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June 2018 Chemo Starters

LJ
Member

Re: June 2018 Chemo Starters

Snap KTK only I'd been there since 10am and as I was so delayed I had a bit of a wobbly and persuaded them to leave my PICC until my appointment with the IV team on Monday!

 

Felt strangely deflated as I left the unit, all very low key. Still I've got another 15 Herceptin injections to go so it's not my last time there. Have to phone about those appointments tomorrow as they've moved my day to Saturday without any consultation. With notice I can manage that, but I've got something booked for each of the cycle dates upto Christmas. Ho hum. 

 

LJ

ktk
Member

Re: June 2018 Chemo Starters

Just got home from last chemo😁😁😁. Also had Picc line removed😁. Been there since 9 this morning! Kxxx
Member

Re: June 2018 Chemo Starters

Hi Lisa Marie 

Do you have a chemo hotline number?  I have a chemotherapy treatment diary with details of side effects and when to contact the hotline,  having said that the chemo nurse initially told me the redness on my hands/feet was not chemo related.  She did then follow protocol and rang me very early the following morning after e-mailing the oncologist who told me to come in.  It can be hard to diagnose hand/foot syndrome unless someone knows what they are looking for.  Your photo shows such similar marks to mine in exactly the same place.  The puppy could have exacerbated the situation by putting pressure on your hand.  Have you had any issues with your feet at all- redness, feeling sore?  It’s good that the GP is going to sort something else out for you.  If the augmentin is making you sick that can’t be good!! If it isnt hand/foot and is an infection,  the chemo team will also want to know.  

Sorry you’re having to deal with this on top of everything else and hope you feel better after a day (or more) in bed.  Take Care xxx

 

Kip
Member

Re: June 2018 Chemo Starters

Hi Lisa you poor thing, it never rains but it pours hey!  Hope your arm sorts itself with some new meds although i would have thought it more likely to be the chemo than the dog given the problems yoh have had already.  Do uou only have 1 chemo to go?  

Kip

Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

As you can see us oct17 girls were proper 🤪🤪🤪🤪craazzzzeeeee😁😁😁😁we blamed the steroids and text gremlins 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻And with lisamaries pink wig you lovely ladies are just as 🤪🤪🤪too 😘😘😘know it’s a bit far away to mention but trying to get a load of us off the threads to do the walk the night in London next year, if any of you fancy it, please let me know and i’ll Keep you posted 😘😘😘💕💕💕✨✨✨✨Shi xx
Member

Re: June 2018 Chemo Starters

Larry 👅 and bum buttering with mirrors?! 🙈🙊🤷‍♀️😂 xxx
Member

Re: June 2018 Chemo Starters

Good afternoon ladies. The doctor I saw has told me he thinks my redness is due to my friends puppy 🐶 catching my hand and breaking the skin on Saturday night and has given me antibiotics called Augmentin to fight any infection from it. Personally I don’t think it is as my hands and arms have had issues on the chemo right from the beginning. I have any oncologist appointment on Friday so will ask him then. The Augmentin does not agree with me and it made me so sick. Throwing up and running to 🚽 and I only took 2 doses. Have stopped the antibiotics now and rang the doctor and they going to sort something else out. So for today I’m in bed watching the Big Bang Theory feeling queasy and nodding xx
Member

Re: June 2018 Chemo Starters

😭😄😜
Kip
Member

Re: June 2018 Chemo Starters

Shi - bum buttering with mirrors... the mind boggles!!  Smiley LOL

Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Sorry oct17 thread ❤️❤️Not 16
Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

CDC, I know we had a right thread of text gremlins our oct16 thread, we used to 😂🤣😂🤣with laughter a lot, but we were a 🤪🤪🤪🤪🤪bunch and still are 😁😁😁 but our top moment was meesh and her bum buttering tips with mirrors, that got us all rolling 😂🤣😂🤣😂💕💕💕✨✨✨Shi xx
Member

Re: June 2018 Chemo Starters

PS The pink wig is fab! Great photo xxx

Shi- Licky penguins 😆 👅 🐧
Member

Re: June 2018 Chemo Starters

LISA MARIE- your  photo could have been one taken of my hand last week!! .  I had exactly the same marks in the same place- th skin is now peeling from it.  I believe it’s Palmer plantar.  Really good you are going to see  someone to check it out.  The markings usually occur where the skin has pressure applied.  My OH and I think mine arose on my hand in that particular position as it had been resting on a table.  

