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June 2018 Chemo Starters

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Re: June 2018 Chemo Starters

Hi RedRose

 

Its a long time since I’ve checked the chemo threads but just wondering how everyone is getting on.  So sorry to hear the new of your mother in law.  What a shock! As you say she wanted you to be married so it’s good you are going ahead with the Wedding but obviously it will be so sad she’s not there.  Are you thinking of incorporating her memory in any way?  

 

I can hardly believe that you won’t get IVF because your partner already has children.  However well you get on and love your step-children I can understand you wanting your own child with your OH.  What insensitive timing too when you are having to deal with the cancer anniversary and making decisions about further surgery,  I’m sending a massive hug and thinking of you.  Clare 

Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Red rose 😘😘what a shock for you all, my 🙏🙏are with you all. Sorry to hear you are not qualified for funding, I know what a 🥊you are, aren’t you tempted to go to the national press with your story? Have you thought about incorporating her favourite flower in your bouquet? Just a thought. Sending big ❤️❤️Shi xx

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Oh my dear Red Rose I don't know what to say,  just so sorry to hear about your loss, that's so sad.  I can imagine that planning the wedding feels bitter sweet but she woukd want you to do it so focus on that.  As for all the other rubbish coming your way at the moment... That is so tough but I'm sending big hugs to you... Thinking of you

Kip

Member

Re: June 2018 Chemo Starters

Hi ladies, just thought I would check in. Unfortunately this year being my year isn’t going to plan. My mother in law sadly passed away suddenly the day before mother’s day. Obviously the family is devastated. It’s 37 days today till the wedding and we put the planning etc on hold while we had the post mortum and funeral. I can’t believe she isn’t honing to be there. The wedding is going ahead because that’s what she would of wanted and we obviously want to be married to each other. It’s going to be a hard day though. With that, the various different appointments that keep coming through the door to speak about double mastectomy’s and having ovaries removed the anniversary of the cancer diagnosis and the fact I have been told that no ivf will be funded for myself as even though I don’t have children my other half does from a previous relationship so I don’t qualify because of him. It sucks. Sorry to post such a sad post but wanted you all to know not been ignoring you all. I hope your year is going well and will keep you inform of wedding. My hair not growing as fast as yours not had the first hair cut yet. Xx

Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi reddi how are you doing 😘😘hi to everyone hope you are all doing ok too ❤️❤️💕💕✨✨Shi xx

Member

Re: June 2018 Chemo Starters

@RedRose I think you must be about 8 weeks from the big day... !!! Hope things are coming together easily and beautifully.

Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi ladies 😁😁😁 don’t you just love the chemo curls 🙄if you want rid of the 80’s through back look (remember all the Demi wave perms etc of the 80’s when we were teenagers) then that L’Oréal hair serum, Aussie 3 minute miracle moisture and some straighter spray before straightening has tamed the frizz well 👍👍👍🤪🤪🤪🤪your hair is looking fab though anyway whatever you do with it 👍👍💕💕✨✨Shi xx

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

15537963270145645876206439275458.jpg

 

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Karen,  mines the same at the back..  Cultivating an 80s style mullet

ktk
Member

Re: June 2018 Chemo Starters

Kip your hair looks fab!  Mine is so curly. I hadn’t realised it until the hairdresser showed me the back!  She took a photo. 

 

The roses SEs are just from Lidl or Aldi. Only about £3!!  Just chuck em in a vase!

9D77A2DF-6988-48D1-94B0-DE9265A9298D.jpeg

 

Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Kip your hair looks fantastic ❤️It’s funny what oh’s come out with isn’t it on the hair journey 😁😂🤣😂🤣off anyone else they’d be getting a 🥊💕💕✨✨Shi xx

Member

Re: June 2018 Chemo Starters

Loving the pictures Ladies! X

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Here's Judith chalmers... IMG_20190328_102153.jpg

 

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi Shi, I am rubbish at displaying flowers... so I'll be copying too!!

