Kip
Member
Posts: 914
Registered: ‎27-04-2018

Re: June 2018 Chemo Starters

Morning all thanks for your good wishes.  Manages some sleep lst night but get woken every 4 hrs for obs then for so me reason morning starts at 5.45am...  on goes the lights and i get my IV drugs so thata sleep done.

Shi your posts always make me smile..  ill 💃💃💃💃💃 round my room !!  If you pass my errant neuts whikst on your flight could you ask Captain Costa to send them back p!ease.🛬🛬🛬

Georgee how long did yoj have to stay jn?  I am near the nurses station so noisy here too!!!  I have ear plugs now tho.  Woke up this morning with worse thrush tongue again... Feel like i will never taste again!

CDC ans ktk how are you doing?  My hair is definately fluffy now altho still white..  and a!so .ade a major discovery last night (very boring jn here!!) ..... I now have hairy toes... What???  Why??  Whats happening.. not a good look!!!😕

Member
Posts: 692
Registered: ‎25-03-2018

Re: June 2018 Chemo Starters

Wishing you the speediest of recoveries Kip! Hope you’re out of there soon and can go and celebrate with your son,  Huge congratulations to him,  What a star!  

Sending hugs and positive wishes xxx

Shi Community Champion
Community Champion
Posts: 3,246
Registered: ‎11-10-2017

Re: June 2018 Chemo Starters

Kip 😘😘sorry you are sheet testing in casa nhs darling. It does send you 🤪🤪🤪🤪being in but knowing you are in the safest place while neutrophils are over in Florida keeps you 💪💪💪💪girls the famous neutrophils 💃🏻💃🏻💃🏻🕺🕺🕺🕺💃🏻💃🏻💃🏻💃🏻💃🏻That the may17 girls all did for each other when casa nhs residents called for so come on get your gal outta there ladies ❤️❤️❤️ You can do it kip you are a 🤸‍♀️🤸‍♀️🤸‍♀️🤸‍♀️Kick ass kinda gal 💕💕💕✨✨✨Shi xx
Member
Posts: 116
Registered: ‎30-06-2018

Re: June 2018 Chemo Starters

Hi Kip and everyone... 

i just popped on here as I find it helpful to see how people are doing further on in their journeys.  I have been following yours Kip, as I am on FEC T plus  Herceptin, but no hormones involved.  Had 2nd FEC today.

My advice from being in hospital for any of you is:  get some good earplugs, they are a life saver!  Or in their absence, put your own relaxing music on your phone or tablet, and put your ear phones in to shut out the noise.  I was put next to the nursing station in isolation, so it was incredibly noisy all day and night.  

I pray that your neutrophils score shoots up very soon, and that you will escape colditz! 

No one knows until being in hospital how scarey and lonely it can feel, and it can seem like a prison.  Bless you. 

Big hugs 🤗

Georgie Gee ❌

Kip
Member
Posts: 914
Registered: ‎27-04-2018

Re: June 2018 Chemo Starters

Just been told still at 0.1 grrrrr

Highlighted
ktk
Member
Posts: 558
Registered: ‎02-04-2018

Re: June 2018 Chemo Starters

Oh Kip, what a tough ride. Well done to your fab son. Look how well he has done, obviously taking strength from his brilliant mum! The end of your road on this hideous journey is in sight and he is in a great place to start his journin spite of it. It is incredible what gives us strength. Get well soon and get home to him!! Lots of love Kxxx
Member
Posts: 266
Registered: ‎22-05-2018

Re: June 2018 Chemo Starters

Oh Kip, sorry to hear you’ve been admitted. Sending all best wishes to you for a speedy recovery.
Jacq x
Kip
Member
Posts: 914
Registered: ‎27-04-2018

Re: June 2018 Chemo Starters

Well hi ladies, sorry ive been quiet but currently languishing in Casa NHS!  Temperature was 38.2 yesterday rang hotline and got sent to A&E for few hours.  Now isolated in a room until they come back up.  Habing iv antibiotics but they are still 0.1.  im so fed up, mh son got his gcse results todsy and i couldnt be there.. so shed some tears.  He passed them all tho so immensely proud.  Bloody bc takes all mh precious moments.  Im hoping to see onc tomorrow to see if j can have injections to boost cells.