 

Let me know now how you get on xxx

 

 

Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Lisa Marie, looking as beautiful as ever 😘😘😘it was licky penguins that buddyfan typo was last year on our thread 😂😂😂🤣😂keep 💪💪💪💪and 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻You are all doing amazing, Lisa Marie have you got those louboutins ordered yet 😘😘💕✨✨✨✨✨Shi xx
Kip
Member

Re: June 2018 Chemo Starters

Go Lisa Marie.. loving the pink wig!  

Sorry to see you have a sore hand... big hugs.!

xxx

ktk
Member

Re: June 2018 Chemo Starters

Love the pink hair😁😁😁
Member

Re: June 2018 Chemo Starters

And just to give you all a laugh, me in my pink wig on Saturday night xx
Member

Re: June 2018 Chemo Starters

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Member

Re: June 2018 Chemo Starters

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Member

Re: June 2018 Chemo Starters

Morning ladies. Feeling ok but a little tired but off to gp in a mo as think I am developing this hand and foot thing. Plantar Palmer? My left hand was caught by friends puppy on Saturday so it may just be a reaction but going to get it checked out xx
Member

Re: June 2018 Chemo Starters

Thanks ladies - I’ve had a well needed laugh about Larry and Licky tongues! 😛 👅 😂 xxx
Kip
Member

Re: June 2018 Chemo Starters

Hi ladies, glad to report the Larry tongue is behaving itself, have about 2/3 taste buds too... good ole Larry.  The bone aches are subsiding now, just soooo tired, and these watery eyes still... come on eyelashes get a grip!

 

CDC sounds like the paxitaxel will be much better even though its a pain going weekly, no home meds will be ace, I am fed up of taking stuff, can't wait to finish the antibiotics I'm on and the flucozonale and then I can have a few weeks med free before op!  

 

Shi - a licky tongue sounds just as great as a Larry tongue... anything but a lardy tongue!

 

Kip

xx

Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

CDC 🤣😂🤣😂🤣😂 Larry 👅🤣😂🤣😂🤣we had licky 🐧on our Oct thread last year when buddyfan had a typo 🤣😂🤣😂🤣😂don’t you just love those text gremlins when they strike keeps everyone 😁😁😁😁💕💕💕✨✨✨✨Shi xx
Member

Re: June 2018 Chemo Starters

Fingers crossed I’ll have no Larry tongue either 🤣

So pleased to hear I won’t be taking much/anything homein the way of medication Sally.  Result!  sort of makes up for having to go in every week. Xx

 

 

Member

Re: June 2018 Chemo Starters

Hi,

No steroid tablets with paclitaxel, just one IV infusion before the paclitaxel which judging by my blood sugars is much less than the tablets. Also no injections and no take home meds either unless you opt to have anti sickness which I don't.

No Larry tongue either.
Kip
Member

Re: June 2018 Chemo Starters

Loving the larry 👅

Member

Re: June 2018 Chemo Starters

I do love auto correct - a Larry tongue?? I meant ‘lardy’.
Member

Re: June 2018 Chemo Starters

The pain sounds so horrible Kip! So sorry you’re going through the mill. I haven’t had to have injections and only had a little bone pain in my hip immediately after my first Docetaxel. I hope the pain has lessened throughout the day and you’ve been able to rest up. Glad your tongue isn’t so Larry and you no longer have to take the steroids. Yahoo! Sally am I right I’m thinking we don’t have nearly so many on the Packlitaxel regime. I’ve acfually had more than a couple of hours sleep for the last few nights which has been wonderful, I thought I might have a sleepless night yesterday as I dosed throughout the day but I managed to get 61/2 hours! I think I’m just emotionally and physically drained at the moment and my body has finally said ‘enough’s enough’. You need to sleep!
Hoping my BCN has actually managed to e-mail the chemo schedulers to advise them if the change in my chemo drug regime as she was meant to. They’ve still got me down to go in tomorrow/Tuesday for the dreaded T!!!

I know you’ve finished Kip but have many if you still got more cycles of Docetaxel to go. I’m getting a little lost as to where people are in their treatment.especially since there have been delays.