KTK - love the first hair cut.. its a good feeling isn't it to have a hair cut.. I think I may need No. 2 shortly.. mine is growing very wildly, tried blow drying last night to get it to sit down...hubby says I look like Judith Chalmers..not sure if thats a compliment or not.. cheeky monkey... I guess its an improvement on Philips Schofield and Tom Jones which were my look a few months ago!

Kip

xx

Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Ktk , your haircut looks amazing 😁and you are looking great 😁😁 those roses are very pretty, never thought of doing them like that before, think i’ll Nick that look for my home too 😘hope that’s ok, I’m not usually a copy cat. Hi kip 😁and hi to everyone else 💕💕✨✨Shi xx

ktk
Member

Re: June 2018 Chemo Starters

E6FA7DE5-A80C-4073-A25C-02952984A6A8.jpegMy first haircut!!!

 

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi K,  thats good to hear they thought all was ok... good news.   Hopefully I'll find out my forward plan when I go on 23rd April to see the Onc Nurse.  

Kip

x

ktk
Member

Re: June 2018 Chemo Starters

Hi Kip. The Hope course sounds good. Might see if there is one locally. 

 

It’s been a year since I found my lump, and I had my follow up appointment with the surgical department. All is ok. Not sure how they would know if it wasn’t!!!  Anyway, the doctor confirmed that I would now have yearly mammograms, oncology consult and surgical consult. However, as of the first of April, they surgical team would only see you for one follow up appointment, so no more after the first year!

 

love to all Kxx

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi KTK,

Lovely to hear from you and WOW.. good on you for the half stone and the exercise classes they sound excellent.  Im trying to exercise more but so stiff and achey it does prove problematic.  Its ok whilst I'm doing it but boy I stiffen up later.   This week on my Hope course we are discussing diet, exercise and self image.. so will be interesting to see what they suggest...its run by Macmillan so hopefully they have some classes or something.

Kip

xx

ktk
Member

Re: June 2018 Chemo Starters

Hi everyone!  Long time no post, sorry!  I am also struggling to lose the two stone that I put on during treatment. My local cancer charity (Force in Exeter) has put me on a Pulse course at the local sports centre. After an initial assessment I go to the gym twice a week for a group session specifically for people recovering from various illnesses. I also attend a Pulse Pilates session. The best thing is that it includes three months free membership of the local sports centres, so I have been going to Zumba too. I am very slowly beginning to manage to do some exercise and feel so much better!

 

In addition I have started a low carb diet. Both OH and I have lost over half a stone so far 😁. 

 

Love to all. Karen XX 

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hello LJ, lovely to hear from you again.  Glad to hear you are moving forwards and back at work... it is tough isn't it.   Sorry to hear you are suffering from all the usual SEs too, although must say quite heartening to hear I'm not alone.   I'm trying to swim every week to see if that helps with the stiffness, only managed 2 weeks so far and only 20 lengths a time but as you said "Rome wasn't built in a day".   I;m struggling to lose any weight, put on 1.5 stone over treatment... and keep falling off the wagon when I try to be good.  Doesn't help when I ache so much and don't feel like moving much either.

Kip

x

LJ
Member

Re: June 2018 Chemo Starters

Hello ladies, it really is ages since I last posted. I survived RT well and another six weeks off work following Christmas and am now on a phased return to work. I could have done with staying off longer, but I doubt I'd have gone back if I'd done that. It is hard though. 

 

Im suffering all the SE's everyone's mentioned - tiredness, aching, stiffness, runny nose, yadda, yadda, yadda. Hot flushes at night, my word I hate them. Still on Herceptin obvs, taking Anastrozole, vile drug and have just finished dental treatment before having Zoledronic acid infusions. Nails are still pretty rubbish too.  My hair is growing strongly though and with the same texture and curl as before, it's still shortish, but I think in terms of thickness it's pretty much back where it was. 

