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June 2018 Chemo Starters

ktk
Member

Re: June 2018 Chemo Starters

That’s a relief! Not an UTI as there is no irritation, just a waterfall!!!🤣
Member

Re: June 2018 Chemo Starters

@ktk
I know exactly what you mean. As I understand it the chemo irritates all of the cell membranes from top to toe and as the drugs are processed through the bladder eventually, I would guess these get a bit sensitive too. I’m only guessing as I have no medical knowledge about this but it makes sense to me. It’s always a good idea to rule out a UTI but you are definitely not alone. It’s just one more indignity to deal with.
🤗
ktk
Member

Re: June 2018 Chemo Starters

Ok ladies here is a question about a delicate subject, so skip if you want to!!

Has anyone else had problems with their waterworks as a result of chemo? Even if I am not bursting I find that I peak on the way to the loo. It is not the same as stress incontenance as not a cough leak, but not pleasant at all. Kx
Kip
Member

Re: June 2018 Chemo Starters

Hello everyone, well its all happening on here isnt it.   

Cdc i like Tingle...  tingle isstill tingly and numbish and sometimes the tjngles go up my arm like pins n needles but hopjng it will sort itself ss chemo gets out of system.  Im startjng to feel better slowly, v tired  but worst thing is still the waterh eyes, sometimes i cant cven focus as they water so much.  I hope your red face is lessening, at least nobody can say you look pale and ill.  I had a red face with first fec snd everyone kept sayjng looked like i had been sunbathjng.  Its shocking how manh women get bc bc isnt it, and a realky good thing your cousin got checked out too.  It just seems the age for screening is too high!!!

Im not sure who asked but j had high liver enzmenz one cycle too, it didnt delay the chemo but they said it was all the drugs we have to take plus the chemo and our poor livers work soooo hard.  It came down for the next one though.  

I also had a reduction jn my chemo on T, the nurses said there are safe levels to use and as they dont go below or above these levels its fine.

I also have fluconozole each cycle after my stint in hospital and severe Larry mouth, it has defjnately helped , i start taking it as soon as my mouth starts to feel odd, usually day 4 for me, and take one a day for 10 days plus i swish mouth with salt water every couple of hours and after eating and have avoided the ulcers since.  Even Larry hasnt been so lardy.

Well i have the last antibiotics today, then no more tablets until Tamoxofen!!  Will be strange tomorrow not popping the pills but looking forward to giving my body a rest.  Will be even weirder nsxt weekend not startjng the steroids for chemo, havjng friends over to celebrate that fact!  Hope i can stay awake!!!

Take care

Kip

 

Member

Re: June 2018 Chemo Starters

So good you’ve met some nice people om the chemo ward Sally.  I always end up being the only woman in a room full of old men, They were all asleep yesterday and some were snoring which kept me awake!

 

Shi I certainly look as though I’ve done a few rounds on the dance floor with my flushed face! 💃🏻 💃🏻 💃🏻💃🏻!

 

My temp is ok but will certainly keep checking over the next couple of days. 

 

XXX

 

 

Member

Re: June 2018 Chemo Starters

Hi CDC,

I've not had a red face on the paclitaxel but I've had some nice sleeps during chemo with the piriton. These a couple of us that have it at the same time and we all fall asleep at various times. Yesterday I fell asleep before the taxol drip even went on and woke up 15 minutes after it had finished (I had 45 minutes left on the cold cap timer). Luckily Linda in the next chair had ordered my lunch cos she knows I always have a tuna sarnie.
Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Cdc ❤️❤️Aunt sally cheeks on t are quite common but please do check your temp and check with your unit in case it’s a reaction darling 💪💪💪Georgie, everyone’s Chemo is specifically for them a 75% dose for someone could be someone else’s 100%, your onc will have seen every scenario before and will know exactly what to do darling keep 💪💪💪 come on cdc you and me leading the girls with a bit of locomotion by kylie on the dance floor 💃🏻💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻💃🏻💕💕✨✨✨Shi xx
Member