Im glad to hear you are all doing well, look after your mouths girls mine still hurts.  My room is underneath a dementia ward so the screaming and shoutjng from one oftheir patients continues through out thd night, its so sad to hear a grown man screaming for his mother.

Take care ladies

From colditz

LJ
Member
Posts: 61
Registered: ‎12-06-2018

Re: June 2018 Chemo Starters

I had a good night - went to bed at 11pm and woke about 7.30am, with a couple of wee breaks through the night - one of the drawbacks of copious amounts of water!

 

Steroids takens, just making breakfast now - porridge and plum compote. I've already unloaded and reloaded the dishwasher and tidied round the kitchen and walked the dog.  Making the most of the cooler weather and feeling not too bad, which I'm sure won't last.

 

I think with the injections, it's luck of the draw with the approach the Oncology unit takes. So this time I've got three days of steroids, last one today, no Ondanstreton only Metoclopramide if I need them and the blasted injections. They've given me muscle ache over the last cycles and the Oncologist warned me that the T aches hit about the time you start taking the injections so I'm expecting a double whammy!

 

Hope your days are good ladies and side effects minimal. 

 

LJ

 

 

ktk
Member
Posts: 558
Registered: ‎02-04-2018

Re: June 2018 Chemo Starters

Yes that sounds right Sally. Not even made 2am!! Kxx
Member
Posts: 686
Registered: ‎03-04-2018

Re: June 2018 Chemo Starters

It's not injections Cdc, it's infusions and it only for post menopausal women as far as I can make out. Onew every 6 months for 3 years is nothing so no hassle at all really.
Member
Posts: 692
Registered: ‎25-03-2018

Re: June 2018 Chemo Starters

Will definitely check out moving my chemo day so I can do the cooking course.

Sorry to hear you’re needing more injections ktk, LJ and Sally. How do they decide you need them or will we all get them on T? Hope you all manage to get a good nights sleep.

Hugs to everyone xxx
Member
Posts: 692
Registered: ‎25-03-2018

Re: June 2018 Chemo Starters

Lisa Marie Thanks so much both for the info re the mouthwash and especially ideas for places to purchase mermaid items. The tail is amazing! X
Member
Posts: 686
Registered: ‎03-04-2018

Re: June 2018 Chemo Starters

Yeah that's the one
ktk
Member
Posts: 558
Registered: ‎02-04-2018

Re: June 2018 Chemo Starters

Bisphosponate!
ktk
Member
Posts: 558
Registered: ‎02-04-2018

Re: June 2018 Chemo Starters

Is that the bid phosphate Sally? I will be having that too. Kxx
Member
Posts: 686
Registered: ‎03-04-2018

Re: June 2018 Chemo Starters

So it seems I can also have Zolmeta which is given in 6 intravenous doses over 3 years which helps to protect the bones . Just have to see dentist first to get go ahead cos one of the possible side effects can affect the jaw.
Member
Posts: 330
Registered: ‎29-06-2018

Re: June 2018 Chemo Starters

OMG that tail blanket is so cute! 

Member
Posts: 152
Registered: ‎21-06-2018

Re: June 2018 Chemo Starters

Cdc, the mouth wash was prescribed by the oncologist as he said my mouth was get sore. It’s worth an ask to see if it was suitable for you. As for the mermaid 🧜‍♀️ and unicorn 🦄 items it was mainly primark and w h Smith’s, lovely unicorn bedroom items in Asda, and mermaid ones in matalan atm including mermaid tail blanket and duvet cover xx https://www.matalan.co.uk/product/detail/s2678596_c323/mermaid-tail-blanket-pink?gclid=Cj0KCQjwk_TbB...
Member
Posts: 692
Registered: ‎25-03-2018

Re: June 2018 Chemo Starters

I was dubious at first Jaqu so can totally understand your concerns. I’m pretty needle phobic but these are so tiny I didn’t fell a thing. It’s certainly not for everyone! Hoe you can find something else that helps instead. X