 

Trying to walk as much as poss as that does help with aches and pains. Despite weight dropping off during RT I put on six pounds at Christmas which I'm struggling to shift. Rubbish. I just keep remembering how much I've been through in the last 12 months (my biopsy was 26 March 2018) and remember Rome wasn't built in a day. 

 

Lots of love ladies -  it's lovely to read how you're all doing. 

 

LJ x

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Re: June 2018 Chemo Starters

Sorry to crash in on your conversation ladies, but just to let you know that Yes products are available on the NHS. They have been a life saver for me😉! Good luck.

Member

Re: June 2018 Chemo Starters

Overshare *

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Re: June 2018 Chemo Starters

Reddi, yes stuff is good. Bit of a overstated here but during chemo I had a bit of a dry spell 😉 so emailed them and asked for some free samples before I brought anything as didn’t want to buy it and it not suit me. Can only vouch for the lubricant. Email them and ask for free samples of both, they were really helpful with me.

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Re: June 2018 Chemo Starters

Reddit I hear Yes is good. They do a moisturiser and lubricants. I ordered some but haven't tried it yet but probably should. It has no hormones in it. I did try Replens moisturiser but it didn't really help with dryness. I should persevere. I won't need a smear for 5 years all being well. I used to have the opposite problem as I sweat a lot. I seem to have a problem with what I think is a sensitive bladder. I did read this is due to the lack of oestrogen. I have started using panty liners which seem to work. The joys of getting older and bc. Has anyone else had similar problems? The nurse said the entrance to my cervix was very small and that I could go to the difficult smear clinic at the hospital so no need to worry for 5 years and they use leg rests. She made me clench my fists and sit on my fists which helped get the right angle.x

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Re: June 2018 Chemo Starters

@RedRose I've got no good ideas on first song -- mostly thought of it because my OH and I married at the borough hall and regret answering the question, "Do you have any particular song you want played?", with an indifferent no, and then discovering that the default song played at the end of the mini ceremony was "My Heart Will Go On" from Titanic -- a song we both hate. At the time, we said we should have chosen Bryan Adams' "Heaven", but I think Jim Croce's "Time in a Bottle" is a beautiful choice. (I don't know "A Million Dreams" -- the link you shared is now dead, and my little online searching hasn't worked -- so can't weight in on that one, but I suspect it is just as lovely.)

 

@Linda I've always found smear tests to be very uncomfortable to painful. I bet that having endocrine therapy  / going through menopause would make the cervix friable. Thankfully, I had one right before starting chemo last year, so I'm not due for another 2 years. I'm also going to try some vaginal moisturizers to see if that might help with dryness.

 

I'm trying to decide if I'm going to re-colour my hair once I hit the 6-month post-chemo mark, or try to live with my new greyness. I think the grey is fine now, while my hair is super short, but I miss having longer hair. Guess it will be months before I get to something like a decision point in terms of length -- my hair growth seems to have really slowed down.

 

@GeorgieGee Another wedding! Can't wait to see your dress and, eventually, your daughter's. Have you had results of your tests yet? I hope the clot is breaking down -- are you on anticoagulants for it?

Shi Community Champion
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Re: June 2018 Chemo Starters

Don’t forget there are bcc walks up and down the country in June too, which will raise money for this amazing forum too ❤️❤️If any of you want a 10 or 20 mile walk 😁💕💕✨✨Shi xx

Member

Re: June 2018 Chemo Starters

Thanks Shi, I will get in touch with them! X

Shi Community Champion
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Re: June 2018 Chemo Starters

MandS@breastcancernow.org is the email address and telephone number 0207 2804275 to sign up to be collector 💕💕✨✨✨Shi xx

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi Linda, glad the old nether regions are better.   I think we are all just about coming up to the 1 year anniversary.  I have put the actual date of finding the lump out of my head but its definatley around now as I was waiting over Easter for hospital appt.   Looking back can't believe so much has happened in 1 year...