Re: June 2018 Chemo Starters

Aargh! Just spoke to chemo hotline nurse who says the redness should subside within next 48 hours but she is going to suggest they keep me in as an inpatient on my next cycle just to observe how I get on, I seem to be having quite noticeable skin reactions to the Taxane part of my chemo, Not sure what they can do about it. Will talk to my BCN on Monday and se what she thinks. Hope everything will have calmed down by then. Did notice that The skin has started peeling a little off my toes and fingers! Not pleasant. Feeling a bit fed up but thankfully still no nausea! Xx
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Re: June 2018 Chemo Starters

Her Elton - Herceptin! How I love predictive text and it’s great name for things!
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Re: June 2018 Chemo Starters

Reddi I hope you are feeling much better and the new antibiotics are helping. Also that the lower dose works for you too. I thought I’d beaten the record for time spent in hospital for chemo - didn’t get out till nearly 7pm yesterday due to delays and the fact that they had to administer my new drug over a long period to check for an allergic reaction. I really was bored by the end. However, you do top me as I didn’t get to the unit till nearly 11am.

Sue sorry to hear you’re having a delay but it sounds like it’s for the best. I had a few days delay before starting on my new chemo regime and I actually enjoyed the breather as I was virtually side effect free by then. So lovely to feel relatively normal! As I’ve said I seem to have skin issues on the T rather than problems with liver/bloods etc.. I had 4 cycles of AC before the docetaxel and my SEs were continual nausea and mouth issues. Fingers crossed your bloods will be fine and you can go ahead with chemo next week. Good luck. X

Hi Kip Thought you could name your thumb Tingle! Hope Tingle is behaving today and Larry has been sen packing! .
I suppose we’ll just have to wait and see whether periods will return after chemo. I’ve been told I’ll be on tamoxifen after my mastectomy. I’m also Er 8/8 as was my Mum and her sister. Listening to others I would have thought that I’d have been given Zoladex with the chemo but I was told I’d take it with the hormone therapy. Must remember to ask the oncologist when I see them later this month. So shocking to hear another person you know has BC. My younger sister has 2 colleagues with BC. Our cousin has just found out she needs a re-excision after a lumpectomy a couple of weeks ago. It has really affected me finding out about my cousin as she is early 40s. . I’m just so thankful that she found out this year, (after deciding to go for a private ultrasound)as she was told it would have been too late if she’d gone next year.

Lisa Looking at your photos it certainly seems like a break from chemo is very wise. Do you ever have any problems with your feet? I do hope they reduce your dose if necessary. Your body has been through so much!

LJ don’t worry about the moans. This is exactly the place to moan as we all understand and sympathise. Sorry you’re stuck with having the Her Elton on Sundays, Hope you get to go on your trip to Belgium. It’s so good to have a break from b***dy treatments!

ktk and Shi Will definitely try out the Doublebase and underlying smooth with extra urea. How are you doing?

Sally The Piriton they added to my infusion took me by surprise. I suddenly felt really faint and light headed! Is it a big dose or something? Ive never really taken Piriton before so don’t think my body was used to it. Did you ever fpgrt a red face on the Packlitaxel. I thought I was having a hot flush earlier but my cheeks have just stayed red!

Mimi hope you are enjoying a chemo/side effect free weekend.

Best wishes to all of you!

Clare xxx
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Re: June 2018 Chemo Starters

Hi all

 

Georgie - I’m glad they’re going to reduce your dose as your chemo issues have been truly awful.  So hope it helps. Hopefully the fluconazol with help with your mouth problems too.   I’ll be thinking of you especially on Thursday and Fridays.  I now have bloods on Thursday and chemo on Fridays so we can be chemo buddies!  Reddi am I right in thinking you also have chemo on Fridays too?

