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June 2018 Chemo Starters

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Re: June 2018 Chemo Starters

@Kip Well, I am loving your new color. Very chic.
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Re: June 2018 Chemo Starters

Happy belated birthday, @cdc! 🎂 Brighton sounds lovely.
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Re: June 2018 Chemo Starters

I think I was lulled into a false sense of victory by my pre chemo steroids, as today the pain is back. I'd even started to wonder if it was a weird combination of eyebrow acne and contact dermatitis on my forehead. But no longer, now that the snake pain has started again.

Just wish I wasn't also dealing with my TPH days 4-5 back/shoulder pain and mucositis stabs in my esophagus. Cannot wait til Wednesday, by when I expect/hope those things will have settled -- and then (American) Thanksgiving on Thursday. We're doing a scaled-back feast to celebrate, as I have much to be grateful for this year (but less energy). 🦃

Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Kip, reddi 😘😘😘looking beautiful girls 👍👍👍cdc, the downy fluff only lasts for a bit, I left it alone and it just goes back to normal, you just feel like a fluffy 🐥 for a bit 😁 kip as I was looking at my mad curly mullet today thinking 🤡🤡🤡hair I too like you remembered how great to is to have hair again and that red dot does get it growing quick, mishy18 is the lady to thank for that she was july17 and she looked after us on oct17 so very much, she’s a star and so blooming funny 😁😁😁are we having a 💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻Girls, how about hands up, baby hands up by Ottawan, great disco tune 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻Handbags on the floor, white stilettos on and 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻😁😁😁😁💕💕💕✨✨✨✨Shi xx
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Re: June 2018 Chemo Starters

Loving the photos. Thanks for the hair care and eyelash tips Shi. I have my LGFB session tomorrow. Can’t wait. Did the downy hair go eventually? Just wondering if I should try and remove it somehow.
Kip so much has grown back now! Sounds like you are doing ok on tamoxifen but I hope the aches and pains wear off soon, How are you feeling about starting radio?
Reddi how are you doing
Not in pain from the shingles I shovel have you finished chemo now? I think I might have one more. I’d forgotten they’d added a couple of weekly cycles due to the reduced dose. I will feel comfortable knowing I’ve had the equivalent of 3 full docetaxel. Just got to see what they say on Thursday. Thankfully my toes/feet feel like hey are starting to recover. I do see light at the end of the tunnel which is wonderful! Even managed a trip to Brighton for my birthday yesterday with my OH and daughter. It was such a fabulous day and the sun shone throughout. I really forgot about s****ing Cancer for a while. Loved the Pavillion especially as they’ve decorated it for Christmas. In the afternoon we saw the original artwork for Raymond Briggs The Snowman at Brighton Museum, I had tears in my eyes at the end. Still it helped to make me feel a bit more in the Festive Spirit.

Linda Ive not heard of biotin tablets or Jamaican caster oil. Need to do so,e investigating.

Hi RedRose I thought my nails were doing pretty well but I’ve just noticed the middle one in my right hand seems to be coming away at the side. Many have got what looks like another nail trying to grow at the base of those that are hanging in in there. I’m not too worried and at least they don’t hurt.
I’m feeling petty shattered but I’ve come home for a rest while my daughter is at choir practice. I think it’s all a matter of pacing ourselves. You and Kip will be radio buddies by the looks of things. I won’t know whether I, to have rads until after my mastectomy. The Marsden is a bit of a way so having to go there daily if necessary will be tiring in itself.

How are you Jean? Have you started the Moving on course yet?

Anyway best be off for my nap before my OH returns with our daughter.

Take Care everyone xx
Kip
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Re: June 2018 Chemo Starters

Hi Reddi so good to put a face to a name, looking forward to seeing the photo with the new growth.  I was told today i look like Judy Dench!!!  I used to dye my hair but jt was a sort of dark blonde/light brown although i had grey bits i dont know if i was this grey!!  Oh well just loving having hair again.

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Re: June 2018 Chemo Starters

@Kip Aw, look at all that hair! What color was it before treatment?

 

Mine seems to be growing in the same color as before -- complete with the grey patches that I've been dying for decades and now am seeing in full glory for the first time. Will post a pic of my (less luxurious) fuzz once the shingles patch on my forehead clears up (it's not pleasant). For now, a belated baldie pic from me -- taken about a month ago, near the end of cycle 5. I never shaved after my brutalist pixie; just let it fall out in the end. Lush bar is at the ready, to start after day 15 of cycle 7!

 

bald reddi 2.jpgHello!

Kip
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Re: June 2018 Chemo Starters

Hello everyone, good to read some positive stuff going on.  Red Rose your nails do look sore but hopefully they will be off soon with lovely new ones back in time for the wedding.  Enjoy that christmas break when you get it.  It looks like we will be starting Rads almost together, j start on 29th nov.  Good news about the spikes starting, i found mine gew very quickly once it got going although very white.  Also hair growing everywhere now!!!  I use the Lush bar Shi mentioned its lovely!  Ive attached a photo.. excuse the wrinkles and bags just woken up...😁20181118_092735.jpg

CDC, i too have the face fluff... Am hoping it stops soon or ill have to get a job as Father Christmas!!  Good news on ringing the bell and thanks for the lovely description of you hangjng out the washing... Isnt it lovely how the small things can mean so much...  I had a big smile yesterday when i could raise my arm to the top of the door.. ifs still stiff and sore but it felt good!

