09-12-2018 10:21 PM
Keeping your feet up is a good idea Reddi- I’ve probably mentioned it before but I had to moisturise my feet without rubbing too hard then wrap them in cling film before putting them up! It did seem to help but I was meant to do it three times a day which was impractical!
I remenver - your chemo was new-adjuvant wasn’t it so Its good they are getting on with surgery now.
I really will be thinking of you, I will lose my nipples on both sides as the remaining cancer cells were found underneath the one on the right and they have to cut around where my previous scars are anyway so the nerves won’t survive. I don’t remember having an ECG before surgery but I did have one prior to starting chemo. I really will be thinking of you on 13th. Take Care and hope your hectic week is not too stressful xx
09-12-2018 07:36 PM
09-12-2018 07:02 PM
08-12-2018 05:13 PM
Great news Reddj, ill have everything crossed for good results all round so you get to keep the nipp!e!!! Youve made me intrigued... Whats the no present plam? No presents for anyone orminimal or what?? Sohnds interesting... Ive not finished my shoppjng as yet so some might not grt one anyany!!! A few years back my SIL and brother and myself and OH all decied to only spend £5 on eaxh orher,.... Its actually good fun seeing what you can get!
Sending festive wishes to you too
08-12-2018 12:15 PM - edited 08-12-2018 01:42 PM
@cdc Brava on speaking out at the conference. I am glad to hear that you are hoping to participate in future panels -- even while you are still undergoing treatment. 🙌
And... 🥁🥁🥁🥁 My surgery date has been set: this Thursday, 13 December! (Assuming my bloodwork shows that my immune system is adequately recovered.)
I am going forward with WLE on left and nipple-sparing mastectomy on right with immediate reconstruction using a prepectoral implant. If the tissue sample from the nipple on my mastectomy side comes back positive for cancer, then I'll have the nipple removed but keep the areola and the implant. If I'm one of the one in ten whose implant doesn't take, then I'll have to have it removed; there are a range of options at that point, and I've decided to wait to consider which option to take only if I face that situation. The left side is trickier, should the surgeons not get clear margins: my gut is to do a re-excision rather than go straight to mastectomy, but I may feel differently on the other side of surgery. So I'm going to wait and see for that, too. Right now, the plan is for radiotherapy on the left only, but that might change when we have the results of the pathology report after Christmas. Best news: I'll only have drains on the mastectomy side. Hurrah!
@Kip et al. I'm not sure when I'll start hormone therapy. Soon, I hope. Although the side effects of tamoxifen etc. are daunting, hormone therapy really is the best treatment for reducing risk of recurrence if you are ER+. (As far as I know, I wasn't tested for hormone levels before starting chemo either.) I was told early in the process that the newest research is suggesting that extending hormone therapy beyond 10 years probably makes sense for women who are younger when diagnosed; but 10 years is a long time, especially in medical research. Who knows what new studies will find about the mix of tamoxifen versus AIs, or what new and improved drugs might be developed.
@cdc When you got the blisters on the soles of your feet, at what stage in your cycle did they show up? I strangely developed blisters across the ball and heel of both feet on Monday (day 18 of cycle 7), worsening and sliding up the side of the foot that has some ground contact on Tuesday, receding slowly from Thursday. It seems so late to be getting a brand-new side effect, but I actually did less walking in cycle 7 compared to earlier cycles, and I'm not one to get blisters on my soles. I've been trying to keep my feet elevated and moisturized, which may be helping. I'd planned to ask the oncologist and/or chemo day unit nurses about it -- but then my oncology appointment got moved from this past Wednesday to this coming Wednesday, and somehow, nobody wrote my prescription for my first Herceptin injection. So my CDU appointment for that had to be moved to this Monday. By the time I see anyone, most of my blisters may be calluses.
Looking forward to the busy week ahead at the hospital: Herceptin injection Monday, more bloodwork Tuesday, oncology and ophthalmology Wednesday, surgery Thursday morning, discharge (hopefully) Friday evening.
Then 🎄! I overdid it this week and got a wee tree with my blistered feet, since that and some roast chicken thighs will be our celebration this year. (OH isn't a cook.) We've decided this year is the year to finally try our experiment of no gifts. (My parents and SIL have not agreed to this experiment, and it didn't make sense to insist on it.) There will, however, be chocolates.
I know many of us will be super busy over the next couple weeks, so taking the chance now to wish y'all a warm & wonderful holiday and an abundance of good health & happiness in 2019!
08-12-2018 11:45 AM
CDC Did they say if the reconstruction would be effected by radiotherapy if you need it? I start radiotherapy on the 17th for 4 weeks. As my tissue is dense it should have less effect but probably not the case if you have had reconstruction. I went to an open evening so saw behind the scenes of the radiotherapy department. Glad that you are happier now with how things are progressing.x
08-12-2018 09:27 AM
Hello Clare, glad to hear you are moving forward in terms of next steps. Intersting that you had a blood test to ascertain your menopause status... I never had anything! I know how you feel about taking the tamoxifen. I stared at the box and read the leaflets over a d over before committing. I take mine at about 9pm as i tthought if any major side effects i may sleep through them. So far i am gettjng the odd hot flush, probably no more than i was during chemo, odd one during the night but not extreme. I also have the aches and pains which can be attributed to chemo SEs but also menopause and tamoxifen. Ive read lots of threads on here where women are having the aching since being on tamoxifen so its hhard to work out what is causing it. I am taking magnesium and zinc supplements as advised by my Onc nurse and the aches are definitely improved. Apart from that no other problems so far. I have read that some people find different brands effect them differently so its a bit of a wait n see i think. Enjoy your nights out before you start then uou can enjoy them without worrying.