I had my first of nine weekly Paclitaxel yesterday instead of 2 more docetaxel as my onc said id had a severe reaction  dose of T.  I haven’t had any neutropenia thank goodness but I seem to have a lot of skin issues.  I’m just waiting for a call back from the Chemo nurse as I’ve had a permanently red face today.  I could stop traffic!  ☺️🚦🔴 Just been reading that it’s a common side-effect of Packlotaxel.  Oh joy!  At least the hand/foot syndrome I had on docetaxel was less noticeable!  I hope it doesn’t last- I feel so self-conscious.

i feel far less tired though, so far , and spent a couple of hours helping to fill a skip at my Mum’s! Not sure what my medical team would think but I was extra careful to use gloves. Hope you have a good weekend.

 

 

Member

Re: June 2018 Chemo Starters

Hi Georgie -- The broad-spectrum antibiotics are only an issue with respect to C diff if you have C diff in your system. It could have been in my gut for quite some time -- I might have picked it up last year while caring for my mom, who has a muscular dystrophy and so uses a bed pan. Basically, the board-spectrum antibiotics killed off the other bacteria in my gut, but not the C diff, and the C diff took advantage of the extra space and lack of competition to colonize. The main thing to watch out for is diarrhea. My hospital's chemo hotline sheet made it clear to call after 4 episodes within 24 hours, and to treat it as urgent at 7+ episodes -- and I was at 7 when I went to the A&E. Just keep on alert, and stay hydrated.

 

Perjeta is another HER2-targeted biological therapy. The NHS only gives it, with Herceptin, pre-breast surgery. I have only had sentinel lymph node biopsies thus far. Surgery will be on the other side of (neoadjuvant) chemotherapy. (I don't know how they decide who gets Perjeta.)

Member

Re: June 2018 Chemo Starters

Hello Reddi, and everyone else, 

 

I am grateful that you told me that it isn't that unusual to have 75% docetaxol.  I was a bit concerned that it wasn't 'enough' ....... what is perjeta for?  I am having herceptin alone for a year, every three weeks. I'm negative for hormone involvement. 

 

Also, the C diff sounds scarey and I really hope you get rid of it.  It is concerning that the broad spectrum antibiotics plus docetaxol could have sparked off C diff.  I do wonder what the heavy IV antibiotics for sepsis plus the ones they started me off on for the MRSA did for my body, in terms of how the NHS are always warning us not to ask for antibiotics as our bodies build up a tolerance to it! 

 

Does anyone else know about antibiotics tolerance?

 

Thank you so much.   I really value your 'company' on here! 😉

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Re: June 2018 Chemo Starters

@Georgie I didn't have nearly as awful a time on FEC as you did (1 A&E visit / admission for febrile neutropenia, 1 A&E visit for identified infection in the arm where I got chemo while neutropenic, both requiring antibiotics), and this despite getting filgrastim injections -- the usual 5 each cycle plus extras in hospital and 5 extra days after the arm infection as identifed. Plus, as noted in a post earlier today, my liver enzymes were elevated at the end of cycle 3, forcing a 2-week delay before I started TPH. They lowered my first docetaxel dose to 75%, too. And my oncologist says I'm tolerating chemotherapy well!

 

Happily, I wasn't neutropenic midway through or at the end of cycle 4 (first TPH) -- an improvement! (Consensus is that my C diff. infection and severe diarrhea in cycle 4 was almost certainly provoked by the broad-spectrum antibiotics I got in cycle 3, but perhaps exacerbated by the docetaxel. Now on different antibiotics for the C diff.)

 

From what I understand, lowering the dose isn't uncommon. Safety first. I thought my docetaxel dose might get bumped up for cycle 2 of TPH, since the Perjeta and Herceptin dose is lowered, but they kept me at 75% again for cycle 5 yesterday. 

 

I hope the lower chemo and steroids dose, fluconazole, and continuing filgrastim injections help you get through the next cycles with many fewer SEs! 🤞

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Re: June 2018 Chemo Starters

Hi All,

As you know, I have had an awful time with FEC, and was due to start Herceptin and T on Thurs and Friday this week, but because of all the neutropenia and hospital admissions, I had a meeting with the head oncology nurse on Thursday instead of treatment. Onc has decided that I am very over sensitive to chemo drugs full stop!..... I tend to agree 😫!!!

