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June 2018 Chemo Starters

Community Champion

Re: June 2018 Chemo Starters

Hi Val and welcome.
When you go for treatment, you can be there a while. Mine took approximately 3 hrs and if you cold cap, probably another hour on top of that. So, take food and drink, and maybe a magazine. Although saying that, the hospital I went to, provided all that. They were lovely.
The most important thing I took with me was my Mum! Then anything that I was concerned about, or needed help with, she sorted. Also, nice to have a natter!
PS..... Go to the loo, before you start, otherwise it can be tricky taking the wires and machines with you x
Community Champion

Re: June 2018 Chemo Starters

If you opt for a wig, best to get it sorted ASAP as it can take a while to sort. Alternatively, you can purchase scarves easily. Whatever you choose, invest in a night cap, as when you start to lose it, it can make a mess on the pillow, plus it keeps your head warm. Xx
Member

Re: June 2018 Chemo Starters

Hi everyone I have my chemo meeting monday which I hope will answer any questions. I would be glad of any tips on what to take for first treatment to make it easier. Good luck to all for coming few days xx
Kip
Member

Re: June 2018 Chemo Starters

Hi all, yes good idea to think about one treatment at a time, just trying to get my head around the hair issue.  Do I get a wig before I lose any hair or when I have lost it?  Any advise on what to expect re side effects and tips on how to get through it would be gratefully received.  Thanks in advance.

Community Champion

Re: June 2018 Chemo Starters

Hi Kip

welcome to the thread.

There is a lot to take in at the start and it can all feel overwhelming. Try to break it down and think about one treatment at a time. Focus on the chemo, and break that down into each cycle. It is more of a marathon and not a sprint. Look after yourself and take it easy.

Best wishes

Sue xx

Member

Re: June 2018 Chemo Starters

Hi I hope your appointment with the chemo nurse went well, have you got your start date now? I have the chemo nurse on Tuesday, and start chemo on Wednesday. 😱
I’ve also been told that due to the nature of my job ( special school) I’m nit allowed to work at all during my treatment.
Good luck and keep in touch xx
Member

Re: June 2018 Chemo Starters

Morning ladies,

 

I finished FEC-T last week, if I can be of any help at all.

 

 

Good luck to all those starting or on their journey xxxx

Member

Re: June 2018 Chemo Starters

Morning,

Hi Kip. Can't tell you about FEC-t cos that's not what I'm having but just from reading around seems to be what the majority do have so they'll be plenty of people to hand hold and give you more details.

Sally
Kip
Member

Re: June 2018 Chemo Starters

Hello ladies,

I have just come from my hospital appointment where i was given my resuls post surgery (masectomy and 4 nodes removed).  The nodes were positive so am having 6 x FEC-T chemo (not sure what that means as still in complete shock) and then rads and tamoxofen after that (plus possible surgery to remove remaining nodes?).   Am so scared so will glad to see how you all fair and pick up any chemo tips along the way.  Big hugs Kip

xx

Member

Re: June 2018 Chemo Starters

Hi ladies, hope you are all ok 🙂 I'm also starting chemo 4th June. 

3 cycles of FEC followed by 3 of T.

Starting on Monday with the E so looking forward to having red pee on Tuesday 🙈😳😬😂😂😂

Wishing you all lots of love 😘💖

Member

Re: June 2018 Chemo Starters

Hi Sarah

Thanks so much for letting me know how your first chemo session went. It's really useful to have someone with experience of the whole process as it's the not knowing thats the worst.

I hope your second session went ok.

Will let you know how it is for me

Lynda

Member

Re: June 2018 Chemo Starters

Floss,

I'm type 2 diabetic on insulin. My oncologist said the chemo and steroids WILL mess up my numbers and that as long as I can keep my blood sugar under 20 it'll be fine cos it's short term.

Sally
Member

Re: June 2018 Chemo Starters

I've set mine up with the hospital so that, blood test allowing, I'm to have my chemo on a Friday so if I'm rough and knackered for a few days it's the weekend when there's plenty of family around. My EC is every two weeks so I'm expecting to be perfectly fine for the second week at least. After the 8 weeks for that I'm weekly for the Taxol.

I have my meeting with the nurses after my oncologist on Tuesday then chemo due to start after physio (cording and really restricted movement and pain after axillary clearance) on Friday.

Just have to get through putting my foot down on not having a picc line.

Sally
Community Champion

Re: June 2018 Chemo Starters

Hi Embolorry

No, I had TC chemo, so slightly different. Fec t seems to  be the most common though. Try popping a question on earlier threads, like May or April, and I'm sure there will be ladies on there who can help.

I didn't have any delays, so my chemo was every 3 weeks. But what they will do is take a blood sample each time and make sure that everything is ok. So it will depend on that.

Sue xx

Member

Re: June 2018 Chemo Starters

Hi sue,
Thanks so much for your reply.
Have you done FEC-T? If so is the Tvpart very different? The nurse said it was and the side effects can be painful???
Will get childcare in place and work from home as much as I can that first week.
Did you also have any delays? Or did you get chemo exactly every 3 weeks? I am thinking of the summer and trying to organise things!
Thanks again,
Em
Member

Re: June 2018 Chemo Starters

Hi Floss, sounds like we are having similar chemo. Seeing the chemo nurse on thurs, lots to get clear answers to. At school part of my job is welfare so need advice as to when to be in school, already sorted that I will not be doing any of the 3 S's ( snot, sick or s h i t ) but I will need a care plan in place for me. Maybe I am looking through my rose coloured glasses from 12 years ago ,I expect to feel well enough to go into school.  Have a happy Sunday,  X

Member

Re: June 2018 Chemo Starters

Hi ladies, 

i too start on the 4th June, FEC and then Docetaxel, Herceptin and Perjeta. 

I’ve had type 1 Diabetes for 43 years and rather worried about all the possible side effects.

good luck everyone x 

Community Champion

Re: June 2018 Chemo Starters

Welcome Lynda and Sally to the thread.

It really won't be as bad as you think. Just try and organize things so you don't have to do much for the first few days. Take it really easy.

I certainly didn't feel ill at all.....Just fatigued.

Hugs

Sue xx

Member

Re: June 2018 Chemo Starters

Hi,

I'm due to start on 8/6. 4x EC followed by 12 x T. I'm hoping to work for as much of it as I can. To be honest, I'm dreading it cos I don't do ill.

Sally
Member

Re: June 2018 Chemo Starters

Hi @Lynda52

 

I'm from the May starters and am just coming to the end of my first FecT cycle - I have the second on Monday.

It's normal to be apprehensive about side effects, and everyone is different, but I have found this first cycle very doable.

 

Aside from the first four days...vomitting on day one, then nausea, fatigue and general wooziness - the remaining two weeks plus of the cycle I've felt completely normal.

I went right off tea and coffee almost immediately, and my taste buds changed, but after week one my appetite was back to normal and I'm enjoying tea and coffee again.

 

I did have mouth ulcers during the second week, but these cleared up after seven days with Difflam mouthwash.

 

And...early days...it hasn't been nearly as bad as I was anticipating.

 

Sarah x