Kip
Member
Posts: 914
Registered: ‎27-04-2018

Re: June 2018 Chemo Starters

Good luck Cazzie, let me know how it goes.. I think this will be a long week for me, the waiting is awful.  xx

Member
Posts: 31
Registered: ‎08-05-2018

Re: June 2018 Chemo Starters

Good luck jazzy 👍x

Member
Posts: 686
Registered: ‎03-04-2018

Re: June 2018 Chemo Starters

Good luck Cazzy,

Hope it's all trouble, pain and stress free for you.

Sally
Member
Posts: 68
Registered: ‎01-04-2018

Re: June 2018 Chemo Starters

Today is MY day, YAY. Jane, my sister in law, my supporter is picking me up at 9.00 to get to the hospital to start treatment today. Been a long time getting here, but made it.X

Kip
Member
Posts: 914
Registered: ‎27-04-2018

Re: June 2018 Chemo Starters

Hello, thanks for the good advice.   I start my chemo on 11th June and have already written myself off with every side effect possible... must try to calm down a bit as everyone seems to get some but not all of the SEs. I'm having my hair cut short on Wednesday in readiness.  I haven't been offered ice cap so not sure if they do it at my hospital, will ring on Monday to find out.  The thing I hate the most is knowing I feel so well at the moment and that in a couple of weeks I won't.   Just want to fast forward a few months.. wishful thinking hey.  Big hugs to all... Kip x.

Member
Posts: 68
Registered: ‎01-04-2018

Re: June 2018 Chemo Starters

Morning Floss, start chemo on Mon I was to have 2 ....mab mix on the Mon and the other 2 mixes on tues. However they dont have one of the ...mabs until the tues. So on Mon I will be at the hospital 9.30 to 12.30 ish with pertuzumab no cold cap needed. On Tues trastuzumab, docetaxel and carboplatin with cold cap so will be there 8.30 to 4.30 ish, long day. Had an echocardiogram yesterday results have been sent to my oncologist, but dont expect any problems there. Have taken the first week off , and see how I go. The Nurse said my biggest problem would be fatigue which would generally worsen as treatment progressess. The nurse also took some bloods and as the large vein in my right arm collapsed at my least treatment 12 years ago, after this first round of chemo they will put a PICC line in. Today I am going up to Mums to give it a final clean as we have a first viewing this afternoon. So much has happened in these 3 weeks feeling as though I'm coming to the end of one race to immediately start another. Breathe in, Breathe out,  keep going. Have a good weekend. Cazzy50

Member
Posts: 686
Registered: ‎03-04-2018

Re: June 2018 Chemo Starters

Uh Oh...even going to the loo first won't stop me needing to go again.
Member
Posts: 31
Registered: ‎08-05-2018

Re: June 2018 Chemo Starters

Thanks Sue good to have an idea how long it will take. I will be trying cold cap see how it goes and will def visit toilet first lol. Xx
Community Champion
Posts: 1,763
Registered: ‎19-08-2016

Re: June 2018 Chemo Starters

Hi Val and welcome.
When you go for treatment, you can be there a while. Mine took approximately 3 hrs and if you cold cap, probably another hour on top of that. So, take food and drink, and maybe a magazine. Although saying that, the hospital I went to, provided all that. They were lovely.
The most important thing I took with me was my Mum! Then anything that I was concerned about, or needed help with, she sorted. Also, nice to have a natter!
PS..... Go to the loo, before you start, otherwise it can be tricky taking the wires and machines with you x
Community Champion
Posts: 1,763
Registered: ‎19-08-2016

Re: June 2018 Chemo Starters

If you opt for a wig, best to get it sorted ASAP as it can take a while to sort. Alternatively, you can purchase scarves easily. Whatever you choose, invest in a night cap, as when you start to lose it, it can make a mess on the pillow, plus it keeps your head warm. Xx
Member
Posts: 31
Registered: ‎08-05-2018

Re: June 2018 Chemo Starters

Hi everyone I have my chemo meeting monday which I hope will answer any questions. I would be glad of any tips on what to take for first treatment to make it easier. Good luck to all for coming few days xx
Kip
Member
Posts: 914
Registered: ‎27-04-2018

Re: June 2018 Chemo Starters

Hi all, yes good idea to think about one treatment at a time, just trying to get my head around the hair issue.  Do I get a wig before I lose any hair or when I have lost it?  Any advise on what to expect re side effects and tips on how to get through it would be gratefully received.  Thanks in advance.

Community Champion
Posts: 1,763
Registered: ‎19-08-2016

Re: June 2018 Chemo Starters

Hi Kip

welcome to the thread.

There is a lot to take in at the start and it can all feel overwhelming. Try to break it down and think about one treatment at a time. Focus on the chemo, and break that down into each cycle. It is more of a marathon and not a sprint. Look after yourself and take it easy.

Best wishes

Sue xx

Member
Posts: 43
Registered: ‎01-05-2018

Re: June 2018 Chemo Starters

Hi I hope your appointment with the chemo nurse went well, have you got your start date now? I have the chemo nurse on Tuesday, and start chemo on Wednesday. 😱
I’ve also been told that due to the nature of my job ( special school) I’m nit allowed to work at all during my treatment.
Good luck and keep in touch xx
Member
Posts: 38
Registered: ‎12-05-2018

Re: June 2018 Chemo Starters

Morning ladies,

 

I finished FEC-T last week, if I can be of any help at all.

 

 

Good luck to all those starting or on their journey xxxx

Member
Posts: 686
Registered: ‎03-04-2018

Re: June 2018 Chemo Starters

Morning,

Hi Kip. Can't tell you about FEC-t cos that's not what I'm having but just from reading around seems to be what the majority do have so they'll be plenty of people to hand hold and give you more details.

Sally
Kip
Member
Posts: 914
Registered: ‎27-04-2018

Re: June 2018 Chemo Starters

Hello ladies,

I have just come from my hospital appointment where i was given my resuls post surgery (masectomy and 4 nodes removed).  The nodes were positive so am having 6 x FEC-T chemo (not sure what that means as still in complete shock) and then rads and tamoxofen after that (plus possible surgery to remove remaining nodes?).   Am so scared so will glad to see how you all fair and pick up any chemo tips along the way.  Big hugs Kip

xx

Member
Posts: 36
Registered: ‎20-04-2018

Re: June 2018 Chemo Starters

Hi ladies, hope you are all ok 🙂 I'm also starting chemo 4th June. 

3 cycles of FEC followed by 3 of T.

Starting on Monday with the E so looking forward to having red pee on Tuesday 🙈😳😬😂😂😂

Wishing you all lots of love 😘💖

Member
Posts: 5
Registered: ‎25-01-2018

Re: June 2018 Chemo Starters

Hi Sarah

Thanks so much for letting me know how your first chemo session went. It's really useful to have someone with experience of the whole process as it's the not knowing thats the worst.

I hope your second session went ok.

Will let you know how it is for me

Lynda

Member
Posts: 686
Registered: ‎03-04-2018

Re: June 2018 Chemo Starters

Floss,

I'm type 2 diabetic on insulin. My oncologist said the chemo and steroids WILL mess up my numbers and that as long as I can keep my blood sugar under 20 it'll be fine cos it's short term.

Sally