 

So they have planned to only give 75% of the full dose, even before I start... and only 50% of the steroids. Don't understand all of the technicalities, but the nurse said that they are trying to keep me out of hospital. They're giving less steroids because he said they didn't appear to make much difference with FEC, and even with the white cell booster injections, I still had neutropenia and 3 trips to A and E with high temp. and infections.

 

They are giving me 2 whole weeks of fluconazole and mouth washes too, since the oral thrush was so bad that I could hardly open my mouth whilst in hospital last time. When they asked me to say the obligatory
'aaaaah', I only came out with a very husky oooooooor!! 😂🤣.....

 

So it's Thursday for Herceptin and Friday first T.


Love to all, especially those on treatment this week or next ❤️

Georgie ❣️

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Re: June 2018 Chemo Starters

@Sue I had elevated ALT liver enzymes at the end of my 3rd cycle of FEC (usual pre chemo blood test day had them at 260 vs normal range of 10-40 for women) and ended up having my first THP cycle delayed by 2 weeks. They went ahead with cycle 4 when my ALT was down to 67. By day 13 of cycle 4, I was down to 30 -- totally resolved.

In my case, they think it was a combo of chemo, antibiotics for an infection (cellulitis or thrombophlebitis), some dehydration (went hiking in the Wye valley over the 3 days before my pre chemo blood test), and some small amount of alcohol consumption (1.5 pints of 3.8% beer spread over those 3 days), with the first 2 being the suspected main culprits. To help my liver recover, I drank lots of water -- at least 3.5 litres a day, plus other fluids like tea, diluted coffee, OJ, detox smoothies -- and kept things easy. My breast cancer nurse also recommended milk thistle tincture drops from A Vogel. They taste disgusting and I have no idea if they helped, plus the oncos are always advising against supplements, so I would advise talking to a member of your team before trying them. I only did so when my first 2 follow-up blood tests still had my ALT above 200, but it may have simply been the extra time between ending antibiotics and last beer that got things resolved.

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Re: June 2018 Chemo Starters

Hello all

I've had a bit of glitch in my treatment. My blood tests showed that one of my liver enzymes was quite high so they are delaying my 4th treatment by a week to give it time to settle down. Wasn't the news I was expecting as so far I feel as though I've been quite lucky with the fairly minimal side effects I've suffered in comparison to some of you.

I feel fine - really my pre-chemo self so I'm hoping it will sort it's self out.

Has anyone else had this issue? I'm on EC regime

Thanks, Sue
Kip
Member

Re: June 2018 Chemo Starters

Hi Reddi thanks for the info, i guess ill find out soon enough, they definately mentioned tamoxofen, i suppose i have to get the surgery done first.  Im just thjnking ahead.

Lisa marie...  Crikey no wonder you have suffered with the chemo .all full doses!!!!  Mine was reduced for 2nd T and 3rd...  You really do need a break from it....  At least the BC will have been well and truly nuked!!!  Enjoy the extra week out...  Hope the hand improves.  

My OH came in from work last night and said another colleague has just been diagnosed with BC, thats 3 since my diagnosis and all under 50!!  It so scary...

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Re: June 2018 Chemo Starters

P.s he confirm or deny whether it’s Planter Palmer syndrome or not, he wants to see me in a week to see how it’s going xx
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Re: June 2018 Chemo Starters

Hi all. update from today: chemo will be delayed by 1 week as oncologist thinks I need a bit of a break. He took one look at my hands and said umm 🤔 I think we will give you a break and possibly reduce your last dose. Apparently I have given the max high dose on each cycle because of my age, so effectively it equates to another cycle 😳. I have been on the zoledex since before chemo to suppress my ovaries, as I was told the chemo would stop my periods and that they could never return as it could send me into early menopause because of my age. The zoledex itself is a big needle in the stomach but it’s bearable compared to the rest we been through. Not sure if the hot sweats I experience are early menopause or the zoledex xx
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Re: June 2018 Chemo Starters

@Kip My understanding is that you either get Tamoxifen or Zoladex -- never both. I can't remember off the top of my head why they were thinking I'd get Zoladex based on my tests, but I have notes and an audio of the meeting, and can chase that up if you're curious.

