Snap KTK only I'd been there since 10am and as I was so delayed I had a bit of a wobbly and persuaded them to leave my PICC until my appointment with the IV team on Monday!
Felt strangely deflated as I left the unit, all very low key. Still I've got another 15 Herceptin injections to go so it's not my last time there. Have to phone about those appointments tomorrow as they've moved my day to Saturday without any consultation. With notice I can manage that, but I've got something booked for each of the cycle dates upto Christmas. Ho hum.
Hi Lisa Marie
Do you have a chemo hotline number? I have a chemotherapy treatment diary with details of side effects and when to contact the hotline, having said that the chemo nurse initially told me the redness on my hands/feet was not chemo related. She did then follow protocol and rang me very early the following morning after e-mailing the oncologist who told me to come in. It can be hard to diagnose hand/foot syndrome unless someone knows what they are looking for. Your photo shows such similar marks to mine in exactly the same place. The puppy could have exacerbated the situation by putting pressure on your hand. Have you had any issues with your feet at all- redness, feeling sore? It’s good that the GP is going to sort something else out for you. If the augmentin is making you sick that can’t be good!! If it isnt hand/foot and is an infection, the chemo team will also want to know.
Sorry you’re having to deal with this on top of everything else and hope you feel better after a day (or more) in bed. Take Care xxx
Hi Lisa you poor thing, it never rains but it pours hey! Hope your arm sorts itself with some new meds although i would have thought it more likely to be the chemo than the dog given the problems yoh have had already. Do uou only have 1 chemo to go?
LISA MARIE- your photo could have been one taken of my hand last week!! . I had exactly the same marks in the same place- th skin is now peeling from it. I believe it’s Palmer plantar. Really good you are going to see someone to check it out. The markings usually occur where the skin has pressure applied. My OH and I think mine arose on my hand in that particular position as it had been resting on a table.
Let me know now how you get on xxx
Hi ladies, glad to report the Larry tongue is behaving itself, have about 2/3 taste buds too... good ole Larry. The bone aches are subsiding now, just soooo tired, and these watery eyes still... come on eyelashes get a grip!
CDC sounds like the paxitaxel will be much better even though its a pain going weekly, no home meds will be ace, I am fed up of taking stuff, can't wait to finish the antibiotics I'm on and the flucozonale and then I can have a few weeks med free before op!
Shi - a licky tongue sounds just as great as a Larry tongue... anything but a lardy tongue!
Fingers crossed I’ll have no Larry tongue either 🤣
So pleased to hear I won’t be taking much/anything homein the way of medication Sally. Result! sort of makes up for having to go in every week. Xx
Hi all, well may i i just say i already admired you all for your strength and fighting spirit but after last night i am in awe of all you ladies who have regularly dealt with the bone pain from those injections. I havent had them every cycle but have had 3 lots, and have not really sufferered too much but oh dear.. had my last one at 6pm last night and boy was docetaxol gonna make me pay for being on my last cycle! By bed time i was in agony with hip, leg, feet etc like bejng in labour!!! Its gone off somewhat today now feels like flu aches but i feel wiped out! Seems The Dreaded T is going out with a bang!!! However no more steroids and 👅 not too bad but the aches ooooooh!
CDC.. i hope the hair does stay as mine is growing quickly too although nothing like it was before very fluffy and white.
Heres to a restful day to you amazing warrior ladies!! And docetaxol "you can leave the building now please"😁
Hi Ladies, I hope you are all doing well. x
Right now the government has extra funding to allocate and we need to make sure breast cancer gets the priority it deserves. I've shared my story, please share yours:
Gosh, so much going on over the past few days. We ladies really are going through it, but we're still smiling!
Well, my hair is now in a pixie cut with a bit more length in the top to help cover the very thin bits. I don't like it, but it looks more like a style than a nest and gives the illusion of better coverage. Of course it's all white/grey, even the new growth, not a sign of my normal auburn colour.
Hope you all have good weekends.
What a naff chemo session!
I do hope and pray that your arm which they used after node clearance will be ok.
Thank you everyone for your support whilst I was 'inside' !!
When we share our experiences with one another, we don't have to explain all the ins and outs of chemo and possible complications.