Hope everyone is havignas good a weekend as possible.

Hugs and love to all xxx
Kip
Member

Re: June 2018 Chemo Starters

Hi all, well may i i just say i already admired you all for your strength and fighting spirit but after last night i am in awe of all you ladies who have regularly dealt with the bone pain from those injections.  I havent had them every cycle but have had 3 lots, and have not really sufferered too much but oh dear..  had my last one at 6pm last night and boy was docetaxol gonna make me pay for being on my last cycle!  By bed time i was in agony with hip, leg, feet etc like bejng in labour!!!  Its gone off somewhat today now feels like flu aches but i feel wiped out! Seems The Dreaded T is going out with a bang!!!  However no more steroids and 👅 not too bad but the aches ooooooh!  

CDC..  i hope the hair does stay as mine is growing quickly too although nothing like it was before very fluffy and white.  

Heres to a restful day to you amazing warrior ladies!!  And docetaxol "you can leave the building now please"😁

Kip

Xxx 

Member

Re: June 2018 Chemo Starters

I have now shared my reason too Mai.

Hi LJ glad the haircut allows more coverage and hope you like your pixie cut as time goes on.

My blonde hair is also growing back white and very fluffy!!

Does anyone know if our hair will stay this way?? Not sure if I’ll lose more on the pcklitaxel but at the moment it’s growing back quite fast.

Community Champion

Re: June 2018 Chemo Starters

Hi Ladies, I hope you are all doing well. x

Right now the government has extra funding to allocate and we need to make sure breast cancer gets the priority it deserves. I've shared my story, please share yours:
https://breastcancernow.org/get-involved/campaign-with-us/take-action-now/55000reasons

LJ
Member

Re: June 2018 Chemo Starters

Gosh, so much going on over the past few days. We ladies really are going through it, but we're still smiling!

 

Well, my hair is now in a pixie cut with a bit more length in the top to help cover the very thin bits. I don't like it, but it looks more like a style than a nest and gives the illusion of better coverage. Of course it's all white/grey, even the new growth, not a sign of my normal auburn colour. 

 

Hope you all have good weekends. 

 

LJ

Member

Re: June 2018 Chemo Starters

So far the arm seems completely fine.

How long will you have the clexane injections Gorgie? After my clot in my arm in July, I'm on them for 6 months. Beware they produce some spectacular bruises!
Member

Re: June 2018 Chemo Starters

Wow Sally, 

What a naff chemo session!

I do hope and pray that your arm which they used after node clearance will be ok.  

 

Thank you everyone for your support whilst I was 'inside' !! 

When we share our experiences with one another, we don't have to explain all the ins and outs of chemo and possible complications.  

 

Whenever I log in to read or report, I call it "catching up with my girls"!! 👱🏻‍♀️👩🏻👧

 

love to you all xxx 

Member

Re: June 2018 Chemo Starters

What a grim day Sally.  Do so hope you’re able to get some rest today and that you’re not in too much pain after all those blood tests and cannula attempts. .Owwwwwww!  XXX

Member

Re: June 2018 Chemo Starters

Morning.

I finally got out of the chemo unit at 4.30 yesterday. I'd gone to hospital at 8 for full blood count blood test an hour before appointment time . Bloke doing it had trouble but got some, went and sat in the chemo unit, got called in an hour later to be told there wasn't enough blood in my sample so they had to take more which she managed to do so that was my initial delay.

Once the results were back and fine to go ahead couldn't canulate me because none of my veins on my chemo arm would play ball. They get in then not bleed back so like not in so would be taken out then spurt blood. Very annoying. Decent veins thin on the ground on that arm and once they'd exhausted all the possibilities there was no choice but to use the arm where I had the lymph node surgery which they prefer not to but which has big fat veins sitting up nicely all over. In first time and away we went. All the pre med went in fine no problem at all. Started the paclitaxel and after a couple of minutes quite a bit of pain in the arm. Nurse check it and even though I'd not moved it wasn't going into the vein and that couldnt be rectified. Had to remove the cannula and put elsewhere. 4 different places they tried with nice veins which blew once they were in. Finally got in again and started the paclitaxel off well after 2pm. Have to keep the cold cap on for an hour after (which meant that yesterday I had it on for about 6 hours and which didn't help with the veins. That's why they always cannulate before it goes on.

