17-12-2018 05:27 PM
17-12-2018 05:04 PM
17-12-2018 01:13 PM - edited 17-12-2018 01:14 PM
Alas, I am not feeling well today. Had some shivers last night but just thought it was the cold weather. Woke up with a distinct facial flush and discovered I have a fever. Thighs ache. Lower back aches. I spoke to my BCN this morning and she advised regular paracetamol and visit to the clinic tomorrow morning to see if they should extend my antibiotics. However, my bowels have become overactive and my most recent visit to the loo was decidedly loose. So I am wondering if my C. difficile infection may be recurring. Now I have to decide if I call again... I think I will wait to see what next visit to the loo brings.
17-12-2018 09:51 AM
Good luck Jencat with those results today. Hope this gives you the all clear and you can move forward. Its good to hear you are finding counselling and therapies useful. I think we all need something to help us move forward once we are done with active treatment.
Reddi - how are you now, glad you got home!
CDC - well my dear what can I say! How dare they!!! What a nerve! That is so out of order, after everything you have been through, all the information you have gathered and provided them with. Don't let them wear you down Clare... when you feel good and ready you give them hell. To blatantly get all those details wrong just beggars belief. I really do believe that if, for one minute, they had to walk in our shoes, they would be taking these things much more seriously and understand how we need assurance and good honest guidance in every step we take. To even insinuate that they did all they could and "tough get on with it" is...well... can't even begin to put that into words that wouldn't be taken down by this forum!! Big big hugs to you... they better watch coz CDC is coming for them!
But on a better note CDC good to hear you have a date for surgery and are feeling confident with the new team. How are you feeling now chemo is done, are you suffering any aches and pains? I am stiff and achey in every possible joint know to man! From toes to fingers! Can't work out if its chemo, radio, Tamoxifen, menopause or all of them. Just hope it eventually goes away. Am just trying to focus on getting radiotherapy finished this week and then have a break over christmas to rest up a bit and then see what happens. Don't even know what happens once I finish rads? Whether I get a scan or something? Anyone have any ideas? I know they said I would get a mammogram on the remaining breast around about the 1yr anniversary of my masectomy so that would be May time.
16-12-2018 03:02 PM
Hi Michelle, thank you for thinking of me. I'm ok, but still struggling a bit emotionally at times. I was offered counselling when I was having chemo and rads, but I didn't need it then and always felt I'd find it harder once I finished treatment and I was right. I've been having some counselling through Macmillan and that has been helping and also I'm entitled to 6 free therapies through a local charity and I've found that beneficial too. So far I've had a hand and foot massage, which was lovely! The therapist is an ex-nurse and comes to my house. I've found it nice to be able to talk about my cancer to her if I want to as I can't really talk about it too much to anyone else because I don't want to upset them or they don't understand as I 'look well'!
I'm feeling quite anxious today as I'm seeing my chemo onc tomorrow pm to get the results of the CT scan I had 2wks ago. It was to check that the last few mm's of cancer has gone from my internal mammory chain. My chemo onc said she'd be surprised if there was anything still there when I saw her in the Summer, but I can't relax until I know for definite, although I keep thinking surely they wouldn't leave me for 6mths after the finish of rads if they were that concerned?! It's been difficult though to move forward when I don't know if I'm cancer free or not.
Sorry to read that you're struggling too and hope you find your counselling helps xx
15-12-2018 10:18 PM
15-12-2018 10:02 PM
15-12-2018 09:04 PM
15-12-2018 08:17 PM
Hi Kip, I'm from Oct '17 thread and I've being having counselling through Macmillan since I finished rads in the Summer and I've found it's helped, so hope it does the same for you x
14-12-2018 07:23 PM
14-12-2018 03:16 PM
Ah thanks Reddi. Yes "are you there Mother..." definately odd!
Just had Rads No. 11 and feeling unexpectedly teary on the way home. Sometimes I just suddently find myself hit full on with the thought "oh my god I have cancer"... tried to explain that to OH just now and how scared for the future I feel sometimes and in true style he said "Life is terminal"! Gotta love him hey....He says hes sick of talking about cancer... bloody hell try living it I thought! I know he doesn't know what to say.. guess he never will really... definately gonna need some counselling after xmas I think...even if just to sit and cry and not be judged.. In true British style... I'm going to make a cup of tea and have a biscuit...
14-12-2018 10:03 AM
14-12-2018 09:58 AM
14-12-2018 09:23 AM
Oh no Reddi! You sound like you had the same patient next door as I had when I was hospitalised for low neuts! He was shouting "kill me" "help me" and "Mother are you there" all night long too.... I thought I was home and dry when put in a single room but hell no...I think every trolley that went by clattered into my door and the lights.... grrrrrrrr.... hope you escape tonight... and watch out for anymore scabby monkey! I'm sure CDC can sympathise with the alarms on the dressings, I seem to remember she had fun with them too!
14-12-2018 09:17 AM
14-12-2018 09:17 AM - edited 14-12-2018 09:18 AM
Well I finally met somebody at Radiotherpay who was in my age bracket.. we have both had BC, masectomy and 6 x FECT. Unfortunately she had BC 10 years ago and had a masectomy then and this was a new diagnosis in the other breast but she has now had the other breast removed and has chosen to remain flat! She was so pleased to be matching finally and said she felt quite pressured to have recon but it wasn't for her. Nice to talk to someone else in the same boat. We compared nails, hers looked pretty much like mine and she had lost a couple and some toenails too eek. We discussed hair.. shes still wearing her wig as hers isn't growing much yet and we had a good old moan about Docetaxol! Oh and she suffered from the neuropathy in her fee & .fingers and had trouble walking, and they are still sore but improving! She even finishes her radiotherapy on 19th too. Made a change from chatting about prostrates!