Honestly ladies it doesn't feel like it at the moment - but this time will quickly pass - you'll go back to eating just what you like (and it'll taste good) before you know it! It's something I will never take for granted ever again though - I quite often think back to those horrid chemo days and can't believe I've been there and come out the other side - this will be you too.
Keep going, keep positive and more importantly keep smiling xx
reddi - it would appear you're having pretty much the same order of treatment as I had last year. I started with the chemo as although the lump I had in my right breast was only 5mm I had a large area of DCIS (high grade) which mean't there was no alternative but to have a mastectomy. I also had one lymph node showing signs of cancer so I had a complete removal of all nodes. When I got my pathology report following surgery I was delighted to discover all tissue from the breast and 17 nodes removed showed no signs of cancer left - ie it had completely gone! the chemo with the PH had well and truly obliterated it! I still went on to have 15 bouts of radiotherapy - concentrating on my chest wall and upper clavicle area.
Unfortunately the diarrhea will be a side effect of the chemo together with the PH - A&E do tend to "over react" which is better than ignoring whereas the onc will be much more knowledgeable and will be able to prescribe you something to take if the situation begins to happen next time. I would say you do tend to learn the schedule of events....! Just keep well away from the person throwing up - you really don't want any nasty infections to delay your treatments.
Hopefully you'll be back home very soon - take care x
Georgie Gee - sorry to hear you haven't managed to escape you but hopefully you will soon and good news the infection has gone.
Reddi - now you are joining the Casa NHS sleepover too.. oh dear, hope you got those 8 hours sleep in the end and are now rehydrated. Thankfully I have not had the diarrohea throughout chemo, just get constipation for first week on the T (steroids I think) so lots of lactulose for me.
I'm now on day 4 of last cycle of T and the mouth is starting to get lardy, so onto Fluconazole today to combat that hopefully, although my GP managed to prescribe me 8 weeks worth yesterday instead of 10 days.. its either all or nothing with them! I've had 2 injections so far, and thats going ok, although still dislike doing it and still having the useless nights sleep, last steroids tomorrow though so probably have the downer days at the weekend too. I've managed to track down my ONC nurse too and she can't arrange the planning for rads until after surgery, results and checkup (even though the surgeon asked me to get it sorted now) so will probably find my rads fall over Xmas too! Grrrrr..
Another beautiful sunny day here in Suffolk, although I think it may be the last. Although I am looking forward to some cooler evenings as suffering hot flushes too, and also treated ourselves to a lovely woodburner stove and can't wait to get it burning, though with the hot flushes I might regret it and have to have the window open too!
Take care all
Reddi - hope you slept well.
Just for reassurance, the diarrhea was always a bigger problem for me during the 2nd/3rd week after treatment, it would always be OK again in time for the next treatment! Strangely enough you get used to the timescale of symptoms!
Good luck for the remainder of your treatments, have you had any operation yet?
I just see you're suffering from diarrhea whilst on T - I too suffered with this on each of the 4 cycles of T - (I also had Herceptin and Pertuzumab) the H & P also caused severe wind - so with the whole concoction I did end up in A&E on my 1st cycle as I wanted to be sure it wasn't any kind of infection. As I say, mine wasn't an infection and unfortunately it was the same for the final 3 cycles.
I can only suggest eating plain - unhealthy carbo foods. Don't try anything healthy! Drink plenty of water (awful as water tastes) - you need to keep your fluids up! Also a little bit of flat cola is good - it's brilliant for replacing salts/sugars.
Good luck and stay strong - it's horrid but it all goes back to normal once the chemo is done! I finished chemo last August and now it's all just a horrid memory! xx
A mixed day here at the hospital!
My antibiotics have ceased, as the infection is gone. 😍😍😍
Went for a chest scan today and they found a blood clot on my lungs. 😫
So in a nutshell, they will start blood thinning drugs later this evening, and test blood again tomorrow. If the platelets are ok, I can go home 😃.
All a bit of a whirlwind if I'm honest!!
chemo has been delayed for a week, which I am very pleased about..... I need to get my breath back!!
Love to all!
Georgie Gee ❤️
Oh Reddi, I'm so sorry to hear that! Fingers crossed they sort you out quickly and don't invite you for a sleepover.
I consider myself fortunate that despite the frequency of my bowel movements on T they in no way constitute diarrhoea otherwise I'd have barely been at home!
Day 14 of T2 here and mostly things are back to normal. Still can't digest plain water or hard salad veg, but otherwise ok.
My big angst is my hair. It's become apparent that I've had a couple of cycles recently where the cold cap hasn't been fitted exactly and I'm getting some extreme thinning on the top of my head which is devastating me. Think old man combover. Going to the hairdresser tomorrow and hope she can work some magic, but I'm preparing myself for a pixie cut. Ho hum.
Hi Everyone, hope you are all hanging on in there.
Shi - I love the thought of gold hot pants.. although don't think I would be rocking the look but the thought made me smile, and as for the music, thats just great! I can't even manage to type a response without having to edit it 100 times, let alone upload anything! You posts really do keep my going and all your little tips too.
CDC - Can't believe you are still having to chase ONCS and appointments too, how frustrating but enjoy that extra SE free week. Hope you get it all sorted soon and can get the better hospital/ONCs etc.
KTK - how are you feeling now, any improvement with the swallowing?