Long, long day at the chemo day unit for me. Arrived 9:35am, cannula out 6:30pm. Tempted to order pizza for supper rather than tossing up our usual post-chemo salad...
Kip
Member

Re: June 2018 Chemo Starters

Hi all, sounds like everyone is ploughing on with their chemos which is great. Hope you all manage to avoid too mahy SEs.

Cdc good idea to name my thumb....  Any suggestions...!???  Sounds like you had a lovely break away too.  My tingly thumb is also very dry..  i use Flexitol on my hands and feet it also has urea and is actually really for feet but is good on hands when reallh dry.

It really concerns me that you all seem to know about what hormones you will be getting, nobody has asked\mentioned ovaries to me, i was still havjng periods before all this although chemo seems to have stopped them but as my bc is 8/8 er+ i will need to stop all eostrogen, so they mentioned tamoxofen but not anythjng like zoladex?  Do you normally start the hormones after or before rads?  Perhaps i should call my onc nurse to ask?

Sorry i confused you with my photo...  Not exactly the kind of photo you would want on your wall but a poingnant milestone.

So day 12 today and although still tired not feeling too bad, larry tongue still hangjng around but taste buds sort of back tho not quite right..

Enjoy your Friday evening

kip

Xx

 

LJ
Member

Re: June 2018 Chemo Starters

Apparently because the Herceptin doesn't need monitoring when given on its own it is weekend only and they won't give during the week. Given it's such a non-negotiable I don't understand why no mentioned it to me before. As luck would have it I already had stuff booked for the first three cycles on the Saturday and as I couldn't do the first Sunday either it's all moved on a week and will be on a Sunday. At least it should be in and out  - as long as there's no pharmacy delay....

 

I'll having hormone treatment too which I'm not looking forward to given all the horror stories I've heard about it. I'd at least like a little break to shift the weight I've put in over chemo and get back some level of fitness. 

 

And of course there is the radiotherapy to contend with too!  Have first appointment about that on Thursday where I have to persuade them to avoid my three days Belgium trip. That's been booked since before all treatment started so fingers crossed. 

 

My PICC line came out this morning, feeling slightly bereft without it!

 

My skin is like paper too, fed up with moisturising without any effect!  

 

Sorry, I'm all moans today, and given my slimming world journey needs to start with a vengeance again, I might need to pass on the cocktails!!!

 

Hugs all xxx

 

LJ

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Re: June 2018 Chemo Starters

@Shi Ordered some yesterday -- arriving tomorrow! Thank you as always!
ktk
Member

Re: June 2018 Chemo Starters

Also ask your go for Doublebase which is really good and free on prescription 😁🤑
Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Sorry udderly smooth with extra urea. Xx
Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Girls can I just remind you about the undderly smooth with extra urea on Amazon that is great cream for sore hands and feet, it was the only thing that worked for an lot of us 💕💕✨✨Shi xx
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Re: June 2018 Chemo Starters

miod --> mood

I'm a terrible phone typist.
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Re: June 2018 Chemo Starters

Hi all -- chemo is in for today. Had to be at the day unit at 9:30am, but pharmacy was slow delivering my drugs so I won't get my cannula out til 5:30 or 6pm: I get my first HER2 drug, then have a mandatory obsevation break for an hour before the second HER2 drug, then the docetaxel, then saline flush. By the time I start docetaxel around 4pm, I'll be amazed if my cryo stuff is still frozen.

