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June 2018 Chemo Starters

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Re: June 2018 Chemo Starters

I like the idea of dark red nails Minsky. Something defiant in that colour! Might do the same x
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Re: June 2018 Chemo Starters

Good luck for tomorrow Minsky and Kip! It’s understandable you’re scared. Fear of the unknown. I’m thinking of you. Going to do my nails next week. Also braving a short haircut tomorrow if I can get an appointment. Huge hugs to you both xxx
Kip
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Re: June 2018 Chemo Starters

I start 6 X ,fec-t tomorrow and I'm scared too!  

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Re: June 2018 Chemo Starters

I have just painted my nails dark red. Starting 4 rounds of EC chemo tomorrow. Really scared.
Kip
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Re: June 2018 Chemo Starters

Yes I had heard about Nail varnish might do it tonight just in case.  Thanks for the tips re thermometers, I will ask nurse fomitomo at chemo.

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Re: June 2018 Chemo Starters

Is anyone thinking of varnishing their fingernails a dark colour? I’ve read they become extremely sensitive to light and the dark varnish can protect them from getting too damaged.
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Re: June 2018 Chemo Starters

Mai7 - you're link doesn't work. Thanks for the encouragement and hope you are doing well xx

 

Kip my temp. is 35.5 in the morning and goes up to 36.2 ish later in the day. I think as long as you use the same thermometer in the same place at roughly the same time each day and you feel ok then it probably is ok. Just keep writing it down in a running list. You'll see a pattern. I scanned in at the hosp at 35.8 and they were fine with that.

 

We have a glorious day and I have to sit in the shade and behave apparently! Happy days xx

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Re: June 2018 Chemo Starters

Such helpful information everyone thanks. Going to spend next week getting chemo prepared so all the tips are really helpful. Not sure They’ll be able to fit in all the scans/tests before my first round but sounds like that shouldn’t be too much of a problem. Have a good night everyone. I’m feeling calmer after talking to a dear friend who had chemo 8 years ago and has been cancer free since then. Encouraging to hear her experience.
Community Champion

Re: June 2018 Chemo Starters

Hi Ladies, hope you are all doing well. Here's my blog which you may find useful for chemo tips.  I collected the list from information we learned and shared along the way.  I finished chemo last autumn.  Keep going you can do it.  https://lifeafterlola.blogspot.com/  xx

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Re: June 2018 Chemo Starters

CDC, 35.6 is low but I was told at the hospital that the digital ones if you do under the arm or tongue generally measure 0.5 low so 35.6 would be 36.1 which is fine. Normal range is 36.1 to 37.2. My info sheet says to report under 36 and over 37.5.
Kip
Member

Re: June 2018 Chemo Starters

Hi CDC I have to have a bone scan, CT and MUGA heart scan which should happen before chemo but because my chemo date came first they said it would be ok to have one chemo before.  I had bone scan which was fine, you have an injection which is like a blood test then go away for a few hours then return for the scan.  It only lasted about 15  minutes .  The ct is in the ring shaped scanner and that looks at your organs I think.  Not sure what the MuGa is?  I get my results on 26 June when I see oncologist after first chemo.  

 

sallyg you poor thing with the temp etc glad you are ok now tho.  I've just bought a new thermometer and it's says my temp is 35.6 is that normal?

 

I did some pre chemo shopping, lots of ginger things, cordial, biscuits etc, sweets to suck, immodium, sennokot, lip balm etc.  I got a nice water bottle that you can out fruit in the bottom to infuse to help with the fluid intake.

 

Think I am almost ready now...Kip 

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Re: June 2018 Chemo Starters

Hi All

Just to point out the gym was pre treatment to deal with the nerves!

 

cdc the ct scan is nothing to worry about. It takes about 5-10 minutes. You drink lots of water beforehand and they jab you with dye. Close your eyes and be somewhere else. They jiggle you in and out and you can go home. The results went straight to my consultant but I had to wait until my next appointment to find out. Stress!!

 

The echocardiogram is like a pregnancy scan. Ultrasound, non invasive. I found it a bit wince making as I have a rib injury from something else and they press on a bit but it would have been fine if it weren't for that. Took about 12 mins.

 

Sally sorry to hear about your hosp trip - nightmare. Every time we go we're looking at 5-7 hours a visit. I was told my chemo would be 40 minutes and it was 3 hours. I think a misunderstanding - she didn't mention the drip before and after. I bottled out and had to get a screen put up because I was a bit overwhelmed by it all and it's not nice crying in front of strangers. Waiting for district nurse to come and stick a needle in me lol. Fun. Love to all on here xx

 

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Re: June 2018 Chemo Starters

Ah I misread the echo thing so I may have that wrong. The hot flushes are pre existing and I always felt like my heart was beating more when I had them so I wouldn't worry, they're not a new thing. Honestly, although I had to attend A&E I felt absolutely fine.