Lisa Marie - hows things with you today? Hows the arms/hands doing, my thumbs are so dry at the moment, need lots of moisturising but the arm is ok so far, no pain from the chemo as yet.
GeorgieGee - big hi to you, hope you are bearing up in the old hospital!
Embolorry - hows the tats?
Anyone else I've missed off the list... have a good day!
Day 3 of chemo and still feeling ok, tired as the steroids are playing their usual game, but now back to 4 a day for 3 days and then off them - hopefully for ever more! I have the weirdest dreams when I do get a bit of sleep... last night dropped off then could see a large cruise ship (wishful thinking!) then it seemed like somebody called out "Jake".. which is weird because the only Jake I know is my old cat which died quite a few years ago.. freaked me out a bit and woke me up.. bloomin drugs. Mouth still ok today, just had a call from my GP who was asking why the hospital didn't supply me with Fluconozole as their letter said they would be, I explained that had forgotten it and he didn't seem surprised but is sorting it today for me, he also recommended sucking on Vit C tabs (the fizzy ones you disolve in water) as they help cut through the lardie mouth feeling and help with the thrush/ulcers.
Meant to mention the other day... my surgeon told me a tip for post surgery healing and scars under armpit area.... she said roll up a clean pair of socks and keep them under your arm pit pressing down on the scar area as this helps with drainage and flattening the scar tissue too.. if you have a small shape pillow you can use that and keep that pressed under the armpit area.. I have the pillows but hadn't thought about the socks, so might try that after node clearance. I wish all the professionals gave the same advice, I get different things everytime.
OH dear Georgie, but at least you know what it is. Isolation room was better than ward I found though and had own bathroom. My antibiotics were pumped in by the nurses too, every 4 hours although they couldn;t find an infection! Did have a bad mouth/throat though.
Take care, I'm sure once the antib's get in the system you'll be home before you know it. Get some good books brought in. Do your visitors have to wear aprons and gloves now too? Mine did, so funny watching them threw the door trying to pot on an apron, they always seemd to get them on unfolded.. Although my OH and kids didn;t have to wear any gloves or apron as they "had come from my home environment" which I couldn't understand as they had walked through a car park and through a bloomin' hospital to get to me! Weird.
@Georgie Oh, no, the dreaded MRSA. Not a happy bunny at all. I hope the MRSA gets knocked out by your new super-special antibiotics. Thinking of you.
Wow Reddi, I have the white lines without ridges and now know the names... you are so informative about all this stuff! It is incredible to have a visual guide as to how much chemo is going in isn't it, its my new thing to bore my family with.. after the fluffy head hair that is. Is anyone developing fluff on their face too.. not a good look but I think I read it does go eventually, I just don't want it giving my head hair a run for its money or I could be joining the Greatest Showman!
KTK - you sound so like me, I put off ringing the hotline in the fear they'll call me in, then when I do ring I usually feel so much relief I wish I'd done it sooner.. apart from the time they took me in.. grrrr!
Lisa Marie - the Macmillan coffee evening sounds fab, my niece did one for me at the pub she works at, felt so honoured bless her! Enjoy that little bit of Rose, why not, as you said we deserve to enjoy the little things in life! I do think you are making the right decision to leave those big things to after treatment and then address them, too much to decide right now, need to get yourself feeling better, think of the wedding and then decide. And bought a tear to my eye to read about your stepchildren, they are very lucky to have you by the sounds of things! And as for giving OH and out... very brave too but I get that as well!
T 3 is ok so far, only day 2 though so usually get the tongue going awol about Friday, have just had to ring the GP to request Fluconazole as they forgot to give it to me at the hospital, I did ask and she said I would have it but then it didn't turn up! I like to have "just in case" and started taking it as soon as the tongue got furry last time and it didn't last half as long and no ulcers etc so daren't risk not having in the house.
Also got to chase the ONC nurse again as they want to get my planning for RADS rolling so that these happen as soon as possible after surgery to try to ensure I can get it all done without Xmas getting in the middle... was told to ask at chemo but the nurses said they couldn't do anything about it.. so more chasing around today I think.
GeorgieGee - hope you are feeling ok today and may be getting out soon?
CDC - how are you feeling today?
And anyone else I've forgotten.. have a good day, be strong.. big hugs...
The doctors came to my bedside with aprons on yesterday and told me that the mystery blood causing the query, has tested positive for MRSA.
This is of course means that for the moment at least, I need to settle in and call my isolation room home.
I was really tearful yesterday but coming coming to terms with it today. The antibiotics for the sepsis were not covering the MRSA, hence the extra one, which is pumped in IV by the nurses once a day, like some of the chemo drugs are. They think it may be in my mouth / throat / downwards.... may have some tests.
Georgie Gee is not a happy bunny 😷
Y'all are so lovely. But I'm not brave to share -- it's just my life. My hesitation about sharing was my uncertainty about whether sharing would give a little bit of comfort and ease -- or instead set off different emotions. Comfort and ease were my intention, but human emotions aren't entirely predictable.
@Kip I have the lines on my nails starting from FEC. A friend whose father had chemo mentioned that he'd had them, so I have been on the lookout. I believe mine are Mees lines -- white bands without apparent ridges; Beau lines have ridges, too. I find them fascinating, a little badge of what my body's going through, and one far more decorative than my pale scalp!