@cdc My hands are super dry, despite using kitchen gloves and moisturizing *all* the time. I'm sure it's a combo of chemo, anti-bac hand sanitizer, and hand washing (I've had quite a lot of loo visits over the past 1.5 weeks and have been extra vigilant washing because of the C diff). I have some peeling and redness between 2 fingers, but I think this is the result of getting water in my kitchen glove -- I'm still not used to using them. Also: my breast cancer nurse said periods often come back after chemo for those pre menopause, which is why I'm a candidate for Zoladex, too.

@Sally What a lovely day for a walk to get your blood pumping and your miod up. I'll be interested in hearing more abour your trial when you know more.

@LJ Herceptin on the weekend? Ugh. Is there no way they could arrange for you to have it on a weekday?

@Mimi Congrats on so many fronts!

@Lisa Marie Any news on your hand and next chemo cycle date?
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Re: June 2018 Chemo Starters

Woo home already. So much better than last week. Slept through from pre meds to flush after pacli, missed it altogether.

Thank god for piriton.
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Re: June 2018 Chemo Starters

Hi,

Pacli number 10 today. Had a nice walk to hospital so my veins were pumped and canula in 1st time. No messing around like last week.

I think re the trial it's to do with the grade and aggressiveness of the cancer plus the fact I've had it twice. I'll find out more at the next meeting with the oncologist. Family history doesn't come into it for me because I'm it. No one else in my family has had breast cancer.
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Re: June 2018 Chemo Starters

Mimi, good you are finally through the chemo and I hope you stave off the SEs too. Hope you feel you can have a bit of a breather before surgery/Radio.

ktk, Kip, LJ great you are all through chemo too- Kip I wasn’t sure what your photo was of to begin with (the machine they use at my hospital looks a little different) but had a huge smile when I read about you counting down the seconds with your Bestie. What a great idea!! Sounds like a lot of the units are quite low key about finishing and people have mixed emotions but I like the idea of the counting down to mark the end of that particular part of treatment so will plan to do the same in a few weeks.

Reddi, hope you get your chemo today. I have a pre-chemo assessment at 11 them the chemo itself at 2pm. Hope there are no more delays for either of us. Interesting to read how you are protecting your hands, I’m going to see how I fare on the Packlitaxel. I did read that even on P you can get hand/foot syndrome and all,the other side effects but Om sincerely hoping the lower doses will ensure I don’t experience anything too bad. I have had some peeling on my hands and feet but they are so much better. I do have very, very wrinkled hands though. Anyone else get this? Even though I moisturise Amy hands look they belong to someone over 100! It’s really quite odd.

Sally not too long now for the chemo but I do know what you mean about the never ending treatments. I’ve been told I’ll have zoladex(?) to shut down my ovaries - but chemo seems to have done that already. Don’t know if they return after you finish. I will be having hormone therapy. Interesting to hear about being part of a trial for a new drug. How did they determine your high risk? I have a familial high risk but as most predictive tests only allow you to put in for one tumour and I have two, no one has been able to predict my risk of recurrence which I find frustrating. My Cousin has just had surgery for BC, her Mum (My Mum’ sister) has also had BC snd I think we are now up to 8 people on that side of the family having had BC. I’d be interested in any trial to prevent recurrence especially as my Mum has had BC twice.

Shi thanks as always for your encouraging posts!

Thanks everyone for all the support and friendship in this thread, it’s invaluable.

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Re: June 2018 Chemo Starters

Hi Ladies

 

So much to catch up on so apologies if I miss anyone out.

i had such a great day/night away with my OH.  We only went to Limehouse but I’ve was a beautiful sunny day and we really enjoyed walking along the Thames Path and listening to the waves when the boats went past.  Stayed in an interesting B&B which is designed to be a place for reflection and peace.  It was in the middle of a built up area but thanks to triple glazing it was indeed very quiet and relaxing.

Well I’m off for my first Paclitaxel of 9 today.  Chemo nurse who did my bloods has warned I should still expect to feel very tired.  Oh well, I’m just hoping for no nausea again although Larry tongue 😛 has been threatening to make an appearance over the last couple of days but hopefully I’ve sent him packing!