Kip

x

Member

Re: June 2018 Chemo Starters

Seems better today thanks. No pain when going to the loo. It seems cervical cancer is due to a virus from having sex. I didn't realise that. 

I found my lump a year ago tonight so have been living with cancer for a year now although it was all removed in October when I had surgery.

Member

Re: June 2018 Chemo Starters

Hi Shi, I’ve had a look on the breast cancer now website but can’t find anything about m&s bucket collectors. Do you have anymore info? 😀

Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Oh Linda I hope you are ok soon 😘😘breast cancer now need bucket collectors at M&S stores up and down the country if any of you fancy volunteering go to breast cancer now and sign up 😘😘anything to raise awareness and reach more and more people who could be in the same oblivious state we all were, we could prompt someone to go home and check themselves ❤️❤️💕💕✨✨Shi xx

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Ooh Linda sounds sore,.  I dont know if thats normal but im having one on 26th so thanks for the heads up.  I imagine it is to do with hormones tho...oh what joy.  Glad Egypt was good..lucky you

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Re: June 2018 Chemo Starters

Just got back from 10 days in Egypt which was fab.

Anyway I had a smear yesterday which was painful. Is this normal after menopause when on hormone treatment? The last one was ok but had not gone through menopause then although I was drier than before. I am also in pain today especially when I go to the loo.

I also had my hair coloured today and ordered new glasses. I feel more normal again now my hair is coloured again. x

Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Georgiegee 😘😘nothing wrong with going the whole schebang when you are mother of the bride ❤️❤️You enjoy shopping around 😁don’t forget chemo can whallop your insides, a couple of oct17 ladies who were with me still have foods that upset tums and virtues and this we are all still more 💨💨farty bum windy than we were before 😁let us know how you get in and look forward to seeing your outfit and daughters dress. Red rose did you laugh as he hopped about 😂🤣😂🤣do you have a tailors who could make him some? Great songs too ❤️❤️To everyone 💕💕✨✨Shi xx

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Re: June 2018 Chemo Starters

Hi everyone,

I am sorry this is my first post for a week!  

I have been busy with various tests this past week; heart scan for herceptin, chest ct scan for monitoring the blood clot on my lung.... am getting an endoscopy soon too, as have had really severe heartburn with throwing up sometimes (sorry to be graphic....) which has been troublesome for about 2 months, and of concern to my oncologist. 

 

The wedding arrangements are getting there - my daughter chose her dress last year, and has a beautiful curvy mermaid tail style lacey dress with a lovely train and off the shoulder sleeves - has asked me not to show you yet, which is fair enough... June isnt far away!  I have not been very good at going out to try things on - so have been internet shopping.... had 2 dresses so far which were not 'the one', and have just ordered another few to try out and choose from, plus jackets.  I will show you all when the right outfit is found!  It has been a treat to splash out a bit on something special for being mother of the bride; however compared to what the wedding dress cost, it seems like peanuts!! 

Hopefully all of the tests I am having will prove to be good news, and that I will be able to go back to work in April, and enjoy the wedding without any worries. 

I'm excited for you too RedRose, and hope you get the suits sorted out!  There is so much to do, isnt there!

bye for now,

 

Georgie xxx

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Re: June 2018 Chemo Starters

https://youtu.be/AnWWj6xOleY        

Time in a bottle - Jim Croce (predictive text spelt it wrong sorry) 

https://youtu.be/L7TN0hyONjw 

A million dreams -pink 

Member

Re: June 2018 Chemo Starters

Hi ladies. It’s getting closer! 91 days 👰🏼.  Trying to get a few more bits organized, but had a nightmare with suits, or more to the point the size of my mans calves. Suits were ordered and when he tried it on he was hopping around and the trousers were just too skinny for his muscle 😏. So off we go at the weekend to find him ones that fit. Not yet Reddi, we have a few in mind such as time in a bottle by tim groce or pinks version of a million dreams. Suggestions welcome 🙏 xx

