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Re: June 2018 Chemo Starters

@Shi Thanks! But ages til I actually start rads -- don't finish chemo til early Dec, then surgery, then recovery, then rads in Feb/Mar(?). But I like to plan ahead.

Shi Community Champion
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Registered: ‎11-10-2017

Re: June 2018 Chemo Starters

Hi kip meesh on oct17 thread that I was on has the knicker magnets, i’ll Ask her to pop onto this thread 😘😘reddi, glad you are feeling 💪💪💪about rads, keep hydrated and pace yourself and extra points for those who can get their club members up dancing while you wait (you’ll get a little club because you’ll have them more or less same time every day) 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻💃🏻 Club Tropicana awaits 😁😁😁💕💕💕✨✨✨Shi xx
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Registered: ‎12-06-2018

Re: June 2018 Chemo Starters

Hi Ladies,

I’m from the September thread but was just looking at your comments below re menopause.  I had a partial hysterectomy 9 years ago & started with menopausal symptoms a few years ago.  I thought I was past that but having started chemo, the night sweats have come back with a vengeance.  Until tonight, I had never heard of the magnet thing, but I have bought a cool pillow.  It’s effectiveness is limited. It’s ok at the beginning of the night if you can stand the faint smell of rubber, but it does warm up during the night & gets a bit sticky. I’m always willing to try anything, but maybe you don’t need to spend too much on one - mine was from Boots by JML.  

I did however try the tip of using 1/2 an effervescent vitamin c tablet before going to bed - just let it melt on your tongue.  I didn’t have my first hot sweat till 4am which is a result for me.  Also they’re great for helping with normal thrush, so results all round.  

Best of luck with everything x

ktk
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Registered: ‎02-04-2018

Re: June 2018 Chemo Starters

Great news Kip😁
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Re: June 2018 Chemo Starters

[ Edited ]

@RedRose Ouch. I hope that if any of your nails do come off, it's at least less painful, and that they grow back swiftly. 

 

@Georgie Gee I'm taking note of Sally's retort, as I can't think of anything cleverer or more satisfying to say in response to such an unthinking question. I also enjoyed the Titty Gritty blog post that @Linda mentioned. (I guess one upside of having most of my friends and all of my family in the US: most of the time, my support network is weighing in by email, so they have the luxury of rereading before hitting send.)

 

How did your Herceptin injection go today? Are you feeling better about radiotherapy? I know I feel better about what lies ahead for me on the RT front after hearing from Shi and others.

 

@Sally You are amazing. I've been trying to work throughout, but docetaxel is kicking my arse, to use the native parlance. (Is "arse" okay to say on the forum? Or should I be asterisking it out? I truly don't know.) I am in awe that you only missed your chemo days! (And jealous!)

 

@Kip A p.s.: How's your (suspected) seroma? Is it going down?

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Registered: ‎29-06-2018

Re: June 2018 Chemo Starters

[ Edited ]

@Kip Congratulations on your results! You must be thrilled. A bit startling to hear that chemotherapy can frazzle the lymph nodes, however... No one mentioned that this might happen before I started. Good luck with the radiotherapy planning -- it sounds like you will be done with RT just in time for Christmas, which is lovely. FYI, I've heard that your period might restart up to 12 months after finishing chemotherapy; after that point, it's very unlikely that it will restart again.

 

A magnet in your knickers???? The first thing I thought: another barricade to bedroom antics! A quick little bit of googling has me quite skeptical: https://www.healthline.com/health/menopause/magnets-for-menopause#does-it-actually-work

 

I have heard acupuncture can help with hot flushes, and meant to mention that side effect before my session on Tuesday at The Haven in London. I'll have to remember to mention it next time. (They offer a few sessions for free, so I'm trying it. Seems to help with my tingling hands and feet for a few days -- placebo effect, sensory distraction, acupuncture actually working? Who knows. Hot flushes would be a real test.)

Member
Posts: 688
Registered: ‎03-04-2018

Re: June 2018 Chemo Starters

I've heard of them but can you imagine if that fell out on the 8.01!!