 

Its great to hear so many of you are done and dusted with chemo -I know there are still further surgeries, radiotherapy and hormones etc... to contend with but good that it’s something else to tick off.  I’ll look forward to those Woo Woos at the end of Nov/beginning of Dec.  Hope you’ll be joining me Reddi! 

 

Kip I think we should name your thumb!  It obviously isn’t going to let you completely forget about it just yet.  Hope it stops sending you random tingles soon.  

 

Lisa your hand really does look sore and swollen.  Hope the oncologist can suggest something today to help but fingers crossed the chemo can go ahead. 

 

LJ It’s frustrating to have to go I’m at the weekend especially when you weren’t warned.

 

 

 

 

 

Kip
Member

Re: June 2018 Chemo Starters

Woo Woos coming up!!!  Ill keep some chilled for those late arrivers.

Lisa your hand looks sooo sore, my tingly thumb now sends random  tingles up my arm!  Nobodh seems worried about and t still wont see Onc until 8th November once surgery over and healed.  Ill keep everything crossed your last chemo gets done on time.

Mimi ...  Your woo woo is being prepared...well done!

LJ what a pain about the weekend slots, does herceptin take long or is it just an injection?  

Keep going ladies. ...  Big hugs

kip

Xx

LJ
Member

Re: June 2018 Chemo Starters

Fingers crossed for you Lisa!

 

Sadly my unit only does Herceptin on its own at the weekend so I've requested a move to a Sunday as it's less disruptive over all. That does mean everything is pushed back a week and there's a possibility I might need to request another time for the December one, but I'll have to wait to see what's allocated. I feel really let down no one had said it would be moved to the weekend if that's a non-negotiable.  Now worrying about my radiotherapy timetabling not being able to accommodate my three nights booked in Belgium. 

 

LJ

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Re: June 2018 Chemo Starters

Unfortunately I think 🤔 I may be delayed on my last chemo session when they see the redness on my hand. 🤞🏻 They will get it sorted out and it will still go ahead on the 10th xx
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Re: June 2018 Chemo Starters

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Re: June 2018 Chemo Starters

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Re: June 2018 Chemo Starters

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Re: June 2018 Chemo Starters

Congratulations 🎉🍾 to all of you that have completed your final chemo 🥂 xxxx
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Re: June 2018 Chemo Starters

Morning ladies. Tablets have been changed and feel relatively normal today. Just the normal tired. Still have red hand and now foot being sensitive too, so will be asking oncologist tomorrow. Hopefully it won’t put back last chemo next Wednesday. As for the cocktails 🍸 lets start with a woo woo! They are lovely and we all deserve a big woo woo for getting through all of this! I know it’s just the end of part of our horrendous journey and we all have our different paths to continue on but you know what I’m proud of us all. We have had our moans (who wouldn’t 🤷‍♀️) but we got though this bit, made brilliant friends and we are 💪🏻 women embarking on the next stage 🥂🍻 xx
ktk
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Re: June 2018 Chemo Starters

Fab Mimi!! It is a great feeling not to have those drugs pumped into you again. Hope the next stage goes well for you. Much love Kxxx
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Re: June 2018 Chemo Starters

Yayy last chemo yesterday! I'm fasting agsom as last time whether it was fasting or reduced dose helped starve off the side effects for a week and then had the fatique but it just meant going to bed earlier at 8pm for 3 nights. I felt mixed emotions about finishing chemo and having my picc line removed as the skin around it had become really sore. So I have lumpectomy booked in for 6th Nov and herceptin until June. Radiotherapy as well. So far the onc and surgeon can no longer feel the lumps so it's promising. But still get anxiety. But that gets better. Best of luck to us all. Xx
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Re: June 2018 Chemo Starters

@Sally I hope this is indeed your trial -- the preliminary studies on PARP inhibitors are tantalizing. Of course, you might end up in the control arm, so that you aren't actually receiving any additional chemicals, too. I would love to have the chance to try it out, but I suspect I wouldn't qualify, as one side is HER2+ (even if they are still looking for candidates come March/April 2019, when I will be on the other side of chemo, surgery, and rads). Very excited for you.
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Re: June 2018 Chemo Starters

Hi Reddi

Not been given the full details yet of the trial , will get that at next appointment bug a quick Google would suggest it's the one below cos I meet all the criteria.

https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-to-see-if-olaparib-can-r...



