20-12-2018 09:15 AM
Thanks everyone, I know the bell etc is a bit cheesey, but it definately marks a point in time and meant a lot to my kids to ring it with me. Feeling emotional today still, hoping i can fend off the worry gremlins until after Christmas at least!
19-12-2018 09:56 PM
19-12-2018 07:43 PM
@SallyG63 Gah, I snort-laughed at your comment. And that's even though I teared up when I read the quote on the bell when @Kip shared it. I'm a sentimental cynic or a cynical sentimentalist -- just can't determine which.
An American friend of mine -- diagnosed and treated for ER-, HER2+ DCIS a couple years at age 37, who just got word of something amiss in her follow-up scans and so is having an MRI-guided biopsy -- US shared a link to a poem, "The Fourth Sign of the Zodiac" by Mary Oliver, that she turns to at times. It wasn't my thing -- well, cynically and sentimentally, there were lines I liked and loved, and others at which I rolled my eyes -- but it might be exactly right for some of us...
19-12-2018 05:02 PM - edited 19-12-2018 05:03 PM
Sally, Yes he probably was! The bell ringing marks the end of active treatment.. there is a poem engraved on it which says "Ring the bell 3 times well, its toll for all to say, my treatments done, the journeys won and now I'm on my way".
19-12-2018 04:56 PM
I've done it and rung the bell (that's my lovely children supporting me) did get the doctor to take one with my husband in it and when I got out, it hadn't worked! Grrr.. never mind nothing can dampen my smile today... hope the happiness lasts and I don't hit a low tomorrow... but for now... smiling!
19-12-2018 09:20 AM
Oh Sally nothing is ever straight forward is it, hope they sort the appointments... 12 hour days is not doable especially as they harp on about the fatigue kicking in! And as for the mammogram... just grrrrrrr
18-12-2018 06:45 PM
18-12-2018 06:14 PM
Thanks for tips Sally unfortunately im so small i cant reach the door frame!! Hope planning went well. Im now booked in foe the Hope Movjng on Course jn February and also gots lots of information about other therapies available, may have reki and reflexology after xmas. Was quite surprised to be told as a cancer sufferer uou are now classed as disabled! And as such have all the benefit rightsnof a disabled person. A sobering thought. I aas also given an exercise dvd especislly designed for breast cancer patients to help with gettjng movement back and preventing lymphoedema. So a productive afternoon.
18-12-2018 10:29 AM
18-12-2018 09:51 AM
18-12-2018 09:46 AM
18-12-2018 09:22 AM
Kip, your last post made me laugh re music played whilst havingscan/rads!
Michelle and Kip, I had good news yesterday, CT scan was clear of cancer! (A bit of 'fluffiness' on my left lung, but onc said it was in the exact spot where I had rads, so it is inflamation from that and she's not worried) Onc said I'm now in remission and has discharged me! I wasn't expecting that as I thought before I started chemo she'd said she'd see me alongside consultant for a few years as I'm TN. Tbh, I'd rather I was still seen, but perhaps I should think of it as good news that she doesn't feel she needs to! xx
18-12-2018 09:11 AM
Michelle thanks for the response, funnily enough I saw the radiotherapy nurse yesterday for a catch up and she said I will see them again 4-6 weeks after finishing the rads and then it will be a mammogram and an ultrasound (sounds promising but I'll wait and see) 1 year after diagnosis (so May) and then regularly check ups after then. I think I am being seen by ONCs to check on progress with Tamoxifen too, so sounds the same as you. It was good to see the nurse because I finally know that I do have Cording!!! All the way from wrist to armpit.. .fabulous! She showed me how to massage it gently and I am on the list for an appointment with the Lymphodema clinic so that they can have a go too. So glad to know thats what it is. She was lovely and I told her about the fear after finishing treatment and she said that its so so common but that they have lots of therapies and counselling and exercise classes to help and that I will always have an open door to Radio, Oncology and Breast clinic so I can call at any time for evermore if I need to chat or am just worried about something. She said some ladies just come in when they are feeling fearful just to have their minds eased. I asked about my aches and pains too and she thinks its chemo hangover plus a bit of Tamox thrown in.. She said it should ease over time (not sure how much time mind!). She also advised to keep a note of how I feel on the different brands of Tamox as some can make you feel different and you can request the chemist only supply you with the brand you like.
Reddi - I hope you are feeling ok today, sounds nasty and something else you can do without. Take care.
Sally - That is a nightmare time for an appointment for Radio isn't it.. hopefully they can get it changed for you?
Well its the penultimate radiotherapy session today... still doing ok, not sure if I am feeling more tired. I think over this last year I have just got used to feeling tired so its become the norm! Had christmas music playing as they did the rads yesterday.. that was a very bizarre thing.. not sure entirely appropriate... as the song was "Simply having a wonderful Christmas time" as a machine buzzed over head and routinely fired beams at me! Oh well I had the theme from Titanic playing as I had my initial MRI so can't expect too much.