Whenever I log in to read or report, I call it "catching up with my girls"!! 👱🏻♀️👩🏻👧
love to you all xxx
What a grim day Sally. Do so hope you’re able to get some rest today and that you’re not in too much pain after all those blood tests and cannula attempts. .Owwwwwww! XXX
So glad to hear you’re home Georgie
Thank goodness the antibiotics worked and I hope the injections sort out the blood clot.
Sounds like a few of us are having a our next cycle of chemo delayed for a bit.
Hope you get a good night’s sleep.
Take Care xx
Gosh, we have all been in pickles over the last few days haven't we?!
I am finally out out of hospital. The infections responded to the antibiotics well, so I'm home with injections to treat the blood clot they found on my lung now.
I have had had my first Herceptin and T put back a week, to give me a rest between this illness and making me fitter for the next lot.
I have no energy still, but sleeping in my own cosy bed has been lovely.
All best wishes to everyone.
@cdc Thanks for the probiotics advice. My cancer researcher friend in the US suggested probiotics to me after I mentioned the antibiotics I was on during my cycle 1 febrile neutropenia, but my oncology team and breast cancer nurse insisted that I wait until after I finish chemo before starting them. (I have a stash of BioGaia L. reuteri ProTectis in hand, which was his suggestion, but need to read a bit more about it, as there are links between the microbiome and estrogen regulation -- not necessarily bad links, but links.)
Hope you get your chemo scheduled for the Friday --
Oh gosh Reddi, CDiff that makes sense then... at least you can get that sorted and hopefully get chemo back on track for the future.
As for getting more tired. I found my first T was harder than the second but I am very tired at present, the steroids really mess up my sleeping and until they get out of my system I just fidgit all night long. Last day of them today, so hoping sleep will come soon. I was told my Docetaxol was 100% for the first cycle, then dropped for the second one and then, possibly? dropped again for third due to numb fingers but not sure by what percentage. Im not HER2 tho so don't have the other bits to add to it but i think overall the fatigue just builds up over time, I can't wait to wake up and feel refreshed again. I was thinking to today that the last time I probably had a full restful nights sleep was probably back in February before I found the bloomin' lump.
@Sally Egads, that is frustrating. Are there exercises or massages or anything else you might do to help ensure it doesn't cause problems?
@ktk, Kip, & others who are now a cycle or two ahead of me: Have you found yourself more fatigued with each cycle? I know cycle 2 will likely be harder for me, as I found out yesterday that when you get docetaxel with the duo of HER2 drugs, the first dose is max Herceptin and Perjeta with a lowered dose of docetaxel, with the second dose lowering the HER2 drugs and ramping up the docetaxel to 100%. But I am wondering how to plan for work in cycles 3 and 4.
And: just got a call from the hospital to let me know my "stool" specimen came back positive for bacterial infection, so off I go to pick up some antibiotics. No more bowel-slowing for me either. Maybe this means I won't have a repeat of this experience during my next 3 cycles. We shall see.
KTK glad you enjoyed your walk.. makes your feel good doesn't it. I managed about 4 miles yesterday.. but was so exhausted last night but then couldn't sleep.. thankfully last steroids today!
Lisa Marie - I always get a bruise round the vein where chemo has been given and it goes after a while but somedays I it aches and feels sore, but as you say only 1 more to go so hopefully you will get through that one and then it can all resolve itself. My thumb is still numb but not quite so tingly I think, I could manage with it if it gets no worse though. How are you getting on with all you decisions, hopefully you are putting them to one side and dealing with them later? How's the hair too? Mines looking fluffy and white still but definately growing, even think I have a few eyebrows today, no eyelashes though and still look like a boiled egg!
CDC - How are you doing today?
After reading the posts about "stews" I really fancy one now.. unfortuanately my family hate a stew,,I absolutely love one though, they also hate puddings.. crazy lot! So yesterday I made a whole apple pie to myself... no wonder I am getting fatter..I hate seeing my lovely cooking apples going to waste!
Hope the diarrohea clears up for your all...and also thanks for the lovely positive posts, can't wait to be tasting everything again... bring on that cheese board!