Such a long day and I was knackered by the time I was done. Luckily my son had finished work and picked me up do I didn't have to get the bus home. Too tired to sleep and awake till getting g on for 5am this morning, a little sleep and now wide awake again since 6.30. Deep joy.
Member

Re: June 2018 Chemo Starters

So glad to hear you’re home Georgie 

Thank goodness the antibiotics worked and I hope the injections sort out the blood clot.

Sounds like a few of us are having a our next cycle of chemo delayed for a bit.

Hope you get a good night’s sleep.

Take Care xx

 

Member

Re: June 2018 Chemo Starters

Gosh, we have all been in pickles over the last few days haven't we?! 

 

I am finally out out of hospital.  The infections responded to the antibiotics well, so I'm home with injections to treat the blood clot they found on my lung now.  

 

I have had had my first Herceptin and T put back a week, to give me a rest between this illness and making me fitter for the next lot. 

 

I have no energy still, but sleeping in my own cosy bed has been lovely.  

 

All best wishes to everyone.  

 

Georgie 

Member

Re: June 2018 Chemo Starters

@cdc Thanks for the probiotics advice. My cancer researcher friend in the US suggested probiotics to me after I mentioned the antibiotics I was on during my cycle 1 febrile neutropenia, but my oncology team and breast cancer nurse insisted that I wait until after I finish chemo before starting them. (I have a stash of BioGaia L. reuteri ProTectis in hand, which was his suggestion, but need to read a bit more about it, as there are links between the microbiome and estrogen regulation -- not necessarily bad links, but links.) 

 

Hope you get your chemo scheduled for the Friday --

 

ktk
Member

Re: June 2018 Chemo Starters

Hi Reddi. I am TN so it is 100% every time for me. I found the second cycle harder than the first. Although I didn’t get diarrhoea as bad I still have one session a day!! I have basically had two hideous weeks, mainly in bed, with no energy and extreme indigestion. Last few days I’ve felt much better. More energy and back to enjoying life. I have to say that I have been lucky as I am unable to work because of the risk of infection, but I couldn’t have worked until this week. One more session next week then 18 sessions of rads starting at the end of October. Hopefully recovered enough to enjoy Christmas!!! But Reddi, everyone is different so my experience will be different from yours, and I suspect mor like Kip’s.

Much love, Karen xxx
Member

Re: June 2018 Chemo Starters

So glad you’ve finally had a good day ktk. Great you managed to make some cakes for the MacMillan coffee morning, I’ve just got back from one at my daughter’s school but it was very impromptu and I wasn’t organised enough to do any baking. Enjoyed everyone else’s efforts though! Glad you enjoyed your walk. How did the rads planning go?

Sally Hope you’re finally home- what a day! Hope you have a restful evening. Thanks for the heads up about the diarrhoea on Packlitaxel- I’ve only had the other so far!

Jay I really enjoyed reading how you feel now chemo is behind you. I also look forward to the time when I can look back and think - Wow! It’s over and I got through it.

I had the bruise around the veins too Lisa. They remained very tender for weeks. Glad you’ve only got one more cycle to go. I think the PiCC line was the right decision for me especially now I’ll be having more sessions of chemo.

Kip I’m doing so much better after seeing my lovely ONC. Feeling positive and hoping for far fewer SEs. How can anyone hate puddings?? Glad you made a pie just for you! Have to say I couldn’t stop eating whilst on the steroids so need to start being careful again although I keep thinking I need to have some tummy left otherwise there will be nothing to make my new boobs out of!! Do hope you manage to get some sleep once you are off the steroids.

Oh no Reddi! C diff!! I suppose it explains the particularly bad bouts of diahrroea. Hope your anti-biotics clear the infection up soon. My OH just got in from work and says there is some evidence that pro-biotics can be helpful in treating the diarrhoea associated with C Diff and prevent its recurrence. He recommends Optibac Live cultures but I should think you’d need to check with your team as I’m not sure you’re meant to have anything containing live cultures whilst on chemo..

If the chemo scheduling department at my hospital is able to rearrange things I’m hoping to start the Packlitaxel next Friday instead of the following Monday, Hoping for a little outing with my OH beforehand whilst I’m feeling SE free, that’s been the good thing about having a little delay.