Great that your nodes were clear. Onwards and upwards to rads.
Kip
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Posts: 914
Registered: ‎27-04-2018

Re: June 2018 Chemo Starters

Hi all, just thought I'd drop in to let you know I got the results of my ANC today and all the nodes were clear!   Aparently I only had 4 nodes.. seems weird... but apparently the chemo frazzles them sometimes so thats all that was left.   I now have a CT scan on Tuesday for planning the radiotherapy and then 3 weeks of radio to follow, starting about 2 weeks after.   Also have to start Tamoxifen for 10 years!!  Not looking forward to that but I'll do whatever it takes to beat this thing.   Doctor said that I will in the menopause now and if I get any periods I have to let them know so that they can stop my ovaries from working.   I also asked about future monitoring and she said I will be called for a mammogram on the 1 year anniversary of my first surgery (so May 2019) .  I mentioned the fact that I was told my breast tissue was dense and shes said that Tamoxifen and chemo will have altered that but to mention it at mammogram and they may do an ultrasound!  

The nurse mentioned hot sweats (as I am having some already) and has offered accupunture if they get too bad, also given leaflets for a magnet you wear in your knickers to help with menopause and a cool pillow thingy too!  More bedtime reading for tonight.. anyone heard of these?

 

Kip

xx

Member
Posts: 338
Registered: ‎05-05-2018

Re: June 2018 Chemo Starters

Hi all,

There is a blog on the Lorraine website called Titty Gritty which is about someone who had a mastectomy and what not to say to someone who has cancer etc. It's quite funny too so may be of interest.

Much love,

Linda
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Re: June 2018 Chemo Starters

Hi,

Georgie, anyone asks about your prognosis just tell them you'll live longer than them especially if they don't stop being so bloody nosey! Re the rads, as someone who has, at various times done a few sugeries, rads and chemo I'd say the rads was the easiest of the lot.

All you ladies with nail problems have my sympathy, they look really sore. Luckily for me my regime didn't affect my nails at all. I'm bad enough when I break or rip one low down on my finger Smiley Sad

Saw my ONC today and have my letrozole to start tonight and he's doing the referral to Guys for the MonarchE trial and they will also do my Zometa infusions. He's also given me an open ended appointment to see him any time I feel the need so I just have to phone. Last couple of appointments I'd not seen him and the first thing he said was "you managed to keep most of your hair then" which hopefully means it looks better than I think it does. He asked if I managed to work all thru chemo as we'd discussed it my 1st appointment with him when I told him I'd only had chemo days off he said one word "amazing " which was a bit of a boost. Got him to check my scarring cos I seem to be getting stiffer and still can't lie comfortably or sleep on the side I had the mastectomy and node clearance. He said its fine but unfortunately I have a lot more numbness than they'd normally expect and at this stage it won't improve so I'm stuck with it.
LJ
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Posts: 61
Registered: ‎12-06-2018

Re: June 2018 Chemo Starters

Ooh they look painful. Is there a new nail growing under your thumb can you see?

 

LJ

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Posts: 338
Registered: ‎05-05-2018

Re: June 2018 Chemo Starters

Redrose mine were the same. 6 have come off so far and I think 2 more will. I used dark varnish and sun cream so very annoying. I stopped 3 weeks after last chemo. I cut off the bits hanging off as much as possible and am using nail strengthener now.
Linda
Kip
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Registered: ‎27-04-2018

Re: June 2018 Chemo Starters

Ouch they look painful!  I wonder if mine will do that as they have that ridge bit too.  Not very useful tips from chemo unit though. 

Kip

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Re: June 2018 Chemo Starters

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Re: June 2018 Chemo Starters

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Re: June 2018 Chemo Starters

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Re: June 2018 Chemo Starters

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Re: June 2018 Chemo Starters

Suggestions from chemo line. Just keep doing what your doing, keeping infection risk to minimium, but how they do not say. Will continue not to wash pots etc and change plasters daily after bath. Just bloody annoying banging them all the time 🙄🤬😖. Will upload some picture to show you what I mean xx
LJ
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Posts: 61
Registered: ‎12-06-2018

Re: June 2018 Chemo Starters

RedRose, I'm starting rads on 26th November too, busy sorting out various chauffeurs to take me each day so DH doesn't have to do it all, especially with it being such a rubbish journey. 

 

Feel for you with your nails not being stable, must be so awkward. Hope your unit has some helpful suggestions for you. 

 

LJ

Kip
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Posts: 914
Registered: ‎27-04-2018

Re: June 2018 Chemo Starters

Oh Red 🌹 your poor nails, must make things difficult.  I havent got a date for rads yet am hoping tomorrow i may have some idea though.  Enjoy the circus havent been to one in years and dress shopping .. very exciting!  Enjoy it all and dont think of this crap for a while if you can!