07-12-2018 09:05 PM
07-12-2018 09:28 AM
Hi KTK, so far so good with me, only had 6 so far though. No soreness or itching but my arm on that side is very stiff and gets quite tight, so interesting you say you've had to up the stretching too. Sometimes I get tightness right down to my wrist on that side and have to really stretch it out... I think I am going to pop into the Breast Clinic in Monday after Rads to see if someone can check it out for me, the seroma seems a bit larger too and that was really disappearing before rads started. Otherwise its ok, bit tiresome and I hate being back in the hospital amongst all the signs for cancer etc... just want to be out in the real world and trying to forget (wishful thinking). I'll check I have some piriton ready in case I need it then.
SallyG - what a disappointment with the prosthesis. I'm going to attempt to get one after xmas when Rads are complete, although I am quite comfy with the Knitted Knockers but would like to see what a proper one looks/feels like. Frustrating for you to be over looked for the mammogram too, bloody nightmare, just what you don't want.
06-12-2018 11:02 AM
06-12-2018 10:35 AM
05-12-2018 09:30 AM
Thanks Shi.. still no dancing in the rads lounge but I think I am about 20 years younger than everyone else there.. bit weird really. I got to know all about the man next to me's bowel cancer.. never thought I'd be doing that this time last year!
CDC - You just popped up on my Facebook page.. . I joined the facebook page for Breast Density Matters yesterday... how did it go! You look great by the way!
Rads No 5 today, all going well, no problems so far. Aches and pains still with me but I think they are improving slowly.. either that or I am getting used to them. Either way I'm feeling ok at the moment. Unfortunately my OH has a colleague whose wife is starting chemo today for breast cancer.. she is so scared but not happy to talk to anyone about it at the moment..I've been sending him tips and this site too and he's reading up for her. Poor lady is in denial about the hair loss and the hospital have advised her to cut her hair short asap before it starts going. Sadly her 2nd FEC will take place on Christmas Eve... how unfair... It brought it all flooding back to me.. that first trip to chemo...she's having FEC-T x 6 and is HER+ too. So thinking of her today and re-living the chemo..
04-12-2018 09:14 PM
04-12-2018 09:27 AM
OMG that is fab CDC... daunting I can imagine but very important and like you say there will be others in the same boat.. I can just imagine you all having a little siesta half way through. Sorry to hear the neuropathy is still being a pain (literally)... I imagined I would finish chemo and bounce back... seems it doesn't work that way. I did some searching and reading on this site yesterday regarding Tamoxifen and its side effects and there are so many women all having the same aches and pains as me and all on Tamoxifen too, it has to be that and the induced menopause that does it. Apparently you need an amount of oestrogen for your joints/muscles and when they suppress it, you can suffer the aches and pains. Not sure how you address it though, some ONCs seem to agree with it some just say its not related. A friend told me that she knows of ladies who suffered this way and it settled after a few months, so I am going to try to continue with the Tamoxifen for a while (haven't even had it a month yet) and also give the chemo and rads time to leave the system and then address it. Apart from the aches and pains I feel fine really, I'm sleeping better, still waking up like a 150 year old but at least getting some sleep. I think the Epsom salts do help a bit, they certainly relax me and get me ready for bed if nothing else. I am also taking Magnesium, Zinc and Vit D to see if that helps, and somebody suggested glucosamine but I need to get these checked to see if I can take them with Rads. The chap doing mine yesterday didn't know but is finding out for me. So far Rads have been easy, no pain or soreness yet but expect that builds up. Its just so time consuming going back and forth to the hospital and I haven't even done Xmas shopping yet.. not sure when I can fit that in eeek!
Let us know how the conference goes...
03-12-2018 09:19 PM
How did it go today Kip? So sorry you’re still so achey. Do you think the Epsom Salts help at all? I was so desperately tired yesterday and for some bizarre reason my neuropathy is back and making walking for any distance more of a challenge. I think I’d underestimated how much I’d still be affected with SEs now my chemo has stopped.Was going to try and take it easy tomorrow but got invited Cheryl Cruwys co-founder of Breast Density Matters to take part in the Britain Against Cancer conference tomorrow. Gulp! Feeling daunted but excited! There will be other people going through treatment there so I presume the organisers will understand if we all end up having to sit down and have a nap!
How is eveyrone doong at the moment? Thinking of you all xxx
03-12-2018 09:38 AM
Ha ha Shi, perhaps I can enlist the prostate pals too! Got a full week of Rads this week, first one at 2.45pm today... still feeling ok with it, just these aching joints... omg... don't think I can do a good dance to Push It.. more like... "Achy Brakey" by Billy Ray Cyrus!
02-12-2018 08:52 PM