Hugs to all Xxx
Kip
Member

Re: June 2018 Chemo Starters

Oh gosh Reddi, CDiff that makes sense then... at least you can get that sorted and hopefully get chemo back on track for the future.  

As for getting more tired. I found my first T was harder than the second but I am very tired at present, the steroids really mess up my sleeping and until they get out of my system I just fidgit all night long.   Last day of them today, so hoping sleep will come soon.   I was told my Docetaxol was 100% for the first cycle, then dropped for the second one and then, possibly? dropped again for third due to numb fingers but not sure by what percentage. Im not HER2 tho so don't have the other bits to add to it but i think overall the fatigue just builds up over time, I can't wait to wake up and feel refreshed again.  I was thinking to today that the last time I probably had a full restful nights sleep was probably back in February before I found the bloomin' lump.

Take care

Kipxxx

Member

Re: June 2018 Chemo Starters

Hope you're home very soon, @Sally! Such a long day.
Member

Re: June 2018 Chemo Starters

Well, I have C diff, possibly picked up while I was on antibiotics in cycle 1 or 3 of FEC, possibly lurking in my gut longer than that, and probably exacerbated by the chemo. Next cycle may be delayed by a week, but may not know til my scheduled pre-chemo appointment on Wednesday. I've come to accept that my chemo isn't meant to run to schedule, but having to rearrange other appointments sure is tiresome.
Member

Re: June 2018 Chemo Starters

Well still in the chemo unit. Been here since 8 am.

Should be able to finally leave in about 20/30 minutes. What a marathon day.
Member

Re: June 2018 Chemo Starters

@Kip. I love apple pie. My husband also isn't one for desserts beyond ice cream, which has been a great disappointment to the happy baker in me. But he likes apple pie... Now I'm hankering to bake one.
Member

Re: June 2018 Chemo Starters

@Sally Egads, that is frustrating. Are there exercises or massages or anything else you might do to help ensure it doesn't cause problems?

@ktk, Kip, & others who are now a cycle or two ahead of me: Have you found yourself more fatigued with each cycle? I know cycle 2 will likely be harder for me, as I found out yesterday that when you get docetaxel with the duo of HER2 drugs, the first dose is max Herceptin and Perjeta with a lowered dose of docetaxel, with the second dose lowering the HER2 drugs and ramping up the docetaxel to 100%. But I am wondering how to plan for work in cycles 3 and 4.

And: just got a call from the hospital to let me know my "stool" specimen came back positive for bacterial infection, so off I go to pick up some antibiotics. No more bowel-slowing for me either. Maybe this means I won't have a repeat of this experience during my next 3 cycles. We shall see.

Kip
Member

Re: June 2018 Chemo Starters

Unlucky 13 it seems, hope all goes well xx
Member

Re: June 2018 Chemo Starters

Chemo number 13 now, having it into my wrong arm, the one where I had my ANC cos the veins on my other arm are not playing ball today.
Kip
Member

Re: June 2018 Chemo Starters

Hi there, 

KTK glad you enjoyed your walk.. makes your feel good doesn't it.  I managed about 4 miles yesterday.. but was so exhausted last night but then couldn't sleep.. thankfully last steroids today!  

Lisa Marie - I always get a bruise round the vein where chemo has been given and it goes after a while but somedays I it aches and feels sore, but as you say only 1 more to go so hopefully you will get through that one and then it can all resolve itself.  My thumb is still numb but not quite so tingly I think, I could manage with it if it gets no worse though.  How are you getting on with all you decisions, hopefully you are putting them to one side and dealing with them later?   How's the hair too?   Mines looking fluffy and white still but definately growing, even think I have a few eyebrows today, no eyelashes though and still look like a boiled egg!

CDC - How are you doing today?

After reading the posts about "stews"  I really fancy one now.. unfortuanately my family hate a stew,,I absolutely love one though, they also hate puddings.. crazy lot!  So yesterday I made a whole apple pie to myself... no wonder I am getting fatter..I hate seeing my lovely cooking apples going to waste!  

Hope the diarrohea clears up for your all...and also thanks for the lovely positive posts, can't wait to be tasting everything again... bring on that cheese board!

Take care

Kip

xx