Sally
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Re: June 2018 Chemo Starters

That sounds awful Sally but glad you’re feeling ok now. I thought I was having an electrocardiogram ECG but mine will be an echocardiogram which im told is something different. I’m learning all the lingo now.l! Not had a CT scan before so useful to know what they’ll be looking at thanks. I’m a bit worried about the hot flushes and fast heart rate. Were you warned about those side effects?. I need to read more about what to expect. I have a naturally high heart rate so that will be interesting! Have a super weekend. I’m being s couch potato after a really busy week. So nice to have a chance to relax xxx
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Re: June 2018 Chemo Starters

Morning all

Dawn, glad it went well and the gym...well.

Cdc, an Echocardiogram is an ECG. The Ct scan (well mine did) scans all the organs heart, liver, kidneys etc.

So I had a fun night. By 9 I was knackered so after having a hot flush whilst putting the dog out for the last time at night I checked my temperature. It was 35.5, my info sheet says contact hospital immediately for less than 36. Checked again, still 35.5. Checked again 35.3. Phoned the hospital and whilst talking to the checked again, 35.1. Advised to go to A&E. When they checked it it was back to normal but having another hot flush and heart rate was high and BP a touch high too. Did my bloods saw the DR who checked me over again (this all went on over several hours) heart rate up more. Had two iv broad-spectrum antibiotics just in case of infection, chest x-ray, urine sample. All came back ok and eventually my heart rate settled back to normal so was allowed home. I kept saying I felt such a fraud because I felt absolutely fine but was told I was right to go to be on the safe side. Got home at 3.30am completely knackered. I wish I'd just gone to bed at 9.30. Mind you I can confirm that menopausal hot flushes make your heart race.

Woke up at 7.30 and took all my morning antisickness which I had by the bed and straight back to sleep till 10.30 when I woke bright eyed and bushy tailed.

Sally
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Re: June 2018 Chemo Starters

Hi Dawn I’m super impressed you went to the gym! Thanks for being resssuring. I’m sure what I’m imagining will be worse than the reality. I have some medication for insomnia but keep forgetting to take it. Will see if it helps. Have a good weekend xx
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Re: June 2018 Chemo Starters

Hi Kip

I was wondering about the scans. I’ve had a date for the bone scan but it’s towards the end of June and oncologist has said she wants me to have it earlier. She’s trying to organise bone, CT and heart scan for next week before my fist dose of chemo. I thought I was having an ECG but it’s not it’s an echocardiogram which is an ultrasound of the heart I believe. So you’re having further scans after the first chemo? Maybe I don’t need to worry if they can’t fit them in next week. How was the bone scan? I’ve just been reading up about it -nuclear dye and hot spots are all I can remember which is kind of freaking me out!! How long were you told it will be before you get the results? Hope you can have a good weekend. I can totally understand you worrying about Monday. I will be the same when it’s my turn. We’ll get through this like all the lovely others on here! Take care and have as restful a weekend as possible. Hugs xxx
Kip
Member

Re: June 2018 Chemo Starters

Hi Cdc it's good you have a date, I'll be just in front of you so we can compare notes and egg each other on!  I'm not sleeping much still as can't stop worrying about Monday, just want to get through one and see what's what.  Ive had my bone scan but still havent got date for ct, heart one on 22nd i think,. 

 

Have a  good weekend and rest up.    kip

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Re: June 2018 Chemo Starters

Welcome to the club cdc. Waiting is absolutely the worst most stressful thing. As we're mostly on different meds it's difficult to compare. Had my steroids after 2pm yesterday as hosp was running late - woke at 2am this morning wide awake and starving!! Will take them earlier today. They can give you something if you have trouble sleeping while waiting. I tired myself out at the gym so I fell into bed exhausted in the evening. Be brave, everybody is really helpful and kind. xx

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Re: June 2018 Chemo Starters

Hi just a quick hello to say I’ll be joining you.  Start on 19th June if bone scan, ECho cardiogram and CAT scan and various blood tests (to be taken next week ) are ok.  I’m truly terrified.  Not so much about hair loss but just feeling generally grim,  I’ve been warned day one is usually ok but by day 2/3 the fatigue and nausea can kick in.  Has anyone who has had their first session found this to be the case?  Also I’m on AC and then T.  Anyone else on the same drug regime?  Off to try and get some sleep.   Goodnight everyone,  xx