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi Shi,   hello to you too!   Yes June chemo has gone quiet, I think we are all posting on May surgery as Reddi said,  i tend to pop over to both to see if anyone is around on here, in fact I pop all over the place and put my two pennethworth in!!  I love a chat and to see how others are fairing... I'm off to week 2 of my Hope course today, just baked cakes to take along ( I was delegated last week).. looking forward to it as really enjoyed last week and found it comorting to be around others in the same boat. Hope you are well...and keeping on dancingSmiley Very Happy

Kip

x

Member

Re: June 2018 Chemo Starters

Hi, Shi! I think June 2018 is a bit quiet because our conversation is split between May 2018 surgery and June 2018 chemo starters. (I'm posting in May surgery sometimes, even though I had my surgery in December.) 

 

@RedRose Do you have a "first dance" song?

Shi Community Champion
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Re: June 2018 Chemo Starters

😘😘just a quick hello to see how everyone’s doing 😘😘💕💕✨✨Shi xx

Member

Re: June 2018 Chemo Starters

Thanks so much for sharing the photos of your chosen dress Red Rose- you look stunning! Really made me happy to see them.  Love the choice of bridesmaids dresses too.

cdc xxx 

ktk
Member

Re: June 2018 Chemo Starters

Love the bridesmaid dress and shoes RedRose 🥰. It is difficult to decide about the hair. You will have plenty more by June, but it will still be quite short. You look great in the wig, but will it always remind you of bc?  Whatever you decide will be the right decision and you will and do look beautiful. Lots of love Kxx

Kip Community Champion
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Re: June 2018 Chemo Starters

 Lovely words Shi 

Shi Community Champion
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Re: June 2018 Chemo Starters

Red rose 😘😘😘so pleased you said yes to the dress, you are stunning and you glow in that dress ❤️❤️Love the bridesmaid ones too 😁😁beautiful colour. Plenty of wedding planning going on with georgiegee family at it too 😘😘 keep us posted on pictures of flowers red rose and there is nothing low-key about marrying the love of your life ❤️❤️ It’s called having a marriage not just a wedding ❤️❤️😘😘💕💕✨✨Shi xx

Kip Community Champion
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Re: June 2018 Chemo Starters

Welcome back RedRose... you've been missed, we've be itching to know the dress!!   That is a beautiful one, actually made me well up to see you in it, with and without the wig...you look amazing! Love the bridesmaids too, lovely colour and you couldn't really have any other flower apart from a red rose could you!!   Lavender yummy too.   Its so exciting... we will be arm chair wedding planners and watches from afar.. but a brilliant thing to be looking forward to after the doom n gloom of last year.   It will soon be here!  Oh and very jealous that you are managing to get the weight going downwards.. mine seems to only go uphill  Smiley Frustrated

Kip

xx

Member

Re: June 2018 Chemo Starters

@redrose Hurrah! So wonderful to see these updates -- and so sweet. 🌹🌹🌹 I love the combination of flowers (I'm another sucker for the scent of lavender), and they will look lovely alongside your dress and the red of the bridesmaids'. You look gorgeous in the dress both with wig and without -- if there's going to be dancing 💃🕺 , I suspect the wig will go... at least based on my experience getting overheated in my wig whenever I'm ever so slightly active. 

 

First booster rad today -- took nearly as long as the first 15! But I managed to just get a return bus within the 70-minute window for free "hopper" fare home. I love it when that happens.

 

 

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Re: June 2018 Chemo Starters

P.s. I really liked that wedding dress from the start, it was the first one I tried on but wasn’t sure because I thought it showed off my tummy but when I asked my mother in laws advice she burst into tears and said it was beautiful. I decided there and then that that’s the one I would walk down the aisle in, to be joined in marriage to her son as a nod to her xx