The tamoxifen is going ok, had 4 now a d so far ok, no extra sweats or problems.. still keeping fingers crossed it continues.  However the aches and pains from chemo continue.. feet, thighs, calfs, back feel like an old woman!

 

Shi Community Champion
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Re: June 2018 Chemo Starters

Yep Jamaican black castor oil rubbed into scalp before washing, you should be able to get anywhere they do wigs and extensions Linda if you are in a city and like reddi says amazon too 😘😘💕💕💕✨✨✨Shi xx
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Re: June 2018 Chemo Starters

@Linda I found some Jamaican black castor oil options on Amazon, if all else fails.
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Re: June 2018 Chemo Starters

Coconut oil is good too. I am using Palmers shampoo and conditioner and mine is growing back thickly. It has coconut oil in it. Can we use biotin tablets? I got some but thought I should check first before using although it is in my multi vitamins I take anyway. The health food shop suggested putting jasmine oil in your hair but I looked online and was not sure if that is ok or not. Also I was going to ask re the black Jamaican castor oil as the health food shop wasn't sure where I would get it from? Any ideas. Ta. x
Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi cdc yes the downy hairy face 😁😁it does settle, it’s just a bit of a shock isn’t it as you don’t realise just how hairless you become. Don’t forget to get the mascara off n as soon as lashes start to return, it trains the lashes to curl rather than grow straight out, tip from my friend who is on the Ysl counter and does Lgfb sessions 👍the lush red dot shampoo bar is good for getting hair back quick and thick lots of us used it after mishy18 had good results with it. 💕💕✨✨✨Shi xx
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Re: June 2018 Chemo Starters

Kip hope your nales hang on in there.

Bizarrely as well as hair beginning to grow on my head I’m developing a hairy face!!!! Well more like downy, but I have sideburns!!!! Agh! Any one else experienced this??? I’ve yet to get hair back anywhere else,

Hugs to all xxx
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Re: June 2018 Chemo Starters

Georgie Gee glad you’ll be getting a breather to recover before rads begin. You certainly have been through the mill. Cx
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Re: June 2018 Chemo Starters

Sorry not Red Rise!!- Red Rose!
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Re: June 2018 Chemo Starters

I really do hope they won’t sneak in some more but it’s a possibility and I have been booked in just in case. I will certainly celebrate all over again next Friday if needs be! Did yours go ahead Reddi ?? I was thinking of you.

So great you’ll have a break for Christmas Red Rise but sorry to see your nails are so sore and some have come off. I agree with Shi, I think we will all find our new normal. I’ve certainly been changed by my experience of BC. Im amazed it hasn’t been all bad as I’vee learnt to appreciate some of the small things in life- I’ve said it before but I remember being able to get my arms high enough to put the washing on the line after my first surgery. It was a lovely Sunny day and I will never forget the pleasure I got from the warmth of the sun and the scent as the washing billowed in the breeze. I hope we will all have many of these moments of appreciation and be able to recall them when having the s***t times. Sending hugs.


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Re: June 2018 Chemo Starters

@RedRose Condolences for your nails. I can see how you'd want those hanging on by (less than) a nail to fall off so that you can get the new nails growing and some relief from the discomfort. And such nice news that you'll have a break for Christmas, and that you're starting to get a little fuzz. Eyelashes surely must not be far behind. New normal, here we come. Heart

 

@cdc Here's to ringing the bell today. (Though I know you'll be chatting with your oncologist next week and might sneak some more paclitaxel in, I say celebrate today and then again later, if you get some more cycles in.)

 

Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

❤️❤️❤️red rose ❤️❤️❤️you will find your new normal it’s all part of the journey😘😘great news on bit of fluff starting 👍👍you’ll have lots of fun as hair comes back and will warn you you have to go through the ‘mullet’ look while trying to get it long again if you are 😁😁😁hope yours comes back nice and straight, mines a right 80’s curly mullet😲😲😲my hair was same as yours prior to all this, you just have to 😁😁😁😁and have fun trying new styles 👍👍sorry your nails not made it, t is a 🤬🤬🤬💕💕✨✨✨everyone Shi xx
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Re: June 2018 Chemo Starters

Little bit of and update on me, final oncology appointment on 23rd, rads on 26th x 4 weeks. Then a break for Christmas 🎄. January will see me returning to work if possible but still suffering the side effect of chemo, weak arms, aches, poor concentration and not being able to walk far. Tiredness comes in waves. Feel fine one min but next fee exhausted. On a good note I have some spikes stubbly bits appearing on my head but still no eyelashes unfortunately. January will also see me returning to genetics and consequently breast and gynecologist to discuss further surgery or monitoring. Also a bone scan as I wasn’t told, chemo, rads and ovary suppression could effect me, it’s only from you guys that I picked that up. Thank you. No hormone treatment for me. Feels weird now chemo done and the routine of oncology, bloods, chemo, feel like 💩. Repeat has finished, so god knows what I’m going to be like after rads. Suppose I ought to stop thinking about trying to get back to “normal” when I feel anything but. I need to find my new normal and be ok with that. Xx
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Re: June 2018 Chemo Starters

Hi ladies. Think it’s too late for my nails. Ones already off and think 5 more will be following. Sat here with them wrapped up in medical tape. They hurt and snag when bag them, wish they would just come off. Awkwardness when doing anything involving hands trying not to bang them. Xxx