Kip
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Re: June 2018 Chemo Starters

YAYYYY well done KTK and LJ for reaching the end of chemo.   It is a funny feeling isn't it?   I was expecting to be more elated but it was pretty low key in my unit too... although my bestie came along and we counted down the drip machine from 7 seconds down to 0 and got a photo of it as it ended.   It is a nice thought to know that once the SEs are done we don't have to do that again... 

So to the rest of you ladies.... we'll keep doing a Shi style dance and wait for you guys to arrive with us.... I'll take up the role of making cocktails......mmmmmm what shall we start with....Smiley Tongue

No more chemo.jpeg

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Re: June 2018 Chemo Starters

@Lisa Marie Keep us posted on chemo-puppy-arm. I hope either your GP or your oncologist finds something to clear it up asap. 

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Re: June 2018 Chemo Starters

@SallyG63 Do you know the name of your trial? (If not, no worries -- I'll try to track it down via Cancer Research.) Sounds interesting! And though it means continuing treatment at hospital, you still get to celebrate each milestone along the way, right? While also exploring a way to prevent recurrence. 

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Re: June 2018 Chemo Starters

Hurrah, ktk & LJ! Can't wait to see everybody crossing the finish line, first of the last infusion, then of the last WBC trough, etc., etc. And can't wait to be joining you all there, too -- though it'll be early December when I finish up, assuming no more delays, and you never know when there might be delays.

 

In good news, the microbiologist at the hospital gave my oncology team the green-light to go ahead with the next cycle of chemo this Friday, even though I'm only midway through my course of antibiotics for my nasty C diff infection. (Pending good bloods and no reversals in my improving gut function, of course.) I'd basically convinced myself that I'd have another week of delay, so this was very happy news. Off to the dentist in the morning for my six month check-up -- though no hygienist cleaning this time round -- and check of my jaw health. 

 

I can't remember if I've mentioned that I'm trying a bit of DIY cryotherapy on my hands and feet during the docetaxel infusion to potentially protect them from possible neuropathy and nail damage. It's sort of like cold-capping for your fingers and toes. While there have been multiple studies on cyrotherapy for this purpose, the evidence isn't definitive; however, The Christie in Manchester and several US cancer centers offer it to patients, and as long as the cold packs are covered with fabric -- so not touching the skin directly -- there isn't a downside, if you're able to tolerate the cold. (I won't lie: I found it tough last time.)

 

In case others are curious: I used some gel-pack socks that I bought from Amazon US (my sister toted them over when she visited in August to save on international P&P) and some foldable flat gel packs that I use for my hands (less than ideal, but they were what I could get/afford -- 4x £2 each from Lidl). I put them on 15 minutes before T begins, switch to a second set at 45 minutes, then keep the second set on for 15 minutes after T ends, for a total of about 90 minutes. For my first cycle, this was logistically easy, as I had Herceptin and Perjeta the day before; not sure how well this will work this coming Friday, when I start at 9:30am with, as I understand it, Herceptin and Perjeta, only getting docetaxel in the afternoon; my chiller bag may not be up to the challenge of keeping the packs nice and cold. But I'm hoping this plus my Polybalm experiment might help guard against these particular side effects.

 

Too bad I can't apply cryotherapy to my gut bacteria!

ktk
Member

Re: June 2018 Chemo Starters

Congrats LJ!!! I am TN so no herceptin for me. I have rads starting on the 30th for 18 days and bisphosphonates every six months too. Still I don’t have to go back to work until May if I don’t want to, but not sure I can survive on half pay!!! Kx