 weeks followed by 12 x P over 12 weeks. Thing is I had 4 nights in hospital with neutropenia after the first cycle so now might get my plan changed. 

Had second dose this Tuesday just gone so waiting to see how that goes before my oncologist will decide. 

Shi Community Champion
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Re: June 2019 chemo starters

English Rose ๐Ÿคฃ๐Ÿ˜‚๐Ÿคฃweโ€™ve all been there ๐Ÿ’ฉ back up, iโ€™ll Send the scrape you off the ceiling rescue squad because youโ€™ll need them when you do go ๐Ÿ˜ chin up tho, t can send it running the other way like a river and you need Imodium and up your carbs ๐Ÿ‘๐Ÿ’•๐Ÿ’•โœจโœจShi xx

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Re: June 2019 chemo starters

Nothing worse than not being able to ' go '.... especially if you have stomach pains .

 

i tried sugar free liquorice when i had stopped going... one small piece for 2 days...  

then relief !!

hope you find something that ' moves ' you.

mini mad xx

Member

Re: June 2019 chemo starters

Girls, Iโ€™m finding the constipation worse 2nd time. Thought I was being proactive. Senoket night before, and plenty of fruit, fibre, water, one movicol per day, walking, flax etc etc . Took a hot curry on Sunday night (chemo had been Monday) for any movement and nothing since๐Ÿ’ฉ๐Ÿ˜ฆ. Silver lining is I expect my weight to drop considerably when it happens ๐Ÿ˜ฌ๐Ÿ˜